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ASPartOfMe
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Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,242
Location: Long Island, New York

11 Nov 2017, 1:08 am

AJShorts: Real Autism

Quote:
Warsaw-born Bartek Jakubowski never thought of himself as "sick", which is why he becomes disgruntled whenever he reads articles referring to people with autism as "seriously ill".

"I am outraged when media outlets describe Asperger's as a disease," the 28-year-old man says.

It is not a sickness, he explains. Rather, it is a disorder, which manifests itself differently in every person.

Bartek was diagnosed with autism when he was two years old. At the age of 16, he found out that he suffers from Asperger's syndrome, part of a broader category of the autism spectrum disorder.

Until last year, Bartek worked at a supported employment enterprise where, by his own admission, he never felt at home.

His life changed dramatically in January 2016, when he began working at "Zycie jest fajne" (Life is Cool), a Warsaw-based cafe employing people on the autism spectrum.

"I feel like I don't work at a place that hires mentally ill people anymore. This is a normal job," he says, visibly content as he pulls out and arranges tables outside the cafe before it opens.

Because there is no "special treatment" at Life is Cool, Bartek is assigned a variety of tasks, ranging from getting the cafe ready for business, cleaning, serving customers and taking orders.

But his employment entails more than regular chores. As part of his job, he is also required to attend therapy and weekly check-ins with his coworkers, whom he prefers to call "friends".

Encouraged by his coworkers, who believe he would make a great journalist, and driven by his dislike for the portrayal of autism by the Polish media, Bartek shot a documentary film about his colleagues from Life is Cool.

In October 2016, his short, titled "'A' like a human being", won the Grand Prix at the National Film Review for Persons on the Spectrum of Autism.

This young, bubbly man wants to challenge stereotypes about people from the spectrum of autism and show others "the way they really are".

"There is a stereotype of people with Asperger's, like me, that you can't really talk to them and that they don't really understand what you are saying to them," he explains.

"I can refute that."


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Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman