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jacksmom
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25 Mar 2007, 10:04 pm

Hi. My son was diagnosed with autism at 20 months and then Asperger's at age 4, and he'll be 6 this summer. The best advice that I can try to give is to learn as much as you can and try to become the best advocate you can. I'm still working on both, and probably always will be, but you have to keep going forward.
I felt like life was over when we got his diagnosis, and I was very mad for a long time, and sometimes I still feel that way. It seems so unfair. But then reality steps in and you just learn to do the best you can.
I don't know what types of help you have access to, but look into whatever you can. The spectrum varies so greatly and trying to find someone that has a similar child is not always so easy. I was lucky to find a support group when our son was diagnosed, but we have found that with the diagnosis changing to Asperger's, we don't have much in common as far as issues and behaviors go, but the support is still there. I would suggest trying to find other parents that you could actually meet with as well.
Does your school district offer much support for special needs?
Stay positive
Jacksmom



sinsboldly
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25 Mar 2007, 11:30 pm

Bridge wrote:
do you mind me asking how they diagnose? it's just i have an 8 year old son and they think he may be suffering from Aspergers . . can anyone help?


well, if they think he may be "SUFFERING" from Asperger's Syndrome you might want to find someone else to diagnose him.

The idea that one 'suffers' FROM Asperger's is highly suspect. I only 'suffer' from people that try to make me be something I am not.

Merle



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26 Mar 2007, 1:41 am

Jessrn wrote:
:( My 5 year old son was diagonsed with Asperger's on Friday. I am very overwhelmed by the amount of information to read and process. Everything I see says he will not function well as an adult-someone tell me this is wrong. Apparently for an Aspie, he is pretty social, but he has not entered the brutal world of elementary school yet. He cannot hold a pencil or eating utensil properly, he has low muscle tone, yet his intelligence is gauged as that of a 7 year old-and this with no formal education. I need to find an OT and child psychologist and I am worried I will not find one good enough. Sorry I am rambling-my brain is going a hundred miles a minute.

Can anyone give me a starting point? How can I better see the world from my son's point of view? What is the best way to protect and help him?


Hello, welcome to WP! I'm SamuraiSaxen, nice to meet you

I'm undiagnosed, but I'm very sure I have AS. Your son would be a functional adult if you don't understimate him, with your support he could be whoever he wants.

I couldn't hold a pencil or a spoon when I was 5. My mom tried everything for made me hold a pencil properly, but she said I was angry when she tried it. My mother talked with my 1st grade teacher, and she made me do it, I don't know how, but I learnt to hold a pencil when I was 6 on elementary school. About eating utensils, I'm 20 years old and I'm still having problems :)



beaker
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26 Mar 2007, 6:11 pm

There are a lot of people who lead sucessful lives with aspergers. Bill Gates to name one.

It can be used to make decent money. There are a lot of fields where it is quite useful. Engineering, Accounting, Finance, etc. Anybody who has to deal with a lot of numbers (if they are good at them). Nothing like being able to focus on numbers, money etc for 8 hours a day 5 days a week to pay some bills.

I've known a few friends with other problems like epilepsy etc. The ones who seemed to do best were those whose parents treated them like normal children, an allowance here and there for their disability but nothing more. They should be made to feel as normal as possible.


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Esperanza
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26 Mar 2007, 7:24 pm

Jessrn wrote:
:( My 5 year old son was diagonsed with Asperger's on Friday. I am very overwhelmed by the amount of information to read and process. Everything I see says he will not function well as an adult-someone tell me this is wrong. Apparently for an Aspie, he is pretty social, but he has not entered the brutal world of elementary school yet. He cannot hold a pencil or eating utensil properly, he has low muscle tone, yet his intelligence is gauged as that of a 7 year old-and this with no formal education. I need to find an OT and child psychologist and I am worried I will not find one good enough. Sorry I am rambling-my brain is going a hundred miles a minute.

Can anyone give me a starting point? How can I better see the world from my son's point of view? What is the best way to protect and help him?


Congratulations! Your son is gifted. He'll be different from other kids, but he's smart enough to learn coping strategies. Don't fall into the trap of thinking your son is somehow "defective"- he's just different, and it would serve you both well to focus on the positive aspects of Asperger's rather than the negative.

Good luck!



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26 Mar 2007, 8:50 pm

Watch what you read. I am from the old days, Bookish was the most common word for people like me. On my own I bought my first Harris Tweed at fifteen, and three years later was working IT. A natural born Geek. Us Dinos made it in the world.

Then comes the psycobabble era, junior shrinks with apointment books to fill, who just wanted to work full time. The Symtoms of AS range from being born, to dieing, with a bunch of made up stuff in the middle.

Then comes better living through supporting drug companies, a pill for everything.

Last and most recent, a bunch of bright well adjusted young people on WP, life is good, they have some friends, knowing where they differ, they accomadate the world. They think psycobabble is a quaint form of speech. They do not approve of drugs in general, and want to know in detail all effects and side effects before even considering dopeing their problems.

Don't trust anyone over sixteen!

AS has no cause, treatment, cure, no two people here have the same AS. We have 10,000 versions?

AS is the only disability with major writers, Vonngut, Resturant at the end of the Universe, a science department that includes Newton, Tesla, Bill Gates, NASA, we are one in three hundred, yet hold most first chairs in most major orcastras, Mathematics and Information Technology would be lost without us. Art and animation seem to be AS owned fields. IQs group around 140. We are 1,000,000 in the US alone.

In short, we have a culture superior to the mass culture. On WP we find common interests, no longer feel isolated or not understood, age and gender seem to be no barriors to relating. We are a tribe. We are now self defining, I mean, would you let someone with a 60 IQ define people with a 100 IQ?

By the time your child grows up we will be an established sub-culture. They are one out of three hundred who can join. There will be a place in life for them. Just let them grow to become themselves. Twelve hangs out here, and if more parents gave two's laptops, well we spontainously learn to read at four, often have University level knowledge in some fields by seven. Everyone wants a network of peers and equals.

If we had half the money that has been made on us we would be very rich. Microsoft is twenty? Windows 3.0 1990?

We do take a bit longer to grow up, we are opinionated and will protest, but we are Geeks, and know the first rule of computers from birth, GIGO, Garbage In=Garbage Out. We want nothing but a slow and safe childhood, a time to grow a brain near half again as complex. Turn off the TV, Radio, lower the lights, speak softly, and life is much better. Wash our clothes, sheets, towels, twice, first with unscented soap, then with pure water. We are highly tuned and overload on lights, sounds, smells. Keep the load down and we develop faster. Try to teach us the right way to use a spoon, a pencil, and we may never get it, non functional areas are just shut down. Partitioned is the computer term.

The more you learn about computers the better you will understand us. We are not machines, we invented them as logical extentions of AS brains, and this Internet, both of which were described in Patents by Tesla in 1903.

Skip the doctors and pills, get the kid a laptop and broadband, something a small child can understand. Knowledge and technology are doubling every few years. Only some can keep up. By the time your child grows up it will be a much different world. They may teleport to the Mars colony.



lab_pet
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26 Mar 2007, 10:05 pm

Since you asked &/or seem curious about the future for your Aspie child, I will reveal, partly, my identity for you. I attach no value judgment; I am objective. I collect data continuously and do not necessarily assign meaning to what I observe. I have an enhanced sensory modality (my senses overlap) and therefore and eidetic (photographic) memory. However, I can and do become faint when overwhelmed. I am prone to screaming crying "meltdowns" (I hate that word). Otherwise, I am quite impassive and sometimes described as a "cyborg" or "vulcan." Physically, I am very feminine and very pretty and definitely heterosexual - I only like older protective men though. I am painfully shy and afraid of strangers.

I am a strong scientist and chemist. After my masters degree I finished a research project in photochemistry. I love the laboratory, where I feel at home - I am an analyst/chemist in an analytical research laboratory. When I was a child I did well in school but mostly was not mainstreamed. Apparently, I have an IQ of 160 + but I am uncertain how a complex dynamic like human intelligence can be represented in a ration number. Significantly, I am very artistic. I am creative! I paint and love to draw. At my lab I often draw &/or write instead of speak. I forgot to mention: I am nearly mute. I carry pen & paper in my purse since I virtually do not speak in public. I am often misinterpreted. I am told I have a haunted Aspie look (there truly is such a thing). I am ghastly pale with big dark green eyes and around my eyes I'm kind of dark. I have dark blonde hair.

Sometimes strangers think I am deaf, blind, drugged, or psychotic (I am not, nor have I ever been, any of these). Personally, I love to read and I'm physically quite active but not athletic. I do "stim," which probably sets me apart too. When I speak, like at the lab, I often speak like a child (I am told) and use numbers instead of words. I am psychologically fragile and try hard to please. Those who know me say I'm kind of eccentric but "very sweet." I am naively honest and interpret literally. In many ways, I am like a child while being deeply wise from having a different perspective. I have been hurt and I am not unscathed; I have been crippled by critism.

So, I am heartened that you are a good and loving parent! If your child does not make eye contact (I do not) do not be alarmed - there are other ways. Does this help at all? I'm thinking not.......anyway, I am grateful for what I have been given. Aspies are analytical thinkers without pretense. Good luck.


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26 Mar 2007, 10:33 pm

Inventor wrote:
Try to teach us the right way to use a spoon, a pencil, and we may never get it, non functional areas are just shut down. Partitioned is the computer term.



Partitioned brains. That is a great analogy. Our emotional partition is isolated and uses a basic I/O that can't access the main operating system. If it gets control of the system, it has to shut down and reboot. :lol:


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26 Mar 2007, 11:13 pm

marbledog wrote:
Jessrn wrote:
Everything I see says he will not function well as an adult-someone tell me this is wrong.


This is absolutely, completely, and utterly wrong. I can't imagine why mental health professionals persist in perpetuating this notion that Asperger's is a debilitating condition, or that people with AS can't be happy, sucessful, and independant as adults. This level of ignorance and voluntary blindness goes well beyond over-concern and enters the realm of self-fulfilling prophesy. They seem determined to create a disability where none exists.

I first encountered ideas like these about a year ago, when my girlfriend took a job as a school shadow for a ten-year old boy with Asperger's. The literature that she was given iterated the same sentiments as the things that you are reading now, and the boy's mother was terrified that her son would never leave home, get married, hold a job, or find satisfaction and independence in life. The situation is much different now, and the boy's condition has improved dramatically, simply by having someone around who has some experience with AS. (My girlfriend has learned a LOT about it in six years of living with me.) He is now one of the most popular kids in his class, his grades have improved considerably, and he no longer has meltdowns. To put it simply, the predictions were wrong.

When I was growing up, there were no predictions. AS wasn't publicized, and autism was considered a form of mental retardation. I was just different. I didn't learn about AS until I read about it in a magazine a few years ago. I'm not going to say that growing up with AS was easy, but, overall, I came through it ok. I have to believe that this was because I had a wonderful mom who loved me, had patience with me, and was willing to explain the things that I didn't understand. You son already has that. That puts him way ahead of most normal kids, right off of the bat.

I don't mean to talk about myself so much, but I hope that my experiences can give you a little perspective on your son's condition. As far as his motor skills problems go, things like that do tend to get better with age, but he will probably always be clumsy and have poor manual dexterity. It definitely wouldn't hurt to talk to a physical therapist who specializes in dealing with disabilities.

As far as all the other stuff you've read about AS, forget it. Any honest psychologist has to admit that we know very little about Asperger's in children, and almost nothing about in adults. Psychological models of how your son will behave in twenty years are no more accurate than a fortune-teller's crystal ball. Your son's future is up to him, not them.

Having said that, I'll make a few totally unscientific predictions of my own. (Note that I am not, by any means, an expert on AS or human psychology. These traits are simply general characteristics of AS that I've noticed in myself and others. Feel free to ignore them entirely. Any AS'ers who disagree, feel free to correct me.):

Your son will have an overriding respect for the truth, and a desire to protect it.
He will have a highly developed sense of justice, and an strong desire to correct injustice.
He will have serious problems with people who abuse authority.
He will have an intense desire to learn and share information.
If he sees a problem, he will feel a strong compulsion to fix it.
He will be a target for bullies.
He will probably not enjoy participating in athletics.
He will probably enjoy non-athletic games of all sorts (video games, card games, board games, role-playing, etc.).
He will do very well academically, especially in subjects that interest him.
He will probably not be very religious when he gets older. (While this is not a hard and fast rule, the majority of AS'ers and autistics are non-religious.)
Others may sometimes see him as being egotistical, cold, or uncaring. He won't understand why they feel this way.
He will often confused by the behavior of others, especially by group behaviors.
He will be much less likely to do things out of peer pressure.
He may have a very acute sense of hearing, smell, or touch, or have an aversion to bright lights.
He will be more easily deceived about the intentions of others, but less easily deceived about the facts.
He is more likely to be homosexual, bisexual, or asexual later in life. (A solid majority of AS'ers are heterosexual, but the incidence of alternative sexualities is a good deal higher than it is in the population at large.)
He will love reading.
He may be attracted to depictions of violence in movies, video games, and other media, but he will be disgusted by violence in reality.
He will display very strong loyalty towards the people that he befriends.
He will have no desire to harm others, unless they harm him first.

All in all, I don't think it's such a bad deal.

I'm sorry for the length of this post. (Like many AS'er, I have a tendency to ramble about things that interest me.) I wish you and your son the best. As I said above, I'm not an expert, and I don't know how much help I can be, but feel free to email me if you have any questions.

Jason


I reckon that your predictions on the whole are very good. Of course, it's different for everyone 'If you've met one aspie, you've met one aspie.' but I'd just like to add that I like the rower at school. I spend all lesson on it. Might have something to do with me only competing with myself though.


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01 Apr 2007, 3:06 am

I would say that you could protect him, by not protecting him so much. If he does grow up to have social problems, its better that he learn how things are instead of telling him it'll get better when it won't. Teach to him to deal with his differences instead of trying to avoid and cover them up.

Then, again, I rather favor the tough love approach, so this may not be your style.


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01 Apr 2007, 5:46 pm

Jessrn wrote:
any advice on how to explain it to a 5 year old?


Kathy Hoopmann wrote a wonderful children's book called "All Cats Have Asperger Syndrome" that may help both of you establish a frame of reference:
http://www.amazon.com/All-Cats-Have-Asp ... 7362&sr=1-

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01 Apr 2007, 5:51 pm

Jessrn wrote:
:( My 5 year old son was diagonsed with Asperger's on Friday. I am very overwhelmed by the amount of information to read and process. Everything I see says he will not function well as an adult-someone tell me this is wrong.


This is wrong. Here on WP you can read the stories of Aspies like myself who somehow managed to get a life, a job, etc. and survive through half their lives before being diagnosed.
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beaker
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01 Apr 2007, 9:34 pm

I can honestly say that I have it and I have a degree in engineering. I have been working as an engineer for 12 years and I am working on my masters thesis at this time. If all goes well, I may go for a PH-D.

Discipline, drive and hard work can get you far in this world. Even with AS you can still achieve your dreams.


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