New research brings autism screening closer to reality

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Xelebes
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11 Jan 2009, 10:47 pm

Kangoogle wrote:
Xelebes wrote:
Kangoogle wrote:
Xelebes wrote:
animal wrote:
Kangoogle wrote:
8O http://www.guardian.co.uk/lifeandstyle/ ... ing-health


Quote:
Professor Simon Baron-Cohen, director of the research team, told the Guardian that it is now time to start considering where society stands on the issue.

"If there was a prenatal test for autism, would this be desirable? What would we lose if children with autistic spectrum disorder were eliminated from the population?" he said. "We should start debating this. There is a test for Down's syndrome and that is legal and parents exercise their right to choose termination, but autism is often linked with talent. It is a different kind of condition."



I dislike Baron-Cohen's statement here, becaue he seems to be implying that people with autism may be more worth saving than people with Down's. As though not having a socially recognized 'talent' means your life is worth less than someone who does have a socially recognized talent, such as mathematical skill. I disagree with the current talentocracy. People with Down's have equal rights as people with autism, who have equal rights as the so-called normals.


It's a meritocracy, where talent can get you really high in that regard but so can hard work. But I know what you are getting at.

No - in a meritocracy everyone is given an equal opportunity to get jobs and so on. This society is anything but.


Maybe I didn't parse my clauses correctly there, but I was saying that hard work will be the way for most but those talented will find their niches.

Still not what a meritocracy is quite about. Its basically a form of socialism.


Are we talking about a dystopic or utopic meritocracy here?



undefineable
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11 Jan 2009, 11:04 pm

Padium wrote:
the right choices to further its cause of forward progression into a better future. If we do not stand against the wrong that is testing for autism on an unborn child, who will? If we do not stand up for the rights of those who are yet to come, who will? If we do not make sure society does the right thing, who will? We are the future, we are the past, we are the ones who can make this world what it was meant to be.


'Better'?! 'Wrong'?! 'Right thing'?! 'Meant to be'?! I'm not coming from the moralising place you're coming from. Most people are coming to accept the natural (distinct from moral) right of a mother to kill her unborn children if she feels she'd be unable to cope with them; a moment's thought shows that this isn't the same situation as ordinary killing :o .

Padium wrote:
But how can we do this if we do not stand as one united community, in the face of threats that risk wiping out an entire race of people.


Sorry to piss on your parade, but I just don't see how we'd be 'less equal' if autism were prevented in the womb.

On a lighter note,

Padium wrote:
"What is the difference between gay pride and autistic pride?" Both are not liked by most of society, and both are very beneficial to the people involved.


So how is being gay more beneficial than being straight, hmm? {Answer - Guys ain't as picky as gals :lol: }



Last edited by undefineable on 11 Jan 2009, 11:06 pm, edited 1 time in total.

garyww
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11 Jan 2009, 11:05 pm

As far as 'contributions' go they don't have to be big to have a major impact on specialized areas of technology. I wrote a simple program one time that ended up being used worldwide and enabled companies who had a large investments in mainframes and mini-computers to offload their graphical applications to PC's. It ended up having a huge impact on that particular segment but that wasn't what I had expected or anticipated.


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Kangoogle
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11 Jan 2009, 11:07 pm

undefineable wrote:
I'm having trouble keeping up with this :? Let me begin by shuffling a draft over from another thread, the guy I quoted there being on here as well:

garyww wrote:
From my perspective one of the absolutely best things about on the spectrum is that you generally aren't attracted to all those well wore paths that other people follow _ _ advertising, trends, fads, cycles and the rest of those types of trimmings that people like to hang on life


Being mildly affected by AS, I do find those things attractive, albeit out of reach, and experience their reality almost as an NT would. I see how they are a huge part of human life when set against what lower-functioning autistics experience of it. Your final statement
garyww wrote:
If you can't be an original individual then why live to begin with.
ignores the vast scope of realities that human beings experience.

My point here connects with those last three paragraphs of the OP. To begin, with my emphasis:

Quote:
Vivienne Nathanson, head of ethics at the British Medical Association, agreed a debate was needed. "The question, then, is are we comfortable with [testing] for a disorder which is life-limiting in terms of opportunities and experience, rather than life-ending?" she said.


To me, and I stand to be called out by the author if word reaches her :roll: , this says that she's noting how much of NT reality autistic reality misses, and drawing the obvious conclusion: While we autistics may not suffer because of our autism much more than NTs suffer because of their humanity, we also experience less happiness than NTs, and a lower level of fulfilment. Obviously, there's no way of testing this, but to an NT, I feel, his or her life is infinite and complete; it's not just the lens through which the world is approached, as it seems to be for us. Remember, our brains are no smaller than those of NTs; therefore our mental capacity is likely to be just the same, albeit harder to fill.

Quote:
If you talk to parents of people with autism, however much they love their children, they find it very difficult. They agonise over their child's limited life opportunities and some of them say it would have been better not to have had the child


Here, she's making it clear that parents are concerned with maximising their children's happiness, hence the difficulty she refers to, given how hard we can be to figure out to begin with. Many people also believe (wrongly in my view, since a brain appears after 1 month of pregnancy) that a foetus isn't 'alive' in the usual sense until very late in pregnancy or even at birth, so there wouldn't be any ethical issue remaining in the minds of those who chose terminiation.

Quote:
You get to the situation where you have a very great difficulty if families say we wouldn't want to be tested. As a society, do we accept that people can refuse tests when the outcome can make a difference to that unborn child?


I'm in favour of all human beings maximising a sense of reality and meaning in their lives; that's the best that can be expected from this world. And if that means that all parents are forced to treat any foetal autism, so be it. We don't need to justify our existence, because a greater existence, based on 'neurotypicality', is justified for all human beings, based on the magnificent capacity of the human mind-brain to make use of such a rich working base.

I think I'll develop this line of thinking a little:

Kangoogle wrote:
undefineable wrote:
Seriously now, doesn't any1 wonder y ppl with Down's haven't kicked up a fuss about their genotype's fate? Might it not be that they understand feelings, parenting, and even society better than us? {Also, every1 forgets that the 90% figure applies only to women who ask to be screened in the 1st place!}

Because most of them have an IQ of under 70 and probably continue their lives blissfully unaware.


Well that's just what many NTs must be thinking in relation to us, Kangoogle; just add the word 'social' before 'IQ'! You're just as ignorant as they are when you think that a low IQ prevents a person from understanding when they hear (over and over again) that babies who look like them are often aborted. The fact that it makes it harder to understand just means they've less room to develop arguments based entirely on hurt feelings, to wit:

Orwell wrote:
I'm not about to allow genocide against a group I identify with.


:wink: :wink: .

Let battle commence :twisted:

You realise how bad IQ below 70 actually is, don't you? Its at the point of barely being able to read and even if they can understand what is going on - they are going to have little or no idea what they could do about it.



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11 Jan 2009, 11:08 pm

Xelebes wrote:
Kangoogle wrote:
Xelebes wrote:
Kangoogle wrote:
Xelebes wrote:
animal wrote:
Kangoogle wrote:
8O http://www.guardian.co.uk/lifeandstyle/ ... ing-health


Quote:
Professor Simon Baron-Cohen, director of the research team, told the Guardian that it is now time to start considering where society stands on the issue.

"If there was a prenatal test for autism, would this be desirable? What would we lose if children with autistic spectrum disorder were eliminated from the population?" he said. "We should start debating this. There is a test for Down's syndrome and that is legal and parents exercise their right to choose termination, but autism is often linked with talent. It is a different kind of condition."



I dislike Baron-Cohen's statement here, becaue he seems to be implying that people with autism may be more worth saving than people with Down's. As though not having a socially recognized 'talent' means your life is worth less than someone who does have a socially recognized talent, such as mathematical skill. I disagree with the current talentocracy. People with Down's have equal rights as people with autism, who have equal rights as the so-called normals.


It's a meritocracy, where talent can get you really high in that regard but so can hard work. But I know what you are getting at.

No - in a meritocracy everyone is given an equal opportunity to get jobs and so on. This society is anything but.


Maybe I didn't parse my clauses correctly there, but I was saying that hard work will be the way for most but those talented will find their niches.

Still not what a meritocracy is quite about. Its basically a form of socialism.


Are we talking about a dystopic or utopic meritocracy here?

Depends who you are talking to - I prefer the term "strong" meritocracy and believe that most of the way there is far from utopic.



undefineable
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11 Jan 2009, 11:11 pm

Kangoogle wrote:
You realise how bad IQ below 70 actually is, don't you? Its at the point of barely being able to read and even if they can understand what is going on - they are going to have little or no idea what they could do about it.


Yes, they can understand what is going on as long as it's explained clearly and aurally. 'What they can do about it' could start with them voicing opinions, and given that 'what they can do about it' is going to be a purely social thing, they'd probably have a better knack than us anyway :wink:

By the way, one DSer is on record as saying (about 'his/her race' :wink: ) "we're the same as every1 else" - An opinion atleast, and 1 that may hold more truth than the narrow-minded would expect_



Last edited by undefineable on 11 Jan 2009, 11:14 pm, edited 1 time in total.

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11 Jan 2009, 11:13 pm

undefineable wrote:
I just don't see how we'd be 'less equal' if autism were prevented in the womb.

Then you are sorely lacking in critical thinking skills.

undefineable wrote:
Orwell wrote:
I'm not about to allow genocide against a group I identify with.


:wink: :wink: .

Let battle commence :twisted:

Choose your weapon. :P :twisted:


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11 Jan 2009, 11:15 pm

If this testing ever starts to be offered by clinics, we are already too late to save ourselves. We need to start doing something now.



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11 Jan 2009, 11:16 pm

CanyonWind wrote:
I think some of us might be overestimating our contribution to "progress."

I'm not convinced that all that many scientists, artists, and musicians are aspies or otherwise autistic.

But this version of "ethics" reminds me of people saying we shouldn't destroy the lives of aboriginal peoples living in the rainforest because some of the stuff they know about medicinal plants may be useful to us.

I just don't see people as commodities.

I think the "aboriginal people's rights" is kind of a marketing thing. OK society doesn't care about people on the spectrum. Do they care about themselves?

I think the contribution estimates are fair. I personally am not important to society. To compare to the DS test, there are false positives. The mentioned testing on embryonic testosterone marks an autistic tendancy. If the heightened testosterone is a marker that shows a risk I think a lot of observe/calculate minded people will get caught in that net.

"Ma'am there is a 70% chance this child will have autism". For $5000 we can treat the fetus to reduce the risk.
I think many people would abort and try again.



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11 Jan 2009, 11:17 pm

My IQ is 80 so I can understand and I do believe that the majority of people who are autistic do not feel as thought they lead a life of misery at least not any I have meet or worked with. Just becasue you have a low IQ does mean you cannot understand what people are saying to you or express your own ideas in whatever manner you can best adapt to your particular situation.


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11 Jan 2009, 11:18 pm

Orwell wrote:
undefineable wrote:
I just don't see how we'd be 'less equal' if autism were prevented in the womb.

Then you are sorely lacking in critical thinking skills.


My claim was that we wouldn't be treated less equally, and 'critical thinking skills' don't come into it. My claim was based on what I think would be going on with other people that would influence the way they'd be acting :roll:



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11 Jan 2009, 11:24 pm

I also think the really critical issue here is identifiing the difference between the rights of individuals and what rights of those individuals can be overidden by the state. The 'condition' in question isn't all that important. It could be any one of dozens and the basic questions would still be the same. So far screening for anything isn't mandantory but we can already see an organized attempt being made to at ;east consider the implementation of mandantory screening. That alone is freightening in a free society.


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11 Jan 2009, 11:24 pm

undefineable wrote:
Orwell wrote:
undefineable wrote:
I just don't see how we'd be 'less equal' if autism were prevented in the womb.

Then you are sorely lacking in critical thinking skills.


My claim was that we wouldn't be treated less equally, and 'critical thinking skills' don't come into it. My claim was based on what I think would be going on with other people that would influence the way they'd be acting :roll:
.
So you really don't see how sanctioning genocide against a given group would promote a perception that members of that group are inferior? And you don't think that has anything to do with your critical thinking skills? It is my turn to :roll: now.


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11 Jan 2009, 11:28 pm

undefineable wrote:
Kangoogle wrote:
You realise how bad IQ below 70 actually is, don't you? Its at the point of barely being able to read and even if they can understand what is going on - they are going to have little or no idea what they could do about it.


Yes, they can understand what is going on as long as it's explained clearly and aurally. 'What they can do about it' could start with them voicing opinions, and given that 'what they can do about it' is going to be a purely social thing, they'd probably have a better knack than us anyway :wink:

By the way, one DSer is on record as saying (about 'his/her race' :wink: ) "we're the same as every1 else" - An opinion atleast, and 1 that may hold more truth than the narrow-minded would expect_

Who is going to show up and do the clear explanation and organisation for them. Answer: No one. Where as we have people who are highly motivated and capable - especially when they stop procrastinating.

Having an opinion is something anyone can do - being able to apply that opinion and achieving a goal is a whole difficult cattle of fish.



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11 Jan 2009, 11:30 pm

Padium wrote:
If this testing ever starts to be offered by clinics, we are already too late to save ourselves.


I don't consider any unborn children, NT or AS, to be 'ourselves', certainly not any more 'us' than fellow adults.

I agree with an earlier post-er that we need to communicate better how little we suffer and how much we have to give, as compared to the worst fears of others. But in the end, if the majority would prefer not to have autistics brought into the world - even at the expense of technological progress - then that's what's right for them. Better than forcing millions more to endure the suffering that comes from not being integrated into a society.



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11 Jan 2009, 11:31 pm

garyww wrote:
My IQ is 80 so I can understand and I do believe that the majority of people who are autistic do not feel as thought they lead a life of misery at least not any I have meet or worked with. Just becasue you have a low IQ does mean you cannot understand what people are saying to you or express your own ideas in whatever manner you can best adapt to your particular situation.


Gary I don't know what IQ test you were scored under, but I'd have to say your IQ is a heck of a lot more than 80 because 80 is not even smart. And you write like a genius, so I'd say you're IQ is twice that at least.