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Forum: Autism Politics, Activism, and Media Representation Topic: Developments in Genetic Research and issues raised |
| autisticelders |
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Replies: 1
Views: 417
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| as always I appreciate the work you do in finding these articles/studies/ etc and bringing them to our attention. Thank you. |
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Forum: News and Current Events Topic: RFK's "Autism Register" - shocking data collection methods |
| autisticelders |
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Posted: Yesterday, 4:04 pm
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Replies: 15
Views: 309
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| https://www.usatoday.com/story/news/health/2025/04/25/hss-autism-registry-nih-data-platform/83269805007/ we are getting their attention. A number of revised statements have been issued recently, keep messaging, calling, writing open letters I love that many of the big autism groups got together to i... |
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Forum: Autism Politics, Activism, and Media Representation Topic: Petition to stop the national registry |
| autisticelders |
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Posted: Yesterday, 4:00 pm
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Replies: 13
Views: 348
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| https://www.usatoday.com/story/news/health/2025/04/25/hss-autism-registry-nih-data-platform/83269805007/ concerted effort is paying off, our voices are being heard, I saw RFK in an interview a couple nights ago and he seemed genuinely shocked and dismayed by the huge reaction from us about his state... |
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Forum: General Autism Discussion Topic: I feel like an emotional sponge |
| autisticelders |
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Posted: Yesterday, 3:56 pm
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Replies: 5
Views: 271
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| check into hypervigilance as a sign of trauma. I am never able to let down my emotions radar for others if they are in my presence. Always scanning and preparing to act or react to anybody elses' demands, behaviors, etc etc. I think I learned to do this (and I don't shut down, ever, in the presence ... |
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Forum: General Autism Discussion Topic: I take issue with Chloé Hayden's Different, Not Less |
| autisticelders |
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Posted: Yesterday, 3:50 pm
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Replies: 1
Views: 95
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| great insights. having support of any sort, anybody who could love and encourage us has to make a huge difference. Each of us being different, not one of us having the same neurology ends up with comparison of apples to oranges. Messages of affirmation and encouragement are good, but I suspect most ... |
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Forum: Autism Politics, Activism, and Media Representation Topic: Varied Autism Advocacy organizations pen statement |
| autisticelders |
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Posted: 24 Apr 2025, 7:49 am
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Replies: 6
Views: 244
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| this is having an effect, many voices raised together always get a politician's attention. Kennedy spoke on a TV interview a couple days ago and expressed shock and a bit of distress at how many people have spoken out , reading his statements recently it seems he is being educated, science will win ... |
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Forum: Autism Politics, Activism, and Media Representation Topic: RFK JR dated view of Autism |
| autisticelders |
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Posted: 24 Apr 2025, 7:16 am
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Replies: 40
Views: 1,030
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| president and Kennedy are both concerned but ignorant. Science will win in the end, it is a good opportunity to raise awareness and educate the general population. Kennedy spoke the other night on a show I was watching and seemed geuninely surprised at the outcry over his plans. If they choose actua... |
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Forum: General Autism Discussion Topic: Setting boundaries when you have a disability, article. |
| autisticelders |
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Posted: 24 Apr 2025, 7:12 am
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Replies: 7
Views: 455
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| good one, thanks for the post! |
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Forum: Parents' Discussion Topic: Depression for Autistic Adults |
| autisticelders |
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Posted: 13 Apr 2025, 8:31 am
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Replies: 5
Views: 2,027
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| I was at my most depressed when I lived at home and had so many demands and expectations, arrangements and plans made of me and for my "benefit". I did much better when I was on my own and able to make my own plans and live my life my own way. consider allowing him to be an adult and respo... |
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Forum: Getting to know each other Topic: Everything makes a lot more sense. New here. |
| autisticelders |
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Posted: 13 Apr 2025, 8:19 am
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Replies: 7
Views: 625
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| welcome! yes, diagnosis was a huge relief, answered so many "whys" of my life! |
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Forum: Getting to know each other Topic: Hi, I just joined the site |
| autisticelders |
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Posted: 13 Apr 2025, 8:17 am
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Replies: 16
Views: 1,093
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| welcome, you are among others who understand! |
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Forum: Getting to know each other Topic: New member |
| autisticelders |
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Posted: 13 Apr 2025, 8:16 am
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Replies: 9
Views: 1,182
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| welcome, new research especially on autism in adults is sorely needed! |
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Forum: Getting to know each other Topic: Hello! |
| autisticelders |
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Posted: 13 Apr 2025, 8:15 am
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Replies: 12
Views: 446
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Forum: Getting to know each other Topic: photography and autism |
| autisticelders |
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Posted: 13 Apr 2025, 8:14 am
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Replies: 12
Views: 589
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| Hi NIcky! I have learned (diagnosed with ASD at age 68) that my love of photography started because I can't picture a thing in my mind. My photos are my "visual memory". I did not learn of my aphantasia until a couple of years ago , long after my ASD diagnosis. It made perfect sense and al... |
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Forum: Getting to know each other Topic: photography and autism |
| autisticelders |
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Posted: 13 Apr 2025, 8:13 am
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Replies: 12
Views: 589
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| Hi NIcky! I have learned (diagnosed with ASD at age 68) that my love of photography started because I can't picture a thing in my mind. My photos are my "visual memory". I did not learn of my aphantasia until a couple of years ago , long after my ASD diagnosis. It made perfect sense and al... |
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Forum: Getting to know each other Topic: Hi! |
| autisticelders |
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Posted: 13 Apr 2025, 8:09 am
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Replies: 14
Views: 478
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| welcome, glad you found us! |
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