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DrPenguin
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23 Jul 2012, 11:04 am

rebbieh wrote:
JoeRose wrote:
I know the OP means this post to be non-inflammatory and is acting out of curiosity and I respect that.

But I find I'm getting sick of the other people on this forum who have an air of arrogance about them and a bit of disdain for people who are self-diagnosed. As proven in this thread there are a whole number of reasons why a person would want to not be self diagnosed (and yes! Even in England where a diagnosis is free. There's reasons other than money you know!).

My personal reasons for remaining self-diagnosed are vast. I'm embarking into a degree and profession that means an AS diagnosis might hamper what some people would consider "fitness to practice". Although I know I'm fit to practice - other people might use the diagnosis as an excuse to prevent me from joining the profession.

I also don't see a diagnosis as having any benefit to me. Theres essentially no support for me if I get diagnosed. The only support I'd get would be in education and I feel I don't need it as I've done really well without any kind of support.

I also don't want the diagnosis to limit me. I think if I got officially diagnosed (which I nearly did) I would start to limit myself and constrain myself to the diagnosis. I'd begin to not try at being more social and I'd just keep resigning to the fact I've got AS and never really improving.

so yeah I think this thread has been really useful and I hope it shows other self-diagnosis haters that people who are self-diagnosed are not lesser beings.


Just to clarify, I don't have anything agains people who self-diagnose and I don't doubt your abilities to diagnose yourselves. In fact, I wish I was as sure as you seem to be. But I'm not, and I'm having a really hard time, that's why I started this thread. I'm sorry if you, JoeRose, or anyone else has taken offence.


It's just a classification in a text book with a list of symptoms/traits that change to the psychologist. Here are people who live it. Even then I don't think anyone can ever be 100% sure of anything in life, those that do have the definite diagnosis may partly want to doubt/escape it whilst those that self diagnose may doubt they have it for sure but want to find somewhere/way to belong.



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23 Jul 2012, 11:05 am

:arrow: rebbieh:
I don't know you in person, but your writing stile has something autistic.


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rebbieh
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23 Jul 2012, 11:07 am

Raziel wrote:
:arrow: rebbieh:
I don't know you in person, but your writing stile has something autistic.


How does a writing style have "something autistic"? Just curious.



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23 Jul 2012, 11:11 am

Now, that's looking more like AS - not wanting to play/interact, having markedly different interests from peers, being a "tomboy" is common, etc - these things are in the details not in the generalisations whenever you mention what you think might be a trait give an example or try to explain fully what you mean and you will have a better idea of the specifics



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Sometimes I wanted to talk though, but it was as if my brain wouldn't let me open my mouth and say whatever I wanted to say.


This is probably selective mutism - common in ASC girls in particular - it is where a person who can normally speak and wants to speak cannot do so and is usually indicative of very high levels of social anxiety. It is not a voluntary thing though most people will think it is.



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23 Jul 2012, 11:17 am

rebbieh wrote:
How does a writing style have "something autistic"? Just curious.


It's hard to explain, espessially in a forreign language.

Your writing is very analytical and doesn't really show any emotions. Okay you wrote, that you are "curious", but you don't write all the time: "I think", "I love", "I hate" or about a lot of other feeling, it's more the analitical part and also this being curious is because you WANT to know something and not really, because of a social connection.
I also couldn't find any douple meanings in the things you wrote, but it is in a way detailed.
Also when you wrote about you, there were mainly facts and not feelings.


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Last edited by Raziel on 23 Jul 2012, 11:30 am, edited 1 time in total.

rebbieh
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23 Jul 2012, 11:18 am

zemanski wrote:
This is probably selective mutism - common in ASC girls in particular - it is where a person who can normally speak and wants to speak cannot do so and is usually indicative of very high levels of social anxiety. It is not a voluntary thing though most people will think it is.


Then that might explain what happened not too long ago. I was with my boyfriend, his brother + brother's girlfriend. I trust them and it's not too difficult socialising with them, even though I get extremely tired. All of a sudden the brother's friend showed up. He was a stranger to me which made me very uncomfortable. He stayed for dinner and from the moment he walked through the door until he left I was pretty much mute. The only thing I did was eating a tiny bit of food, spin my glass and being extremely anxious. I was also being very angry with myself for not being able to open my mouth and speak. I couldn't say anything except for when the brother asked me if I wanted more food. Then I just said "no." Also, the brother's friend said, out loud, "you're a very quiet person" and then I responded by saying "sorry." But that's it. That was all I said. Is that selective mutism?

EDIT: In fact, I was so angry with myself I went to the bathroom and hit my head a bit. Gave me a headache which made the evening even worse.



Last edited by rebbieh on 23 Jul 2012, 11:32 am, edited 1 time in total.

rebbieh
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23 Jul 2012, 11:21 am

Raziel wrote:
rebbieh wrote:
How does a writing style have "something autistic"? Just curious.


It's hard to explain, espessially in a forreign language.

Your writing is very analytical and doesn't really show and emotions. Okay you wrote, that you are "curious", but you don't write all the time: "I think", "I love", "I hate" or about a lot of other feeling, it's more the analitical part and also this being curious is because you WANT to know something and not really, because of a social connection.
I also couldn't find any douple meanings in the things you wrote, but it is in a way detailed.
Also when you wrote about you, there were mainly facts and not feelings.


Interesting. I've never thought of that before.



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23 Jul 2012, 11:29 am

parents and professionals miss a lot of things - your parents may have had concerns from time to time but if they ever expressed them they would have been told you were normal or you'd grow out of it or you were just a bit shy and anxious.

When you were a child it was very rare for girl to be diagnosed - it was hard enough to recognise AS in boys and girls present very differently, it's only recently that professionals have been getting to grips with female diagnosis. And, to cap it all, Asperger's paper was only translated into English in 1981, diagnostic procedures were not in place till the early 90s in most places, later in many, and most people trying to diagnose were inexperienced and thought that only boys could have AS as only boys were included in Asperger's work - because the female presentation looks so different from the male presentation (it is exceptionally subtle in many women) they didn't realise that they were missing a whole generation of girls.

Your parents would never even have considered you had a condition to explain your unusual behaviour, they would have just thought you were a bit unique and probably liked the fact that you weren't growing up into a sex mad teen who would do anything to create as much tension and trouble in the family home as they can!



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23 Jul 2012, 11:35 am

if you want to talk and can't because your brain won't let your mouth or throat or something work properly then that's probably selective mutism - just keeping quiet is probably not, not being able to speak or being hushed due to anxiety without actually being prevented by your own body from getting the words out is a more common response to anxiety and not necessarily mutism. However, I am not an expert on it and wouldn't like to say definitively - there may be subtleties and shades I'm almost certainly not aware of.



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23 Jul 2012, 11:42 am

zemanski wrote:
parents and professionals miss a lot of things - your parents may have had concerns from time to time but if they ever expressed them they would have been told you were normal or you'd grow out of it or you were just a bit shy and anxious.

When you were a child it was very rare for girl to be diagnosed - it was hard enough to recognise AS in boys and girls present very differently, it's only recently that professionals have been getting to grips with female diagnosis. And, to cap it all, Asperger's paper was only translated into English in 1981, diagnostic procedures were not in place till the early 90s in most places, later in many, and most people trying to diagnose were inexperienced and thought that only boys could have AS as only boys were included in Asperger's work - because the female presentation looks so different from the male presentation (it is exceptionally subtle in many women) they didn't realise that they were missing a whole generation of girls.

Your parents would never even have considered you had a condition to explain your unusual behaviour, they would have just thought you were a bit unique and probably liked the fact that you weren't growing up into a sex mad teen who would do anything to create as much tension and trouble in the family home as they can!


My mother read about AS on Wikipedia when I first mentioned I suspected I have it. After reading it she just said "no, you don't have it, you weren't like that as a child." I don't know what to think about that.

I'm very anxious about getting assessed and the possibility that the people assessing me might tell me nothing's "wrong" when I know something's not "right." Especially since it seems to be more difficult to diagnose females.

zemanski wrote:
if you want to talk and can't because your brain won't let your mouth or throat or something work properly then that's probably selective mutism - just keeping quiet is probably not, not being able to speak or being hushed due to anxiety without actually being prevented by your own body from getting the words out is a more common response to anxiety and not necessarily mutism. However, I am not an expert on it and wouldn't like to say definitively - there may be subtleties and shades I'm almost certainly not aware of.


Sometimes I feel like I can't open my mouth but maybe I'm just imagining it because I'm so anxious. Anyway, I've probably got a lot of social anxiety.



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23 Jul 2012, 11:50 am

The wiki description will be basic and clinical and biased towards the male presentation - most women and their parents would not recognise themselves or their daughters in it!


Best book on women I know of is Aspergirls by Rudi Simone - buy it, read it, re-read it and then give it to your mother - if neither of you see anything that strikes a chord of recognition in there then you probably aren't on the spectrum.



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23 Jul 2012, 4:43 pm

zemanski wrote:

Quote:
Sometimes I wanted to talk though, but it was as if my brain wouldn't let me open my mouth and say whatever I wanted to say.


This is probably selective mutism - common in ASC girls in particular - it is where a person who can normally speak and wants to speak cannot do so and is usually indicative of very high levels of social anxiety. It is not a voluntary thing though most people will think it is.


This has happened to me my entire life, but I didn't realize that it was 'selective mutism'. In fact, when taking tests, I answered 'no' to the questions about having experienced 'mutism'. I really didn't put the two together. Wow!



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23 Jul 2012, 4:46 pm

zemanski wrote:
Best book on women I know of is Aspergirls by Rudi Simone - buy it, read it, re-read it and then give it to your mother - if neither of you see anything that strikes a chord of recognition in there then you probably aren't on the spectrum.


Just bought it online. I'll probably get it in a week or so. When you say "if neither of you see anything that strikes a chord of recognition in there then you probably aren't on the spectrum", how much is "anything"? I mean, how do you define "anything"? One thing or most of it or somewhere in between?



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23 Jul 2012, 4:56 pm

Just read it and see how it goes - if you recognise yourself (and I think you will know if you do) you will have a much better idea of who you might be and where to go from there

Remember every person on the spectrum has a different package of sensory issues, comorbid conditions and personality so there are many presentations, levels of need, and strengths. Not everything will strike a chord but enough may to help you be more sure of your feelings about yourself.

There is a saying: If you have met one person with autism, you have met one person with autism!

There is lots of advice on coping strategies too - many of which may be useful even if you aren't on the spectrum, you certainly experience social anxiety if not the whole package.



Last edited by zemanski on 23 Jul 2012, 5:07 pm, edited 1 time in total.

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23 Jul 2012, 5:03 pm

zemanski wrote:
Just read it and see how it goes - if you recognise yourself (and I think you will know if you do) you will have a much better idea of who you might be and where to go from there

There is lots of advice on coping strategies too - many of which may be useful even if you aren't on the spectrum, you certainly experience social anxiety if not the whole package.


Thanks a lot for suggesting the book and thanks for helping out. We'll see how it all goes.



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23 Jul 2012, 5:04 pm

rebbieh wrote:
Raziel wrote:
rebbieh wrote:
How does a writing style have "something autistic"? Just curious.


It's hard to explain, espessially in a forreign language.

Your writing is very analytical and doesn't really show and emotions. Okay you wrote, that you are "curious", but you don't write all the time: "I think", "I love", "I hate" or about a lot of other feeling, it's more the analitical part and also this being curious is because you WANT to know something and not really, because of a social connection.
I also couldn't find any douple meanings in the things you wrote, but it is in a way detailed.
Also when you wrote about you, there were mainly facts and not feelings.


Interesting. I've never thought of that before.


I agree. It's not something I have ever really thought about but it's the way I usually write too. I'll also add that another trait seems to be using a lot of parenthetical phrases in your writing. There was a good thread on it a little while back, but basically what aspies tend to do is have lots of tangential thoughts. This is why our conversations tend to dart and weave when discussing topics we know and love as we want to dump all of that data at once. Thus, we put the extraneous data in parenthesis as we don't quite know how to be concise and to the point. We may want to do that and succeed in doing that in the main body of the writing, but we still need to dump that data somewhere.


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