SW London's NHS discussing sharply reducing Autism diagnosis

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ASPartOfMe
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26 May 2017, 11:16 pm

Autism diagnoses 'could be reduced under NHS plan'

Quote:
Proposals to reduce the number of children being diagnosed with autism are being considered by NHS commissioners in south-west London.
The idea of restricting an autism diagnosis to only the most severe cases was discussed earlier this month.
The local alliance of five clinical commissioning groups (CCGs) says nothing has been decided yet.

Board papers from a meeting of south-west London and St George's mental health trust a fortnight ago describe a service under intense pressure, with waiting times for autism diagnoses of more than 10 months.
The team is supposed to carry out 750 assessments a year.
But it is getting almost double that level of demand, with about 25 referrals a week.
The papers state that NHS commissioners, who fund services, have asked the trust to review who is eligible for the service - so they focus specifically on children who have another illness such as depression.
The report goes on to say: "The effect of reviewing and revising the criteria must be to reduce the number of children and young people who are able to access a full diagnostic assessment from the trust."


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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


B19
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27 May 2017, 8:56 pm

That's precisely what some of us predicted would happen, following the DSM 5 change. We know who will be "excised" from qualifying first (adults, HFA, and particularly women on the Asperger's or HFA part of the spectrum). Then children with "less severe" autism.

The idea (in the article) of using depression to decide whether or not people qualify for autistic assessments surprises me. Depression is not diagnostic of ASD conditions, it is one of many possible co-morbid conditions which occur to some on the spectrum, and is not in itself a sign of autism.

If the proposal of reducing service delivery to "only the most severe cases of autism", as the article states, is true, then there is the danger of services regressing to 1970s levels. What an appalling prospect.

There are usually hidden agendas between policy changes in service delivery for any marginalised group of people, and this is no different.



EzraS
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27 May 2017, 9:36 pm

Seems like they are going from one extreme to another. They toss out Aspergers in favor of calling it HFA level 1. Now it looks like they want to toss out HFA level 1. What's the plan, to give hfa 1 another name like Aspergers?



ASPartOfMe
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28 May 2017, 12:55 am

EzraS wrote:
Seems like they are going from one extreme to another. They toss out Aspergers in favor of calling it HFA level 1. Now it looks like they want to toss out HFA level 1. What's the plan, to give hfa 1 another name like Aspergers?


The plan is to go back 40 years. 40 years ago they did not know Aspies existed. Now they do know and had planned to pretend Aspies did not exist. Hopefully the BBC bringing this to light will stop this. From what I have read from our British WP members this type of thing is already informally going on.


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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


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28 May 2017, 1:39 am

The London Maudsley specialist autism unit was so understaffed it looked like it would be eventually closed.

Though as specialist as it was, their diagnostic process still wasn't adapted for girls on the spectrum, just boys.

Their assessments are supposed to take a whole day, mine was the same assessment rushed in 2-3 hours. The man was actually rushing and hurrying writing everything down. He said he had to add to it after we left too.


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ASPartOfMe
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08 Jun 2017, 3:05 am

NHS groups backtrack on proposals to restrict autism diagnoses

Quote:
after complaints – including from teaching unions concerned the changes could mean pupils would lose out – Schools Week understands the plans have been dropped.

A spokesperson for the South West London Alliance confirmed in an email that the “proposals for restricted access criteria are not being implemented”, and would not be introduced in future without consulting stakeholders.

When pressed as to whether the plans could still go ahead, the spokesperson told Schools Week “the proposals to reduce eligibility criteria are not going ahead.”

The National Autistic Society also said it had been “assured” services would not be restricted to only those with mental health problems, and would continue to be available for children “across the autism spectrum”.


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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Jacoby
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08 Jun 2017, 8:05 am

Consider this a point against socialized medicine, decisions like this will be made when when healthcare is centrally controlled as it is. The 1 out of 64 or whatever number is really scary to them as it use to be higher and most of the new DX's are I imagine considered 'higher functioning' which is a term that needs to be put in the dustbin of history considering higher functioning autistics are even more likely to be unemployed than somebody with classical autism. 80% unemployment is crisis numbers, that's more severe than most disabilities but it seems like some folks would rather just pretend we didn't exist instead of ways to change that number. Services as an adult already slim to none for most people.



TheRedPedant93
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09 Jun 2017, 6:59 am

This is just other hidden discrimination agendum procedure against "less severe autism" (including those with mental health problems) in order to reduce the concurrent revenue deficit pressures on this NHS branch, just the same moving the goalposts excuse by advertently misinterpreting the DSM 5 ASD criteria for this sole purpose, which should have kept the AS diagnosis by alterating the early developmental trajectory & speech acquisition criteria, therefore incorporating those with a "HFA" diagnosis into it.

I know the economic solution that would put an end to this convoluted financial chicanery that the corporate mainstream media would no doubt calumniate on, but no one will believe me and the Lib/Lab/Con/UKIP/Greens will never solve the problem.


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Diagnosed with "Classical" Asperger's syndrome in 1998 (Clinical psychologist).
RAADS-R: 237/240
Aspie score: 199 out of 200
Neurotypical (non-autistic) score: 1 out of 200
Alexithymia Questionnaire: 166/185 AQ: 49/50 EQ: 9/80