What the worst part of having ASD for you?
Hmm...the overwhelming anxiety, social confusion, mental inertia (though this may have nothing to do with AS at all), executive processing FAIL (but this may not have anything to do with AS either), and not really knowing what my face and body are doing. That is the main thing that bothers me now. Not knowing what my face is doing or how my limbs are moving. People comment on it a lot. I can be just fine and everyone is asking me why I look sad or angry or stiff. It gets rather annoying after a while. Not to mention, my grandmother practically HATES me now because she always thinks I am making angry or annoyed faces at her when I am actually going for neutral...
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I think I know. I don't think I know. I don't think I think I know. I don't think I think.
Rather than put something of my own character and attribute it to a label I was given at 10 i would rather keep ownership of all my deficits and attribute them to how I am as a person and therefore have responsibility for their continued expression, use and maybe even their slow withdrawl from the way I present myself to others.
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"Tall people can be recognized by three things: generosity in the design, humanity in the execution and moderation in success"
Uh, I must say, the worse part of having my disability is the fact that I look stupid and/or weird when I go out in public places, and constantly give off vibes to make people stare, laugh or tease. It's something I can't even work on, or improve, or prevent, because whatever I do to better myself, I still apparently get people's attention. I walk up straight, wear fashionable clothes, wear expensive boots, have a trendy handbag over my shoulder, have my hair straightened, and put perfume on. I do the best I can to look nice and ordinary, and I still can't seem to stop the vibes. I even put a happy expression on my face, and I never do anything other people wouldn't do, like flap my hands about or pace about or anything. I stand and walk naturally, like everyone else.
HOW CAN I STOP THESE f*****g STUPID VIBES FROM ATTRACTING PEOPLE'S ATTENTION!
If only there was a way!
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Yes I am a straight female.
From East UK
Aged 25
It's hard to choose. The anxiety and executive dysfunction were the first things to come to mind in response to this question. I suppose that is the worst part of probably having AS for me.
However, that is far from being my only AS related source of distress and frustration. The difficulties with communication are a close second to those.
My sensory issues also cause me a significant amount of trouble, particularly my vestibular and proprioceptive difficulties.
The obsessiveness is a mixed bag. On one hand, I tend to enjoy immersing myself in a special interest, provided said interest is accessible to me (which is not always the case). On the other hand, when I become mentally "stuck" on some fear or worry, that is far from pleasant. That leads me right back to the anxiety that earned a place at the top of my list.
The obsessive rituals and routines also cause me some trouble, the least if which is that they are time consuming. They affect me in other ways as well.
Just yesterday, my therapist was telling me that I'm one of the most resistant patients she has ever encountered. Apparently, I'm pretty extreme in my unwillingness to make any changes that could potentially improve my quality of life. The trouble is, it's extremely difficult for me to incorporate anything new into my routine, or to make any changes that would vary the rhythm of my life in any way. For that reason, I'm pretty much stuck at this highly dysfunctional place in my life, unable to move forward. As I said, that's not even the worst part.
Additionally, I can completely understand why ASDs are considered "pervasive developmental disorders." This really does impair me in every area of my life. Everything is a struggle for me, Thus I wind up having to put forth far more effort than other people , yet I seem to accomplish far less. For that reason, I'm tired *all* the time, and often exhausted.
This condition causes me many difficulties in many areas of my life. I'm not even factoring in my numerous difficulties resulting from that various comorbids I have. I could write another novel length post about those, but I won't. ![]()
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"And I find it kind of funny, I find it kind of sad./ The dreams in which I'm dying are the best I've ever had."
Metalwolf
Veteran
Joined: 24 Jan 2008
Age:35
Posts: 987
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The top of my list:
Sensory difficulties. With these being triggered at work by lights, bright colors, and sound, I have trouble doing what I really need to do. I want to get into shape but I'm too mentally tired to reallly want to exercise. I just sit at a computer all day to 'detoxify.' It's annoying. ![]()
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Crispy Pickles!!
HOW CAN I STOP THESE f***ing STUPID VIBES FROM ATTRACTING PEOPLE'S ATTENTION!
If only there was a way!
I give off the weird vibes too
Nothing has proven to be more hell for me in regards to this condition than having to deal with how people respond to the autistic self that I cannot control.
Pretty much everything ranging from the constant "why are you so quiet?" or "smile more" teasing...to the angry complaints about my anti-social "rudeness"...to being laughed at for my poor speech and personal presentation...to getting yelled at by family for not wanting to interact...just getting judged harshly for things that always came natural and normal to me only to find out the hard way that it's not normal and unacceptable at all.
I can deal with all the other negative aspects of having an ASD (stimming, sensory issues), but is it no wonder why I've come to hate being seen and known by people so much more than ever before?
1) Being completely obessive over being social, friends, issues with friends, etc. But this heavily ties into my social anxiety. It can be rather hard to untangle my facets of my aspergers from my social anxiety. This obessiveness has seriously caused the most problems in my life then aspergers alone would have.
2) Lacking social intuition basically I have the social intuition of a 12 yr old.
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