Don't cure autism now
mcewen
Yellow-bellied Woodpecker
Joined: 8 Nov 2006
Posts: 65
Location: San Jose in jolly old California
Take a look at the site http://whitterer-autism.blogspot.com and then tell me that they are not the most gorgeous people on the planet.......maybe I'm a little biased. best wishes
You can see exactly what I mean. So with that conclusion, I have to say that cure groups are nearly as bad as hate groups in the way they promote their cause; even though their intentions are somewhat different and might not be purely hateful.
Sorry if that's extremely offensive, but I call it as I see it in reality.
It's harder to get them off the kick when they believe that they are doing good for their victims.
Stinkypuppy,
Hopefully, you agree with me. You seem to disagree.
Anyway, at this point, I would doubt anyone saying I didn't have aspergers. I fit the profile PERFECTLY.
My "stimming" is of the nature that various sites, etc... say is COMMON in normally developing kids. I just tend to present it a bit as an adult. Why should I care? Somehow, my mind is mapped kin of odd, and I have more general intelligence, and less social.
That kind of mismapping is actually COMMON with certain external triggers, over/under use of certain areas, or brain damage in younger people. It is WELL documented. SO, it is obvious how the biggest bad thing, and most of the benefits occur. I still don't understand the skewed senses. That DID make me feel at times like I was from another planet. Maybe that is how this site got its name.
SO, I would love to have a better grasp on the social aspects, and others SHOULD have the same sensory sensitivities, but otherwise, I am FINE with this!
The other things may be coincidental for all we know. Maybe there is a common trigger, or some incompatibility. WHO KNOWS?
BTW determining IQ IS difficult. They can't test all the knowledge a person can have.
Steve
Hopefully, you agree with me. You seem to disagree.
Anyway, at this point, I would doubt anyone saying I didn't have aspergers. I fit the profile PERFECTLY.
My "stimming" is of the nature that various sites, etc... say is COMMON in normally developing kids. I just tend to present it a bit as an adult. Why should I care? Somehow, my mind is mapped kin of odd, and I have more general intelligence, and less social.
That kind of mismapping is actually COMMON with certain external triggers, over/under use of certain areas, or brain damage in younger people. It is WELL documented. SO, it is obvious how the biggest bad thing, and most of the benefits occur. I still don't understand the skewed senses. That DID make me feel at times like I was from another planet. Maybe that is how this site got its name.
SO, I would love to have a better grasp on the social aspects, and others SHOULD have the same sensory sensitivities, but otherwise, I am FINE with this!
The other things may be coincidental for all we know. Maybe there is a common trigger, or some incompatibility. WHO KNOWS?
BTW determining IQ IS difficult. They can't test all the knowledge a person can have.
Steve
Hmm, I don't see anything in your message that I disagree with, SteveK. However, when I talk about the biological basis of autism, I mean more than just whether certain parts of the brain are overused/underused, and more than just "brain damage." I'm talking on a molecular level. All we might know about is the parts, but how exactly does overusage/underusage of the brain parts result in the various phenotypes that we see? That's the part that scientists do not understand yet. Also, it would seem that there is a genetic component to autism, but we do not have any definitive autism genes discovered yet. And it's so darned difficult to study polygenic inheritance of human disorders (for lack of a better word) with variable expressivity. So I do agree with you, it's just that there is still a lot more that remains to be understood.
Oh, I haven't yet mentioned anything about IQ, but that's primarily because I wouldn't use it in any argument as evidence for anything. IQ measures only a certain type of intelligence, if even that, and of course there are many other ways that a person can be "smart."
mcewen
Yellow-bellied Woodpecker
Joined: 8 Nov 2006
Posts: 65
Location: San Jose in jolly old California
Attractive as it is for some people (primarily because of how much it simplifies matters to think of things this way), I don't think that the "LFA = autism + MR" equation works. At all. On several levels (including assuming the true existence of something called LFA, which has been called into question by science -- and also including the totally inaccurate presumptions it tends to make about both people with MR and autistic people). It does, however, make it a lot easier to give simplistic answers to things, such as "Cure the MR, not the autism" (never mind plenty of people labeled with MR don't want a cure either and are quite vocal about it), or, "Well that person's problem isn't autism, it's MR. Obviously. Because they can't do IQ tests very well."
It also creates a neat little category to either, shunt people like me into if we don't prove what we know, or else, claim we never belonged to the category to begin with if we do manage at some point to prove what we know.
_________________
"In my world it's a place of patterns and feel. In my world it's a haven for what is real. It's my world, nobody can steal it, but people like me, we live in the shadows." -Donna Williams
There's a bit of arbitrariness (is that a word?
As the father of an autistic four year old, I have very mixed feelings about the article posted at the beginning of this thread.
As a parent, I want nothing more than for my son to be healthy and happy. Fortunately, his health is not in question, so my wife and I have worked for the last two years to make sure that he can successfully function as an autistic person in a non-autistic world.
OK, now to get to the point- I do NOT want to change who he is. At one point, a 'cure' would have seemed like a welcome miracle, but now that his speech and communication generally have improved, I realize that perhaps the best thing for him is to treat the deficits that put him most at risk for long-term life problems and to foster his unique talents so that he will be in the best position possible to decide for himself how to live his life (when he's 18!! !).
Welcome to the forum! You must be a new member!
"Cure Autism Now" is a group of people who speak against that and don't cure autism.
I once posted a message on this forum stating the name and e-mail address of someone who I thought would be a great addition to this forum, but I shouldn't have done that.
mcewen
Yellow-bellied Woodpecker
Joined: 8 Nov 2006
Posts: 65
Location: San Jose in jolly old California
Well..
Personally the way I've always had to work hard with people has been a struggle yes, but its taught me such valuable lessons, its even helped me develop a love an acceptance for all people.
You can't remove the autistic part of me without removing an integral part of my personality.
_________________
All hail the new flesh, cause it suits me fine!
As a parent, I want nothing more than for my son to be healthy and happy. Fortunately, his health is not in question, so my wife and I have worked for the last two years to make sure that he can successfully function as an autistic person in a non-autistic world.
OK, now to get to the point- I do NOT want to change who he is. At one point, a 'cure' would have seemed like a welcome miracle, but now that his speech and communication generally have improved, I realize that perhaps the best thing for him is to treat the deficits that put him most at risk for long-term life problems and to foster his unique talents so that he will be in the best position possible to decide for himself how to live his life (when he's 18!! !).
You will get further if you treat him as a real person who, as a four year old child, has needs that must be met, not "deficits" that must somehow be "corrected." You may or may not be seeing his own decisions in a negative light, but he needs the power to make decisions that are binding even when you don't agree with them. A person who is constantly corrected before he implements any decisions becomes someone who continually second-guesses himself and takes a long time to make a decision. This is fatal when driving a car. He has to have room to make mistakes before he is old enough to have to have to handle driving, using power tools, making home repairs, and so on. If he doesn't he won't learn. This goes for anyone.
It may be harder for him to learn some skills, but it's time to start asking yourselves and him what it will take to identify the skills that he needs to learn and what it will take for him to learn them. He doesn't need a lot of pressure when he is four years old, but he can make it a goal to understand how to modulate his voice, how to be mannerly around people, how to ride his bicycle safely, and what traffic signs mean. If he can decide to be good at all the different life skills, he won't just be a high functioning autistic, someone who people expect less of even if his functioning is the highest, he will be a high functioning human, period.
Let him do his regressions when he has to. Let him get his rest when he needs it. Any person needs time to compose himself. That's why breaks are mandatory at workplaces.
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