Is it normal to wait a long time for diagnosis?

Page 1 of 1 [ 16 posts ] 

N8solano
Tufted Titmouse
Tufted Titmouse

Joined: 30 Sep 2016
Gender: Male
Posts: 30
Location: California

30 Sep 2016, 8:38 am

I am 23 years old and was told by a licensed mental health counselor and a clinical psychologist that I'm possibly in the autism spectrum, but should contact the Regional Center to be sure, so I did.

Apparently the process can take four months as they need to check records, manuscripts, etc.

Is this normal? If not, what did others do to get their diagnosis?



Kiriae
Veteran
Veteran

User avatar

Joined: 30 Mar 2014
Age: 35
Gender: Female
Posts: 2,349
Location: Kraków, Poland

30 Sep 2016, 9:05 am

Yes. Actually 4 months is considered a short time. It took me 1,5 year.



Pieplup
Veteran
Veteran

User avatar

Joined: 15 Dec 2015
Age: 20
Gender: Non-binary
Posts: 2,658
Location: Maine

30 Sep 2016, 9:20 am

I would have got diagnosed by the time I was seven... though not then by the time I was either 10 or 11,


_________________
ever changing evolving and growing
I am pieplup i have level 3 autism and a number of severe mental illnesses. I am rarely active on here anymore.
I run a discord for moderate-severely autistic people if anyone would like to join. You can also contact me on discord @Pieplup or by email at [email protected]


League_Girl
Veteran
Veteran

User avatar

Joined: 4 Feb 2010
Gender: Female
Posts: 27,205
Location: Pacific Northwest

30 Sep 2016, 9:48 am

From what I have heard online from others who got the diagnoses, yes. I have never heard from anyone having it happen in a few days and getting their results those same days.


_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed.

Daughter: NT, no diagnoses.


TwilightPrincess
Veteran
Veteran

User avatar

Joined: 28 Sep 2016
Age: 39
Gender: Female
Posts: 21,204
Location: Elysium

30 Sep 2016, 10:53 am

It took about 3 months from setting up the initial appointment to getting the results. I live in the country though and there's not much going on around here.


_________________
Double, double toil and trouble;
Fire burn and caldron bubble.


Jute
Velociraptor
Velociraptor

User avatar

Joined: 11 Sep 2016
Gender: Male
Posts: 400

01 Oct 2016, 7:01 am

For me, from the initial referral to actually receiving the statement took almost 14 months.


_________________
Gamsediog biptol ap simdeg Bimog, toto absolimoth dep nimtec gwarg. Am in litipol wedi memsodth tobetreg bim nib.

Somewhere completely different:


Autism Social Forum

I am no longer active on this forum, I've quit.


SharkSandwich211
Toucan
Toucan

Joined: 29 May 2016
Gender: Male
Posts: 256

01 Oct 2016, 7:33 am

That sounds like what I have experienced. My process from initial appointment to diagnosis appointment had been about four months.



AspieUtah
Veteran
Veteran

User avatar

Joined: 20 Jun 2014
Age: 61
Gender: Male
Posts: 6,118
Location: Brigham City, Utah

01 Oct 2016, 7:48 am

N8solano wrote:
...the process can take four months as they need to check records, manuscripts, etc....

True, but the primary reason most diagnoses take months to complete is the extraordinary wait list of clients. The ADOS-2 series of tests require 3 to 4 hours to complete, so for a single diagnostician, that would accommodate two clients a day. This doesn't even consider the records you mentioned.


_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


QuirkyCookie
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

Joined: 17 Jan 2016
Age: 44
Gender: Female
Posts: 63

01 Oct 2016, 10:16 am

It might depend where you are. I am still halfway through diagnosis and have waited seven months so far for the second part. No effort is being put into taking care of my case at the minute because I am an adult and the kids are more important than the adults, so, we are put on the reserve list and will have our cases looked at whenever there is time. The waiting time is up to one year...


_________________
Diagnosed Asperger's Syndrome 2017. Proudly Autistic <3


FluttercordAspie93
Veteran
Veteran

User avatar

Joined: 29 Sep 2013
Gender: Female
Posts: 1,374
Location: San Antonio, TX

01 Oct 2016, 10:43 am

I'd say, it took me about two months to get my diagnoses in 2014.



SaveFerris
Veteran
Veteran

User avatar

Joined: 3 Sep 2016
Gender: Male
Posts: 14,762
Location: UK

01 Oct 2016, 12:00 pm

Waiting list in my area is 15 months :(


_________________
R Tape loading error, 0:1

Hypocrisy is the greatest luxury. Raise the double standard


Claradoon
Supporting Member
Supporting Member

User avatar

Joined: 23 Aug 2006
Gender: Female
Posts: 4,964
Location: Canada

01 Oct 2016, 2:34 pm

I waited 2 years, first waiting about a year for an appointment and then twice for "taking care of the children" in August and November, when they took 6 weeks to "settle the children at school" and then make another appointment with me.



hawkeye10
Hummingbird
Hummingbird

User avatar

Joined: 6 Sep 2016
Gender: Male
Posts: 22

01 Oct 2016, 2:51 pm

Took me 3 months to get an appointement with a doctor to talk about my mental issues. Then it took another 5 months to get my first appointment with someone specialized in autism. My 2 following appointments only had a time gap of around 2 weeks each.



Scoots5012
Veteran
Veteran

User avatar

Joined: 1 Jul 2004
Age: 44
Gender: Male
Posts: 2,397
Location: Cedar Rapids Iowa

01 Oct 2016, 6:03 pm

It depends on how long of a wait list you have for services in your area. For me it took about a month, but that was because the Dr. who DX'ed me had seen me in the past and already had everything he needed to proceed. My cousins son got his DX over the summer, but he didn't have to deal with a long waiting list.


_________________
I live my life to prove wrong those who said I couldn't make it in life...


BirdInFlight
Veteran
Veteran

User avatar

Joined: 8 Jun 2013
Age: 62
Gender: Female
Posts: 4,501
Location: If not here, then where?

03 Oct 2016, 4:54 pm

Four months is great! Be glad you're not using the UK NHS, which is now as long as 2 years in some places. Private in the UK is more like four months depending on the specialist, so the comparison to the NHS wait times makes four months feel like nothing.



nateman
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 21 Mar 2014
Age: 39
Gender: Male
Posts: 45

03 Oct 2016, 7:12 pm

From start to finish, I had an official diagnosis in less than 2 weeks. After many hospital stays in the Behavioral Health Unit, and not much help long term, I basically diagnosed myself. The next time I was hospitalized, I told them I thought I has Asperger's. Two days later a specialist showed up and gave me various tests for three days. WISC, IQ, and a bunch of others. They did a phone interview with my mom as well. They left, saying that I most likely was on the spectrum. A week later, the official diagnosis report and test results came in the mail. Perhaps I had good timing? I don't know.