Why do all these people have to be involved?
Every time I make any financial decision whatsoever, I have to consult with at least three people: my service coordinator, my VESID counselor, my job coach, and possibly more. I am on SSD, have an IEP, and am applying to ISS; I'm told that is the reason that every one of these individuals has to know everything and sometimes be told repeatedly. I am irritated that every financial decision that I make (if I decide to work, if I lose a job/quit a job, what KIND of job do I want, etc) is so closely monitored and requires meetings and consultation.
Is there any way around this level of intrusion? If anyone else has to deal with this problem, how do you cope?
_________________
~*~ PacerD
"From now on, I'll connect the dots my own way."
- Bill Watterson, Calvin & Hobbes
I'm on SSDI and when I lived in NC, I had a job coach, a DD casemanager, a therapist and a doctor. Having a team of people to work with you can be very beneficial.
My AS BF has a payee and a caseworker and he gets his money through that system. He hasn't been frustrated with it because he is so relieved he doesn't have to manage his own money.
I'd suggest you communicate about your frustrations, because I do understand why you're frustrated. You must feel like you have to go through a committee to get enough money for a soda pop. It sucks.
Still, communication is key.
Katie_WPG
Velociraptor
Joined: 7 Sep 2008
Age: 37
Gender: Female
Posts: 492
Location: Winnipeg, MB, Canada
Is there any way around this level of intrusion? If anyone else has to deal with this problem, how do you cope?
It can be pretty frustrating.
The only thing I can think of would be to simply drop out of the social services. The reason why all of these people need to be informed is because they all want to be on the same page, so that they can manage your life FOR you. This of course is based in the assumption that because you're using their services, you must be incompetant in managing your life.
If you don't want to be treated like you're incompetant, then the solution is to do it on your own. If you're not ready, then you'll just have to grin and bear it. Such is a "disabled person's life".
It can be pretty frustrating.
The only thing I can think of would be to simply drop out of the social services. The reason why all of these people need to be informed is because they all want to be on the same page, so that they can manage your life FOR you. This of course is based in the assumption that because you're using their services, you must be incompetant in managing your life.
If you don't want to be treated like you're incompetant, then the solution is to do it on your own. If you're not ready, then you'll just have to grin and bear it. Such is a "disabled person's life".
Very true. I think my biggest need right now is to find a job that I actually enjoy well enough to remain in it long term (i.e., no ability/skill barriers) to get insurance that is enough to replace state aid, and to make a bit more while I'm at it (for a car, PAYING for said medical insurance and auto insurance). I could probably hack it in my city with $5,000 more per year than I was making in my last job, but I haven't found any place that pays that much more yet. Once I do, I'd be more likely to go without services.
_________________
~*~ PacerD
"From now on, I'll connect the dots my own way."
- Bill Watterson, Calvin & Hobbes
There may be some truth to that. There very much seems to be a fear-based mentality amongst service professionals that work with the disabled. Statements such as "if you do work/make too much money/exhibit too much independence, you'll lose your disability and/or insurance benefits," abound. There seems to be little interest in helping the disabled to gain any real independence, but to maintain a lifestyle that looks something like it but still utilizes benefits. I had to fight my service coordinator (and still do) to get her to understand that surrendering my benefits and living an independent lifestyle in terms of finance, insurance, employment and transportation is exactly what I'm trying to do.
In my state, many of these employment, service coordination, and mental health programs are Medicaid funded. While I'm sure that the desire to help me is very real, I wonder if the type of help I request is what my service professionals are willing to offer. If many people like me realized that it is possible to get off state and federal financial and insurance assistance, I wonder what would happen to funding? Until I gain financial independence, all I can do is keep advocating for myself.
_________________
~*~ PacerD
"From now on, I'll connect the dots my own way."
- Bill Watterson, Calvin & Hobbes
MrMisanthrope
Deinonychus
Joined: 22 Feb 2009
Age: 56
Gender: Male
Posts: 340
Location: The Eastern Outskirts of the Daley Empire
When you accept money from the government, you accept their rules.
And their #1 rule is - Make Busywork for Government Employees so they don't look as totally useless as they usually are.
_________________
Malum Prohibitum, Malum Habenae Regum Est.
I'm not Jesus. Stop punishing me for other people's sins.
True Liberty Expressed as Fiction: http://www.bigheadpress.com/tpbtgn
t0
Veteran
Joined: 23 Mar 2008
Age: 50
Gender: Male
Posts: 726
Location: The 4 Corners of the 4th Dimension
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