Services and Aids

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What services do you guys get (therapy, OT, etc.) and what aids do you use to get by?

As far a services go, I have:
Therapy
OT
a caregiver/aid person a few days a week
Med doctor/medication

Aids:
Weighted blanket
Ear Plugs
Putty
A voice recorder (for lectures at school)
Chewy tubes
Yeah, mainly sensory stuff

I used to get a teacher aid but once i started to move away from the other special ed students it was not worth it. there was understanding from teachers when I had my breakdowns, and i often got to do tests in a quite place.

Wow Shidash - you're lucky to have so many resources.. without a Dx (I'm on a waiting list) nothing is funded so I can't afford it. Where are your tubes from? I chew my fingers to pieces because most indestructible things taste bad to me. I'm saving for a weighted blanket, and I can see the free university clinic doctors for sedatives when I'm really desperate, but they don't know anything about AS and generally make me feel worse - they insist on patting me on the arm when I'm upset!.. I digress - I just wanted to ask about the tubes

just search chewy tubes on amazon and you can find some.

am wish autist aides would be taken as seriously as other disability aides,those outside autist community probably wouldn't even know the need of a lot of them.


have a lot of services-all are needed,some are not all being followed? [dont know the word for it] though.

-OT,have been especially good for the home adaptions.
-twenty four hour residential care under learning disability services.
-two days worth of council funding for extra support staff from the NAS,and the lady am with takes am out in the NAS' own car,she has said they are getting the council to increase the funding so am can have more NAS staff.
-access to the NAS day centre-anglo house when it's closed for the sensory room and art room.
-one extra funded experienced agency staff,she works with am and in a residential home for blind/VIers with learning disabilities.
-not sure what the name for it is but the council looks after bank account.
-own motability car and blue badge-still waiting for these due to the home manager saying am need to pay off a care debt first.
-Autism specialised speech therapist,havent had one for a long time as he swapped services and was never replaced.
-Autism/behavioral specialised pyschologist,he retired left his job a while back and has not been replaced yet.
-a behavioral expert [not sure what type of doctor she is] all changes and new things have to be said to her first,she says what sort of restraining can be used etc,she's a bit like a lawyer/judge type person.
-an LD-CPN,she is like a regular CPN but is in LD service/only for LDers/devs,she can do a lot of stuff including making hospitals rush appointments and ask for specific meds,anyone who wants to make changes to routine/anything also has to speak to her about it first.
-an awesome neuro [neurologist] at hope hospital.
-Pets as therapy-not doing this at the moment,but will be when have settled again-am not allowed pets at home so this is the next best thing.
-RDA sessions-starting back on RDA sessions at ashton hall when settled again.
-a social worker [LD team],he is not as nice as last social worker.
-a gp who will come out to am at home even when they are not emergency appointments as she knows the lack of access am have with their building,shes also one of the best GPs out there as she makes sure am understand what she has said and goes through things slow-rather than the complete opposite of what many of them do.
-an advocate from future visions,he speaks for am in meetings,or anywhere else needed,he is like a lawyer,and sister can be included under this part as she another advocate at meetings as well.
-a unofficial assistance cat,it's like an assistance dog-only its a cat,and its form of assistance is in hugs and rubs and stuff,he doesnt even live at home,but he's made it his duty to be an assistance cat for am anyway,he likes giving dribble baths.


Aides--
-ear defenders
-laser lite ear plugs
-wall padding
-wheel chair gloves
-koosh balls
-laptop with a TTS programme [for full communication]
and a fifteen mb adsl broadband connection [sky] -the council has officially classed it as a disability aide for am!
-as for chewing things,am dont discriminate,will chew anything,whether its sticks,the bed,game boxes,whatever.

Last edited by KingdomOfRats on 01 Jun 2008, 8:33 am, edited 1 time in total.

Ah, yes, you reminded me. I currently have an emotional support animal and I am on the waiting list for a service dog. But thats great that you have all of those services.

Disability pension and the benefits that come with that (some money every fortnight for food, plus cheap medication). I get therapy for half-price, but I can't get to such (the city is too overwhelming for me, and I can't see someone else); not that I need therapy, nor does it do anything. I'm as good as I'm going to get through talking.

If I didn't have a home (I live with my mother), I'm sure I'd be in some type of government home where I'm by myself (I'd need someone to organize it for me, like my mother did with the pension); my sister will probably try and get me institutionalized if something happens to my mother, so she can have my mother's house (I can't live with anyone but my mother).

As for aids, avoiding people.

Shidash,
when eventually get paired with one-do a blog,it would be good to see the reality of living with one as an autist.
think they've only just started training them for autists in the uk.

it would be good if pets of any type were officially classed as assistance as the people who own any type of home or housing would not be able to refuse the pets to those who live in them [like they often] due to their status.
they are great therapy,if they spoke english,they would probably charge for their services.


-most of those services are also free as well,but they have all taken a while to get,the hardest one to get was the funding for the NAS staff,as the social worker said the council never fund for specialist staff if are in twenty four care,but they got am two days of funding,and the NAS are now fighting for more and are certain am going to get it as they're bringing another of their staff next week to get used to.

Wow, that's wonderful!

All I get is welfare, and it's not enough to make ends meet no matter what I do, so I can't afford high speed internet.

I do not support the training programs in the UK. They tether dogs to young children and this is dangerous for both the dog and the child. I am a firm believer that only mature people that are capable of handling a dog should be allowed service dogs.

The child and dog theoretically are never together without the parent. I think the idea was probably based on the harnesses that parents use for toddlers where they are on a leash, only with this there is a dog tethered to the child as well. I am unsure of it as its only being used in severe cases where its effecting the whole family at the moment. I do understand your concerns though.

Do you think people with Aspergers will ever have the chance of service dogs? And where will the line be drawn at when someone requires one.

I understand the situation, I have been researching it for 3 years. Children should not have service dogs. If they do, the dog is a baby sitter.

I think that it is appropriate for an adult or teen that has AS to have a service dog though. In fact, I know of several that do on another forum that I go on. It is called Service Dog Central.

I never heard of chewy tubes so I had to google it to see what you were talking about. Wow I can't believe they make such. I found a site that sold sensory stuff and couldn't believe what they had. I don't think I would like chewy tubes though I do like chewing, but mostly crunchy food.

I don't think I would like weighted blankets because the lead aprons the dentists use put me in panic mode even to have one on for a few seconds. I don't see how it calms some autistics. There is a comfort pillow the sensory site has that I think I would like. I can't sleep even in summer unless I wrap myself up in a blanket kinda like swaddling a baby.

I hate the idea of service dogs unless they are opening doors, picking up things or leading people. My deaf neighbors used the excuse of service dogs and had two untrained out of control shepherds and a pit bull they claimed were service dogs. The shepherds attacked me and I still have trouble walking over a year later. So I think a lot of people use service dogs as an excuse to get what is nothing more than a pet. Pets are great, but call it what it really is.

For those that enjoy chewy tubes, I'd love to hear your opinion of the candy called Nerds Rope. lol Those are wonderful if you enjoy sensory stimulation.

I guess I hadn't seen it that way.
You're right.
Sorry.

Its fine . A lot of people do fake service dogs. But I am an activist that is part of a group that is trying to stop it.