Treatment of High Functioning Vs Lower Functioning on W.P

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PhosphorusDecree
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01 Oct 2020, 2:15 pm

Going back to a point made several pages ago-

I do not agree that having subforums for "low" and "mid"- functioning people would amount to harmful segregation. No-one is forcing anyone to just post in that one forum- they are completely free to explore and interact with the rest of the site. But the subforum would be a place to talk to people with similar issues, without the replies being swamped by tactless "high"-functioners. Including those who "see no need for a safe space" because they don't need it themselves. Failing to recognise other people's problems as real is a general human trait that us lot are far from being immune to.

I've definitely seen less frank discussion of "low-functioning" issues here lately than when I joined a few years ago. I've not always been as tactful as I should, and I've encountered people who don't see why I can't magically fix my life. Most of the time, "Haven rules" have been reasonably effective in getting people to think before they reply- some variation on "Please don't talk about your wonderful almost-NT life here!" would be helpful as a header.


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01 Oct 2020, 2:18 pm

Teach51 wrote:
promote an all-embracing platform where all voices are equally validated and welcomed.


Thank you everyone who has made positive contributions toward recognizing the issues and or making suggestions about how to solve the issues raised in this thread. The problem is lack of inclusivity and invalidation of others viewpoints. I have witnessed attacks against everyone on this website from 'lower' functioning individuals (intellectual, sensory, etc), Neurotypicals, and even rarely against 'high' functioning individuals. Obviously, there is no way to prevent every attack from occurring, but maybe there is more we could do to give the website a sense of tone than it already has. The moderator team already made the first step by modernizing The Haven subforum rules. Now that we've established what the issues are, how can we fix them/prevent them to an acceptable degree and promote a more accepting atmosphere?

So far I have seen the following suggestions on ways of behaving, things we could possibly implement:

AuroraBorealisGazer wrote:
To me it's best to just remember that each of us is different. Sweeping generalizations are never helpful. We should aim to be considerate of others and accept them when they say "nothing is working for me" instead of dictating that if they followed our path that all will be resolved.

Ideas:
It may be helpful if we had a guide on what language contributes to dismissive statements, so it can be avoided. I've noticed there are NTs that are dismissive too, it's not just those of us on the spectrum.

What if there was an option in threads to select how you'd prefer people to respond? Options like these:
- Affirmative words only
- Things to make me laugh or that are cute
- Advice
- Encouragement only
- People who can relate
- etc...

If I were in distress it might be hard, or might not occur to me, to vocalize how people can help me, but I wonder if being able to click a box with a brief description could be helpful. Or maybe it would still be hard in that moment?


cyberdad wrote:
Teach51 wrote:
Perhaps they didn't feel comfortable here? It's not supposed to be solely an Aspergers forum.

Do you have any ideas how WP could be more welcoming and supportive to lower fuctioning members?


We could create a sticky thread for folk who don't feel comfortable but then what would you call it?


Teach51 wrote:
I would campaign for the entire forum to be a safe and protected place for all levels and functionalities and I would make a restricted sticky thread for those members who need to spread their peacock tail feathers and enjoy an intellectual free for all and keep them isolated and contained there.


Edna3362 wrote:
Observation tells me of this;

In order to not invalidate someone of views, whenever this someone had something to say...

For now, what I saw is NOT to do the following;
-Brag you need less support.
-Imply or outright say you had it worse and therefore you had more say in the matter.
-Brag you had it worse and did better anyway.
-Two words: Toxic Positivity.
-Telling support suggestions without asking or prior knowledge to the person; especially if the suggestion happened to be unavailable.
-Involving politics, religion...
-Imply what 'real autism' is, what functioning level X can and cannot do.
-Dismissing other else's personal attitudes towards autism. That includes the suggestion of trying hard or disregarding ones comorbidities.
-Overstepping your personal attitudes towards autism against another else's or at large. That includes calling every pro-NDs delusional.
-Personal survivor's bias or whatever works with you yet: on wrong time and wrong places.


magz wrote:
1. While I definitely recommend using "this is <something bad>" instead of "you're <something bad> for saying it", if someone sporadically breaches it, I don't intend to put them in any more trouble than some post editing and/or a gentle reminder - unless in The Haven. The Haven has special protection rules.
2. If you see others violating the rules, report. Moderators really don't read the whole forum all the time.
3. Those who are not "mild" by any means - a sticky in Members Only.
4. I'm sorry you feel alone "in the middle" :( I think there are actually many more like you around here. Maybe we should make another sticky for the "middle-functioning" to get to know each other?


indicating possible solutions.


And to sum up what I thought were the important points:

kraftiekortie wrote:
This is not a Site exclusively for people with autism or with Aspergers.

It is a Site for people who have a positive, vested interest in autism—whether NT or not NT.

Alex would, most likely, say the same thing.


firemonkey wrote:
Things that occur here: under recognition of those who are low functioning ; hostility towards those who are NT; those who were lucky enough to be born at the right time to get an early diagnosis being dismissive of those who weren't so lucky.


firemonkey wrote:
Anything but harsh responses or the ultra glib 'Try harder' when people have no idea of how hard you may have tried. Constructive criticism is fine. As is suggesting approaches to take.


Pepe wrote:
When male aspies post in the "Women's Forum", they need to be cognisant that it is a forum for women.
I don't see why it is unreasonable to expect the same from NTs who are welcomed visitors to a website dedicated to those on the spectrum.
I have *always* thought there was something not right, in the past, in this regard.


ASPartOfMe wrote:
And we need to be cognizant that NT’s are welcomed visitors not enemies when we rant, stereotype or to a certain extent make jokes about them.


MrsPeel wrote:
This may be related to the "typical" AS way of communicating, which is less about expressing sympathy and more about problem-solving.

If I say I have a personal problem:
Typical NT response: "I understand what you're saying, that must be so difficult!"
Typical AS response: "There's a solution to this, here's what you should do..."

Unfortunately, being told what to do by someone who knows very little of your personal circumstances and struggles can come across as unsympathetic and belittling.


MrsPeel wrote:
For a group of the socially inept, we don't do too badly, I think.
I haven't seen a lot of outright bullying or trolling - though I've seen a lot of mis-communications or misunderstandings leading to offence, often where none was intended.

It's hard to tell if this is worse for the lower functioning - as people don't usually advertise their functioning levels.
In my experience, when a poster has outright stated that they are struggling with something, most people are sympathetic and helpful.
The issues come when we aren't aware - as it's easy to carelessly make triggering remarks without knowing a person's struggles.


IsabellaLinton wrote:
I've seen others "cancelled" or dismissed exactly as you describe, some for their spelling and sentence structure, some for their limited life experience or lack of confidence, and many for their perceived lack of effort to improve challenges such as sensory processing disorder, depression, anxiety, trauma, mood disorders or agoraphobia - to name a few.


cyberdad wrote:
I am an advocate for people who don't get to participate in this forum whom would actually be classified as lower functioning and yes I know everything you posted (probably better than you realise). I picked intellectual ability as that is a major impediment in many people on the spectrum not participating here and I would like to change that.


Teach51 wrote:
I have seen posts that are judgemental of those who are struggling, even suggestions that they are coddled or, heaven forbid, not trying hard enough if they struggle with the challenging problems they deal with on a daily basis.


starkid wrote:
people need to recognize that not everything that bothers you is actually mean-spirited or intended to be hurtful. Your reactions to what people say do not determine those people's motivations for saying those things. People have different personalities, different ways of communicating, different things they want to focus on, and not everything is about feelings.

And assuming people on WP are trying to flaunt their IQs is actually an example of what I mentioned about fabricating motivations in a previous comment.


Fnord wrote:
Individuals should be judged or defined only by their actions and choices, and not by what we only imagine their intentions and motivations to be.


magz wrote:
The general problem of protecting the vulnerable is that very often we need to protect the vulnerable from other vulnerable.
What makes it even harder, our tribal nature often makes us overlook it and protect some by bashing others :(
One of the attempts to adress it is The Haven rule that threads belong to their respective OPs - so two vulnerable enemies can start The Haven threads and both should be equally protected in their respective spaces.

I don't believe in "and they lived happily ever after" endings. It's all a lot of hard work from everyone to keep things running relatively well and I know it will never be perfect.



kraftiekortie
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01 Oct 2020, 2:25 pm

I just don't like segregation. It sets a bad precedent.

I hope I'm not one of those "tactless high-functioning" folks you speak of.

I hope I never made you, or anybody, feel uncomfortable.



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01 Oct 2020, 2:32 pm

I don't really respond to low functioning issues because I cannot relate to them and I don't know how I can help them. People here have talked about being ignored, I can reassure here that this is not intentional and maybe people just can't relate. I don't ignore anyone here intentionally.

I do not think having a Low functioning section would be segregation because I see this stuff all the time online like there are trauma forums online and they are only for people with trauma, no one else. There are autism groups that are only for autistic people and those who suspect or self diagnosed, no one else. I do not see how this is any different. People like to create safe spaces only for those people with it. It's done for a reason because they don't want their issues to be dismissed or trivialized from those who do not have that experience. It's meant as a safe space. Perhaps here, mods can make a rule about no dismissing issues, no unsolicited advice, no "try harder" posts, no "I did this and that and now here I am in this situation because I worked so hard at it" posts.

And I have even see exclusive childfree forums where they do not allow parents or fence sitters. People will always complain about discrimination and about forums not letting everyone post there. But IMO, I believe it is their right to have their own safe space and can decide who can post there. There are lot of places online I can post in so I couldn't careless if I can't post in a group just because I am not childfree. I wouldn't find it a problem here if Alex decided to create a new board here for low functioning members and those who have more issues and don't want to hear that other talk. We can make those posts anywhere else on here but The Haven. :D


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01 Oct 2020, 2:34 pm

I was pretty "low-functioning" (in the objective sense) when I was a young child. And I was good friends with a girl whose older brother was quite low-functioning (no speech, had to be watched 24/7, perhaps not toilet-trained, but I don't remember). I sort of grew up with that family.



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01 Oct 2020, 2:36 pm

I think stickies and other special spaces for various groups are not really "segregation" as long as the vast majority of the site is common space.


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01 Oct 2020, 2:41 pm

Right. There is a large thread opened up by somebody named Super Trouper-----which speaks of "not so mild" autism and other disorders.



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01 Oct 2020, 3:39 pm

kraftiekortie wrote:
I just don't like segregation. It sets a bad precedent.

I hope I'm not one of those "tactless high-functioning" folks you speak of.

I hope I never made you, or anybody, feel uncomfortable.


I find you pretty tactful, and you have a wider perspective than most. Others I could name (some of whom I do consider friends) ... not so much.


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JP210168
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01 Oct 2020, 4:08 pm

It could do people good to shut up and simply listen, as much of a monumental task that seems to be. While people here are splitting hairs and getting nothing accomplished as usual though, here's the tidbit I was talking about:

https://www.autismforums.com/threads/wr ... ost-341152

She's not the only one who left. I'm only bringing this up seeing as it's relevant to the topic of "lower functioning".



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01 Oct 2020, 4:16 pm

JP210168 wrote:
It could do people good to shut up and simply listen, as much of a monumental task that seems to be. While people here are splitting hairs and getting nothing accomplished as usual though, here's the tidbit I was talking about:

https://www.autismforums.com/threads/wr ... ost-341152

She's not the only one who left. I'm only bringing this up seeing as it's relevant to the topic of "lower functioning".


That sounded very awful what she went through. I didn't know there was more to the story. :(


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01 Oct 2020, 4:20 pm

JP210168 wrote:
It could do people good to shut up and simply listen, as much of a monumental task that seems to be. While people here are splitting hairs and getting nothing accomplished as usual though, here's the tidbit I was talking about:

https://www.autismforums.com/threads/wr ... ost-341152

She's not the only one who left. I'm only bringing this up seeing as it's relevant to the topic of "lower functioning".


Jesus, that is horrific. Puts the whole thing in perspective.


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01 Oct 2020, 4:23 pm

magz wrote:
Pepe wrote:
Teach51 wrote:

Yes that wasn't what I meant to say at all, I actually understood Starkid's post I didn't get upset about it. No problem there. I would like you to delete the angel bit, I was just being descriptive without giving it enough thought, my ADD. I understand my thoughtlessness. Thanks magz.


To the Dungeon with her! :evil:

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Who will feed me in the dungeon? I am getting peckish. I'll have roast deer and a barrel of ale.


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01 Oct 2020, 5:37 pm

Quote:
I don't ignore anyone here intentionally.


Agreed.
There's not one member here who I ignore intentionally. I ignore some threads, but it's nothing to do with who created the threads, it's just that the threads don't interest me or I don't relate to.

I have been accused of ignoring people personally here, but I really do not mean to and I wish people wouldn't take things so personally on a discussion site. I have ADHD so I often read a message then forget to reply back. When I first came here I didn't open my PM bit for a couple of years or more because I just didn't notice that we had a PM feature here. So when I got a load of "why are you ignoring my PMs? You are so rude!" messages, I was rather taken aback.
But some members prefer not to do PMs. I've sent out countless PMs to different members but never got replies back, but I don't start interrogating them in threads asking why they're ignoring you. Some members just don't do the idle social chitchat thing here. I don't so much, I do that on Facebook.


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01 Oct 2020, 6:03 pm

Joe90 wrote:
Quote:
I don't ignore anyone here intentionally.


Agreed.
There's not one member here who I ignore intentionally. I ignore some threads, but it's nothing to do with who created the threads, it's just that the threads don't interest me or I don't relate to.

I have been accused of ignoring people personally here, but I really do not mean to and I wish people wouldn't take things so personally on a discussion site. I have ADHD so I often read a message then forget to reply back. When I first came here I didn't open my PM bit for a couple of years or more because I just didn't notice that we had a PM feature here. So when I got a load of "why are you ignoring my PMs? You are so rude!" messages, I was rather taken aback.
But some members prefer not to do PMs. I've sent out countless PMs to different members but never got replies back, but I don't start interrogating them in threads asking why they're ignoring you. Some members just don't do the idle social chitchat thing here. I don't so much, I do that on Facebook.



Ouch, I hope you got that resolved.


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01 Oct 2020, 7:17 pm

Teach51 wrote:
kraftiekortie wrote:
You're not a bad dude....you're better as a skunk, though.


A bit too scrawny for my taste. :wink:

But I'm next in line, right? :scratch:



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01 Oct 2020, 7:36 pm

Teach51 wrote:
magz wrote:
Pepe wrote:
Teach51 wrote:

Yes that wasn't what I meant to say at all, I actually understood Starkid's post I didn't get upset about it. No problem there. I would like you to delete the angel bit, I was just being descriptive without giving it enough thought, my ADD. I understand my thoughtlessness. Thanks magz.


To the Dungeon with her! :evil:

The cliche is, the jester goes to the dungeon.
:queen:
________
:jester:
:P


Who will feed me in the dungeon? I am getting peckish. I'll have roast deer and a barrel of ale.


I think we can come to some sort of arrangement. 8)