Bad proprioception issues.

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When I walk, I have a difficult and abnormal gait, and I often trip. I often lose awareness of my legs, so I have to look down at them frequently while walking to remind myself that I have legs.

When I get home after walking, I am always exhausted from the effort of repeatedly losing and finding my legs (and arms unless I'm carrying something), so I have to sleep. People say "exercise gives you energy", not for me: exercise gives me severe exhaustion, even mild exercise like walking.

Also I have dysgraphia and I also find typing on my phone impossible unless I have autocorrect and prediction on my phone, otherwise I produce gibberish.

I have problems with speech and forming words (as well as being part time verbal).

When I'm walking I get tunnel vision and the whole world lurches up and down when I start exhausting after half an hour or do.

Is this autism related? Does anyone else get this? Or should I be going to my neurologist?

Has it always been like this the same? or what it something that developed, possibly from use of a medication?


It does sound to be nervous system related, and I know that many medications can have odd effects on the nervous system, namely disrupting the operation of, which sounds like what might be happening.

Even if you're standing still, or only in tandem with each step you take?

I learned from OT that most people's brains adjust to not see the movement (up and down as you take each step and your body moves up and down) when they walk or run, but my brain has never done that.

The other stuff could be severe dyspraxia and sensory processing problems, but if any of these things are new as opposed to lifelong (or if they are getting worse than they have ever been, if they are lifelong issues) then I think you should see your neurologist.

Not autism related.

Do go to a neurologist.

I've always had problems that may be dyspraxia. I couldn't tie my shoelaces until I was 14 (and even now it requires a few attempts and a lot of effort). It took me 6 years to learn how to ride a bike and even then I find it scary. I cannot swim at all despite forced swimming lessons for years. My dad told me that when I was younger, they would never ever let me into a shop with fragile items, because my arms would fly out in random directions when I moved.

But I think this is a worsening. I used to be in the London schools' cross country team when I was a teenager, and I was the second best runner in my school of 700. Also I used to go on 10 mile walks when the weather was good. Swimmng and team sports I was deplorable at (I actually have a phobia of swimming pools now), and I got banned from playing netball at school when I attacked a girl because she touched my face (nobody touches my face, or else).

But now I can't even go for a walk to the town centre without feeling like I'm going to collapse. I have also got a convergent squint which affects me most of the time.

I will go to my neurologist, but it could take weeks before I get an appointment (I'm booked in for April but I will bring the appointment forward); that is the nature of the NHS.

You might experience dissociation, because what you describe is being asked for in the SDQ-20, a questionnaire which is used to assess somatoform dissociation.
It might be that leaving your house became so overwhelming for you because of your severe autistic symptoms that you experience dissociation, but like others wrote you should check with your neurologist.

Thanks.

I was higher functioning as a younger teenager, but as I grew older I regressed badly until now I am "moderate functioning classic autism". I think I am regressing more now as I am losing speech and I have more challenging behaviour.

Is that a factor in my increased neurological complaints / dissociation?

It's a possibility that the regression increases stresslevels leading to dissociative symptoms, but still a neurologist should check if there is no other underlying neurological cause.

Yes

Yes, I believe, that they are autism related. I experience these things in a minor way myself (dysgraphia not so minor), - all of it... in periods. When I described it to my psych and asked if this is normal, he nodded knowingly: "Yes, if you have aspergers". Later, I have read some articles, and it seems to be typical.

If you´re getting worse, it may be time to see a neurologist, - especially about the tunnel vision experience.

I'll get my support worker to call the neurology team on Tuesday.

Large doses of Vitamin B6 on a regular basis can do something similar.