Chronic Fatigue Syndrome linked to autism/aspergers/adhd?

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Beenthere
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23 Aug 2008, 11:02 am

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I believe I wore down my immune system what with the frustration and perfectionism. Only now can I look back and understand and see the connection.


I think that was a major contributing factor in my case also. :(

...and by the way... Welcome Curiosity! :wink:


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marieclaire
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23 Aug 2008, 5:48 pm

I have read about the links to Chronic Fatigue and Austism Spectrum Disorders. I have had Chronic Fatigue, my daughter also has been diagnosed with this.
In my case my chronic fatigue was likely linked to a body system that was out of sync. due to allergies causing adrenal and physical exhaustion leading to an overgrowth of candida albicans.
Anxiety is an issue for me also, so I guess this is linked into the equation as well.
I still have to be very careful not to overdo things and become exhausted. My daughter has the same problems.



Pook
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24 Aug 2008, 3:42 pm

Glad this got bumped as I have had CF symptoms as far back as I can remember. I went back to bed today, because I was so lethargic and I knew I had a family dinner to attend in the afternoon.
My problems seem to be inflamation, muscle aches, fatigue and sometimes confusion. I suppose this weather front moving in caused me to feel so bad this morning.



thyme
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24 Aug 2008, 3:58 pm

poopylungstuffing wrote:
Um...what is CFIDS?

Anywhoo..I take a cocktail of natural remedies to deal with stress, fatigue, and sensory overload...and sometimes (like today) it can still be really difficult.
Thanks for the list. I have tried alot of that stuff....

Licorice can tend to raise my blood pressure for some reason if I take it regularly...but I like it...

I take a (vile-to-other-people) concoction of apple cider vinegar, cayenne pepper, instant stevia-sweetened yerba mate tea with a dash of baking soda....in a 32 oz glass water jug...that helps out a bit.

I am about to have a double-dose of emergen-C in a cuppa yogi green tea for energy...am feeling kinda chronicly fatigued at the moment



Ginsing raises my BP. Whenever I take it and get my blood pressure checked the doctor would say I might have to start taking blood pressure meds. Once I stopped taking the ginsing when I get it checked it is always within normal range.



JohnNorum
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26 Aug 2008, 6:25 pm

I agree that good nutrition helps against Aspie symptoms. But that list... glutamine, is that the component of MSG?

Good food for aspies is a good intake of proteins and saturated fat, like meat, butter and cream.

Bad food for aspies is pop corn, chips, candy, vegetables, fish and white meat.



Transcention
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28 Aug 2008, 12:01 am

Geez this is almost freaky bud, or buddette.

I suffer from chronic fatigue syndrome.

I used to fall asleep in school during my classes every single day almost when I was young. I'm 33 now. But when I went to University a few years ago now I used to have a hell of a time staying awake during the day. That's an understatement. It was torture staying awake all day. I used to go home and go to sleep.

I take valium a few times a month to sleep during the day once the chronic fatigue kicks in. I just get so sick of forcing myself to sleep every day that sometimes I take valium to facilitate it.

It comes and goes but I often have to sleep twice a day to barely function.

If I wake up at 8am to 10am I often have to sleep between 1pm or 6pm, sleep for a couple of hours to have what one would consider a normal day.

I only had a day job once in my Life. And that was working for my parents.

I would sneak off and sleep for a couple of hours a day in the gym no one used or in a room no one was occupying in my parents apartments they we're managing for a couple hours a day every day.

I never told them about it until a few years ago that I would sneak off for a nap.

I'v learned to accept it now. I just sleep whenever I have to, wake up and go on with my day. My wife doesn't mind so much.



MemberSix
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28 Aug 2008, 3:16 am

hartzofspace wrote:
I've seen a lot of correlations between CFIDS, PTSD, and the autistic spectrum. I have often suspected that the stress of living with autism has had a direct role in my current diagnoses of PTSD and CFIDS.

Good call, dude.



Kaleido
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28 Aug 2008, 5:25 am

I have ME too. (Or CFS as some people know it by).

Horrid illness, someone should ban it :D



MemberSix
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28 Aug 2008, 6:06 am

Beenthere wrote:
Diagnosed with CFIDS & FMS approx 5 years ago, sick for approx 2 years prior...there's alot more to it than fatigue.

Like having the flu...but it doesn't go away after a week. Swollen glands, dizziness, sore throat, low grade fever, and not being able to think because you're so tired... is just a little bit of it...basically you feel like you've been slammed by a sumo wrestler.

Can't remember when that last was.



MemberSix
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28 Aug 2008, 6:13 am

Transcention wrote:
Geez this is almost freaky bud, or buddette.

I suffer from chronic fatigue syndrome.

I used to fall asleep in school during my classes every single day almost when I was young. I'm 33 now. But when I went to University a few years ago now I used to have a hell of a time staying awake during the day. That's an understatement. It was torture staying awake all day. I used to go home and go to sleep.

I take valium a few times a month to sleep during the day once the chronic fatigue kicks in. I just get so sick of forcing myself to sleep every day that sometimes I take valium

Sometimes I'm so tired, I have to take valium to stay awake !



Transcention
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28 Aug 2008, 7:24 pm

In Australia, one actually needs to get governmental approval to take a trial of dexamphetamine.

I managed to get on that trial, hoping that it would help me function day to day through my chronc fatigue.

I was only taking a couple a day for a few weeks until I was getting so freaked out and paranoid than I decided, taking an afternoon nap, was actually preferable.

I'v toyed with the idea of getting a prescription for dexamphetamine every 2 or 3 monthes or so just to have a few hours of peace.

Doctors arn't very open minded though, if they prescribe something to you they want you to take it every freaken day. And that is most definitely not an option.



Curiosity
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18 Feb 2010, 6:02 pm

Just found this discussion. I have had CFIDS for over 15 years. Was only diagnosed with Aspergers last week. Since finding out I have Aspergers and looking back at my life, I absolutely believe that I totally wore down my immunize system in an attempt to succeed at work and that in turn is how I got CFIDS.



anomie
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21 Feb 2010, 3:15 pm

I sometimes think I have CFIDS/ME but when people who REALLY have it remind me what it's like, I soon change my mind.

What I DO have, though, is a general lack of energy, due to using it all up trying to be normal.

I have a new ambition in life: Stop that. Just stop. I will never be normal and every joule of energy I spend on it is wasted.

Some AS-related energy loss is unavoidable (but minimisable, given care and knowledge). I'm referring to the drain of noise, light and human proximity.



Valoyossa
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21 Feb 2010, 5:52 pm

I'm tired all the time. NT-world doesn't allow to sleep at day and live (work! THINK!) at night. So I can't go to bed properly (now I should, tomorrow begins new horrible day/week) and leave bed morning. I can't think at school, because of time and people, light etc. You know what I mean. Sometimes I sleep on the lessons, I don't care. I can sleep everywhere.
How to show my creativity if I'm useless at days and about 10 pm, when I start to live, I can't begin because next day I have to wake up at stupid NT-time? Paranoid.

I tried Zolpidem, Benzodiazepines, Melatonine... and nothing special. The two first turned me on, I was hyperthinking. Melatonine didn't work at all.

I live in chronic jetlag and I'm not useless only when I don't have to live in NT-timezone. It really changes me. If I want to be good at sth, zB. learning to exam, the most important is sleep enough. The rest is almost nothing, even books big like bricks.



Lecks
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21 Feb 2010, 6:01 pm

My mom has CFS, but I don't. I'm just lazy.


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AveApollo
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02 May 2016, 4:48 am

Diagnosed with ME/CFS/CFIDS in 2011 after a getting a sore throat during a period where I was very stressed and depressed due to work, relationship and life struggles. Part of the stress related to facing big changes (end of an 8-year relationship, death in the family, career change and change of country, all rolled into one) and generally a difficulty saying or doing the right thing, taking things literally most of the time, not fitting in to social norms, together with OCD problems diagnosed already.
As I am slowly recovering, and leaving the house more, I am socialising a bit again, and may one day get back in to working (started off being housebound in 2011). I don't want to have the same melt downs and difficulties again, as I believe they contributed to my immune system crashing, and a flu-like virus then attacking my nervous system and leaving it disordered, hence the ME. So I investigated - what could the social anxiety and feeling of 'different-ness' be caused by? I must get this sorted, for my preparation in facing the world again if my recovery continues.
This year in 2016, I found out about Asperger's and have since done the questionnaires and tests for screening by a specialist clinic and have 'passed' the screening and have a provisional diagnosis of Asperger's Syndrome. I have the face-to-face interview in a few months, for them to decide if the diagnosis is definitely appropriate.
Sometimes I am confused as to whether my over-sensitivity to sound, temperature and light are products of the ME, or Autism. I had sensitivities to these things before however. Many symptoms seem to overlap on the cognitive side too (word retrieval, verbal communication difficulties, shutting down etc). Interestingly, the Angular Gyrus is affected by ME (ncbi.nlm.nih.gov/pmc/articles/PMC3474083/). This part of the brain "is involved in a number of processes related to language, number processing and spatial cognition, memory retrieval, attention, and theory of mind." (en.wikipedia.org/wiki/Angular_gyrus). Perhaps there's a genetic/neuro-biological link. Perhaps having AS undiagnosed, without support mechanisms could lead to mega-meltdown/and shut-downs (which I had), leading to compromised immune system, leading to the virus attacking the system then leaving the system, leaving the nervous system/neurological functioning compromised = ME/CFS/CFIDS.


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AQ (Autism Quotient) = 40 (AQ-10 = 7.0)
EQ (Empathy) = 8/80 one time and 16/80 another
FQ (Friendship) = 54
RAADS-R = 146
Cam Mindreading Face-Voice = 95%
Dyslexia & OCD = official diagnosis.
Aspergers = referred to specialist, awaiting assessment.