Emotions erupting after diagnosis

Page 1 of 2 [ 23 posts ]  Go to page 1, 2  Next

underwater
Veteran
Veteran

Joined: 10 Sep 2015
Age: 47
Gender: Female
Posts: 1,904
Location: Hibernating

04 Oct 2017, 2:45 pm

Hi. I apologise ahead for the fact that this post might become a bit jumbled. I'm trying to work out what I'm feeling about a lot of things. Please bear with me.

So, I finshed my assessment recently, and was told I'm a textbook example of Asperger's. So now I have a diagnosis. I didn't want to make a big announcement about it, partly because I wasn't sure how I felt about it and wanted it to sink in, and partly because I didn't want to contribute to the diagnosed/undiagnosed divide. Yet here I am.

What's happened recently is that a lot of emotions are presenting themselves. I wasn't aware how much I'd been keeping a lid on my emotions since I started suspecting I was autistic, and it's been three years from the first inklings to diagnosis.

I didn't want to write this kind of post, partly as I don't like talking about other people on the internet, but I need some support. I really thought I'd gone through a lot of the emotional states of accepting autism, but I realize I hadn't experienced a lot of those emotions that related to other people. As long as I only suspected, I only told my husband. So far I've told only my parents and my closest friend in addition, and they all agree it makes sense, so fortunately no denial. However, I'm going to have to start seeing people like my doctor, my therapist and some people who might be able to get me a job with accommodations.

I'm scared of talking to these people. Over the last few days my anxiety has spiked. I haven't been a very good mom this week, and my kid is picking up on my preoccupied state. Not good. Fortunately the grandparents are understanding, and are helping with some child minding until I can get my mind on track again. But I'm not a bloody robot, this is a big thing for me!

What really surprised me is the amount of anger that's erupting. I feel like I've put of with a lot of not ok behavior from people, because I always thought I was at fault. I don't know, I'm not even rational, I think. I don't want to have huge fights with people and blow things out of proportion just because my stress levels are sky high, but I'm really struggling, and I'm tired of thinking that it's always me who is wrong. Yet I know that dealing with me is not a walk in the park.

I'm reluctant to share too much with NT friends, because there is no way to lose friends quite like showering them with anxious autistic catastrophic thinking.

Meanwhile, I have to wait really long for appointments with the therapist, who I haven't seen for several months, and my doctor, who I need to talk to about the diagnosis and what it means for communication issues and suchlike. The state I'm in now, long waits is not a good thing.

I wish it was possible to just be open with everybody and just tell them the truth and then people would be nice to me, but the world is not like that. I feel like a gay person in the closet.

Anyone relate?


_________________
I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.


B19
Veteran
Veteran

User avatar

Joined: 11 Jan 2013
Gender: Female
Posts: 9,993
Location: New Zealand

04 Oct 2017, 4:01 pm

I think the anger ok at this stage, a form of processing, and may be protective (better to get mad about past maltreatment than sad).



underwater
Veteran
Veteran

Joined: 10 Sep 2015
Age: 47
Gender: Female
Posts: 1,904
Location: Hibernating

04 Oct 2017, 5:14 pm

B19 wrote:
I think the anger ok at this stage, a form of processing, and may be protective (better to get mad about past maltreatment than sad).


Hmmm. Good point. I just have to stay sane while talking to people who don't know me.

I wonder how long this process is going to take.

It's kinda funny, though. I'm being reassured that the diagnosis does not change who I am as a person.

I never thought it did :mrgreen:


_________________
I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.


kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

04 Oct 2017, 9:19 pm

I hope you are able to use the diagnosis to get yourself a job which you will feel comfortable with.

Do you feel like you want to work on your garden?



Embla
Velociraptor
Velociraptor

Joined: 4 Oct 2017
Gender: Female
Posts: 490

05 Oct 2017, 12:59 am

Yes! I relate so much!!
I'm in the midst of getting diagnosed right now, just like you, three years after the first doctors started pointing towards AS. I might not be officially diagnosed just yet, but I've been obsessing over this forum and youtube videos by AS-people, and it's the first time I've really related to anyone. There is no doubt in my mind that I'm on the spectrum.

Finding out has been such a mess. I am finding out new things about myself every day, and it's more frustrating than anything else. Identity-crisis is a mild word for what I'm feeling.
I thought it would be a relief to finally understand what's wrong with me, but it's not. It's as if I am exploding. I'm more anxious than ever, and my poor boyfriend has to put up with constant mood swings and outbursts.
I don't even have the nerve to tell him why.
He knows that it's been suspected, and he knows that I'm under assessment. But somehow, I can't get myself to tell him that the theories have been proven right.

I'm not sure how to deal with it here and now. Part of me wishes that I never went and found out, so I could keep pretending that everything's fine. It seemed better than letting it all out like this. I don't even want to let it out, but just like you said, it's like the lid has just flown off, and there's no way that I can put it back on.
I know it's going to get better though.
I know that now that I know the cause, it will make it easier to find the solutions. Get focused on the right problems from the right angle with the right tools.

It is frustrating that people on the spectrum seems to disappear from the eyes of the government as soon as they turn 18, so there's no help for me to get from that area. Even if I had the money to pay, there doesn't seem to be any psychiatrists, therapists or anything like that for adult autists.
BUT, it's a huge relief that this forum (and others) exists, because I think that it's a good place for me to get the help and guidance I need, from the people who really knows what it's all about. I would trust the advice from an autist (with first hand experience) over an NT psychiatrist (with only textbook-knowledge) any day.

I think it's going to turn out ok. We probably just need some time to adjust.



underwater
Veteran
Veteran

Joined: 10 Sep 2015
Age: 47
Gender: Female
Posts: 1,904
Location: Hibernating

05 Oct 2017, 1:54 am

kraftiekortie wrote:
I hope you are able to use the diagnosis to get yourself a job which you will feel comfortable with.

Do you feel like you want to work on your garden?


I hope to be able to get a job. I was heading towards self employment, but after my assessment there was a follow-up meeting where I was told it might be possible for me to get a regular old job using the disabilities system. The neuropsychologist has promised to write them a letter detailing requirements. I am really chuffed about it. I am very nervous about the meeting I'm having with the bureaucracy. The only thing that makes it bearable is that the neuropsychologist has been so supportive, and he seems like the kind of person who is very capable of dealing with bureaucrats - he took a lot of time to explain the system and possible outcomes for me, and that helped a lot.

I am too ditzy and mentally exhausted for interests now. It's too late in the year for gardening anyhow. I listen to jazz, that seems to help a little.

One thing the assessment did for me, though, was that it made me rethink what I like to spend my time doing. Over the years I've lost contact with my intellectual side, I think. I ended up in a lot of jobs that were below my abilities, mainly because the social requirements depleted me so much that I could never fully focus on the job itself. But at one time I had an aspie dream job, so I know how satisfying it is to work with one's strengths.

I spent high school and university surrounded by overachievers, being able to keep up intellectually but not practically. I recently ran into someone who was just monstrously intelligent and very well read, and I realized how much I missed that environment, the state of constantly learning and discussing ideas.

I'm considering calling up my old boss and explaining the situation to him; if he were understanding, he might have some work for me that I could do from home.


_________________
I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.


B19
Veteran
Veteran

User avatar

Joined: 11 Jan 2013
Gender: Female
Posts: 9,993
Location: New Zealand

05 Oct 2017, 2:05 am

I can see that you have excellent typing and formatting skills, and that's a big plus.



underwater
Veteran
Veteran

Joined: 10 Sep 2015
Age: 47
Gender: Female
Posts: 1,904
Location: Hibernating

05 Oct 2017, 2:15 am

Embla wrote:
Yes! I relate so much!!
I'm in the midst of getting diagnosed right now, just like you, three years after the first doctors started pointing towards AS. I might not be officially diagnosed just yet, but I've been obsessing over this forum and youtube videos by AS-people, and it's the first time I've really related to anyone. There is no doubt in my mind that I'm on the spectrum.

Finding out has been such a mess. I am finding out new things about myself every day, and it's more frustrating than anything else. Identity-crisis is a mild word for what I'm feeling.
I thought it would be a relief to finally understand what's wrong with me, but it's not. It's as if I am exploding. I'm more anxious than ever, and my poor boyfriend has to put up with constant mood swings and outbursts.
I don't even have the nerve to tell him why.
He knows that it's been suspected, and he knows that I'm under assessment. But somehow, I can't get myself to tell him that the theories have been proven right.

I'm not sure how to deal with it here and now. Part of me wishes that I never went and found out, so I could keep pretending that everything's fine. It seemed better than letting it all out like this. I don't even want to let it out, but just like you said, it's like the lid has just flown off, and there's no way that I can put it back on.
I know it's going to get better though.
I know that now that I know the cause, it will make it easier to find the solutions. Get focused on the right problems from the right angle with the right tools.

It is frustrating that people on the spectrum seems to disappear from the eyes of the government as soon as they turn 18, so there's no help for me to get from that area. Even if I had the money to pay, there doesn't seem to be any psychiatrists, therapists or anything like that for adult autists.
BUT, it's a huge relief that this forum (and others) exists, because I think that it's a good place for me to get the help and guidance I need, from the people who really knows what it's all about. I would trust the advice from an autist (with first hand experience) over an NT psychiatrist (with only textbook-knowledge) any day.

I think it's going to turn out ok. We probably just need some time to adjust.


Maybe just ask your boyfriend for time and patience? One thing I've learned is that I process emotions more slowly than others, and there is no rushing it. It's like everyone else's emotions run like rivers, while mine pass through a thin funnel. If I try to explain my emotions before I'm good and ready, I end up just making stuff up and having to retract or specify it later.

The hardest part about finding out you're autistic is the realization that it's a hardware problem. There are no fixes, just hacks. But there is a beautiful community to belong to, and there are perks such as getting an absurd level of enjoyment out of small things.

The thing that has had the most profound effect on me pertaining to the diagnostic process was the difference in communication styles between my regular therapist and the neuropsychologist who diagnosed me. Once all the testing was over, the latter started talking to me in a way that made perfect sense to me. I've never experienced this kind of perfect communication with anyone who hasn't known me for years. Scratch that. I've never experienced this ever, because the people who know me well don't know much about autism. It was almost shocking, because explaining things to my regular therapist is so difficult. So what I got out of it is that there exists another level of communication that I haven't been aware of until now.


_________________
I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.


underwater
Veteran
Veteran

Joined: 10 Sep 2015
Age: 47
Gender: Female
Posts: 1,904
Location: Hibernating

05 Oct 2017, 4:52 am

B19 wrote:
I can see that you have excellent typing and formatting skills, and that's a big plus.


Thank you. Part of the assessment was actually a reading speed and comprehension test, and I did so well I was outside the standard tables. So now I have a piece of paper identifying my 'aspie superpower'. Kinda fun. I knew about it, but I didn't know I was that far outside the norm. I hope this skill can be used for a job, because it would make everybody happy.


_________________
I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.


kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

05 Oct 2017, 8:59 am

I like listening to be-bop jazz, or old jazz in general. I'm not too keen on "cool" jazz or the more "experimental" stuff.

I also like watching movies on jazz musicians.

I would say at least some classical music would, inevitably, stoke your creative fires. It does that to me.

Have you ever driven the mountains/woods with a nice Beethoven piece on the radio?



underwater
Veteran
Veteran

Joined: 10 Sep 2015
Age: 47
Gender: Female
Posts: 1,904
Location: Hibernating

05 Oct 2017, 10:51 am

kraftiekortie wrote:
I like listening to be-bop jazz, or old jazz in general. I'm not too keen on "cool" jazz or the more "experimental" stuff.

I also like watching movies on jazz musicians.

I would say at least some classical music would, inevitably, stoke your creative fires. It does that to me.

Have you ever driven the mountains/woods with a nice Beethoven piece on the radio?


Hehe. I like a lot of the more experimental stuff, but I also listen to more traditional things, like Melody Gardot.

For classical music, I really like Bach. I haven't listened much to Beethoven. I don't know how to drive, though, but if I start earning a bit of money, I'd like to finally learn. I was holding back until after the asessment, because I didn't want to spend a fortune on it and then be told I wouldn't be allowed to, but now it seems it'll be ok.

When I get my license, I promise I'll drive along the country roads listening to Beethoven! I'll give you a heads up when it happens! :D

Btw, I had my meeting with the powers that be today, and it turns out they are in the mood to help. In fact they are moving on it swiftly, I found an email about some application process waiting for me after I came home from a walk. That is promising. I'm still a bit scared about being forced into something not aspie-friendly, but I'm definitely giving it a try. It seems they are serious about trying to get me back into work.


_________________
I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.


kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

05 Oct 2017, 12:43 pm

This seems promising. I certainly hope they find you a job that is suitable for you in all ways.

I certainly do hope you learn to drive; the ability to drive is very liberating. I didn't get my license until I was 37 years old--so you're not alone. I would start with an automatic transmission, though.

I would, most definitely, accept your account of listening to Bach on the radio while you drive country roads. Or any classical piece.



underwater
Veteran
Veteran

Joined: 10 Sep 2015
Age: 47
Gender: Female
Posts: 1,904
Location: Hibernating

05 Oct 2017, 1:14 pm

kraftiekortie wrote:
This seems promising. I certainly hope they find you a job that is suitable for you in all ways.

I certainly do hope you learn to drive; the ability to drive is very liberating. I didn't get my license until I was 37 years old--so you're not alone. I would start with an automatic transmission, though.

I would, most definitely, accept your account of listening to Bach on the radio while you drive country roads. Or any classical piece.


Thanks, I'm finally a bit more hopeful about the future. I'm planning to go with automatic, yes, I see no point in learning manual.

Nah, Bach doesn't quite rock like Beethoven. It's all the little intricacies, see? Not the thing for driving. I'll try Beethoven, on your recommendation :D

Still moody and reevaluating life. I wish I could see my therapist, at least to blow off steam. Poor husband is really patient, but there's limits to what one can dump on a spouse before said spouse turns into a caretaker; this is not romantic.


_________________
I sometimes leave conversations and return after a long time. I am sorry about it, but I need a lot of time to think about it when I am not sure how I feel.


Alexanderplatz
Veteran
Veteran

User avatar

Joined: 28 Feb 2015
Posts: 1,524
Location: Chester Britain

05 Oct 2017, 9:15 pm

I found the strange mix of emotions after being dx'd at 58 similar to bereavement, twisted joy being one of the feelings in my case, though like bereavement it is probably different for everyone.

One thing I have found is that it is impossible to predict how people are going to react when I tell them I am an aspie, and I am thoroughly out about it.



Alexanderplatz
Veteran
Veteran

User avatar

Joined: 28 Feb 2015
Posts: 1,524
Location: Chester Britain

05 Oct 2017, 9:16 pm

Help for Adult Aspies in Britain simply is not there.



B19
Veteran
Veteran

User avatar

Joined: 11 Jan 2013
Gender: Female
Posts: 9,993
Location: New Zealand

05 Oct 2017, 9:22 pm

The best help I found was in a meet up group for adults with social anxiety. Terrific support between members, and new members welcomed from their first moment and included in a very supportive way. The majority of the group are AS.