My parent knew about my AS and did not tell me.

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Catster2
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27 Mar 2008, 9:41 pm

I think as soon as a kid is old enough to be tell then they should be, this might depend on the child but I would say by about 5 if they were told in a way they understood then it is very important.



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27 Mar 2008, 10:36 pm

Well dont blame you for being mad at her for knowing and not telling you.



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27 Mar 2008, 10:46 pm

Suepoo wrote:
I had no idea how to tell my then 5yo or explain it in a way that didn't make him think he was weird or something. So I bought a picture book called "All Cats have Aspergers Syndrome" it sits on the coffee table and every now and then he picks it up, has a read. Sometimes he will ask me what Aspergers Syndrome is so I found this way a good method of bringing the subject up without sounding serious or lecturing.

All kids, AS or not, deserve to hear the truth. And my motto is: if they are asking the questions they are ready for the answers


that is pretty cool, that way you can make your kid enter the aspie world bit by bit, finding interest on it, knowing its not bad and the accepting himself as an aspie.
You are a cool mom XD And your motto is an absolute truth.


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27 Mar 2008, 11:04 pm

BTW, my son is autistic, not Asperger's and has had significant speech delay. So, we waited until this year for The Talk. He was 7 going on 8 and in 2nd grade. He's grade appropriate in academics but is enrolled in a special ed class (to get services and accomodations) so he was hearing "autism" a lot. Before he was in more integrated groups where the special needs kids weren't really distinguished from the typical kids. Now, it's very obvious and we decided to tell him. Now he is diagnosing all his friends with autism. We say, "autistic" here. At school they say, "with autism" or "has autism". So, he says, "I am autism".

His best friend really is either autistic or Aspie, I know he has an IEP and speech therapy.



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27 Mar 2008, 11:26 pm

I was diagnosed with Autism Spectrum Disorder (not Asperger's) in 2002, but only my parents knew about it... They forgot to tell me, or they did but didn't make sure I could hear or understand what they were saying; I didn't find out about my diagnosis until late 2006 (or was it late 2005, my memory isn't very good at recalling when exactly stuff happens) when I got the courage to ask my mother if I had any kind of mental illness or other condition.

I forgave my parents of course, although I do wish we'd found all of this out so much sooner. Being the quietest child in a large family tends to cause problems that nobody bothers to see.



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27 Mar 2008, 11:55 pm

SilverProteus wrote:
You know the NT brain works a little differently. ;)


Ain't THAT the truth.



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28 Mar 2008, 1:12 am

My parents didn't even know what aspergers was. I had to do research and figure it out for myself. Then I told them and they didn't believe me saying "don't believe that stuff on the internet".



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28 Mar 2008, 1:16 am

Suepoo wrote:
I had no idea how to tell my then 5yo or explain it in a way that didn't make him think he was weird or something. So I bought a picture book called "All Cats have Aspergers Syndrome" it sits on the coffee table and every now and then he picks it up, has a read. Sometimes he will ask me what Aspergers Syndrome is so I found this way a good method of bringing the subject up without sounding serious or lecturing.

All kids, AS or not, deserve to hear the truth. And my motto is: if they are asking the questions they are ready for the answers

:D


that cat book is fantastic. people with AS should be told the truth and not have it kept from them. I was told the full story right when i was diagnosed. which was great because i heard a sad story about a kid who was not told about his AS until 6 months after diagnosis. so all that time he was taken to therapists for reasons that were unknown to him.



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28 Mar 2008, 1:30 am

Just remember- humans overall aren't too bright. They fear what they don't understand.

I remember back in '99 when I'd finally learned about my ADHD, I was working at Bradlee's( a now, THANKFULLY, defunct retailer in the USA)...I was in Electronics one night, and some woman came in with her kid, and the kid was off the freakin' wall. I mentioned that he showed many symptoms of ADHD, and the woman went "NO, NO NO NO NO- he's fine! He...he just doesn't have...have a father...yeah that's it". And btw, folks- this wasn't some teenager..this was a SEVEN YEAR OLD KID!

I sensed serious ADHD in him- but the woman was likely afraid to have it checked, as he "wouldn't be normal".

Remember, people can watch as many PSAs as they want....at the end of the day, unfortunately, they're ultra-superficial, and care more about what's on the outside than on the inside.

And the creepy part is, many people on this forum, from what I notice, appear to be the same way....and truth be told, I think it's REALLY unfortunate....



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28 Mar 2008, 1:41 am

nannarob wrote:
I have read several posts lately where parents were advised not to tell their children. My grandchildren were told as soon as they were diagnosed; one was 6.

I am sure that every young aspergers child knows s/he is different. It was a relief for the 8 year old to be diagnosed because he had always known that he was different. He had been hiding nightmares and 'voices' for years, and now he has been able to talk about this secret world with a counsellor.


Its not normal for an aspie to hear voices. Surely this person was diagnosed schizophrenia?

Personally, i would kinda hate my parents if they didnt tell me. But i can see it from the perspective for the parents too. The kid needs to have a certain age to handle it. That age would be around 8 years old.

Personally my mom was too emotional about it when i first talked to her about aspergers. She began crying and totally denied that i was different from everybody else. But she knew just as well as i, that it wasnt the case.

It wasnt until she realised i needed help(2 years later), that we are finally looking into a diagnose. But she still feels extremely bad about ignoring it.



olle
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29 Mar 2008, 7:49 am

2ukenkerl wrote:
olle wrote:
forgive the lack of upper-case letters.


I have to wonderif THIS is somehow a symptom! HECK, I used to ALWAYS use lower case! I KNEW what was correct! My teachers and mother ALWAYS mentioned it, but I didn't until I was like 11 or 12. And several HERE don't.



Sorry to bring up an old thread, but...

I happened to use my buggy mobile phone to post that message. That's why i didn't bother to write upper-case.

I doubt lower-case letters can be a sign of AS. People write that way all over the internet, in most cases because of laziness. Maybe if someone always write lower-case only then it could be a sign of... something. Eccentricity, or unwillingness to conform to rules maybe. I'm just speculating here.

When i was in the first years of school, i remember that i improved and decorated every letter with a number of flourishes. It was all very regulated and ceremonial. Like my very own font face. Somewhere between Arial and Wingdings.



olle
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29 Mar 2008, 8:10 am

TheDoctor82 wrote:
Just remember- humans overall aren't too bright. They fear what they don't understand.

I remember back in '99 when I'd finally learned about my ADHD, I was working at Bradlee's( a now, THANKFULLY, defunct retailer in the USA)...I was in Electronics one night, and some woman came in with her kid, and the kid was off the freakin' wall. I mentioned that he showed many symptoms of ADHD, and the woman went "NO, NO NO NO NO- he's fine! He...he just doesn't have...have a father...yeah that's it". And btw, folks- this wasn't some teenager..this was a SEVEN YEAR OLD KID!

I sensed serious ADHD in him- but the woman was likely afraid to have it checked, as he "wouldn't be normal".


It's makes me sad to read such stories. I agree. IMO, many people are obsessed with normality, trying to make sure themselves and people close to them are as normal as possible. The only thing that works could be to pretend to not see differences. *Sigh*

TheDoctor82 wrote:
Remember, people can watch as many PSAs as they want....at the end of the day, unfortunately, they're ultra-superficial, and care more about what's on the outside than on the inside.

And the creepy part is, many people on this forum, from what I notice, appear to be the same way....and truth be told, I think it's REALLY unfortunate....


What you say makes sense... but i haven't seen those tendencies here on WP. Yet. I'm still a new member.

Anyhow, my parents accepted that i was a bit different, that i had AS traits. They had other reasons not to tell me. Maybe they didn't want me to use it as an excuse. Several of you wrote that. I think my parents want me to be as normal as possible and have a normal life. In that, it might help not knowing a name (AS) for my oddness. I can understand them if that's why they didn't tell me at first.



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29 Mar 2008, 8:36 am

TheDoctor82 wrote:
...I was in Electronics one night, and some woman came in with her kid, and ... SEVEN YEAR OLD KID!


The dangers of fast and laymen diagnosis ... it's night or evening, 7 year old children are usually in bed shortly after 6 or 7 pm, early in the evening and when up and awake beyond their usual bedtime, 7 year old children can become somewhat hyperactive.



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29 Mar 2008, 1:02 pm

TheDoctor82 wrote:
Just remember- humans overall aren't too bright. They fear what they don't understand.


Quoted for truth. :lol:


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