For those here who think anything of me at all

Post Reply New Topic

Interesting. Yeah, that's not the definition(s) that came up with google. Can't say I really disagree with your assessment, though. I certainly have my fair share of fun as I see fit in a variety of ways in life, but I do most definitely have morals/ethics, too.

Read up on Epicurus himself. He spoke of a sort of hedonism with moderation.

I'm sure he & his philosophies are interesting, but I'm not likely to ever make the time to look it up and read it. Your one liner about hedonism with moderation is about all I need to know about it. I get distracted by forums and news enough already to be waaaaaaay behind on my reading list lol.

I think you should be careful because if anyone gets hungry around you, well, that's all she wrote my friend. You also get awesome points simply being from Canada in my book.

I don't know if you've read this; but I highly recommend it: "Siddhartha," by Herman Hesse.

It is a VERY FAST read.

OK here is what I think. You know, one day, I thought perhaps my being gay isn't the result of how nature made me. Perhaps its a disease caused by harmless wheat and milk protein, drugs produced by BIG PHARMA, and intestinal tract bacteria. And if I could just get my hands on some probiotics and intestinal flushes that BIG PHARMA doesn't want me to know about, perhaps I could unqueer myself...

I mean we all know BIG PHARMA wants everybody to be gay...its a worldwide conspiracy...

Apples to oranges.

A sexual orientation is not comparable to a neurological disorder that's caused, or exacerbated, by antibiotics/diet & can be treated via medicine & probiotics in order to actually reduce/minimize it's textbook symptoms.

I follow my protocol; I fly under the radar and am assumed to be NT by the outside world. I slip, or take a round of antibiotics etc, and the feedback I get from those around me are describing ASD symptoms - that's my cue to do what I do to ensure my gut is balanced and body and brain functioning as optimally as I can make them.

There are many who view my orientation as in fact a neurological disorder. And as a scientist, (ok, a geologist, but I know how science is done) I don't see anything valid in this new age approach. Its misinformation and falsehood of the worst possible kind. A worst case example would be someone who tries this on something that can in fact only be treated by drugs made by research and science, ie BIG PHARMA. Chinese anal flushes cant stop a heart attack in progress or treat diabetes. Only real medicine based on science can do this.

Secondly, I like the way I am (gay and Aspie) and don't see either condition as a disease. A "cure" for being an Aspie? That's really pretty offensive to me. It would be like killing me and replacing me with someone else wearing my meatsuit.

You're being ridiculous, but I'll respond anyways.

I've never said "chinese anal flushes stop heart attacks," or anything of the sort. I've been transparent about the fact that high volume enemas/colonics cleanse growths from inside the large intestine/colon that enable the enteric nervous system to function more fully & that probiotics seem to play a role as if they're neurotransmitters of sorts. But I'm sure you have more experience on the subject to share than I do, or your expertise as a geologist somehow qualifies you as a gastrointestintologist or neuroscientist? I'm not claiming to be either, but I'm also not claiming that knowledge of rocks equates to understanding what part the enteric nervous system & gut flora dysbiosis plays in ASD.

I don't really care if you like how you are and never want to change. That's on you. Personally, ASD symptoms are a major hinderance to me achieving much more in my life & I accept that it's a disorder/disability, but what I won't accept is just allowing it to ruin my life when there is something I can do about it via diet, supplements, and medicine that keep it under control & allow me to live a significantly better life for it. You're free to like yourself just as you are all you want, but from my personal experience, there's a Zero % chance I would Ever choose to go back to "untreated ASD," mode & live my life in that personal hell ever again when I can do what I do and live a much healthier, happier, wealthier, more socially connected life. That's my choice, you do whatever's right for yourself.

You have the coolest hair on WP.

I think of an "Epicurean" as being a wine conneiseur, or a gormet. Not really a "hedonist".

Epicurus was into a philosophy of “pleasure for pleasure’s sake,” but its ideal was a virtuous and rational practice of these pleasures.

Over the years, the definition has expanded in various ways. The way I used to was the combination of the original definition of “Epicurean” and a later one “one given to sensual pleasure,” with the connotation of “virtuous practice” maintained.

I think you are one of the most sensible, level-headed, rational members on the forum, and you have contributed, greatly, to the positive experiences I have had here. I think we may have conversed, briefly, in the past about it, but, I follow the same nutritional path, that you do. Apart from the occasional ice cream, chocolate and IPA beer.

Bottom line - I think you rock! Keep on keepin' on!

Yikes, how did I miss this thread?



You're a good'un. Your determination is admirable and your good intentions are always foremost

Ok, there is a lot more to my job than just knowing about rocks. That's like saying all a biologist knows about is cells or DNA. In fact, some biologists don't even study cells or DNA, at least not directly.

GF, what you are is an aspiring NT. I'm not, any more than I am an aspiring heterosexual. I don't view either as a condition that I'd like to cure, its not a cold or the flu. I believe that all people should be accepted for how they are. If we are disabled, its only because we have to live in a world where 99% of the people are not like us.

Whats my view of you? Quite frankly a Jew for Hitler. Or a black for the 1960s South.

Id agree with this here:


We Don’t Need a Cure for Autism – And Pushing One Is Really Messed Up

June 11, 2015 by Creigh Farinas and Caley Farinas



o27.7K
Shares



j
Share



s
Tweet

A young child holds up a chalkboard that reads "AUTISM" in colorful letters
Source: iStock

I used to want to cure autistic people.

I babysat for an autism support group and listened pityingly as parents described how hard it was to have a child on the spectrum – thinking nothing of the fact that those children were right there listening.

I begged my mom to take my autistic sister, Caley, and me to an autism cure event, ignoring the fact that my sister herself wasn’t interested in doing so.

Later, I went still further and led a fundraiser at my high school to raise hundreds of dollars for Autism Speaks, an organization that pushes for a cure for autism.

As the sibling of an autistic person, I felt it was my duty to do these things to show my support for her and others like her.

Here’s the thing, though: Many autistic people don’t actually want a cure.

More heartbreakingly, I didn’t realize that my own sister felt that way, too – that as I was proudly marching to help her, she was right there silently wishing that I wasn’t.

It was incredibly insensitive, and even ableist, of me to advocate for her without first checking with her to see if she wanted my advocacy.

And what I would later learn is that the most critical part of being an ally is prioritizing the voices of the marginalized, like Caley’s, instead of overwriting their words and beliefs with our own assumptions.

If you’re advocating for an autism cure, you’re making the same mistake that I once was.

I know it’s because you care about the autistic person in your life and want to make their life as easy as possible. But the best way to support autistic people is to listen to them, not assimilate them.

This goes against almost everything we’ve been socialized to believe, so I want to really unpack and address the following five objections that many people who support a cure for autism assert.

I can only hope that if you do harbor these beliefs, you’ll be open to considering this information and changing your position, as I once did.

1. Autistic People Are Suffering and Need a Cure

It is true that a lot of autistic people suffer.

But what they suffer from is not so much being autistic as living in a society that is not friendly to autistic people.

A society that frowns upon people wearing sunglasses and earplugs indoors despite their sensory differences.

A society where someone flapping their hands will be stared at and pitied, or told “quiet hands!” rather than be seen for the joy they’re exhibiting.

A society where, in order to get a job, you first have to get your social skills tested in an interview.

A society in which forms of communication other than spoken ones are often ignored and thought of as lesser.

A society where different means incompetent and neurodiversity is a foreign concept.

The people who enforce these beliefs are not only telling autistic people that their very existence is wrong, but they are participating in oppression.

Moreover, the idea of curing autism isn’t as simple as it seems from the outside. Autism is a developmental disorder, meaning people on the spectrum are autistic their whole lives.

They know no other way of being – it’s part of who they are.

Autism isn’t something that you can get rid of it without changing who a person is at their core. Autism is a neurological difference that inherently shapes an autistic person’s identity, perspectives, dreams, and desires.

As my sister put it: “Whenever you tell an autistic person they should be cured, you’re telling them that they shouldn’t be them.”

Unsurprisingly, hearing that is hurtful, and constantly getting these messages from society is enough to pulverize many autistic people’s concepts of self-worth.

2. But What About the Autistic People Who Can’t Communicate and Are Trapped in Their Own Worlds?

Okay, there are a couple of big assumptions I need to address here.

As a general rule, everyone communicates, even non-speaking autistic people. Because behavior is communication.

When an autistic child I was caring for threw himself to the ground after I tried to take him into the waiting room, he didn’t use words. But he definitely communicated that he did not want to go in that room.

Everyone communicates – they just don’t always speak to do so. But even people who speak in atypical ways, like by applying lines from a television show to communicate what they want in real life, often have their communication overlooked.

Our society expects everyone to communicate in the same way that we do, and those who don’t are ignored.

Perhaps the problem isn’t with autistic people’s communication, but with those who refuse to acknowledge what they’re saying.

The other assumption is that autistic people are trapped in their own worlds.

Yes, many autistic people report having imaginary worlds, but that isn’t a bad thing. It’s an escape from a society that is often not friendly to them and a world that can be – even to the people in the neurotypical majority – scary or just plain boring some times.

And seeing the beauty in parts of the world that most of us don’t even notice, like the shimmering dust motes that dance through the air or the mesmerizing spin of fan blades overhead, isn’t a bad thing either.

Those of us who are neurotypical could learn something from that.

What’s more, autistic people do not magically inhabit a different world. They’re right here on Earth, with you and me, and to act like they’re not is not only incorrect, it’s hurtful.

And to address the core argument, there’s this assumption that because they’re different from us in ways most neurotypical people could not imagine being, so called “low functioning” non-speaking autistic people must want a cure.

But—well—that’s not the case.

People all over the spectrum can live happy, worthy lives.

There are some really great non-speaking autistic bloggers who write about their lives, which are just as human and filled with ups and downs as anyone else’s. And even people who can’t type can communicate their utter joy through flapping hands and jumping feet.

In short, autistic people all over the spectrum can be happy people.

And, if we as a society are doing our job right, they are just as capable for loving themselves for who they are as anyone else.

3. But Shouldn’t We Be Pushing for a Cure on Behalf of Those Who Do Want One?





People keep misunderstanding this critical point, but there is no cure for autism.

It doesn’t exist!

No matter how much money is poured into it, it doesn’t seem like it’s going to exist any time soon – at least not in the form that people imagine.

Looking at research, it’s apparent that we’re more likely to see a preventative measure than a magic “cure” pill.

The leading candidate is a genetic screening in-utero, in which case, as with Down Syndrome, we could see an option for an autism “cure” through abortion of fetuses suspected to have autism.

And fundraising for this – the only current viable option – rather than fundraising to help families, sounds a lot like eugenics to me – every person on the spectrum’s worst nightmare.

The second side of this problem is that there are reasons many autistic people want cures, and those reasons are societal in nature.

Throughout most autistic people’s lives they have been told that they are lesser.

They’ve been taken to fundraisers to raise money to “fix” them, their parents talk about what a burden they are right in front of them, and when they dare to be themselves in public, they’re greeted with disapproving stares.

If you lived this life, wouldn’t you want to be cured of that thing that you’ve been told all your life that you need to be cured of?

For some autistic people, the answer is yes. But the realistic solution, which already exists, is not an imaginary cure, but helping them love and accept themselves for who they are.

It’s helping them see the strengths being autistic provides, rather than only hammering the weaknesses down their throats.

In short, acceptance is the cure.

4. But Donating Money Towards Research for a Cure Isn’t Harmful, Right?

Unfortunately, it is harmful.

The mere fact that others find autistic people’s lives so faulty that they raise money for a cure is hurtful to a lot of people on the spectrum.

More than that, money donated towards prevention/cures is money that doesn’t go to help the autistic people already here.

Autism Speaks is a great example of this dilemma. So much of their budget goes to cure/cause related research (followed closely by fundraising and advertising, which is 43% of their budget) that only 4% of their money goes towards services for families of autistic people, and only 0.25% of their research budget goes towards research to benefit autistic adults.

Given that cure research isn’t even wanted by many autistic people and much-needed services for adults on the spectrum go underfunded, is this harmful dynamic really something you want to contribute to?

5. What About Pushing to Find the Cause of Autism? That’s Not Harmful

Wrong – for multiple reasons.

For one thing, you’ve got the same problem as in #4 – money that goes towards finding the cause of autism is money that doesn’t go resources to help the autistic people already here.

Moreover, generally the reason people pour time/money/energy into looking for a cause is to find a cure and prevent autism.

That sends the exact same message to the people it’s intended to help – that they are lesser and their existence must be prevented at all costs.

So What’s an Autism Ally to Do?

1. Don’t Donate Money Towards Cure, Cause, and Prevention Organizations







Don’t despair – there are loads of organizations you can donate to that actually do focus on services and education to benefit autistic adults and children alike.

The Autistic Self Advocacy Network is a great example of one such organization. Best of all, unlike most autism organizations, this one is led by autistic people themselves and does a far better job of representing their interests as a result.

Another great organization is The Arc/The Autism NOW Center, which prioritizes autistic individuals’ needs, rather than what our society thinks they need.

So the next time you feel the inclination to walk and raise money to help autistic people, you can walk with pride if you’re supporting one of those groups.

2. Work to Make Society More Autism-Friendly

If you’re part of a business, some autism organizations offer the ability to train your business in working with people on the spectrum.

Initiatives like this do a great job of breaking down the societal barriers autistic people face.

Check into your state or country’s autism organizations or local autism support group to see what’s available in your area for this.

Changing our society doesn’t have to require big steps.

Simply greeting someone flapping their hands with a smile rather than a stare and understanding instead of chiding when they don’t make eye contact are enough to make an impact in of themselves.

3. Educate Yourself Around Autism

Autistikids is a great website I helped edit that connects readers to the words of autistic adults explaining autism. If you prefer video, the Ask an Autistic series on YouTube is highly informative.

If you’re a parent or relative of a child on the autism spectrum, you’re in a unique position to shape how your child thinks about being autistic.

You can help make it so that, rather than being ashamed of being ‘defective’ and wishing for a cure that doesn’t exist, your child loves themselves for who they are.

There are lots of great resources to help you do this – I love the book Different Like Me: My Book of Autism Heroes because it helps children feel proud of their neurology.

There are also websites like Autism Spectrum Explained for Kids (which I created) for helping children on the spectrum and siblings understand autism in a self-esteem enhancing way.

Letters to Autistic Kids is another great initiative where autistic kids can read letters of support from other autistic people.

Finally, connecting your autistic child to an autistic peer or mentor, such as through pen-paling, is a wonderful way to help them appreciate their neurology.

***

These are just a small sampling of ways you can be an ally and make the world a better place for autistic people.

If we do our job right with all of these things, not a single autistic person will ever have to want a cure for who they are again.