could more be done to support parents of autistic children?
Please vote in my poll, this will be the foundation of a hypothesis for an undergraduate piece of research into autism and the quality of support available
if you would also like to express your own opinions and share your own experiences that would also be great, this will not be used in the research
Thank You
I'm a person with autism rather than an a parent of a child with autism, but I'm going to weigh in anyway:
Whatever level of support parents of children with autism receive, it's more support than adults with autism receive.
There's nothing wrong with your idea, in my opinion - but autistic children and their parents receive the bulk of support from government, charities, etc. - everything. There is nothing wrong with the direction you are going, I'm just saying that if you want to do research on an aspect of autism support that could use some improvement, it would definitely be support for adults with autism. It's as if the world thinks we vanish after we become adults.
Last edited by Atomsk on 07 Jul 2012, 4:21 pm, edited 1 time in total.
Whatever level of support parents of children with autism receive, it's more support than adults than autism receive.
There's nothing wrong with your idea, in my opinion - but autistic children and their parents receive the bulk of support from government, charities, etc. - everything. There is nothing wrong with the direction you are going, I'm just saying that if you want to do research on an aspect of autism support that could use some improvement, it would definitely be support for adults with autism. It's as if the world thinks we vanish after we become adults.
This.
i really wish i could do research on adults with autism and the support they get because it does seem unfair that you dont get the support you need..
my only problem is, i would find it difficult to conduct an interview study with an autistic adult because i dont actually know any adults who are autistic. my little cousin has recently been diagnosed so he will be what i base my research on and my aunty and uncle will essentially be the ones who i interview on their experiences!
my rational for this study hopefully will be that more could be done to support parents of autistic children.. but this is why ive done a poll, because if there is already adequate support available then my research will be dismissed on the grounds that its not beneficial, there isnt a rational and the research generally doesn't need to be conducted
i really do hope that you are getting support though and who knows.. maybe i will conduct research into adults with autism one day! ![]()
You could look for people in your area on here. I know we have a few serious horror stories floating around.
_________________
"Hopeless urchins from the city gather 'round" -- The mountain Goats
Known as hopelessurchin nearly everywhere else on the internet...
Leeds? My father lives in Leeds! I used to visit him in the summer. We'd go to the park to see The Who on Saturdays. >_>
Anyone who gets that reference is AWESOME.
Seriously, though, we have a several members in the UK, and my American brain refuses to accept not being able to cross a country smaller than most states for academic research. =P
_________________
"Hopeless urchins from the city gather 'round" -- The mountain Goats
Known as hopelessurchin nearly everywhere else on the internet...
my only problem is, i would find it difficult to conduct an interview study with an autistic adult because i dont actually know any adults who are autistic. my little cousin has recently been diagnosed so he will be what i base my research on and my aunty and uncle will essentially be the ones who i interview on their experiences!
my rational for this study hopefully will be that more could be done to support parents of autistic children.. but this is why ive done a poll, because if there is already adequate support available then my research will be dismissed on the grounds that its not beneficial, there isnt a rational and the research generally doesn't need to be conducted
i really do hope that you are getting support though and who knows.. maybe i will conduct research into adults with autism one day!
If your cousin is diagnosed autistic, take a real good long look at his parents, grandparents and other relatives. You could very well have undiagnosed cases in there (I would be very surprised if you don't). There are genetic factors to this. Many of us old fogeys came to the realization in the wake of a younger member of the family being diagnosed. Many of us have also been able to look back and see the same traits in our parents and grandparents.
_________________
If it don't come easy . . . .
. . . .hack it until it works right
Aspie score: 142/200 NT score: 64/200
AQ Score: 42
BAP: 109 aloof, 94 rigid and 85 pragmatic
We could just say the parents are adults on the spectrum.
_________________
Cinnamon and sugary
Softly Spoken lies
You never know just how you look
Through other people's eyes
Autism FAQs http://www.wrongplanet.net/postt186115.html
BTW I voted I am happy just so I could see results.
_________________
Cinnamon and sugary
Softly Spoken lies
You never know just how you look
Through other people's eyes
Autism FAQs http://www.wrongplanet.net/postt186115.html
We could just say the parents are adults on the spectrum.
Not all adults are parents.
_________________
If it don't come easy . . . .
. . . .hack it until it works right
Aspie score: 142/200 NT score: 64/200
AQ Score: 42
BAP: 109 aloof, 94 rigid and 85 pragmatic
We could just say the parents are adults on the spectrum.
Not all adults are parents.
Well if they are parents they would need even more support.
_________________
Cinnamon and sugary
Softly Spoken lies
You never know just how you look
Through other people's eyes
Autism FAQs http://www.wrongplanet.net/postt186115.html
We could just say the parents are adults on the spectrum.
Not all adults are parents.
Well if they are parents they would need even more support.
they get support for the children and therefore access to information.
Frankly, judging by my experiences with my nieces, Aspie parents of NT children likely need the most help of all. From what I've seen, they're not getting it.
_________________
If it don't come easy . . . .
. . . .hack it until it works right
Aspie score: 142/200 NT score: 64/200
AQ Score: 42
BAP: 109 aloof, 94 rigid and 85 pragmatic
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