you're not a doctor, stop telling people they don't have AS.

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MoonRa
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27 Jan 2010, 6:09 pm

I have got "not sure if I have it" in my profile.

I'm not going to get some diagnose because I considered the following options:

Against diagnoses (well, my personal consideration;)
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1. I like to focus on things I'm good at.
I managed to get a master degree and I'm pretty sure I might have got diagnosed after I finished high school, however some behaviour studies would have distracted me to much from getting through university - and I loved university:) (that is, I don't think I would have have gotten through university If I'd would have been diagnosed and shrinks made me have to go through social studies)

2. I don't like it on my CV nor medical record; it may damage job oppertinities and medical ensurance rates.

3. Getting a ASD label is like drawing a line in a spectrum; it doesn't make sense if you don't gain anything by getting diagnosed.

4. I don't like to spend the money and the time for getting diagnosed.
I did some pre-scan - 5 sessions (and some honderds of dollars) she came up with a stupid report that I'm very introverted etc. etc.. I already knew that! and she completely failed to report that it was restricted to some places - I could make up a way better report myself! Sorry, .. but I really have a very low good impression of shrinks. Most shrinks here are also woman.. I don't really trust woman; how can a woman understand a man? I told her in the beginning I was here because I suspect myself from picking up way lesser clues about someone's appearance and emotional state - she did only some 'standard tests', misinterpreted it and failed to come up with the tests I asked for (face-expressions - eye issue and other).

5. I could get a diagnose; and I'm pretty sure I can determine the outcome myself.
If I would have ASD, it would only be on the social scale, and I'm really not doing bad in all social situations. I can't fake things like the 'eye-expression' tests and alike though;)

6. My doctor (not shrink) told me I'm smart enough to figure things out myself.. (and gave me some sleeping pils;)
.. and I think he's right:)

Pro (well, my personal consideration;):
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1. I may get some acknowledgement and respect (both from myself and others) for my pitty failures in life;)
2. ? I don't know.. tell me;)

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Note.. The reason I ended up here, is because I was mid-life (a few years ago and still;) and was trying to make sense of good and bad experiences in past years in order to plot my future. So I did lots of internet test.. and most directed to ASD .. but mild:) Actually! - I never heard of ASD before up until then, so ASD awareness is doing very well and I'm please to be on this forum:)



Last edited by MoonRa on 27 Jan 2010, 6:29 pm, edited 1 time in total.

mikkyh
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27 Jan 2010, 6:11 pm

I don't mind people that are self diagnosed at all, as long as they say that. There are some people that I personally know that just say they've been diagnosed...without mentioning that they haven't seen a doctor. This, for some reason, antagonizes me.

Though picking up on that point, if you think logically about it, if we can't say they don't have it because we don't have a degree...how can they say they do have it if they don't have a degree ?

I'm not saying people who are self diagnosed have it, I was self diagnosed for about a week but I went to see 3 different psychiatrists to have it confirmed.


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27 Jan 2010, 6:23 pm

Luzhin wrote:
Aimless

No, my son is not on meds. I had hoped to avoid that but may not be able to. My own personal experience with them (from the late 60s and 70s) was; they gave you something that basically turned you into a zombie while they tried to 'figure out what is wrong'..hence my reluctance. I'm sure meds have gotten better over the past 30+ years.
Plus, my son's GP is very old school and thinks we should wait and see 'if he grows out of all this'. I think the good doctor is a moron; I never 'grew' out of anything (neither did my grandfather) ..just learned over decades how to adapt the best I could.


Callista

Yes, your percentages probably make more sense than what I had originally said.


Yes, medications are much improved since then. Even so my son made some dramatic improvements after anxiety meds. He did not start having conversations until he was on Risperidone, before he would only say a few words here and there and before that he would only shriek and point. When at the doctors they were unable to do the simple action of wrapping a tape measure around his head to measure it because he would freak out so badly. Once I took him to a play. When the lights went down at the beginning of the play the transition from light to dark was too sudden for him and he went into hysterics and we had to leave. Before the meds he would speak only to me. If another child approached him he would curl into a fetal position. If we were at my mom's and he wanted a glass of milk or something he would come and whisper in my ear. He would not ask her ( that just kills a grandma). He might say 1 or 2 words a day. He was put on meds when he was 5. After a few years of this he developed severe tics ( facial,verbal and full body) and was taken off. He is not on that med anymore. In retrospect I think he should have been taken off a lot sooner but it certainly helped him past some hurdles. Back then, my boss reacted negatively to the idea of meds for him because she was thinking along the lines of 30 years ago when meds were more for doping people into submission. I would never do that to my son. The meds removed major blocks and allowed him to emerge, but like I said before I think the course of meds should have been much shorter.


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27 Jan 2010, 6:30 pm

SirLogiC wrote:
I was told by a psychologist, with knowledge of Asperger's Syndrome, that it was in my best interests to not get an official diagnosis unless it was needed and I agree with that. I don't know what its like in the US but in Australia getting a diagnosis means I have it for life and there is good and bad things associated with that, particularly in relation to jobs. So for me, even though I am still quite young, there is a reason for me to not get a diagnosis.


I think your psychologist needs to go back to university.


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27 Jan 2010, 9:12 pm

Here's the thing that bugs me. I hear a lot of "You can't have AS because you do this or you don't do that". Well isn't it established that there is a wide variety of symptoms between people who are on the spectrum and also a wide variety of functioning levels?
I may very well not have AS but I sure as hell have something and it isn't Schizoid Personality Disorder. If PDD-NOS describes me better that doesn't mean I'm not autistic and it doesn't mean I haven't struggled my whole life. People are not schizoid at age 3. I get the idea that people pick the one criteria they themselves suffer from the most and decide that is the most critical one for assessment. As far as I know, sensory processing difficulties are not part of the diagnostic criteria (although maybe they should be IDK). As I understand it, the social is the aspect they look at first and requires more evidence of symptomology. This business of the only concern the diagnosed have for those who dare to voice a personal opinion about themselves being that it might be mistaken for something else that needs other treatment seems kind of weak to me. What exactly? Anything you can come up with is going to be treated as a comorbid to AS would be. I can't imagine anyone rushing to the emergency room and shouting " OMG help me, I can't relate to people". Anyway, just had to say it, because I've wanted to say it for a long time. I have just broken my promise to myself not to involve myself in these self diagnosis threads. Maybe I'll be more successful once I've gotten this off my chest. Asperger's is not elite autism is it? Can someone with who might be PDD-NOS get a little validation?


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27 Jan 2010, 9:21 pm

mikkyh wrote:
SirLogiC wrote:
I was told by a psychologist, with knowledge of Asperger's Syndrome, that it was in my best interests to not get an official diagnosis unless it was needed and I agree with that. I don't know what its like in the US but in Australia getting a diagnosis means I have it for life and there is good and bad things associated with that, particularly in relation to jobs. So for me, even though I am still quite young, there is a reason for me to not get a diagnosis.


I think your psychologist needs to go back to university.


I think you will gain some perspective as you age. In the mean time, let me help you.

A diagnosis of aspergers(or many other things) is certain career death in a number of fields. For example, military and child care just to mention two. It is in the interests of someone looking at a career in certain fields to not hobble and exclude themselves with a label like aspergers.

It is enough to know privately, which is why a number of adult aspies have an informal diagnosis from a specialist.

I think SirLogiC's psychologist must be an enlightened individual.


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27 Jan 2010, 11:34 pm

Aimless wrote:
Here's the thing that bugs me. I hear a lot of "You can't have AS because you do this or you don't do that". Well isn't it established that there is a wide variety of symptoms between people who are on the spectrum and also a wide variety of functioning levels?
I may very well not have AS but I sure as hell have something and it isn't Schizoid Personality Disorder. If PDD-NOS describes me better that doesn't mean I'm not autistic and it doesn't mean I haven't struggled my whole life. People are not schizoid at age 3. I get the idea that people pick the one criteria they themselves suffer from the most and decide that is the most critical one for assessment. As far as I know, sensory processing difficulties are not part of the diagnostic criteria (although maybe they should be IDK). As I understand it, the social is the aspect they look at first and requires more evidence of symptomology. This business of the only concern the diagnosed have for those who dare to voice a personal opinion about themselves being that it might be mistaken for something else that needs other treatment seems kind of weak to me. What exactly? Anything you can come up with is going to be treated as a comorbid to AS would be. I can't imagine anyone rushing to the emergency room and shouting " OMG help me, I can't relate to people". Anyway, just had to say it, because I've wanted to say it for a long time. I have just broken my promise to myself not to involve myself in these self diagnosis threads. Maybe I'll be more successful once I've gotten this off my chest. Asperger's is not elite autism is it? Can someone with who might be PDD-NOS get a little validation?


PDD-NOS is perfectly valid. I'm diagnosed with that and believe me, I need this website to get through things sometimes. I don't have so much trouble with socializing (not as much as some on this website) but that doesn't mean that I don't have issues. It seems that my brain made up for the lack of problems socializing, with a lot of problems with self injury, repetive movements, obsessive tendencies ect. I seem to have more problems with those things than others on this site. Also, PDD-NOS itself has different levels of severity. Someone on this site posted that when she was a child she was diagnosed severe PDD-NOS and she has some of the most severe problems I've heard from anyone.

But anyways, back to the original topic. I agree that neither party (the accuser or acusee) has the ability to say with 100% certainty whether they have AS. That doesn't mean that self diagnosed person should be exiled. I know this sounds extreme but I really wonder about some of the posters.



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28 Jan 2010, 12:05 am

Fuzzy wrote:
mikkyh wrote:
SirLogiC wrote:
I was told by a psychologist, with knowledge of Asperger's Syndrome, that it was in my best interests to not get an official diagnosis unless it was needed and I agree with that. I don't know what its like in the US but in Australia getting a diagnosis means I have it for life and there is good and bad things associated with that, particularly in relation to jobs. So for me, even though I am still quite young, there is a reason for me to not get a diagnosis.


I think your psychologist needs to go back to university.


I think you will gain some perspective as you age. In the mean time, let me help you.

A diagnosis of aspergers(or many other things) is certain career death in a number of fields. For example, military and child care just to mention two. It is in the interests of someone looking at a career in certain fields to not hobble and exclude themselves with a label like aspergers.

It is enough to know privately, which is why a number of adult aspies have an informal diagnosis from a specialist.

I think SirLogiC's psychologist must be an enlightened individual.


I don't know how it happens over there but at least over here, no private information such as diagnoses of AS or Depression are included on a CV or anything that would be seen by an employer.


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28 Jan 2010, 2:05 am

mikkyh wrote:
I don't know how it happens over there but at least over here, no private information such as diagnoses of AS or Depression are included on a CV or anything that would be seen by an employer.


Go ahead and sign up for the metropolitan police then, and tell them 'bollocks' to their "purely voluntary" request for a medical history. Your CV will be refiled in the round filing cabinet from now until eternity.

After all, if they cant decide if an applicant is nuts or not, they cant risk equipping them with a side arm, can they?

Narcoleptics dont get to drive public transportation, do they? Its in the public interest and their rights as an individual do not trump public safety.

So I dont know how it happens over there, but I can tell that your business and governments are rational about the suitability of certain people for certain jobs.


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28 Jan 2010, 2:31 am

Fuzzy wrote:
mikkyh wrote:
I don't know how it happens over there but at least over here, no private information such as diagnoses of AS or Depression are included on a CV or anything that would be seen by an employer.


Go ahead and sign up for the metropolitan police then, and tell them 'bollocks' to their "purely voluntary" request for a medical history. Your CV will be refiled in the round filing cabinet from now until eternity.

After all, if they cant decide if an applicant is nuts or not, they cant risk equipping them with a side arm, can they?

Narcoleptics dont get to drive public transportation, do they? Its in the public interest and their rights as an individual do not trump public safety.

So I dont know how it happens over there, but I can tell that your business and governments are rational about the suitability of certain people for certain jobs.


I dont want to work for the metropolitan police...most jobs dont require medical history. My psychiatrist told me that a business cannot request that sort of information because of the Discrimination of Disabilities act.

No need to be such a [removed - M].


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28 Jan 2010, 3:57 am

mikkyh wrote:
Fuzzy wrote:
mikkyh wrote:
I don't know how it happens over there but at least over here, no private information such as diagnoses of AS or Depression are included on a CV or anything that would be seen by an employer.


Go ahead and sign up for the metropolitan police then, and tell them 'bollocks' to their "purely voluntary" request for a medical history. Your CV will be refiled in the round filing cabinet from now until eternity.

After all, if they cant decide if an applicant is nuts or not, they cant risk equipping them with a side arm, can they?

Narcoleptics dont get to drive public transportation, do they? Its in the public interest and their rights as an individual do not trump public safety.

So I dont know how it happens over there, but I can tell that your business and governments are rational about the suitability of certain people for certain jobs.


I dont want to work for the metropolitan police...most jobs dont require medical history. My psychiatrist told me that a business cannot request that sort of information because of the Discrimination of Disabilities act.

No need to be such a [removed - M.]


I never said you did. Its a hypothetical situation, illustrating that you are talking nonsense with your claims that employers will never know somebodies medical history. I think your psychiatrist needs to go back to university if he doesnt know better.


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28 Jan 2010, 4:08 am

Fuzzy wrote:
mikkyh wrote:
Fuzzy wrote:
mikkyh wrote:
I don't know how it happens over there but at least over here, no private information such as diagnoses of AS or Depression are included on a CV or anything that would be seen by an employer.


Go ahead and sign up for the metropolitan police then, and tell them 'bollocks' to their "purely voluntary" request for a medical history. Your CV will be refiled in the round filing cabinet from now until eternity.

After all, if they cant decide if an applicant is nuts or not, they cant risk equipping them with a side arm, can they?

Narcoleptics dont get to drive public transportation, do they? Its in the public interest and their rights as an individual do not trump public safety.

So I dont know how it happens over there, but I can tell that your business and governments are rational about the suitability of certain people for certain jobs.


I dont want to work for the metropolitan police...most jobs dont require medical history. My psychiatrist told me that a business cannot request that sort of information because of the Discrimination of Disabilities act.

No need to be such a [removed - M.]


I never said you did. Its a hypothetical situation, illustrating that you are talking nonsense with your claims that employers will never know somebodies medical history. I think your psychiatrist needs to go back to university if he doesnt know better.


I think you'll find it's a she.

And I had the opinion of two other psychiatrists also.


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28 Jan 2010, 2:29 pm

mikkyh wrote:
I dont want to work for the metropolitan police...most jobs dont require medical history. My psychiatrist told me that a business cannot request that sort of information because of the Discrimination of Disabilities act.


(I will now shamelessly disregard this recent tangent in the thread)

The presence of a law designed to protect you from such discrimination does not guarantee that a business or an individual would not discriminate against you based on your medical information. People can be very sneaky, especially in the workplace, and can always say that they didn't hire you for some other reason.

The rationale is kinda similar to that of defensive driving, or looking both ways before crossing the street: sure there are laws that say that you aren't supposed to run red lights, but it'd still be a good idea to look to make sure you don't get hit... because regardless of whether you are law-abiding or not, it still sucks horribly to be the victim of a law-breaker's deed.


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28 Jan 2010, 2:59 pm

DentArthurDent wrote:
^^^ No need to be so insulting just because someone points out the fallacious nature of your arguments. What Fuzzy is saying is correct, when asked to undertake a voluntary medical a refusal is the same as a negative result.

Also just because the law protects at today, it does not follow that this will always be the case. It used to be that once a prison term was served, that was the end of the matter, in fact it was illegal to discriminate on the basis of a prior conviction. Now, every man women and their dogs need to under go police checks.

...

So please do not be so naive as to think that a test you get today will not come back to haunt you in the future. Laws, Governments, Agendas change


The "tangent" has been moved to "Love and Dating" for lack of a better place off the top of my head. Those who wish to continue that line of discussion, please feel free to do so there; this thread has been returned to it's regularly scheduled subject.


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28 Jan 2010, 3:20 pm

Stinkypuppy wrote:
mikkyh wrote:
I dont want to work for the metropolitan police...most jobs dont require medical history. My psychiatrist told me that a business cannot request that sort of information because of the Discrimination of Disabilities act.


(I will now shamelessly disregard this recent tangent in the thread)

The presence of a law designed to protect you from such discrimination does not guarantee that a business or an individual would not discriminate against you based on your medical information. People can be very sneaky, especially in the workplace, and can always say that they didn't hire you for some other reason.

The rationale is kinda similar to that of defensive driving, or looking both ways before crossing the street: sure there are laws that say that you aren't supposed to run red lights, but it'd still be a good idea to look to make sure you don't get hit... because regardless of whether you are law-abiding or not, it still sucks horribly to be the victim of a law-breaker's deed.


Asperger Syndrome is not included in the list of stuff needed for a job. It's more the qualifications that people will take notice of. Here in the UK, first we send a CV containing all qualifications...then if they're interested they arrange an interview. It's in that interview that you can prove yourself to be a smart and perfectly capable individual.

Please don't over-generalize. You live in Connecticut in the US. I live in Northamptonshire in the UK. I've already had a short job (paid) at an office with strictly confidential information...they only asked for a CRB and a CV. No medical records. My brother has had 3 jobs...and he's never been asked about medical conditions. Even though he doesn't have any.


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28 Jan 2010, 3:30 pm

The same principle of overgeneralisation applies in reverse; don't presume that your laws are more common or more correct. For many careers in the States, especially those which involve liability, public safety, or security - or even high demand for reliability - can require testing to see if one is capable to meet the job requirements. They cannot discriminate based on condition, but if they are not able to make accommodation reasonably to allow the individual to do the job without hazard, then they are not required to hire them either.


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For those who seek an alternative, it is coming.

So long, and thanks for all the fish!