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Twilightprincess
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Location: Small Town From Hell

01 Aug 2022, 9:50 am

I just realized that I’ve never done this. It’s about time that I introduced myself.

What is your first name? Nicole or Nikki. I can’t decide which.

Age: 38

Location: PA

Hobbies and Interests: Playing the piano, reading, studying Spanish and French, playing video games, and cooking

Why are you here? Why are any of us here? What does it all mean? Where are we all going?

When were you diagnosed? I was diagnosed when I was 30 with ASD level 1.

Favorite subject: Literature

Favorite music: Classical music from the Romantic period, but I enjoy other periods and types of music as well. I like lots of singer/songwriter-type stuff.

Books: There’s so many that it’s hard to pick a few, but here are some of my favorites:
Jane Eyre
Bleak House
David Copperfield
The Awakening
Mrs. Dalloway (I love Virginia Woolf)
The Hobbit
Lord of the Rings

TV shows/Movies: I love old movies, especially Alfred Hitchcock’s. Some modern movies I like are: Black Swan, Lord of the Rings trilogy, and The Hours. I’m not a big TV person, but I used to watch Star Trek, The Twilight Zone, and Will and Grace.

Instrument: Piano

Do you like sports? No way!

Family: I have a son. My brother is my BFF.

Clothing: Comfy and somewhat bohemian.

How did you find this website? I think I found it when I was researching autism when I was pre-diagnosis. I lurked without posting for 2 years.

Job: Special Education Teacher

Plans for the future? I want to get better at my languages and the piano. I also want to do interesting things, like travel.


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PinkFloydMania
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Joined: 27 Jul 2022
Age: 29
Gender: Male
Posts: 13

16 Aug 2022, 4:04 pm

Joined a little while back, didn't see this thread then so I'll contribute now.


What is your first name?: Alec

Age: 29

Location: Kansas

Hobbies and Interests: Making music, writing sci-fi, playing Sonic the Hedgehog 24/7

Why are you here?: I'm lonely, not a lot of open autists like me out in the sticks

When were you diagnosed?: Nearly a year ago today I believe

Favorite subject: Science

Favorite music: Progressive rock, vaporwave, video game soundtracks (especially Sega Genesis and Sega Saturn)

Favorite books: Anything by Isaac Asimov, Arthur Clarke, or H.P. Lovecraft for sure

Favorite TV/movies: Not a big motion picture guy, mainly waste time watching MCU films I guess

Instruments: Piano/keyboards, bass guitar, saxophone

Sports: None, I'm pretty lazy and uninterested in them

Family: Not since discovering my autism and getting the COVID-19 vaccine (no correlation I'm sure :lol: )

How did you find this website?: Don't remember, probably through some random Google searches

Job: Cartographer

Plans for the future?: I'm just going to keep on with everything I'm doing now I suppose, I'm not a big dreamer



Jakki
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16 Aug 2022, 5:14 pm

Welcome Alec….. hope you find like minded people in these threads and forums ? Or ? Whatever ?
Am aware of some people here have a musical side to them. From my experience. Even one guy that restores old recordings to higher than original quality. Enjoy . :D


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IsabellaLinton
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16 Aug 2022, 6:07 pm

I don't think I ever did this.


What is your first name? Isabella, Issy, Ella

Age: 54

Hobbies and Interests: Writing (poetry, prose, literary essays, my new blog), 19th Century British and German Literature, Philosophy especially Metaphysics and Ethics, music -- especially with guitar, pets, old churches, old photos, cemeteries, ancestry, gothic ghost stories, pillow forts, bad weather, art history, medical info, and horseback riding.

No I'm not a witch. ^ I like cemeteries because of the history, ghost stories because of metaphysics, and bad weather because it's cosy to stay inside. Also, my eyes don't like bright sun.

Why are you here? I love writing. The word games helped me with word fluency after I had a stroke, and I think better when I can see my words in written form. I use WP to think and to explore what's going on in my feelings. I like the music and the book suggestions, and it's fun to debate ethics.

It's nice to meet people who kind of understand autism.


When were you diagnosed? May 2018 (ASD-2), March 2020 (ADHD)

Comorbids:
C-PSTD, Selective Mutism, Panic Disorder, MDD, GAD, Alexithymia, Agoraphobia, Scopophobia, Synaesthesia, and every possible type of Sensory Processing Disorder. Oh I've also had two strokes.

It's not actually as complicated as it sounds. ^

I appear like a regular autistic person on the outside.

Favourite subjects: Philosophy, Literature and Literary Theory, Rhetoric, Art History

Year/Grade: Post-Graduate

Favourite music: Nearly anything with guitar: folk / acoustic, classic rock, metal, punk, grunge, and Indie
Notable bands: Beatles, Arctic Monkeys, Foo Fighters, Tame Impala, Sex Pistols

Books: Philosophy - Plato, Kant, Russell, Phillipa Foot, Mary Midgley, Iris Murdoch, John Rawls, Will Kymlicka

Literature - Villette, Wuthering Heights, The Picture of Dorian Gray, Hester, Sister Carrie, A Population of One, Marlowe, Shakespeare, Byron, Shelley, Goethe, Schiller, Brontë poetry and essays, Thomas Hardy, Margaret Oliphant, Elizabeth Gaskell, Oscar Wilde, Stevie Davies and Christine Alexander, AA Milne, Judy Blume, Constance Beresford-Howe, Celeste Ng

Far too many literary biographies to name

TV shows/Movies: TV: Six Feet Under, Succession, Dexter, Flintstones
Movies: Dead Poets' Society, It's a Wonderful Life, To Kill a Mockingbird, Ferris Bueller, Breakfast Club

Instrument: I can't play anything but I love guitar, bass guitar, sitar, and drums

Do you like sports? Mostly swimming and boating
I like watching hockey and Olympics. I used to be an avid mountain-biker
I've never been on a team for anything


Family: Happily divorced
Mother, older brother, son, daughter, scads of cousins
I've been a single mum for over 25 years

One dog, three cats


Clothing: Usually

How did you find this website? I was looking to see if I was the only person in the world who hated Daylight Savings Time because of photophobia. Apparently I'm not alone.

Job: Recently retired after several years on LTD, after a 20+ year full-time professional career

Plans for the future? Nope

Any comments? In general yes, I tend to have lots.



IMSpringer
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Joined: 29 Jul 2022
Age: 59
Gender: Male
Posts: 14
Location: Sacramento

17 Aug 2022, 8:03 am

Hi Nikki! Nice to meet you. Thanks for standing up.

You sound like a really fun person; We have some things in common. Spanish is my first second language, and I learned quite a bit of French by osmosis because my mother was always watching French in Action lessons.

And I love English language literature. I have my MA in that.

I notice you love The Twilight Zone. I grew up on those. I wonder if you have seen the new ones, with Jordan Peele, from 2019-2020. Nobody could ever replace Rod Serling, of course, but I am very impressed with how the new episodes retain the spirit of the originals, while also being well suited to our present times.

And there are many delightful inside jokes for you and me, for people who are familiar with the Rod Serling series.

You take care and stay healthy now!

Mark


Twilightprincess wrote:
I just realized that I’ve never done this. It’s about time that I introduced myself.

What is your first name? Nicole or Nikki. I can’t decide which.

Age: 38

Location: PA

Hobbies and Interests: Playing the piano, reading, studying Spanish and French, playing video games, and cooking

Why are you here? Why are any of us here? What does it all mean? Where are we all going?

When were you diagnosed? I was diagnosed when I was 30 with ASD level 1.

Favorite subject: Literature

Favorite music: Classical music from the Romantic period, but I enjoy other periods and types of music as well. I like lots of singer/songwriter-type stuff.

Books: There’s so many that it’s hard to pick a few, but here are some of my favorites:
Jane Eyre
Bleak House
David Copperfield
The Awakening
Mrs. Dalloway (I love Virginia Woolf)
The Hobbit
Lord of the Rings

TV shows/Movies: I love old movies, especially Alfred Hitchcock’s. Some modern movies I like are: Black Swan, Lord of the Rings trilogy, and The Hours. I’m not a big TV person, but I used to watch Star Trek, The Twilight Zone, and Will and Grace.

Instrument: Piano

Do you like sports? No way!

Family: I have a son. My brother is my BFF.

Clothing: Comfy and somewhat bohemian.

How did you find this website? I think I found it when I was researching autism when I was pre-diagnosis. I lurked without posting for 2 years.

Job: Special Education Teacher

Plans for the future? I want to get better at my languages and the piano. I also want to do interesting things, like travel.



IMSpringer
Butterfly
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Joined: 29 Jul 2022
Age: 59
Gender: Male
Posts: 14
Location: Sacramento

17 Aug 2022, 8:19 am

Wow! Isabella. It is so great to meet you. I could practically write a monograph on all we have in common.

I have an MA in English language literature, and I am just starting another bachelor's degree in philosophy. I have been hip-deep in Plato for a while now. I adore Shakespeare, and Winnie-the-Pooh is my great personal hero. I wonder if you have read The Little Prince? Benjamin Hoff?

I love Michael C. Hall, Harper Lee, and gods, I so miss Robin Williams! I once saw him at a live taping of Mork and Mindy back in 1980. But Dead Poet's Society was a life-altering experience for me!

Thank you so much for standing up. I would love to get to know you if that's all right.

Stay healthy!


IsabellaLinton wrote:
I don't think I ever did this.


What is your first name? Isabella, Issy, Ella

Age: 54

Hobbies and Interests: Writing (poetry, prose, literary essays, my new blog), 19th Century British and German Literature, Philosophy especially Metaphysics and Ethics, music -- especially with guitar, pets, old churches, old photos, cemeteries, ancestry, gothic ghost stories, pillow forts, bad weather, art history, medical info, and horseback riding.

No I'm not a witch. ^ I like cemeteries because of the history, ghost stories because of metaphysics, and bad weather because it's cosy to stay inside. Also, my eyes don't like bright sun.

Why are you here? I love writing. The word games helped me with word fluency after I had a stroke, and I think better when I can see my words in written form. I use WP to think and to explore what's going on in my feelings. I like the music and the book suggestions, and it's fun to debate ethics.

It's nice to meet people who kind of understand autism.


When were you diagnosed? May 2018 (ASD-2), March 2020 (ADHD)

Comorbids:
C-PSTD, Selective Mutism, Panic Disorder, MDD, GAD, Alexithymia, Agoraphobia, Scopophobia, Synaesthesia, and every possible type of Sensory Processing Disorder. Oh I've also had two strokes.

It's not actually as complicated as it sounds. ^

I appear like a regular autistic person on the outside.

Favourite subjects: Philosophy, Literature and Literary Theory, Rhetoric, Art History

Year/Grade: Post-Graduate

Favourite music: Nearly anything with guitar: folk / acoustic, classic rock, metal, punk, grunge, and Indie
Notable bands: Beatles, Arctic Monkeys, Foo Fighters, Tame Impala, Sex Pistols

Books: Philosophy - Plato, Kant, Russell, Phillipa Foot, Mary Midgley, Iris Murdoch, John Rawls, Will Kymlicka

Literature - Villette, Wuthering Heights, The Picture of Dorian Gray, Hester, Sister Carrie, A Population of One, Marlowe, Shakespeare, Byron, Shelley, Goethe, Schiller, Brontë poetry and essays, Thomas Hardy, Margaret Oliphant, Elizabeth Gaskell, Oscar Wilde, Stevie Davies and Christine Alexander, AA Milne, Judy Blume, Constance Beresford-Howe, Celeste Ng

Far too many literary biographies to name

TV shows/Movies: TV: Six Feet Under, Succession, Dexter, Flintstones
Movies: Dead Poets' Society, It's a Wonderful Life, To Kill a Mockingbird, Ferris Bueller, Breakfast Club

Instrument: I can't play anything but I love guitar, bass guitar, sitar, and drums

Do you like sports? Mostly swimming and boating
I like watching hockey and Olympics. I used to be an avid mountain-biker
I've never been on a team for anything


Family: Happily divorced
Mother, older brother, son, daughter, scads of cousins
I've been a single mum for over 25 years

One dog, three cats


Clothing: Usually

How did you find this website? I was looking to see if I was the only person in the world who hated Daylight Savings Time because of photophobia. Apparently I'm not alone.

Job: Recently retired after several years on LTD, after a 20+ year full-time professional career

Plans for the future? Nope

Any comments? In general yes, I tend to have lots.



CockneyRebel
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Location: On a special base where the Christmas soldiers of the world live

20 Aug 2022, 10:28 pm

Welcome to WP! :mrgreen:


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IQ: 86 and I use all 86 of them.


FranzOren
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21 Aug 2022, 8:51 pm

Hi, I am Oren Franz. I have Adjustment disorder with other symptom, mental health issue, and Autism spectrum.

I have history of being diagnosed with PDD-NOS, ADHD and Bipolar Disorder. I also found out that I show symptoms of Conduct Disorder Unspecified, Megalomania and Erotomania. I also had guilt and paranoid complex.

I developed some NT social skills when I got much older, but I used to have severe communication delays, delusional imaginary friends, and sensory issues from my childhood.



nomnomish
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Joined: 25 Aug 2022
Age: 32
Gender: Male
Posts: 3
Location: Utah

26 Aug 2022, 11:19 am

What is your first name? Jake

Age: 33

Location: In a desert in Utah

Hobbies and Interests: Science, Astrology, Math, Computers (programming, soldering and board-making), Fighting games like Tekken and SkullGirls, All types of music, hiking, fishing, homesteading, space colonization

Why are you here? I am done trying to get meaningful interactions out of normies

When were you diagnosed? First as Asperger's when I was 15, then High-functioning Autistic at ~20 and Autistic with savant features about 6(?) years ago

Favorite subject: Using robots and AI for space colony construction

Favorite music: Japanese Happy Hardcore Techno(rAmen Break on YouTube, I made episode 48 under the stage name DJ GiGABass) or classical like Chopin and Tchaikovsky

Books: Sword of Truth by Terry Goodkind, Harry Potter, any DIY books and manuals for the most part

TV shows/Movies: ...I love all anime

Instrument: Does the computer count like in rAmen Break 48?

Do you like sports? Yeah, I love playing soccer. I never watch football unless it's Super Bowl, but 49ers have always been my team since I can remember

Family: My dog, Sabrina, My two daughters that live with my mom and brother. As far as I know, they are normies but they've had valid reasons behind their malice towards me at times. My borther is a good bit worse than my mom, but regardless

Clothing: I prefer gym clothes

How did you find this website? I can't remember at the moment, but I remember when I first posted about 7 years ago on a different account

Job: Remote developer for a time keeping company

Plans for the future? I will live at LaGrange point 4 after achieving my Doctorate's. I will provide blueprints and schematics protected via GPLv2 for anyone else to follow and join me there to form the first community in space.



Jakki
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26 Aug 2022, 12:27 pm

Hi there …nonnomish,, welcome to the planet….hope you find your visits here to be good ones, and perhaps enjoy some of the often curious opinions in the forums here ..
By your intro, you sound quite talented . Hope your Space community concept blossoms further.
Am older and not familiar with some of the things you wrote about . … but music is always appreciated .
We have some people here that are involved in Sound restoration on a in-depth level . Finding them could be another issue , here. We have a few savants here, but never seen one eager to make it widely known on this site .?
Often their posts give them away. :nerdy: :D
But you may find that often savants are fairly good in specific fields , It does sound like you have been able to make a wide variety of things as your specialized interests …. :D
Seems , people here are a broad swath across the spectrum . Good luck with your future endeavors they sound like brilliant ones . 8)


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Quote:
where ever you go ,there you are


Diverse4Me
Snowy Owl
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Joined: 8 Aug 2022
Age: 47
Gender: Non-binary
Posts: 136
Location: Canberra, Australia

09 Sep 2022, 3:18 am

I just realised that I should do this, about time that I introduced myself.

What is your first name? Drew

Age: 47

Location: ACT, Australia

Hobbies and Interests: Advocacy, Reading, Computers (not games), volunteering, blogging, music, photography, videography & editing, design. Self-help, living life to help others, with intent. Creativity and ideas...

Why are you here? Information, community, support

When were you diagnosed? ASD2(2020) ADHD(1994)

Comorbids:
Depression forever
2006 M.E. post Glandular fever (Infectious Mononucleosis)
2021 Congestive heart failure (LVEF 23%!)

Favorite subject: Too many! Books, TV, advocacy, ableism, spirituality, self-help.

Favorite music: Clear vocals and meaningful or poetic lyrics, a nice catchy rhythm or beat, in many genres. Alternative mainly, some country, some EDM/dance. Used to DJ a little once upon a time @ Uni. Been trying to get my hand back in and learn Ableton, which is a talented and complicated beast.
Whitlams, Leonard Cohen, Nick Cave, Paul Kelly, Fatboy Slim, Avicii

Books: So so many that it’s hard to pick a few, but here are some of my faves:
Kurtherian Gambit & much of Michael Anderle.
Harry Potter and the Methods of Rationality (Harry Potter re-written without plot holes, and the scientific method!)
Hard Scifi, ala Heinlein, some urban fantasy
Some Poetry, classics, Kafka
Neil Gaiman, Terry Pratchett, Douglas Adams

TV shows/Movies: Grey's Anatomy, Doctor Who, Special, Atypical, Goddess of 1967, Happiness, Across the Universe, The West Wing, True Blood, Something Somewhere, Queer As Folk, The Good Doctor, actually lots of medical shows.

I struggle with depression, more so since getting M.E. 16 years ago, and I get both hope and dark hope in the everpresent shadow of death in medical drama.

"The best thing about M.E. is it doesn't kill you*. The worst thing about M.E. is it doesn't kill you."
* (often)

Instrument: used to play brass, learning to create on Novation Launchpad + LaunchKeys now.

Do you like sports? No to watch on TV, pre 2006 used to be into mountain-biking a lot, runner & love snowboarding.

Family: Divorced no kids, extended family history of ADHD & ASD.

Clothing: As little as possible! I'm heat-intolerant, so often in shorts and bare feet even in midwinter.
Light, so linen, and lycra and breathable clothes all the time.

How did you find this website? I think I found it when googling PDA

Job: IT Manager, networking, computer trainer etc.

Plans for the future? Many! Possibly way too big plans of differing degrees
- 1. I'd like to get the most diverse Star named for Neurodiversity & ASD
- 2. Snail4.me - A non-profit that helps people with physical & fatigue-related disabilities participate more in life.
- 3. A more inclusive 'Games' - The Paralympics only allows about 10% of people with disabilities to compete, and not us. I've been working on getting an alternative going, slowly.

Many people with disabilities can't actually physically compete, or bear being amongst such huge crowds.
I'd like to create a distributed, online and offline 'games' that is truly inclusive.

The Paralympics is all about the medical model of disability, what we can't do, adaptive sports not creative sports. I want to focus on what we can do, and what we want to do, not what other people do or think we should do.

OllyMEpics4.MEYes, it started off with a joke about people like me, with M.E.
Sometimes also called Post Viral Syndrome, or Chronic Fatigue Syndrome, but more by media than informed people :s

Image


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Drew, occasionally writing @ https://diverse4.me

ASD2, ADHD, Anxiety, Depression etc


Jakki
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09 Sep 2022, 11:07 am

Very Cool , you have wide and varied interests .. Am so sorry about your ME diagnosis …
And Lived your Cartoon .. it was very fun and poignant .. Have had Lyme and ME diagnosis in my life .
But no effective treatments are really allowed in this country . Our AMA will not allow it , many medical break though are banned here , due to strength of the medical profession lobby in our government .
Have physical disabilities and others issues . Myself thank you for being here .


_________________
Diagnosed hfa
Loves velcro,
Quote:
where ever you go ,there you are


Diverse4Me
Snowy Owl
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Age: 47
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10 Sep 2022, 6:28 am

Jakki wrote:
Very Cool , you have wide and varied interests .. Am so sorry about your ME diagnosis …
And Lived your Cartoon .. it was very fun and poignant .. Have had Lyme and ME diagnosis in my life .
But no effective treatments are really allowed in this country . Our AMA will not allow it , many medical break though are banned here , due to strength of the medical profession lobby in our government .
Have physical disabilities and others issues . Myself thank you for being here .


Ah, good to meet you, and yes, sorry to hear for you too.

Yeah, situation is not much better here. Some doctors prescribe LDN, but expensive and complicated process to get it, and harder where I live.

Can't claim authorship/artistship? of the cartoon, but yes, it's good hey!

It does miss out the sequential fire hoops of medical hierarchy and scepticism.

Not to mention hurdles at differing height and distance to find and see specialists.


_________________
Drew, occasionally writing @ https://diverse4.me

ASD2, ADHD, Anxiety, Depression etc


Jakki
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10 Sep 2022, 7:39 am

Diverse4me completely understand well the challenges of trying to get treatment for those conditions .
Could just barely afford travel to see people Doctors .. then trying to find ones whom literally can actually
Provide worthwhile real treatments .Over a hundred US miles to just to get to one appointment. Unless you
Live in a non served area , then you hope to find anybody at all who even has understanding of your condition :| .
Have had successful treatments that gave me extra life ,that took a lot to get through ( side effects) :skull: of
Treatment . Some docs have allowed for video appointments, which is a help , but you actually feel like you need to be there , to get a real assessment of your actual health condition . Then you contrast The dummy docs that might not believe a actually (testable for ) disease that shows up in your blood Will make you feel bad for even bringing the topic up . Even worse here finding a real bonafide recognized Lab that can do testing for these disease processes.
And it goes on from there . The blood draws if not checked and tested for ,while the blood is fresh needs specialized cold shipping requirements . The test could come back as a false negative . Which probably would make most
Regular Doctors happy , Then finding a doctor whom might being willing to do proper testing protocols . :roll:
SIGHes Sorry to go on . But it has been hard learned lesson in dealing with Medical establishments.
Am hoping your symptoms are mild as possible . :D


_________________
Diagnosed hfa
Loves velcro,
Quote:
where ever you go ,there you are


IMSpringer
Butterfly
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Joined: 29 Jul 2022
Age: 59
Gender: Male
Posts: 14
Location: Sacramento

10 Sep 2022, 1:04 pm

I get it Jakki,

We've all had to struggle with doctors who think they know what they don't know. I've been lucky; I have a full-service hospital ten minutes from me. That dosen't mean they all always get it.

I am very fortunate to have found a really great bunch now.

I am so sorry for your headaches. I hope you will find the resources in time and energy to stick it out, and that you find what you need.

If there is any way we can support you...!

Jakki wrote:
Diverse4me completely understand well the challenges of trying to get treatment for those conditions .
Could just barely afford travel to see people Doctors .. then trying to find ones whom literally can actually
Provide worthwhile real treatments .Over a hundred US miles to just to get to one appointment. Unless you
Live in a non served area , then you hope to find anybody at all who even has understanding of your condition :| .
Have had successful treatments that gave me extra life ,that took a lot to get through ( side effects) :skull: of
Treatment . Some docs have allowed for video appointments, which is a help , but you actually feel like you need to be there , to get a real assessment of your actual health condition . Then you contrast The dummy docs that might not believe a actually (testable for ) disease that shows up in your blood Will make you feel bad for even bringing the topic up . Even worse here finding a real bonafide recognized Lab that can do testing for these disease processes.
And it goes on from there . The blood draws if not checked and tested for ,while the blood is fresh needs specialized cold shipping requirements . The test could come back as a false negative . Which probably would make most
Regular Doctors happy , Then finding a doctor whom might being willing to do proper testing protocols . :roll:
SIGHes Sorry to go on . But it has been hard learned lesson in dealing with Medical establishments.
Am hoping your symptoms are mild as possible . :D



Jakki
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11 Sep 2022, 9:32 am

You words are supportive ..Thank you for you kind words … it was a rough road to find a competent doctor , whom would not quit until the medical association Sued her three times , finally it was too much for her and her family and gave up her medical license. Have not been able to find one like her since. And symptoms have returned in full force.
But am combating them as best as a person can do holistically . Thank you for your reply :D


_________________
Diagnosed hfa
Loves velcro,
Quote:
where ever you go ,there you are