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DonkeyBuster
Veteran
Veteran

User avatar

Joined: 11 May 2009
Age: 66
Gender: Female
Posts: 1,311
Location: New Mexico, USA

17 May 2013, 6:14 pm

Hi,

I'm not a parent, I'm an Aspie w/an Aspie friend who is having tonic/clonic seizures that they're having trouble getting a diagnosis on. I'm hoping some of you here can give us some ideas for things to look into, particular tests that might be helpful & ways of coping w/the physical aftermath...she ends up so sore she can hardly move.

I am particularly curious about the dietary trigger possibilities...how does one test for additive triggers? Or does anybody here have a kid w/PNES? She says they've eliminated epilepsy, but from my research it doesn't seem that it's that easy; she may have atypical epilepsy.

In any case, it's really messing up her life. It'd be nice to have a Dx, so she could have some idea how to treat it.

Thanks