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Anyone else worried about the autism registry?

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BillyTree
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29 Apr 2025, 7:53 am

Last week I had a conversation with a psychiatrist in my country and he was concerned about "The Registry" and said it reminded him of Nazi Germany. He thought the American autistics should build an underground network and help each other with support and un-official peer-diagnoses.


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29 Apr 2025, 3:42 pm

BillyTree wrote:
Last week I had a conversation with a psychiatrist in my country and he was concerned about "The Registry" and said it reminded him of Nazi Germany. He thought the American autistics should build an underground network and help each other with support and un-official peer-diagnoses.


Sounds like an idea!


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29 Apr 2025, 4:04 pm

RFKjunior is spouting the same kind of repulsive stuff as the foul "Autism Speaks" video about ?15 years ago, which cruelly and dishonestly demeaned autistic people. I forget what it was called though someone here will remember.

Recently RFJ has actually been saying "Autism destroys families" like a fanatical preacher. This seriously demonises autistic people, and will have negative consequences. He is speaking like this to undermine the years of hard work by autistic people/groups/WP et al and the neurotypical efforts advocates who also work to destruct the myths.

I think there is a very real cause for concern about RFJ and other nutjobs with power imposing "treatments" on autistic people - for example making it illegal for autistic children to attend school unless they are first "treated". Remember that RFJ is a fanatic, thinks he knows better than science and every one else, and is supported by Trump, who hates "disabled" people and said he thinks they should die. I don't think it will go to that extreme, though it contributes toward the demonisation and othering of AS people.



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29 Apr 2025, 6:40 pm

SendInTheClowns wrote:
RFKjunior is spouting the same kind of repulsive stuff as the foul "Autism Speaks" video about ?15 years ago, which cruelly and dishonestly demeaned autistic people. I forget what it was called though someone here will remember.

Recently RFJ has actually been saying "Autism destroys families" like a fanatical preacher. This seriously demonises autistic people, and will have negative consequences. He is speaking like this to undermine the years of hard work by autistic people/groups/WP et al and the neurotypical efforts advocates who also work to destruct the myths.

I think there is a very real cause for concern about RFJ and other nutjobs with power imposing "treatments" on autistic people - for example making it illegal for autistic children to attend school unless they are first "treated". Remember that RFJ is a fanatic, thinks he knows better than science and every one else, and is supported by Trump, who hates "disabled" people and said he thinks they should die. I don't think it will go to that extreme, though it contributes toward the demonisation and othering of AS people.


Autism Speaks produced two infamous videos back in the day.
The lowlights of the 2006 documentary ‘Autism Every Day’ included Alison Singer talking about thinking of driving off of a bridge with her autistic daughter but not doing it because she has another child. It also included a young girl wishing her young sister was not autistic.

The 2009 short ‘I Am Autism’ portrayed Autism as satanic like coming after and taking over children, destroying marriages and bankrupting families. Autism Speaks has since apologized for that video.

Kennedy’s rhetoric does take us back to the bad old days and will undo in the United States some of the hard earned progress the neurodiversity movement has made. On the previous page I did discuss the consequences I expect American autistics will have to endure. I failed to mention that I do expect the Food and Drug Administration will approve quack treatments and cures.


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Last edited by ASPartOfMe on 29 Apr 2025, 7:17 pm, edited 2 times in total.

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29 Apr 2025, 7:10 pm

ASPartOfMe wrote:
SendInTheClowns wrote:
RFKjunior is spouting the same kind of repulsive stuff as the foul "Autism Speaks" video about ?15 years ago, which cruelly and dishonestly demeaned autistic people. I forget what it was called though someone here will remember.

Recently RFJ has actually been saying "Autism destroys families" like a fanatical preacher. This seriously demonises autistic people, and will have negative consequences. He is speaking like this to undermine the years of hard work by autistic people/groups/WP et al and the neurotypical efforts advocates who also work to destruct the myths.

I think there is a very real cause for concern about RFJ and other nutjobs with power imposing "treatments" on autistic people - for example making it illegal for autistic children to attend school unless they are first "treated". Remember that RFJ is a fanatic, thinks he knows better than science and every one else, and is supported by Trump, who hates "disabled" people and said he thinks they should die. I don't think it will go to that extreme, though it contributes toward the demonisation and othering of AS people.


Autism Speaks produced two infamous videos back in the day.
The lowlights of the 2006 documentary ‘Autism Every Day’ included Alison Singer talking about thinking of driving off of a bridge with her autistic daughter but not doing it because she has another child. It also included a young girl wishing her young sister was not autistic.

The 2009 short ‘I Am Autism’ portrayed Autism as satanic like coming after and taking over children, destroying marriages and bankrupting families. Autism Speaks has since apologized for that video.


You can "apologize" this, Autism Speaks (imagine me holding up my middle finger).


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29 Apr 2025, 8:37 pm

I have to wonder, what does RFK think of MMS treatment?


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02 May 2025, 11:55 am

ASPartOfMe wrote:
That said since the administration is already rounding up people with opinions they do not like I can’t completely rule out they will try to round us up.


In a 2024 interview, Turmp hinted that disappearing "non-productive people" is a "brilliant" idea.

Quote:
And these are people that we don’t want in our country. And the caravans are coming in. And who’s doing this is the heads of the countries. And you would be doing it. And so would I. And everyone would say, “Oh, what a terrible thing to say.” The fact is its brilliant for them, because they’re taking all of their bad people, really bad people. And I hate to say this, the reason the numbers are much bigger than you would think is they’re also taking their non-productive people. Now, these aren’t people that will kill you. We have enough of them. But these are people that are non-productive.

They are just non-productive. I mean, for whatever reason. They’re not workers or they don’t want to work or whatever. And these countries are getting rid of non-productive people in the caravans in many cases. And they’re also getting rid of their murderers and their drug dealers and the people that are really brutal people. And they’re coming into our country at levels that have never been seen before.

https://www.rev.com/transcripts/elon-mu ... -interview


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03 May 2025, 11:43 am

carlos55 wrote:
I mentioned on another post, most autistic people are already on a registry

If you claim disability welfare or carer support you`ll be on a gov registry as to the reasons why.

Social security people can search your name quite easily using your social security number or do mass searches using key words like ASD.

All this is accessible to the cops, letter agencies etc.. the mass data (not individual data ) is also public knowledge and can be accessed by anyone interested, i.e how many autistic people in Texas claiming etc..

I wouldn't be worried, if they wanted to find autistic people they could find about 70% quite easily right now.

Also why would they put autistic people in camps, for what purpose?, they would have to feed and look after everyone that would cost a fortune, its far easier to pass that on to others.

Privacy is dead anyway the debate happened after 911. Did you know the Brits spy and listen to your phone calls and read you emails & web searches at their GCHQ base and the US listen to British people`s calls. They then swap notes, its how they get round the law on not spying on their own people.

Most autistic kids perhaps, most autistic adults aren't even diagnosed or identified, so I don't know how most of them could be on any sort of a registry. Really, they need to fix the whole process of identification and diagnoses. They need to fix the diagnostic criteria and we need a government that isn't so full of fascists and helpful idiots.



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03 May 2025, 11:44 am

Nightwing82 wrote:
Kraichgauer wrote:
I will never allow my name, or my daughter's, to be put on any Goddamn registry. RFK Jr., Trump, and Muskrat can all go F themselves!


They're not asking for your consent. Your probably already on it.

Also, in order to ask for consent, they'd already have to know to ask. Unless this is this weird ask everybody in the country, which is a lot harder than people think. Just look at how hard it is to get the census filled out.



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03 May 2025, 11:46 am

League_Girl wrote:
How are they going to know who is diagnosed?

Most of that is electronic these days, it's mostly a matter of writing the appropriate scary letter to the doctors or the insurance companies. The bigger issue of sorts is that with most autistic adults still not being diagnosed, it's going to be an incredibly skewed list of names, which is going to continue the same sort of biases in terms of who is and isn't autistic that has been the case for the whole history of the diagnosis.



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03 May 2025, 4:16 pm

MatchboxVagabond wrote:
Most of that is electronic these days, it's mostly a matter of writing the appropriate scary letter to the doctors or the insurance companies.

They don't even need to do that, they've got DOGE and other entities infiltrating our institutions. None of our personal data is secure anymore.
Also, I don't know for certain without looking it up, but I imagine the companies who sell products like fitness trackers are the same billionaires who've been farming out our personal data for ages.


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03 May 2025, 6:37 pm

SabbraCadabra wrote:
MatchboxVagabond wrote:
Most of that is electronic these days, it's mostly a matter of writing the appropriate scary letter to the doctors or the insurance companies.

They don't even need to do that, they've got DOGE and other entities infiltrating our institutions. None of our personal data is secure anymore.
Also, I don't know for certain without looking it up, but I imagine the companies who sell products like fitness trackers are the same billionaires who've been farming out our personal data for ages.


I think DOGE is pretty much over at this point and any lists that are created on this basis are likely to be required to be destroyed if they actually go through with the process of compiling one. I thought that I had heard that they'd given up on the idea, but I have no idea, so much of this stuff gets proposed and then either blocked by the courts or shiny objected away.

It depends which records, if it's private records from like fitbits, I doubt there's much trouble getting it. It's the medical provider or insurance company records that should be harder to get. I don't know to what extent they can get around that, although I think usually if they want more than aggregate stats from the data, they need to have appropriate court orders or releases.



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03 May 2025, 7:20 pm

^^^
Funny thing about authoritarian governments and the courts is... said governments couldn't care less what the courts have to say, and eventually eliminate them. And it's obvious the Trump regime is heading in that direction, full speed.


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04 May 2025, 12:01 am

Kraichgauer wrote:
^^^
Funny thing about authoritarian governments and the courts is... said governments couldn't care less what the courts have to say, and eventually eliminate them. And it's obvious the Trump regime is heading in that direction, full speed.

I can't entirely disagree there, when you're talking full on authoritarianism, that is definitely what you see. In this case, the courts seem to still be putting up a bit of a fight though.

That being said, the courts are still pushing back a lot and for the most part it seems to be holding. We're only like 7 months away from 2026 and the start of the campaigns for the primaries. It remains to be seen how much longer this continues as a significant amount of what's going on depends upon there being enough donors that are willing to look the other way rather than pulling their donations and/or funding people that are at least willing to pretend to value Democracy.



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04 May 2025, 1:15 am

So..am not understanding , if the Democrats want any positions in the Government here..Why are they NOT campaigning ..Now! . You might think if they were serious about keeping Democracy afloat..Why not start campaigning from the day Trump got in as President. And there is not even mention of anyone wanting to challenge Trump ?
Or even hints of a offering of a Presidential person . My brain cannot help but look for a good conspirascy theory,
It allows me some distraction from , what seems to be going on here in the USA . :oops:
Then add names on a list ..? and where will it end . ?


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04 May 2025, 2:15 am

Jakki wrote:
So..am not understanding , if the Democrats want any positions in the Government here..Why are they NOT campaigning ..Now! . You might think if they were serious about keeping Democracy afloat..Why not start campaigning from the day Trump got in as President. And there is not even mention of anyone wanting to challenge Trump ?
Or even hints of a offering of a Presidential person . My brain cannot help but look for a good conspirascy theory,
It allows me some distraction from , what seems to be going on here in the USA . :oops:
Then add names on a list ..? and where will it end . ?

I heard some talk about possible democrats in 2028....one is Mark Cuban....Maybe Gavin Newsom or AOC...Hopefully the MAGAS lose control over the Republican Party in 2026 or 2028.