Not one for starting threads on the haven usually,but need to get it out...fighting against weakness...
dont know how long can keep it going.
For those that don't know,am live in a council run twenty four hour care residential home.....
Last week [friday] staff suddenly said the decoraters were coming in to redecorate the entire downstairs unit from this monday onwards,no warning at all....no one,not even the manager had made any plans for am because of the noise that was going to be involved,and the decoraters start very early morning,before school children go to school.
Stayed at family home for the weekend as always,came back on sunday night.
Found out they were also planning to decorate up here as well,the plan keyworker had organised was supposed to be decorating only when am have moved out as it's not long,it's a big change and would have been left stuck outside unable to go in the building....meltdown:..room trashed,wall..head..blood,the lot as usual.
The next day,woken up by the decoraters banging and scraping-ran for the stairs to go outside but didn't get down-there were children screaming and banging outside from going to school,no where to go.
collapsed crippled with overload and pain and began head banging on the wall,and the staff shouted at am that am disturbing everyone else,that was the last thing really needed to hear at that time,being cornered by sensory overload everywhere-endedup having a meltdown on the stairs,had fought with the staff and the manager who were trying to restrain am and with a certain hard part of body,painted the yellowy walls a nice shade of red [saves the decorater a job].
Whilst recovering at the bottom of the stairs,am had overheard the manager say she was going to phone family to see if they would take am for the whole two weeks the decoraters are going to be here,
She and the staff have been told before by family it isn't suitable to be staying there all week because they have a noisy building site going on next to them,and mum is drunk most days,that didn't matter to them anyway,the managers really could not care less.
Am ended up having continous severe meltdowns and seizures,and also what the staff call incidents [challenging behavior,smashing things,attacking self,violently head banging etc],throughout the entire day,and because no NAS staff were in at the time,only council staff,they got the hoover out knowing to well this is in guidelines and all staff know to wait till have gone out the house because the noise is so agonising and explosive....can guess what happened,begins with an M,ends with N.
It got to the afternoon when was sat on the floor surrounded in a completely trashed bedroom [even the bed was wrecked,it's specially bolted to the wall by OTs to stop am doing this],was also expecting arrival of usual staff from the national autistic society,she comes every monday with a gold car [new type shaped corsa],but....the NAS changed the support staff because another service user who doesn't care about randomly swapping staff,said she doesnt want her usual staff that day,she wants the staff am have,they actually went and changed it,knowing they were seriously messing someones routine and week up,more meltdowns and 'incidents' again.
Tuesday...woke up early again into more meltdowns,a seizure,room trashing,fighting out at staff and the manager trying to restrain am,and blindly smashing up the bathroom in a panic,because had just finished using the toilet when they suddenly started banging hammers downstairs,triggering a reflex meltdown.
Another day of hell,not good...injured a staff,and was kept restrained to the bed in morning/afternoon by a few of the staff.
Ended up with high dose diazepam,the staff managed to arrange a script and pick up for it in one afternoon,it's good for numbing against the noisy residents who live here,and those DIY obsessed neighbours as well,but would have prefered a non benzo sedative.
The staff spoke to dad last night,to try and force him to take am today [wendsday],but refused to go there because the plan has always been friday for easter weekend.
The day not good [again]the usual-woke up into a meltdown from the decoraters noise,but day not as bad as yesterday...got out in the gold corsa car with NAS staff [had 2-1 staffing with nas],went to lymn,parked up and watched the ducks walk about,but then,a police car with siren on rushes by,was downed by it instantly,after coming around and starting to build up vision and strength again,was focusing albeit wonky eyed on those ducks,they were all sat on the grass verge whilst looking in the water,some time later it happened again-two boy racers constantly pressing their horns at each other for no reason whilst going past with their stereos booming,the usual happened again.
Got home and got inside,was given a 'pam tablet,and the decorater downstairs decides to start drilling,unbelievable-this is on all the official lists to make sure am out of the house before they start doing any drilling/hammering etc,and there's this guy with his drill out.
Dropped straight to the floor,had....the usual.
Staff downstairs said they stopped him straight away but too late.
Was helped to bed,where was completely wrecked and worn out,and someone slammed a heavy door in downstairs unit so hard which had been left open to let the paint dry,the whole building was shaking,another meltdown where ended up splitting head open from head banging on a radiator and the events ended with another ABC form written out for hitting out at staff.
Am getting very bothered about this,because am starting to go back to going at anything when having an MD,or seizure or 'incident'-human or not-just like pre-medication as a teenager,was never able to discriminate between people and anything else till going on medication,which stopped it against humans other than self,staff say it's frustration,so hope the tablets are not stopping working.
The LD staff had all asked the managaer if they could all take am out in their cars [which all had the right business insurance] whilst the decorating was being done,and she said no-that no one in the council is allowed to take service users out in their own cars,the same manager went and took another resident from here to a general hospital appointment the next day in her car,wasnt nice to know am really suffering wasnt high on her help list.
To make matters worse,am found out one of the staff am trusted,whom am let read the blog and own posts/whatever on WP [dont know who it is],has gone and told the managers the blog link which was supposed to be a sanctuary for getting thoughts out of head,and the manager brought the LD-nurse am have with her to have a meeting about it,they weren't nasty and said they've actually learnt more about autism from am than what they're tought in their training and really think should be writing a book,but then went on to say am have to refer to all staff and managers as x,because there is some privacy or secrecy type law [not sure on the word she used] against writing staff names by their first letter,as other staff will know its them,and they might sue am for not asking permission to mention them.
It's strange,the managers have an official rule that service users are not allowed to look at staff face book pages because the residential home is their work,and the face book page is their home life,so why is it ok for them to do the same thing to a service users' blog which is their 'home'?
Am don't even feel 'safe' using the blog currently.
Sorry for the very long post,write in paragraphs so dont notice how long it gets.
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>severely autistic.
>>the residential autist;
http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
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08 Apr 2009, 8:15 pm
i hope they finish work soon also sounds like there has more going underneat ..those locators are perfectly legal in uk and common in net they must have some reason to harash u 
