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ASPickle
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29 Dec 2015, 1:26 pm

o0iella wrote:
I think there is an unfortunate tendency amongst people on the autistic spectrum to look for an NT to come in on a white horse and save us from our misery. People off the autistic spectrum end up assuming that autistic people cannot speak for themselves and need saviours like Asperger, Lorna Wing, Simon Baron-Cohen, Steve Silbermann etc. I think this is negative and needs to change.


I, for one, am happy to welcome any NT ally. It's not waiting for a white horse. It's amplifying the message that needs to be heard. I don't see how disenfranchising those who want to help us will end up helping us at all. If anything, it alienates us further.


o0iella wrote:
As others have mentioned, the book pays very little attention to self-advocacy organisations and instead mainly focuses on how great people like Asperger and Lorna Wing were.


I mean,... I guess if you ignore those two chapters at the end... :roll:

I was a bit disappointed that modern advocacy efforts received such a small portion of the book until I remembered that it's a book about the history of Autism. It was already 400+ pages at that point. Current and future efforts are still being determined. By better understanding where we came from, NTs are better prepared to move forward with us.


o0iella wrote:
Autistic people need have total control over the narrative about us, and need to fight for our own interests, as we understand them better than others do.


Let's be real, here. No one has total control over the narrative about themselves. It has to be a cooperative venture.


o0iella wrote:
Don't get me wrong, the book is better than nothing, but it doesn't deserve all the praise it gets and shouldn't be used as an excuse to rest on our laurels. The fact that the most prominent book on autism has been written by a NT journalist represents a failure of the autistic community.


Whoever said we were resting on our laurels? Did I miss something in the book that said we were done with our struggle?

And yes, the most prominent book on the history of Autism is written by an NT journalist. So what? The target audience is predominantly NT. To exclude this book from Autistic canon (for lack of better term) simply because an NT wrote it is unwise.

It's not the end all be all that you're framing it as. It's a step along the way to fuller inclusion. As ASPartOfMe says, it's an opportunity for a turning point. For me, the book isn't as important as the dialogue it has spurred in the form of NPR interviews with Silberman, articles on various newsfeeds, the Samuel Johnson Prize, etc.. Let's face it, the average person out there won't read a 500+ page book about Autism. But they will listen to a podcast or read a quick blurb or see a headline online about how maybe the general populace is wrong about Autism. And, yes, then it's upon us Autistics to further that discussion. If that discussion gets started through an NT ally's fastidiously researched book, so be it.


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o0iella
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29 Dec 2015, 2:04 pm

Quote:
I was a bit disappointed that modern advocacy efforts received such a small portion of the book until I remembered that it's a book about the history of Autism. It was already 400+ pages at that point.


The Autistic advocacy movement has a long and rich history, and it isn't adequately covered in the book. Hopefully he will write a sequel detailing this.

I still feel uncomfortable with an NT being the most prominent voice when it comes to autistic advocacy. When it comes to rights for ethnic minorities, the main advocates are from ethnic minorities, with feminists the main advocates are women, disabled and transgendered people have disabled and transgendered advocates etc etc. I think it's a very bad idea to let people aren't on the spectrum control the narrative for us. At the very least he needs to be held to a lot of scrutiny.

All this has been mentioned to him by other Aspies, and he has been rather dismissive to these concerns.

Silbermann ain't no white knight for autistics. The real white knight will be a unified autistic community that stands up for itself and it's interests, and controls the narrative for ourselves.

Quote:
MHO the autstic rights movement and particularly how autistics view themselves have deteriorated sharply since the DSM 5 came out.


This is why we as a community need to define for ourselves what Autism is, and take the role of the gatekeeper away from the medical professionals. I think this process is starting and I also think this will be the next chapter in the history of Autism. Perhaps Silbermann will end up chronicling it!



btbnnyr
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29 Dec 2015, 3:21 pm

It would be good if an autistic person wrote this type of book about some aspect of autism.
I am tired of autistic autobiographies, I don't care about the details of some person's life, but if they have good ideas about autism with research to inform the ideas and the public, then it would be something fresh and interesting and of benefit to larger autism community.


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o0iella
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30 Dec 2015, 7:04 am

Quote:
It would be good if an autistic person wrote this type of book about some aspect of autism.
I am tired of autistic autobiographies, I don't care about the details of some person's life, but if they have good ideas about autism with research to inform the ideas and the public, then it would be something fresh and interesting and of benefit to larger autism community.


Agreed. There are more than enough sob stories from autistic people in circulation. What we need is bold new ideas.



LyraLuthTinu
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25 Mar 2016, 7:27 pm

ASPartOfMe wrote:
Steve Sielberman describes himself as a boring NT. ..


I went to hear a lecture he gave last night. I did not find him at all boring.

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Having listened to and watched many interviews with him he presents as very naturally social.


Sounds right.

Quote:
He is a gay 57 year old man. If you know anything about how LGBT people were viewed in the 1960's and 1970's when he grew up you will see a lot of similarities to the way autistics are viewed and treated. Silberman cites bieng gay in that era and coming from family where his parents were activists for his understanding...


That explains a few things. Every time he was asked about women and autism he talked about women for about a sentence and a half then diverted to more LGBT topics.

Quote:
My view is that Silberman is the greatest ally we have ever had.


He could make a great ally for sure. Very sympathetic with an excellent understanding of Autism and Asperger's. He does pronounce it assburgers though. :(

I wanted to get his book but really couldn't afford a 25 dollar book right now. Not when we can't afford our utilities and VS credit payments...

Anyway I do wonder if any other local ASD wrongplanet people were there? At the University of Puget Sound in Tacoma on Thursday March 24th.

If you were...I came in late, stood in the back between a ventilation duct and a ceiling support column, wearing a squeaky black leather jacket and stimming by playing with my waist length hair.

If you saw me, next time you see me, say hi. I'm from wrongplanet too.


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26 Mar 2016, 6:22 am

more than halfway through,still a great book


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