Dos and Don'ts, what worked for you as a kid and what didn't

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katy_rome
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28 Oct 2016, 12:51 pm

Thanks, FandomConnection and TheAP, that's one I hadn't thought of.. but of course, makes sense.
Just added it :)



katy_rome
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28 Oct 2016, 12:56 pm

FandomConnection wrote:
Hello, katy_rome! :D I hope you're alright after those earthquakes.
I thought of something else, so I may as well post it on your thread:
Even if you are uncomfortable or upset about your child's diagnosis of ASD (or suspected ASD), don't refuse to discuss the subject. It is important that their challenges are addressed in a neutral way, and refusal to talk on the subject reinforces the idea that the child is alone in their struggles, and that having ASD is a terrible thing.


I'll use your wording if that's ok..? about being alone in struggles..good point

The earthquakes were scary, really did not enjoy that :cry: Also my husband's travelling, as often.. me and the kids went and slept in the car!! ! It was quite cosy actually, they've been badgering me the last 2 days to sleep in the car AGAIN 8O



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28 Oct 2016, 6:32 pm

katy_rome wrote:
FandomConnection wrote:
Hello, katy_rome! :D I hope you're alright after those earthquakes.
I thought of something else, so I may as well post it on your thread:
Even if you are uncomfortable or upset about your child's diagnosis of ASD (or suspected ASD), don't refuse to discuss the subject. It is important that their challenges are addressed in a neutral way, and refusal to talk on the subject reinforces the idea that the child is alone in their struggles, and that having ASD is a terrible thing.


I'll use your wording if that's ok..? about being alone in struggles..good point

The earthquakes were scary, really did not enjoy that :cry: Also my husband's travelling, as often.. me and the kids went and slept in the car!! ! It was quite cosy actually, they've been badgering me the last 2 days to sleep in the car AGAIN 8O


Of course I don't mind if you use my words! :D I'm flattered. I hope the earthquakes/aftershocks have stopped!


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29 Oct 2016, 5:21 pm

I don't have an ASD diagnosis, so I hope you won't mind if I add a do/don't.

If your kid says they can't control some behavior or other, maybe try tentatively believing they're telling the truth, rather than saying, "Oh of course you can," or some other unhelpful variation. See if the kid wants to learn, and maybe model some of that learning yourself by showing the kid how you control your emotions or stop your bad habits. Plus, if you don't give the kid any anger to feed off of, you might actually get better behavior.

Also, child psychologists and such are there for a reason, if you feel like your kid isn't learning well from you. A different perspective can work wonders.

Or, you could use only rewards/punishments and not validate your kid's struggle. If your kid is anything like me, they'll write things in their journal, like, "Why can't I do anything right? I'm just a rude kid. No one understands."



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29 Oct 2016, 5:41 pm

Kind of what Skilpadde said and to stop forcing kids with ASD to socialize if they aren't ready. It's not healthy for us and will cause more stress and make us less ready for actually doing it.

I also had wished there were more quite places that I could have done my school work in. Like going to the library when it was a day to read and do work sheets when the class couldn't be held under control. It wouldn't be on lecture days though because I know that's important.

The lights. Schools are always insanely bright and if I could have worn sunglasses or dimmed the lights somehow I would have felt better.

Going back to the socializing thing what bothered me growing up was just because I'm female I would always get pushed in with the other females. I remember crying every time it happened because I was terrified of them. They made me feel like I wasn't a real girl because I was more like the boys then the girls. So I guess if the kid says I'd rather hang out with the boys or the girls despite being opposite gender just let them it might work out for the better.

For being at home keep it quite, keep the lights dim, hear your kids out when they say they don't want to wear something because ASD is sensory and fabrics come in all types of forms, above all though always listen to your kid and keep a calm tone. When ever my mom got mad at me she'd yell and ground me. It didn't happen a lot but when it did I went into melt down mood. When she learned to keep calm even when she was mad and fully explained why she was upset even when it may have seemed obvious our relationship became so much better. The last thing I can say is that no matter how hard it is for a parent please keep in mind majority of people with ASD don't like to be touched. So coming in for random hugs and kisses is more discomforting then feeling the love. So a little warning a head of time from my mom makes me a little less upset when she does it.


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katy_rome
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29 Oct 2016, 6:10 pm

DataB4 wrote:
I don't have an ASD diagnosis, so I hope you won't mind if I add a do/don't.

If your kid says they can't control some behavior or other, maybe try tentatively believing they're telling the truth, rather than saying, "Oh of course you can," or some other unhelpful variation. See if the kid wants to learn, and maybe model some of that learning yourself by showing the kid how you control your emotions or stop your bad habits. Plus, if you don't give the kid any anger to feed off of, you might actually get better behavior.

Also, child psychologists and such are there for a reason, if you feel like your kid isn't learning well from you. A different perspective can work wonders.

Or, you could use only rewards/punishments and not validate your kid's struggle. If your kid is anything like me, they'll write things in their journal, like, "Why can't I do anything right? I'm just a rude kid. No one understands."


Yep, I agree modelling is really a powerful way to teach things to your kids. Maybe even the main way.

Children usually tell the truth.. funnily, unless they've been modelled otherwise or are under pressure to conform or compete for favours. Since it's well known that autistic people are usually not willing or able to do those things, they're probably telling the truth :)

But I think a lot of parents think like this 'yes but if only you'd TRY harder, then you'd manage', but the thing is, self-motivation and confidence actually come from inside a person, not from being forced by someone else.



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29 Oct 2016, 6:12 pm

I didn't have a dx as a child, but I always knew something was up with me. I find it hard to believe that my parents and teachers didn't pick up on it too, so I would say one area of improvement would be not ignoring profound and continuous 'odd' behaviour. I am very bad at asking for help, in fact I never learned how, but I do think I would have been nice to have been offered help at some point - even just an acknowledgement that I was different.

Parents and teachers were always trying to make me more social, which was frustrating because they also set me crazy high targets that I would have to forgo socialisation to achieve. They would say I need to get out more, relax more, contribute more in class. It was a constant source of consternation for me, it seemed like they were contradicting themselves. They literally predicted me A*s in every single subject, then when I studied hard to get them they would tell me I need to chill out more. Well which is it?! And I always got my grades, but every report said I should be more present or involved in class. When I asked why, they could never justify it. It just felt like pointless criticism.

Another little but harmful thing was criticising my social skills in public. Quite often if we were in a shop, I would pay and say thank you to the person, but I was very quiet and my parents would say " :x well say thank you then!". I hated it because the whole transaction (say hello, choose a thing, buy it, pay, make eye contact and say thank you) took real effort from me and then my confidence got shouted down. I actually saw a mum do this exact thing to a little boy when I was on the till at work; he was shy but he bought his drink and said a quiet but definite thank you. She didn't hear and tried to make him " :x say thank you then!" and I got to give her a look and say "he did say thank you". It was a real cathartic moment; like I say such a small thing, but it happened to me loads of times as a kid and I hated it.

What did work for me was being given a little freedom from those teachers who accepted my differences. Good teachers are few and far between but I had a string of wins where I demonstrated that I could achieve the best outcome by doing things my own way, and they actually let me do it. For example I am a visual learner to an extreme degree; I can think better while I'm drawing and I can store and process information by drawing while I hear/learn/consider it. Most teachers were against my 'doodling' but eventually I got to a point where they let me do it. My English book had hardly any words by my final year, it just looked like a sketchbook :lol:. I remember another class where we had to keep our hands flat on the desk while the teacher talked, and my brain was going crazy at me, I just needed to draw so badly!



katy_rome
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31 Oct 2016, 12:40 pm

Velcrowalls wrote:
Kind of what Skilpadde said and to stop forcing kids with ASD to socialize if they aren't ready. It's not healthy for us and will cause more stress and make us less ready for actually doing it.

I also had wished there were more quite places that I could have done my school work in. Like going to the library when it was a day to read and do work sheets when the class couldn't be held under control. It wouldn't be on lecture days though because I know that's important.

The lights. Schools are always insanely bright and if I could have worn sunglasses or dimmed the lights somehow I would have felt better.

Going back to the socializing thing what bothered me growing up was just because I'm female I would always get pushed in with the other females. I remember crying every time it happened because I was terrified of them. They made me feel like I wasn't a real girl because I was more like the boys then the girls. So I guess if the kid says I'd rather hang out with the boys or the girls despite being opposite gender just let them it might work out for the better.

For being at home keep it quite, keep the lights dim, hear your kids out when they say they don't want to wear something because ASD is sensory and fabrics come in all types of forms, above all though always listen to your kid and keep a calm tone. When ever my mom got mad at me she'd yell and ground me. It didn't happen a lot but when it did I went into melt down mood. When she learned to keep calm even when she was mad and fully explained why she was upset even when it may have seemed obvious our relationship became so much better. The last thing I can say is that no matter how hard it is for a parent please keep in mind majority of people with ASD don't like to be touched. So coming in for random hugs and kisses is more discomforting then feeling the love. So a little warning a head of time from my mom makes me a little less upset when she does it.


Thank you Velcrowalls! Very good point about the clothes, and the lights and also the quiet spaces. I've added points about those things. My kids don't go to school right now so I'm not really up on that stuff...

Also about the touching, yes that is really important. Also what parents should do if they feel resentful or upset about this kind of thing - i.e. they may need to face their own fears and even get help with some more difficult emotions themselves.

And socialising, and gender.. thanks for conforming, these are clearly major issues.



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31 Oct 2016, 12:48 pm

racheypie666 wrote:
I didn't have a dx as a child, but I always knew something was up with me. I find it hard to believe that my parents and teachers didn't pick up on it too, so I would say one area of improvement would be not ignoring profound and continuous 'odd' behaviour. I am very bad at asking for help, in fact I never learned how, but I do think I would have been nice to have been offered help at some point - even just an acknowledgement that I was different.

Parents and teachers were always trying to make me more social, which was frustrating because they also set me crazy high targets that I would have to forgo socialisation to achieve. They would say I need to get out more, relax more, contribute more in class. It was a constant source of consternation for me, it seemed like they were contradicting themselves. They literally predicted me A*s in every single subject, then when I studied hard to get them they would tell me I need to chill out more. Well which is it?! And I always got my grades, but every report said I should be more present or involved in class. When I asked why, they could never justify it. It just felt like pointless criticism.

Another little but harmful thing was criticising my social skills in public. Quite often if we were in a shop, I would pay and say thank you to the person, but I was very quiet and my parents would say " :x well say thank you then!". I hated it because the whole transaction (say hello, choose a thing, buy it, pay, make eye contact and say thank you) took real effort from me and then my confidence got shouted down. I actually saw a mum do this exact thing to a little boy when I was on the till at work; he was shy but he bought his drink and said a quiet but definite thank you. She didn't hear and tried to make him " :x say thank you then!" and I got to give her a look and say "he did say thank you". It was a real cathartic moment; like I say such a small thing, but it happened to me loads of times as a kid and I hated it.

What did work for me was being given a little freedom from those teachers who accepted my differences. Good teachers are few and far between but I had a string of wins where I demonstrated that I could achieve the best outcome by doing things my own way, and they actually let me do it. For example I am a visual learner to an extreme degree; I can think better while I'm drawing and I can store and process information by drawing while I hear/learn/consider it. Most teachers were against my 'doodling' but eventually I got to a point where they let me do it. My English book had hardly any words by my final year, it just looked like a sketchbook :lol:. I remember another class where we had to keep our hands flat on the desk while the teacher talked, and my brain was going crazy at me, I just needed to draw so badly!


Yes that all really makes sense. Also very interesting about the supportive teachers.
Forcing to be social -- yes. this can be so destructive.

Thank you for these points, really really useful, all of it. I'm just editing my book now ! !!



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31 Oct 2016, 12:52 pm

Criticizing in public - that's important too, I need to look to see if I cover that already. One of my points already on the list is actually never to tell anecdotes about your child within their hearing without their explicit consent EVEN if it's a story that shows them in a positive light. This I've learnt from my son, he HATES it!! ! I have to ask him before telling any story involving him, and if he says 'no' I have to respect that. Luckily the people we hang out with these days are really understanding, and would do the same themselves - the homeschooling group tends to be pretty liberal and respectful towards their kids and their wishes. How refreshing :)



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31 Oct 2016, 12:56 pm

I second the clothes thing -- some of my lasting memories involve my mother being angry at me and calling me things like spoiled, ungrateful and brat, because an item of clothing she had ordered from a catalog (thus I hadn't had a chance to try it on before purchase) felt quite literally unbearable to me.

My mother became hateful to me for things like this, because she just didn't understand what was actually happening, and I remember I was even so young that I wasn't even verbal enough yet to actually describe why I couldn't wear that item.

I actually remember what it was like to be my toddler self unable to explain why I HAD TO GET OUT of that dress or those woolen trousers. I hadn't been diagnosed in childhood, thus all my mother knew was that I was some kind of devil brat. :( But I wasn't being a brat or trying to be horrible, my distress was genuine, I just couldn't verbalize it.



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31 Oct 2016, 1:22 pm

BirdInFlight wrote:
I second the clothes thing -- some of my lasting memories involve my mother being angry at me and calling me things like spoiled, ungrateful and brat, because an item of clothing she had ordered from a catalog (thus I hadn't had a chance to try it on before purchase) felt quite literally unbearable to me.

My mother became hateful to me for things like this, because she just didn't understand what was actually happening, and I remember I was even so young that I wasn't even verbal enough yet to actually describe why I couldn't wear that item.

I actually remember what it was like to be my toddler self unable to explain why I HAD TO GET OUT of that dress or those woolen trousers. I hadn't been diagnosed in childhood, thus all my mother knew was that I was some kind of devil brat. :( But I wasn't being a brat or trying to be horrible, my distress was genuine, I just couldn't verbalize it.


Woolen trousers, gosh you poor thing. Yes, I was at my in-laws this summer and they had bought him some lovely jeans, he told me in private he just couldn't wear them. His aunt said that he had to wear them to her mother's birthday party, and if he didnt like them then he just had to get used to them (definitely the 'spoilt brat' thing coming out there), I'm afraid I.. um, lied, and said he'd tried them on and they were still too big .. but in any case that he prefers jogging trousers in future ! !! aarrrgh 8O



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31 Oct 2016, 1:23 pm

Here was something my dad's cousin did to me when I was 15 and the way she said it was too much for me because it destroyed my relationship with my grandfather for the next six years until his death. My dad's cousin told me I was selfish and that my grandfather had a bad heart and was diabetic and I had upset him and he could die from it because of his bad heart and I was so selfish. I was then afraid to be around my grandfather because I was worried I could upset him again and I didn't want him to die and have it be my fault so I stayed out of his hair. I interpreted it as her telling me it would be my fault if he dies from a bad heart if I upset him. She didn't literally say it would have been my fault if he dies from a bad heart if I upset him. I was emotionally fragile so any criticism would have been taken extreme by me and given me anxiety. This might be true for all kids because my mom told me how it makes her angry she did that because that was no way to talk to a child. Plus I have read that teens are very vulnerable about emotions so talking to them that way by putting them down doesn't help. But apparently this is the norm because I've read that 90% of parents do this. 8O


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31 Oct 2016, 1:40 pm

katy_rome wrote:
Criticizing in public - that's important too, I need to look to see if I cover that already. One of my points already on the list is actually never to tell anecdotes about your child within their hearing without their explicit consent EVEN if it's a story that shows them in a positive light. This I've learnt from my son, he HATES it!! ! I have to ask him before telling any story involving him, and if he says 'no' I have to respect that. Luckily the people we hang out with these days are really understanding, and would do the same themselves - the homeschooling group tends to be pretty liberal and respectful towards their kids and their wishes. How refreshing :)



To be fair, I think lot of kids feel this way. I think lot of parents forget that their own children are their own person and have their own thoughts and feelings and personality but many parents see their kids as part of themselves and as a little clone of them. That is like a little bit of narcissism there. I have been hearing a few stories online about kids suing their parents to get them to remove their childhood photos off their Facebook or other social media. I have seen on TV about kids getting embarrassed by their parents stories and I used to think that was only on TV only to discover online that is how some kids actually feel and I never thought that maybe lot of them feel that way. Sure I never felt embarrassed by my mom's stories about me so I didn't think others would feel different about it.

I am not saying you think this is only for ASD kids, I am just adding to the topic so everyone sees it.


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31 Oct 2016, 2:04 pm

League_Girl wrote:
katy_rome wrote:
Criticizing in public - that's important too, I need to look to see if I cover that already. One of my points already on the list is actually never to tell anecdotes about your child within their hearing without their explicit consent EVEN if it's a story that shows them in a positive light. This I've learnt from my son, he HATES it!! ! I have to ask him before telling any story involving him, and if he says 'no' I have to respect that. Luckily the people we hang out with these days are really understanding, and would do the same themselves - the homeschooling group tends to be pretty liberal and respectful towards their kids and their wishes. How refreshing :)



To be fair, I think lot of kids feel this way. I think lot of parents forget that their own children are their own person and have their own thoughts and feelings and personality but many parents see their kids as part of themselves and as a little clone of them. That is like a little bit of narcissism there. I have been hearing a few stories online about kids suing their parents to get them to remove their childhood photos off their Facebook or other social media. I have seen on TV about kids getting embarrassed by their parents stories and I used to think that was only on TV only to discover online that is how some kids actually feel and I never thought that maybe lot of them feel that way. Sure I never felt embarrassed by my mom's stories about me so I didn't think others would feel different about it.

I am not saying you think this is only for ASD kids, I am just adding to the topic so everyone sees it.


LeagueGirl, definitely! I agree. And plead guilty :)
When your kids are just little babies you talk, you know, how's breast-feeding going, what's in the nappy and so on, while holding your baby. Nice.
Then when they're old enough to understand you, actually I think best even before that, you have to be able to just stop all that.

Went for a walk today with dog and a close friend, and I was telling her what I'm working on. She said 'but why just autistic kids, why not ALL kids, it seems like everyone needs this!'. It's true but you have to start somewhere and for me personally this is so close to my heart, also I see that while NT kids do suffer, often very much, generally it is nowhere close to what autistic kids go through.

I'm really glad you made that point here..



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31 Oct 2016, 2:10 pm

katy_rome wrote:
Woolen trousers, gosh you poor thing.


Don't feel too badly for me -- there are of course far worse things to suffer than woolen trousers, hahaha! :oops: :oops: :lol: I don't want to sound like that was my worst problem in life, lol!

But they were pretty uncomfortable -- they were that old 1950s kind of "boiled wool" -- extremely harsh. Thank god they don't even make woolly things that bristly anymore, but super soft. I'm sure these would have freaked out a "normal" kid too!

Quote:
Yes, I was at my in-laws this summer and they had bought him some lovely jeans, he told me in private he just couldn't wear them. His aunt said that he had to wear them to her mother's birthday party, and if he didnt like them then he just had to get used to them (definitely the 'spoilt brat' thing coming out there), I'm afraid I.. um, lied, and said he'd tried them on and they were still too big .. but in any case that he prefers jogging trousers in future ! ! ! aarrrgh 8O


It's soooooo awkward when something is a gift and the giver has no clue as to why that item is going to feel like hell on earth if the child with the sensory processing issues tries to wear them. Another side to the sensory issues in themselves is that most people don't really believe in them in the first place, and truly do not believe it's anything other than "bratism" that the child suffers from. :cry:

That's another thing to add to your list -- the inability of someone to imagine that sensory issues could possibly feel as bad as they do feel rather than somebody just being a dick because ooh these jeans just bother me a bit -- it's so, so, so much more than that. The experience of sensory issues can be HUUUGE, not just a little sensation.