Don't cure autism now

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Interesting. What would you have done to make the problem better?

Does this problem cause blood to leak into the chest cavity?

Well, I HAVE admittedly been talking about people with AS that were similar enough that, even HERE, they wonder if they belong. Few, or no, tics, verbal communication problems, etc... Heck, if you saw me, or heard me, you'd wonder why I am here. Yet I certainly am different, and it isn't just in my relatively hidden lack of social skills.

One girl here acted like she had lots of problems, With a little work, they could all vanish, and may even vanish just over time. In the end, she may end up having something to just laugh about, and be happy for it all.

I'm sure NOBODY would argue against curing "fragile X", and similar problems. The TICS, and lack of verbal capability are certainly bad. Look at the term autism, etc... and you'll find that wasn't the main deal.

BTW You'll notice I said TICS. I don't know why, but the idea of stims don't seem that bad, etc... The method, theory, and description almost seems like a kind of pacing. Most seem to be relatively subtle. Again, nobody pointed mine out. Drowning Medusas seemed overly complex, etc... but, when pressed, she seemed to indicate THEY were subtle. And HEY, it is almost like tapping to the beat of music. Not distracting, maybe comforting, and voluntary.

Steve

Sorry about that Steve, that was a mis-interpretation there. It's probably because of your uses of capitals, making it seem like you're shouting or overemphasizing what you're saying, which is most likely not the way it's intended. I apologize for my mistake. I prefer using italics to capitals unless I really want to emphasize what I'm saying.

I would have kept my own distance, changed hours to get more done in less time, etc... I even told my boss that 9-3 was my best time. I would have made concessions, etc... Heck, my mother once got involved with some health care thing, and got sick. She INSISTED on hugs(I saw no sense, etc, but capitulated), I ended up getting a nasty cough, and found out we had both been exposed to TB. THAT could have been the trigger!

ALSO, I would have been less tempted to move away from califonia, etc.... Less stress and more control.

NO, this was my AORTA! a little pin prick could have caused blood to spray all over, and I would have been dead in MINUTES! I had the operation to replace that part of my aorta before it totally split. Once it splits totally, you are basically DEAD!

Steve

Well, I asked because I didn't know. I need my heart looked at but I hate being messed with and I don't have medical insurance.

I wouldn't know that a pinhole in the aorta would do that unless someone who did know told me.

Sorry if I overemphasized.

I actually called 911 for myself. 8-( You don't generally find this in a checkup, because it happens so fast. If a GOOD doctor checked MANUALLY, or I had something like an echo cardiogram, they COULD have maybe found the bad valve earlier. Alas, most people don't know what to listen for, and most tests are automatic. 1 in 5000 cardiac problems is like mine. Most of the rest are myocardial infarctions.

BTW at least if you are in the US, get SOME sort of insurance. It turns out there is a SCAM in the industry. They will charge you typically twice what they would if you had insurance.

$100000 charge without insurance means you pay $100000

$100000 charge WITH insurance and it may be lowered to $50000! If the insurance pays 80%, they pay $40000, and you pay $10,000!

Steve

What if he is happy?

Arent you doing the same thing by not being able to see beyond yourself and your viewpoint? You try to imagine yourself in their position and consider how they feel based on how YOU think and would feel and your personality.

But they are not you.

An NT living my life in my condition would hate it.. without years of training they would barely be able to function.

But for me I like it just fine and I wouldnt change a thing. Im happy Im content if I wasnt interested in communicating so didnt speak and you just assumed Im unhappy because you believe you would be in my position your being self-centered.

What gives you the right to decide if the way another person thinks, feels, and lives their life is "correct" and whether or not they need to be "cured"?

As others have stated choice is all good and well but none of us will really be given a choice if there is a cure developed.

There are no laws against murder of personality and identity.

If some random person runs up to you in the street and injects you with the "cure" its questionable whether or not they would even be charged with assault. If it was forcibly done by health care "professionals" or the government people would cheer like the ignorant buffoons they are.

One cannot speak of a choice in cures at the same time pointing to a person who isn't communicating (to an NT) and say they deserve a cure. If they are not asking for a cure, they are not asking for a cure. If they don't and their parents "choose" to give them one, then it's forced.
Willow, you still didn't even respond to the list of cures and treatments that are already forced on people present day. Why is this? You keep referring to a futuristic cure that doesn't exist yet. And then accusing us of speculating on this future circumstance. But we are not speculating when we cite present use of force on autistic children and adolescents.
If you are truly seeing "both sides" like you claim, then you could at least discuss the very real day to day events.
I agree with Fraya when she says that you don't know what the child is thinking or feeling. I had to find a way to teach my son to communicate, because he was nonverbal. That's how I find out what he is thinking and how to better teach him.
There are people here and elsewhere that had years litterally wasted with being cured. You can only really concentrate on a few things at a time. When the adults are only focusing on the medical/pathological aspects, how can they love and teach and nurture?

I certainly don't agree that I'm looking at the issue in my own personal life. I'm modelling success stories from adults that have walked this path before.
You can't assume these things, you either haven't read enough or just choose to assume things about people that you don't understand. The very thing you're accusing people of.

I say don't cure autism now!!

I've said this before and I'll say it again:

My main concern is CAN/FAN/DAN will slide into a bogus cure like the 'cure' that was used for Judaism in WWII. ((Sorry if this offended anyone, it was just what I could think of first.))

I think willow has given a justified opinion based on what she know. Remember, she only took a little glance at this boy, but just be thankful she wasn't naive enough to think 'Oh my goodness, this is the only way this boy feels, how can he be happy?'. We are all right to think that it is up to the individual to decide whether or not they would like a cure (no matter how high or low-functioning they are, I could add). I think the reason why willow is using the 'dream cure' as an example is because currently, none of the cures around now, as far as I know (and I don't know a lot), don't work as much as would be liked. I don't know what the cures are or what they do, but I have gathered that none of them work anywhere NEAR as our wonder cure does.

I'll just copy what you said, because you said it better that I did. thankyou.


amazingly, somehow while I am trying to say that a "live and let live" idea should be flowing, and not the "screw the people who want to cure us!" idea that seems to be rampant, I get labled as being against one thing and for something else. *shakes head*

and the implication that my attention for my children and their needs is lessened by my activism is not only assinine, but DAMNED INSULTING. (that was to you, KimJ)

You're welcome! (I've said this time and time again, but... Not bad for a 16 year-old, eh?)

Okay, I'm reading my statement and I don't know how you gleaned this from it. at all. I don't imply anything and I'm really not sure why you're focusing on something that I didn't even say, while you are still ignoring the things that I did say.
I really try to stay away from subtext online because it turns into a NT battle of "wits", which I can't really handle. I'd rather just address what we were originally discussing in the first place. Of course, I can't make anyone stay on topic.

I found this during a random google search, but it is an interesting report of how social exclusion affect learning. I do not want to be "cured," so much as I want to be accepted. My mom asked me why I refuse to mature...as if I am not trying hard enough to figure things out. You can read the post here. I dunno if it fits in this thread or not, but I think it kind of does, since maybe some of the problems with Autism arise from not interacting with people. (Does that make sense?) (I dunno if it does; I've been up for 3 days writing a paper on the morphing of "public use" into "public purpose" in regards to the structural shift in government responsibilities.

Also--and this is just because it bugs me--ASSININE is really spelled A-S-I-N-I-N-E. It makes me smile when it is misspelled because it makes the person look foolish, and, well, the definition of asinine is, among other things, "foolish." (That's your word play for the day!)