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AspieForty
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17 May 2010, 10:05 pm

I kept noticing "Strapples" or Alin, making an "Obsession" out of his straps and had to question "Why"? Other people, like me, might not have understood there's a very real reason for that, evidently.
Why he loves "straps" and talks about wrapping himself up tightly.. and reacts to warmth -- in a way NT's and I assume, most other Autistic people probably wouldn't relate to.
Maybe others were afraid to ask, WHAT he's talking about. I certainly couldn't understand, until he explained it. Not sure if others here can explain "Sensory Integration"... i.e., deriving "Extreme pleasure" from just pressure on your body??? The web appears vacant of this information... the only articles I found describe sensation in terms of NT sensation... like "normal" people feel things, and evidently fail to explain "sensation" from an Autistic or Cerebral Palsy individual's perception... which is naturally, very different from an NT.

I just asked permission from Alin (Strapples) if I could post his answers to me, for clarification and anyone interested to understand where he's coming from... this is unbelievable.

Quote:
Do you get "deep sensual pleasure" out of pressure put on your body...? and warmth and things like that? Cerebral Palsy sounds like it would change the way a person experiences pain and pleasure....

Alin: yes ... sometimes ... depending on where the pressure is ... and how its placed
/describes EXTREME PLEASURE in particular regions of his body / / /

You seem to REALLY ENJOY some aspects of your disability. That is so wild...

Alin: yeah

(Strapples: http://www.wrongplanet.net/forums-profi ... 15338.html / http://alinssite.info )

Quote:
Autism characteristics, signs of autism, autism symptoms, autism ...
We respond with pleasure to the warmth and pressure of a hug. ... Children with autism may be hyposensitive or hypersensitive to sounds. ...
~ brighttots.com/Autism/Characteristics_of_autism

The best I come close to "sensory issues," (being Aspergers Syndrome) is that I don't like wool sweaters (waugh... itchy and scratchy and annoying... I have to peel out of it quickly)... I avoid bright lights (sometimes) especially at night, the sun is okay if its daylight and I choose to walk outside... I can't sleep in complete silence my ears start ringing... I guess those are sensory issues, but, I don't have anything that triggers deep, deep sensations of pleasure of my brain comparable with the big *O* or a built in 'natural high' by physical pressure -- what Alin's describing is more like a super-natural high, . . . that's totally wild. ... I guess he really, really enjoys his disability and a little more than simple self-acceptance...
Image
Quote:
Cerebral Palsy & Sensory Integration
Many children with cerebral palsy have a corresponding condition called sensory integration dysfunction, which can be treated with therapy. The problems are directly related to the neurological damage causing cerebral palsy and its corresponding physical effects. Sensory integration dysfunction is also commonly found in children with autism and attention deficit disorder and causes difficulty organizing sensory perceptions.
Identification
Sensory integration dysfunction causes problems in processing information from the five senses, along with the sense of movement and the proprioceptive sense. The proprioceptive sense tells us where the parts of our bodies are, and how we connect with other objects. Unusual responses to these senses is prevalent in children with cerebral palsy.
Children with cerebral palsy can display sensory integration dysfunction in many ways. They may be overly responsive to outside stimuli or not responsive enough. One child avoids contact with the outside world as much as possible, while the other seeks extra stimulation to the point of aggravating others around him. Children with sensory integration dysfunction may be hypersensitive to certain types of tactile stimulation and avoid it as much as possible. For instance, they may cry if they have to touch a certain type of fabric.
Auditory and Visual Issues
Common sensory integration problems seen in cerebral palsy are auditory and visual. Although the physical organs function properly, the messages to and from the brain are disrupted. The child may not respond to speech or may be unable to figure out where a sound is coming from. He might not be able to recognize certain people's voices. A child with visual issues may have trouble using words to define objects or be unable to find an object in plain view.
http://beta.essortment.com/27251-cerebr ... ation.html


..and when he gets massage therapy *yay for Alin* his caseworker began discussing the services with him thru email today... and when he receives therapy, they should work on the areas of his body, that stimulate those deep pleasurable feelings he describes... and sensitive to the way he *wants* to be massaged.

Some Autistic people, evidently receive regular massage therapy treatments, as was described:
http://wrongplanet.net/postp2787664.htm ... t=#2787664

Quote:
Caring for -- and Blogging About -- Her Five Autistic Children
http://aolhealth.com/2010/03/04/caring- ... -odonnell/
AOL Health: Raising six children would be difficult for any mother, but when five are autistic, it's especially challenging. How do you cope?

JO: Caitlin gets community living assistance. That means she gets massage therapy once a week. Wouldn't we all like that?
/EXCERPT ..


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Strapples
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17 May 2010, 10:09 pm

thanks for making the topic about me... by the way those special pressure areas for me are my head my neck my chest and belly and arms sometimes my legs


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CockneyRebel
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17 May 2010, 10:24 pm

I can relate to his strong obsession with straps, or your strong obsession with straps, because I have a strong obsession, myself. That obsession is music, and The Kinks in particular. It's hard for me, not to be obsessed with a band, that I look like one of the original members of. It's also HFA that I have, and not the somewhat milder AS. One of the things that separates AS and HFA, is that people with HFA usually have stronger obsessions. Not always, bu usually.


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AspieForty
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17 May 2010, 10:33 pm

CockneyRebel wrote:
I can relate to his strong obsession with straps, or your strong obsession with straps, because I have a strong obsession, myself. That obsession is music, and The Kinks in particular. It's hard for me, not to be obsessed with a band, that I look like one of the original members of. It's also HFA that I have, and not the somewhat milder AS. One of the things that separates AS and HFA, is that people with HFA usually have stronger obsessions. Not always, bu usually.


Is it that you are particularly fond of the music ... and derive pleasure from the music??

Sometimes... some certain songs, I'll play over and over and over, because of the way the music makes me feel.


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Strapples
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17 May 2010, 10:35 pm

AspieForty wrote:

Is it that you are particularly fond of the music ... and derive pleasure from the music??

Sometimes... some certain songs, I'll play over and over and over, because of the way the music makes me feel.


i plead guilty to looping music


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AspieForty
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17 May 2010, 10:46 pm

Strapples wrote:
thanks for making the topic about me... by the way those special pressure areas for me are my head my neck my chest and belly and arms sometimes my legs


I did read your life story last night, and noticed that you tell you must have clearly, at one time been up walking and going about a fairly normal life on the whole.. and therefore, should recognize / relate to NORMAL sensory perception... but then Cerebral Palsy began taking effect, and changed your life and how you process/perceive sensations.

So, if anyone would know, it would be you. :wink: if you're saying you derive vivid pleasure from intense pressure in some areas of your body... that doesn't sound like typical sensation, most of the rest of us would relate to.

Quote:
http://alinssite.info/about-me/

May 15, 2010
About Me
Immediately after graduating eigth grade the high school got me a work permit and I started working at a computer rental company where my mother worked as a sales representative. I worked as an I.T technician repairing and preparing computers and equipment for rental. I am knowledgeable in computer hardware and I became the youngest I.T technician in the company. I knew more than most of the technicians that worked there. There was was a server there which none of the other technicians could get repaired and running, and after four hours the owner of the company told me to try to fix it. In under 30 minutes I had it fixed and running. I am a sponge with information. I research things and find out how things work and think about how to make them work for me. By the end of the summer, I found it progressively difficult to lift things, that I were lifting just two months earlier, something was wrong with my body.
Freshman year in high school was miserable for me. I fell walking in the woods and dislocated my knee cap, after physical therapy and rehab, I discovered my muscles in my legs hurt all the time. I had pain in my spine and it seemed there was something wrong. Some days my legs hurt so bad I didn’t want to leave the house.


Some on WP, may have mistakingly assumed you'd "just always been" in a wheelchair. This was a fairly recent change in your life is what I understand.

Alin, it is very gracious of you to share so much about your life with the world.


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Strapples
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17 May 2010, 11:32 pm

thanks. yeah i experienced the deep happiness since birth with pressure and warmth


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AspieForty
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17 May 2010, 11:45 pm

Strapples wrote:
thanks. yeah i experienced the deep happiness since birth with pressure and warmth


Let me make sure I get this correct ...

Aspie40: You know the difference between a "normal" vs. "deep" pleasure from intense pressure on special areas of your body. Some may have trouble understanding you literally mean you derive special pleasure thru C.P. -- at least that's how I'm understanding your explanation.

Alin: i always had the deep thing.

Aspie40: Because of Cerebral Palsy... right?

Alin: i was born with it.

Aspie40: You're experiencing things... the way I understand, is almost like a positive hypersensitivity to outside touch/feeling.

Alin: yes

Aspie40: I know you told me you don't want to be "cured" and I gather its because of all the positive things you feel (a positive hypersensitivity to touch that feels like the big "O"). But if you were like some C.P. people, and didn't derive that level of pleasure from sensation, would you want to be cured, you think?

Alin: no

Aspie40: The point is, you find something very positve, and worthwhile to keep with your disability... enough that you don't want to change. Is that why you're so bold, and proudly identifying with your straps/wheelchair/etc.?

Alin: because i enjoy my straps

Aspie40: Does it put pressure on some part of your body?

Alin: yes
chest
legs
ankles
hips

:lol: :lol: If I had something built inside, that felt like a "natural high factory"... I probably wouldn't want to be "cured" of it, either. :lol: :lol:

It's not ironic at all considering most Aspergers people describe their experiences around NT's as not being pleasurable and come away viewing Aspergers as more of a blessing... with no desire to be "cured". I for one empathise... I wish instead that NT's could see things from my perspective... life should be so plain and simple. NT's are the ones who complicate everything. Simple, plain honesty and truth in things... it's so... righteous to think like an Aspie.


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MrGeezy
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17 May 2010, 11:45 pm

Not to get off topic, but I checked out your site yesterday and I found your rant about the Oximiter to be hilarious and entertaining(I laughed out loud at one point.) You seem like a very strong individual, and I admire that.



Strapples
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17 May 2010, 11:49 pm

MrGeezy wrote:
Not to get off topic, but I checked out your site yesterday and I found your rant about the Oximiter to be hilarious and entertaining(I laughed out loud at one point.) You seem like a very strong individual, and I admire that.


lOL thanks. the oximeter rants are good lOL


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AspieForty
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18 May 2010, 12:38 am

Strapples wrote:
thanks. yeah i experienced the deep happiness since birth with pressure and warmth


... do you feel your deep sensitivity comes from either Autism or Cerebral Palsy... or even a unique combination of both conditions?

The following article mentioned both conditions related to sensory integration issues.

The article states,
Quote:
Children with sensory integration dysfunction may be hypersensitive to certain types of tactile stimulation and avoid it as much as possible. For instance, they may cry if they have to touch a certain type of fabric.


If they can become that uncomfortable from a type of fabric, then certainly its understandable they should potentially be capable of deriving an equal amount of extraordinarily vivid pleasure from other sensations (like you're describing).

Quote:
Cerebral Palsy & Sensory Integration
Many children with cerebral palsy have a corresponding condition called sensory integration dysfunction, which can be treated with therapy. The problems are directly related to the neurological damage causing cerebral palsy and its corresponding physical effects. Sensory integration dysfunction is also commonly found in children with autism and attention deficit disorder and causes difficulty organizing sensory perceptions.
Identification
Sensory integration dysfunction causes problems in processing information from the five senses, along with the sense of movement and the proprioceptive sense. The proprioceptive sense tells us where the parts of our bodies are, and how we connect with other objects. Unusual responses to these senses is prevalent in children with cerebral palsy.
Children with cerebral palsy can display sensory integration dysfunction in many ways. They may be overly responsive to outside stimuli or not responsive enough. One child avoids contact with the outside world as much as possible, while the other seeks extra stimulation to the point of aggravating others around him. Children with sensory integration dysfunction may be hypersensitive to certain types of tactile stimulation and avoid it as much as possible. For instance, they may cry if they have to touch a certain type of fabric.
Auditory and Visual Issues
Common sensory integration problems seen in cerebral palsy are auditory and visual. Although the physical organs function properly, the messages to and from the brain are disrupted. The child may not respond to speech or may be unable to figure out where a sound is coming from. He might not be able to recognize certain people's voices. A child with visual issues may have trouble using words to define objects or be unable to find an object in plain view.
http://beta.essortment.com/27251-cerebr ... ation.html


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Strapples
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18 May 2010, 12:53 am

its a combi of both


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CockneyRebel
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18 May 2010, 3:48 am

AspieForty wrote:
CockneyRebel wrote:
I can relate to his strong obsession with straps, or your strong obsession with straps, because I have a strong obsession, myself. That obsession is music, and The Kinks in particular. It's hard for me, not to be obsessed with a band, that I look like one of the original members of. It's also HFA that I have, and not the somewhat milder AS. One of the things that separates AS and HFA, is that people with HFA usually have stronger obsessions. Not always, bu usually.


Is it that you are particularly fond of the music ... and derive pleasure from the music??

Sometimes... some certain songs, I'll play over and over and over, because of the way the music makes me feel.


Bingo!


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AspieForty
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18 May 2010, 12:53 pm

CockneyRebel wrote:
AspieForty wrote:
CockneyRebel wrote:
It's also HFA that I have, and not the somewhat milder AS. One of the things that separates AS and HFA, is that people with HFA usually have stronger obsessions. Not always, bu usually.

Is it that you are particularly fond of the music ... and derive pleasure from the music??
Sometimes... some certain songs, I'll play over and over and over, because of the way the music makes me feel.

Bingo!


Hmmm, maybe that's a sensory issue. I had never thought about it. :?
There was one guy that mentioned to me once and I found it odd.. he said he would read about his favorite sci-fi novels ... and get lost in the fantasy... some kind of hypersensitivity issue going on.

I guess I do the same thing too. Normally, I don't like loud noises around me. I despise wild, loud atmospheres. But, I listen to (namely) Alice in Chains (great harmony... not typical R&R) -- and another is Metallica (which has even been set to classical music -- including whole orchestras) ... they are so beautiful.. and there's something about the music, I just get lost in it... and I don't want to stop playing the song... over and over and over again.

I guess I am hypersensitive to some things.
Alice in Chains... Would
Alice in Chains... I Stay Away
Alice in Chains... Rooster
Alice in Chains... Man in the Box
are some songs. The harmony is superb :thumright: :thumright: :thumright: :thumright: and um, :thumright: ...
They also have another new release with William Duvall (since Layne Staley died)
Alice In Chains... Check My Brain

Pretty fitting... being Aspergers... and I LIKE being an Aspie, so its poignant, and that song clicks for me. :wink: TURN IT UP LOUD. No, I'm not joking...

It really helps me relax, focus.. and without it, I can't concentrate that well. I usually keep some kind of music in the background (to alleviate ringing in my ears) -- but more than that, if I really am wanting to get focused and into my work, I'll play that one song (of my choice that blends with how I'm feeling at the moment)... or even, makes me feel something I want to feel... and get lost in the music.... over and over and over and over and over.... 50 times... 100 times... day after day.... nobody normally notices though, usually. :? I'm not overtly obscene with my Aspie quirks.

My Dad once got really annoyed when he observed I was watching the same movie over, for the umpteenth time, and asked me why I kept replaying it, "Are you looking for the script to change??!" I think it was a mix of fascinating characters... and the soundtrack...

Yup, normally I don't like loud noises... but if its a good song, that I especially like... I'll turn up the radio in the car... really loud. But those times I like to be alone, and no other noises like people in the car talking... I like driving, intensely focused on everything going on (there are some REAL IDIOT DRIVERS on the road), without distractions. Like, for every 10 mph I'm driving, I try to stay 1 car length behind that person, so 50 mph = 5 car lengths behind the car in front of me.. and I do NOT like anyone riding my tail-end, it makes me berzerk... foreseeing the result if a deer jumped out in front of me. I don't like annoying passengers either that blab blab blab blab... distracting me. If I'm driving on a clear highway... okay.. maybe some talk is okay... but not when anything unpredictable could happen, like a deer on an off-road. I'm a firm believer in "defensive driving". Instead of the music being a distraction, it helps me focus better on the road... sounds weird, I guess.


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AspieForty
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19 May 2010, 5:39 pm

Strapples wrote:
thanks for making the topic about me... by the way those special pressure areas for me are my head my neck my chest and belly and arms sometimes my legs


Just throwing this out there, never know if somebody will pick up the thread... what the heck... somebody might know something about a distributor in the United States.
Alin said he is particularly fond of "Blood Pressure Cuffs" and the pressure as it pushes inward... I located something that appears similar.
Unfortunately, this distributor is in Checkoslovakia and Russia.
Quote:
REHABILITATION PNEUMATIC SUIT „ATLANT“ ADVADVANCED SPASE TECHNOLOGIES RPS „ATLANT“ BRINGS DECISION

START TO FEEL YOUR BODY AND HAVE ABILITY TO MOVE FREELY
PUT YOUR SICK CHILD ON FEET
Rehabilitation pneumatic suit „Atlant“
is used to the following diseas
• POST STROKE
CEREBRAL PALSY


[youtube]http://www.youtube.com/watch?v=d1CtKqk26hg[/youtube]

Quote:
• TRAUMATIC BRAIN INJURIES
• SPINAL CORD INJURIES
• STROKE
• DISEASES OF A LOCOMOTIVE SYSTEM
• NEUROORTOPEDIC DISEASES
SCOLIOSIS, ARTHROSIS, OSTEOPOROSIS
KOVERALL IS VERY EASY IN APPLICATION.
May be dressed in a lying position,
staying position right on clothes.
RPS „ATLANT“ MAY BE USED AS A PART OF REHABILITATION TREATMENT OR AS
A INDEPENDENT DEVICE AT HOME.
http://rpkatlant.com/en/main


It inflates, like "Blood Pressure Cuffs" as he described
Quote:
RPS «Atlant» is made as a suit, of a special material. The suit is equipped by elastic air enclosures, which are air- filled by air-pumping unit. Air pressure in enclosures is adjustable.

Enclosures lie along antagonistic muscles of a body and body-parts. Affected by air pressure, enclosures are being spread and create tension in material of the suit. This tension provides corseting of a body and limbs. Mechanical, simultaneous squeezing of a body and limbs results in strained tendons, muscle pulls and stretching of joints, at the same time proprioceptive stimulation increases, α-γ-motoneuron system activates on all levels of central nervous system and neurophysiologic preconditions for rehabilitation of damaged posotonical control appear. A patient starts to maintain position, motion practice rehabilitates, coordination and speech habit improves.

RPS «ATLANT» is being used in cases of complex rehabilitation in hospitals, outpatient treatments and home as self-contained rehabilitation device.

Medical product RPS «ATLANT» is manufactured in the following set:
1. Coverall of special material.
2. Head position holder.
3. Shoes (if assigned)
4. Electric air pumping unit.
http://rpkatlant.com/en/rps--atlant


If there's anyone who would know anything about something like this, distributed in the United States, feel welcomed to offer the information....


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19 May 2010, 6:02 pm

i so need this!!


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