Joined: 22 Apr 2007
Location: New Jersey
Okay so ive heard everybody say something about this once in awhile, but dont recall ever having any posts on it at least that i dont know of or remember, and even had autism specialists, autism based therapists, DAN drs all confirmed can't controlling body tempature is very common among the autism community. I know for me i have it realllly BAD, I cant handle switching from heat to cold at all, i meltdown or have a siezure, or vice versus, also can't handle it too hot my body temp goes up big time and i have a siezure, or handle it too cold i break out in hives and my throat closes yea sucks to be me lol . At night I wear one sock and one sleave to bed haha weird aint it? but one side of my body is alwayyys so cold the other stays fine, they said that due to reynods but think its due to my body temp being so out of wack now that i think of it. If lets say the air is off in my house and my room is a nice warm tempature that i relax and almost fall asleep all u have to do is turn on the air and i freak in matter of seconds, my body cant understand or manage switching tempatures so fast. We have a portable air conditioner in my room because if i get alittle bit hot, i can go from little bit warm to extremely hot in a matter of seconds and need ice or an ice pack over certian body parts like my stomach, my forehead, my sides, my chest, my ribs, just to cool some of me down enough so i dont overheat and sieze. During the winter the heat has to be on, or i can die . We have to carry a change of clothes wherever i go just in case i get too hot or too cold. Anyways does anybody else have problems where they can't control their body tempature? wondering how many autistics does it really affect, since every autism expert agrees its very common among us
Being Normal Is Vastly Overrated
Joined: 25 Oct 2008
wow 1600, some days i read your posts and think you have a lot to deal with. good luck in your journey in life. You bring so much energy and good vibes to WP. thanks for posting.
I do have issues with temperature. If i get too hot or too much direct sun, it activates my psoriasis really badly. a bit of heat and sun is ok. I cannot go somewhere that is incredibly hot, without access to water to immerse myself in.
I have to keep really cold air in my room all through winter. a doona and blankets, but freezing air -otherwise i get boiling and distressed.
it is nowhere near as extreme as what you describe, but others have commented on my need for freezing air and a fan on. others think it is weird.
As a kid I used to not feel cold at all. i was often under dressed and would come home in mid winter with no sweater.
My mum's engineer 2nd husband was the same - i suspect he may have been ASD - he would wear thin shorts and a t.shirt all through winter and would work outside in these.
I have read our internal thermostats can be out of whack, so what you are saying makes sense to me.
Last edited by millie on 11 Jun 2009, 1:47 am, edited 1 time in total.
Joined: 2 Apr 2007
Body temperature and response to external temperature is controlled by the autonomic nervous system IIRC. Certain neurological disorders/disorders that can cause neuropathy can affect such. Also, the sensory system will be involved in such (which is autonomic), as well as "autistic routines" (i.e., you can't handle the change).
As for me, I don't like the change from one to the other, but nothing severe, and I do sometimes get hives when I sweat from the heat, but I don't think that's related to AS/AD.
Joined: 24 Apr 2009
I don't have it that extreme, but I do start shaking if spontaneusly change 3 C degrees.
I hate cold, I always have cold even when it's like 28 degrees. There is not enough clothes that can help it, even if I'm wearing 3 different socks at the same time and my leather shoes, I get cold feet. I cannot warm my own body up.
heat it's not a problem to me, since there are always things that can cool me down like wearing less clothes, lying in the cold floor, or the swimming pool. But when this is not posible I still like it, warm is nice (warm from 30 until 36 C degrees).
You should try some electric gloves, our body termostat is our hands, if they are warm body wont give you the signal (chill) that you need to go inside cause it's too cold for him.
Joined: 16 Oct 2008
Joined: 29 May 2009
Ohh yes. When I walk up to the shops I overheat and sweat horribly. When I sit still I feel cold, even rugged up- kinda like a microwave burrito that's still frozen in the middle. I hate it, especially when I flush with heat.
I wear layers and peel them off or put them back on as required. It's why I can never wear turtlenecks
Joined: 21 Jan 2009
Location: Wherever we decide to go...
I cannot handle heat well. It's becomes very difficult to breathe! I wear shorts and t-shirts through the winter, and no jacket. I sleep with the air conditioner on at it's lowest possible setting, in conjunction with my ceiling fan set on high. My ex-girlfriend always went on and on about how I felt like a little "power plant" giving off heat like a small fire, and the intense "healing power" my hands have. I constantly need fluids and sweat like no other, to the point of creating suspicion in those close to me, of having diabetes(which has been verified negative). Last year, I went to the Cleveland Science Museum with my ex, her younger son, older son, and his girlfriend. We were fooling around with an interactive exhibit that had an infrared camera. Everyone put their hand in it, and they ALL appeared blueish-whitish except the last two finger joints, which you couldn't see. My hands, however, were BRIGHT RED with clearly defined fingers, up to the tips. Even by rubbing their hands together really fast, no one could produce the same results as mine.
Joined: 29 Mar 2009
Location: 47°36'N 122°20'W
Interesting! Cold doesn't bother me. I wear t-shirts in January.
Heat however.... I love heat (living in Seattle does that heheheh) but I can't handle heat very well. I sweat excessively when it's hot. And also I sweat when I think it is hot indoors even though according to a thermometer the temp hasn't changed at all. This is most obvious in bed when I'm trying to fall asleep.
Joined: 7 Aug 2008
Yes, I think my body temperature does get a little out of control once in a while. At times it doesn't seem to matter what the outdoor temperature is because my body's thermostat during those times does not seem to act in kind. And sometimes throughout the day I will change my clothes to stay comfortable, not because the outdoor temperature has gone up or down but because my body's thermostat has decided to reset itself once again.
Stung by the splendor of a sudden thought. ~ Robert Browning
Joined: 6 Apr 2009
Joined: 3 Jun 2009
My body temperature goes all over the place, and I hate cold, and when I get cold it takes me ages to warm up again. I also do very poorly when there's rapid changes in temperature... but I also have a different, weird body temperature thing - I get fevers really really easily, and my normal body temp is 96.0 F. Is anyone else like this?
Joined: 27 Mar 2009
I have problems with being cold all the time.I always wear a sweater and a coat, even in the summer. People have to tell me to take them off in June, but I always have to sneak them on. I sleep with a comforter at night, even the summer. But when i am stressed, i get easily hot. During the day, lately, I am always changing my clothes because I am too cold in a shorts and t-shirt, so i put on a light long sleeved shirt with light pants. Then to wearing pants and t-shirt. then shorts and long sleeved shirt. it is crazy.
Joined: 17 Jun 2006
My response to temperature varies depending on whether or not I am having a meltdown. These days there are few if any emotional stresses in my life and a meltdown is usually an indication that my immune system has been activated to fight off some infection or other. When a meltdown occurs, small changes in temperature can have extreme effects on me. I will sweat nonstop for instance and will need to stop any physical activity, try to cool down and calm my brain as best as I can by meditating. In a cooler environment, an air-conditioned room for instance, I can start to shiver even though the thermostat reads normal room temperature. It can get so bad that I will need to get out into the sun to warm up. None of these events occur when my brain is functioning as it should. If your response to temperature changes is constantly difficult, might it be that you are further into the spectrum than others who do not feel the same effects?
Joined: 21 May 2009
I definitely have body and environment temperature issues. My natural body temperature sits about 2 degrees lower than 'normal' (which led to me never getting to the doctor promptly as a child because it didn't *appear* that I had a fever...instead, it looked like it was 'normal'). I can't lay directly next to someone when I'm going to sleep...that person's body temperature feels like an oven to me! When my boyfriend and I stay the night with one another, I can only hold his hand, and scoot at least another body's width away from him...otherwise, I just lie awake all night feeling like I'm roasting out in the sun.
I am incredibly sensitive to cold. As a kid, I would always walk around the house with a blanket around me, even in the summer, and in the winter, I would come inside and leave my winter coat on. If it is severely cold out and there is a bit of a breeze, I literally can not breathe. I have to cover my face...the cold air chokes me. I've shivered so badly while forced to be outside in the winter that I felt like I broke my back.
Sometimes, without warning, though, I'll all the sudden feel very warm when I'm in the cold, or vice versa...just last night, I went to bed with the covers wrapped tightly around me...then I woke up sweating like crazy and couldn't get comfortable, even though the house temp had not changed.
Joined: 22 Feb 2006
Location: Mayan grounds
i lived that way for 10 years. i had to protect my arm from heat and dirt. and still that thing kept growing and growing.
if you mean autistic people's internal thermostats, there's nothing wrong with them, the explanation is a bit more... external.
Interesting. You might be autistic. I mean really autistic, not like the rest of people here.
I can explain this phenomenon.... but i won't.... ; )
"Whatever you do in life will be insignificant but it's very important that you do it because no one else will."
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