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jbw
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29 Sep 2016, 1:52 pm

the_phoenix wrote:
ashbashbeard wrote:
It's a theme I've noticed too even in the past - any sign of success is shot down, invalidated or dismissed on here. It hurts too close to home for some because it only reminds them of their failure to learn from their failures. Failure is a major learning tool in achieving your goals so it really shouldn't be ignored.
...

Will I "burn out"? Possibly, one day - pretty much everyone does as they get older. But I can still look back and remember what I achieved when I still had the energy to do so.


Several years ago, there was a thread topic about autism and vacation preferences, so I posted mine. Well, apparently, I was just having too much fun as an Aspie or was seen as too high-functioning or something ... So my post was simply deleted by some moderator or other without any advance warning to me. I never found out who deleted it nor was I given any explanation. So I left WP for a rather long time ... several years, I think. During that time, I frequented forums where I felt more comfortable and free sharing my more creative side and who I am.

I would probably be more popular around here if I posted more about my struggles, failures, and the negative things that happen in my life ... But you know what? I prefer to focus on the good things. The bad is really nobody else's business.

I have, along the way, learned to keep the really extraordinarily good news, as well as the really bad news, about myself hidden, private, and not to be shared here on Wrong Planet ... except in a Private Message to someone I trust.

So if I come across as guarded sometimes ... yes, there's a reason for it.

And yes, life is short ... best to use the time wisely.

I think it might be a good idea to create a dedicated forum on this site for autistic success stories and approaches that autistics use to get through life, together with a policy that disallows invalidation and negative comments. In such a forum it would be nice if readers had functionality to tag/rate posts with "a similar approach works for me as well", "sound's great, I'll give that a try", and "well done". This kind of functionality would encourage constructive comments and discourage the opposite.

Over time we would end up with an extremely useful collection of approaches that work well – at least for some autistics – based on first hand accounts. This would be a first step towards an autistic culture.

A dedicated forum may be essential to weed out invalidation and toxic commentary. Anyone who is currently in a bad state then has the option to ignore the "success stories" forum, and avoid feelings of frustration.

Lastly, members should still be encouraged to post positive stories on other forums, but depending on the state of mind of some readers, there will always be some risk of attracting toxic feedback.



kraftiekortie
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29 Sep 2016, 1:55 pm

That thread should have Sticky Status!



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29 Sep 2016, 2:14 pm

Years ago I was accused of insulting members here. I am not sure what I did. I don't go around calling people names or being Cruella De Vil or being nasty to people unless they were nasty first. I figured years later it was just a gaslighting technique that person was using on me and now I wonder if it was because I posted about my success on here and how I overcame traits to be a better person and to make my life easier. There was another member here who would always give advice to people here to help them overcome their limitations but she was also accused of insulting members here.

I remember in my autism group I was talking about getting over the hurt feelings and not letting the bad people ruin your day and talked about my experience and how sensitive I used to me and my dad telling me on the road "Don't worry about those as*holes" and I got some criticism for it. I got sympathy too like how I got all this negativity and being told to get over it because that was like telling someone to stop being near sighted. I never knew being too sensitive and not getting over it was an autism thing (we were talking about processing emotions differently than regular people). I always thought this was an anxiety and OCD thing and that was why I was in therapy to get over the hurt feelings and move on so I told this member who was seeing an autism therapist if it's possible he can have him help him overcome this stuff so he wouldn't have hurt feelings anymore and not dwell on the past. Was I being insulting? I was just trying to give out advice here and talked about my success.


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ashbashbeard
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29 Sep 2016, 3:34 pm

Fanatic Heretic wrote:
That said, ashbashbeard, congratulations. I do sincerely hope you'll be ok.
It's not a personal attack against you, but more like a rant because the title itself and the "using AS as an excuse" part was very triggering.


I'm not going to apologise for my title. It is not my problem that it bothers you.

AS is really hard to live with, that I can attest to. But it should never stop you achieving your own personal goals.

As for special schools - they do not sound as helpful as people think. You're literally treated like you're mentally disabled, without any proper support. I definitely have cognitive issues with socialising etc, but it was humiliating to be assumed that I lacked any sort of intelligence on such a systematic level. It left me unprepared for everything else, rather than be of any help. Being at home twiddling thumbs would have been better.



ashbashbeard
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29 Sep 2016, 3:47 pm

jbw wrote:
the_phoenix wrote:
ashbashbeard wrote:
It's a theme I've noticed too even in the past - any sign of success is shot down, invalidated or dismissed on here. It hurts too close to home for some because it only reminds them of their failure to learn from their failures. Failure is a major learning tool in achieving your goals so it really shouldn't be ignored.
...

Will I "burn out"? Possibly, one day - pretty much everyone does as they get older. But I can still look back and remember what I achieved when I still had the energy to do so.


Several years ago, there was a thread topic about autism and vacation preferences, so I posted mine. Well, apparently, I was just having too much fun as an Aspie or was seen as too high-functioning or something ... So my post was simply deleted by some moderator or other without any advance warning to me. I never found out who deleted it nor was I given any explanation. So I left WP for a rather long time ... several years, I think. During that time, I frequented forums where I felt more comfortable and free sharing my more creative side and who I am.

I would probably be more popular around here if I posted more about my struggles, failures, and the negative things that happen in my life ... But you know what? I prefer to focus on the good things. The bad is really nobody else's business.

I have, along the way, learned to keep the really extraordinarily good news, as well as the really bad news, about myself hidden, private, and not to be shared here on Wrong Planet ... except in a Private Message to someone I trust.

So if I come across as guarded sometimes ... yes, there's a reason for it.

And yes, life is short ... best to use the time wisely.

I think it might be a good idea to create a dedicated forum on this site for autistic success stories and approaches that autistics use to get through life, together with a policy that disallows invalidation and negative comments. In such a forum it would be nice if readers had functionality to tag/rate posts with "a similar approach works for me as well", "sound's great, I'll give that a try", and "well done". This kind of functionality would encourage constructive comments and discourage the opposite.

Over time we would end up with an extremely useful collection of approaches that work well – at least for some autistics – based on first hand accounts. This would be a first step towards an autistic culture.

A dedicated forum may be essential to weed out invalidation and toxic commentary. Anyone who is currently in a bad state then has the option to ignore the "success stories" forum, and avoid feelings of frustration.

Lastly, members should still be encouraged to post positive stories on other forums, but depending on the state of mind of some readers, there will always be some risk of attracting toxic feedback.


I actually don't agree with this. Limiting what people can/cannot say will also make a toxic environment. Having made various forums myself, and being involved in other AS forums, I know this all too well from experience.



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29 Sep 2016, 4:46 pm

I hear you, I have been on forums where mods would limit freedom of speech and I have seen members pissed and leaving the forum for it and complaining about it elsewhere. I go to one forum sometimes and they decided to make it 18 plus after an incident happened there. So all the minors were banned and can't return until their 18th birthday but yet the owner still wants to keep everything PG-13 despite that we are all adults there and it's now an adult forum and even though ABDL is considered a fetish, they don't want any AB/DL stories there they feel are too sexual. Not everyone is happy about it. But I say "his forum, his rules so he gets to decide what he wants on there. Don't like it, don't contribute to that place." But IMO that place has gone to s**t so I am not as active there and it seems less active anyway.


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30 Sep 2016, 10:29 am

I don't need any place where people have to limit what they say to suit me.
It is fine for people say what they want within the forum rules of no personal attacks.
I prefer free discussion, not echo chamber.


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AspiePrincess611
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21 Feb 2020, 2:16 pm

My mother constantly tells me to "stop using Asperger's/Autism as an excuse for... (insert here whatever it is she thinks I did wrong or what I messed up or forgot)". She has also said that Asperger's is just an excuse I use because I don't care. This is totally not true. We just got in a big argument about this a few days ago. My mother seems to be of the belief that most mental conditions are just excuses to be lazy. I was also told to stop using my condition as an excuse by a professor in college (I filed a discrimination complaint). I just wish NT's would understand that Asperger's really does make life hard and is a real thing!


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21 Feb 2020, 2:52 pm

I'm the opposite. I deny my Asperger's and try to find other reasons for any Aspie behaviour or I get ashamed and depressed.


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21 Feb 2020, 5:31 pm

AspiePrincess611 wrote:
. I was also told to stop using my condition as an excuse by a professor in college (I filed a discrimination complaint). I!


Were you registered with your College's disability unit? normally academic staff would need to be aware of your disability status beforehand. Otherwise he might have thought you were fabricating to get an extension for an assignment.



AspiePrincess611
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24 Feb 2020, 12:54 pm

cyberdad wrote:
AspiePrincess611 wrote:
. I was also told to stop using my condition as an excuse by a professor in college (I filed a discrimination complaint). I!


Were you registered with your College's disability unit? normally academic staff would need to be aware of your disability status beforehand. Otherwise he might have thought you were fabricating to get an extension for an assignment.

Yes I was registered with the disability support services at the school. I was not requesting an extension on an assignment and have never done this. I have written about this in other posts, but the issue was that I was trying to do a student teaching internship and I had issues understanding what was expected and with numerous other things. Every accommodation I asked for they said was unreasonable, and all I wanted was clear, detailed expectations to be laid out. The program director hates me and she wanted to make it as hard as possible so I wouldn't graduate. I just found out that the discrimination complaint I filed was rejected. They said that the professor did nothing wrong and they can't change the requirements for disabled persons. Total BS. Just another case of aspies being crapped on and not being able to do a damn thing about it. :evil:


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AspiePrincess611
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24 Feb 2020, 4:55 pm

thumbhole wrote:
I'm glad for you that you have been successful in life. However, please do not preach at other members and tell them that they should do the same as you and get a job, etc.

If you had titled your post "some good news" or "my personal life is looking up" I wouldn't have a problem with it at all. But you have chosen to come on here and preach at a group of struggling people and tell them that their disability is not an "excuse" citing your own personal success as a justification for urging others to follow your example.

I take issue with that, because autism is a spectrum. It does not affect all people in the same way.

Just because you were able to achieve your life goals doesn't mean that all other autistic people will be able to. We are all different with different levels of functioning and different abilities or lack thereof. You have no idea what trials other people face, nor are you aware of their life circumstances nor the specific ways their autism affects them. Some of us are very tired indeed of NTs preaching at us, scolding us, blaming us and accusing us of not trying hard enough or using autism as an "excuse". The last thing we want is to come on here and find a fellow Aspie preaching at us as well and playing the blame game.

Some of us are much older than you and have struggled for MANY years in the workplace only to have nervous breakdowns / end up homeless / be taken away to mental hospitals and locked up against our will.

There may be some using their Asperger's as what you refer to as an "excuse" for not having a job / not being socially successful, but most of us are citing it as a genuine REASON, not an excuse.

I CAN'T GO TO WORK BECAUSE I HAVE HAD NUMEROUS NERVOUS BREAKDOWNS and was taken away to a psychiatric hospital and locked up against my will and have been deemed very seriously disabled.

You are still young. I remember my youthful optimism at your age, thinking "if I can just find the right job for me, everything will be OK." But it wasn't.

f you were about 40 or 50 and had been fired from numerous consecutive jobs and bullied by your workmates every single day for decades and lost your girlfriend and endured a bout of homelessness and had a few nervous breakdowns and been denied proper help from any doctors and had been blamed all your life for all your problems and never even got a diagnosis until you were about 40 or 50, you wouldn't be coming here preaching at others with that youthful enthusiasm.

If you had given your thread a different title and worded your final paragraph like this:

"The point of all of this is that despite any hurdles in life and my AS, it *is* possible to achieve my goals. I have resolved to never use my AS as an excuse, but as a tool to reach my goals. It is hard, gruelling and I have had bad moments, but it is worth it in the end"

then I wouldn't have a problem with it. But you didn't. You chose to conclude that, just because YOU have been successful, there is no excuse for ALL people with Asperger's not to be successful as well.

Pardon me, but that is a highly offensive thing to say. Some of us are VERY SERIOUSLY struggling in life and are going through things you have never had to endure. Some of us are suicidal. Some of us have been very abused. Some have not had the benefit of supportive parents (or indeed ANY parents). Some of us are homeless or have been homeless. Some of us are doped up on drugs with horrible side-effects, but cannot function without them. Some of us are TOTALLY DIFFERENT TO YOU, and pointing that out is not an "excuse". It is merely a FACT.

You have told people to "use AS as a tool to reach their goals"

What a very bland, PC thing to say.

A debilitating condition like AS is not going to be a "tool" to help somebody get a job.

The majority of jobs are not suited to people with AS, and the majority of people with AS are not able to remain in employment. That is a statistical fact.

Of course there are exceptions. Many people with AS find ways to use their personal strengths and creativity to come up with unique business ideas. Alex is a shining example. He made this website. But he is the exception, not the rule.

Yes, I agree 100%. I don't want to be a "Debbie Downer" or cause anyone worry, but I achieved what ashbashbeard achieved also, and found a job I liked, and got married. Only to have it all come crashing down eventually, time and time again. Aspies can be successful, but AS is debilitating. Like all disorders/conditions, it affects everyone differently. Admittedly, some people abuse disability benefits and are lazy and choose not to work when they probably could. I know people like this, both with AS and with other conditions. But others, like me, try again and again and still can't get it right. And I know there are people who have a harder time than me. Please don't generalize, there are degrees of severity and great variation in autism symptoms.

A soothsayer bids you beware the ides of March

-William Shakespeare, Julius Caesar
Even more true for Aspies. All glory is fleeting (or can be)


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Nolite te bastardes carborundorum "(Don't let the bastards grind you down)"
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Last edited by AspiePrincess611 on 24 Feb 2020, 5:05 pm, edited 1 time in total.

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24 Feb 2020, 5:03 pm

What a beautiful story, ashbashbeard. I'm glad things worked out so well for you. :D

One day you'll have to tell us more about how you met your GF. :P


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24 Feb 2020, 6:58 pm

ashbashbeard posted that in 2016 and has not posted on WP since June 2017.


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25 Feb 2020, 12:58 am

AspiePrincess611 wrote:
cyberdad wrote:
AspiePrincess611 wrote:
. I was also told to stop using my condition as an excuse by a professor in college (I filed a discrimination complaint). I!


Were you registered with your College's disability unit? normally academic staff would need to be aware of your disability status beforehand. Otherwise he might have thought you were fabricating to get an extension for an assignment.

Yes I was registered with the disability support services at the school. I was not requesting an extension on an assignment and have never done this. I have written about this in other posts, but the issue was that I was trying to do a student teaching internship and I had issues understanding what was expected and with numerous other things. Every accommodation I asked for they said was unreasonable, and all I wanted was clear, detailed expectations to be laid out. The program director hates me and she wanted to make it as hard as possible so I wouldn't graduate. I just found out that the discrimination complaint I filed was rejected. They said that the professor did nothing wrong and they can't change the requirements for disabled persons. Total BS. Just another case of aspies being crapped on and not being able to do a damn thing about it. :evil:


Hmmm this is an interesting conundrum. On the one hand the college would be required to make a reasonable attempt to accommodate your needs but there would be caveats. My best guess is that the program director (even if they really did have it in for you) would need to pass their complaint (that your requirements for a teaching internship/placement are too unreasonable) past the DSS. Therefore I would take your complaint to the DSS or seek arbitration from one of their DSS officers (you will find your college has a disability advocate or officer equivalent who has the authority to appeal on your behalf). If that fails then seek external arbitration.

Teaching placements (I assume this is either primary or secondary) need to also follow school policy and it may be that your demands (whatever they were?) were considered unreasonable to the school where your placement is located.

The final point is one relating to parity/equity. Unreasonable may also mean NT trainee teachers might need to demonstrate organisation, independence and ability to teach without being managed so it would be unfair to them if too much support is given to you to complete your internship/placement.

Lots of complex scenarios



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25 Feb 2020, 5:46 am

btbnnyr wrote:
Besides attributing success to luck, there is also a tendency on wp to blame everything that goes wrong in one's life on autism.
All bad things are caused by autism, never by oneself.
Lack of progress is due entirely to autism, never to oneself.
I believe that autism can and sometimes does make significant contributions to things that go wrong in one's life, problems with people, lack of progress, etc.
But just as one's own actions and decisions make big contributions to successes and dealing well with problems in life, so does these make big contributions to failures and creating or continuing problems.


Here is the problem with your logic.

1. My actions guarantee nothing. I can do all of the right things yet still fail. The whole idea that my own actions can make big contributions to successes and failures make no sense since my actions guarantee nothing. This is one of the problems with personal responsibility. So, I'm sorry but factors outside of oneself and your decisions can cause you to fail.

2. Let's say what you say is true. How do we suss out what is what? What mechanism do we use to tell if it is my actions or other outside factors. In other words, let's say I tell you my situation and story then it should be possible for you or anyone else to tell me what I did wrong, what i'm currently doing and wrong, what the right path is and how to get on it. I've asked other conservatives and personal responsibility advocates such as yourself these questions and I have yet to receive nothing but I'm entitled, yada, yada, yada.

3. Those such as yourself and the OP have this idea that if I can do it then you and others can do it as well which is a fallacy in logic called a hasty generalization.