Anyone else have seizures when young?

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DVCal
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15 Apr 2012, 12:49 pm

From the age of 1 to around 5 I had dozens of seizures, and was put on phenobarbital to help control them, then around the age 5 they just stopped and I was taken off of the drugs at 6.

I do wonder if these seizures I had when little are related to my ASD.

Is this common for people on the spectrum? Anyone else have similar experience?



Wandering_Stranger
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15 Apr 2012, 12:53 pm

I had seizures as a child; which were only investigated after I ended up with a head injury. :x

No-one can tell me now whether I've grown out of them or whether I'm still having them without the vomiting.



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15 Apr 2012, 12:57 pm

I had them in 6th grade and they were caused by my medicine so my parents took me off them. There were other reasons too but this was one of them.



Aharon
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15 Apr 2012, 1:03 pm

I had a seizure as a toddler so long and massive and hard to stop they put me on phenobarbital also, until the age of 5 or 6. They tried to run a brain wave scan on me but I wouldn't go to sleep, too curious what was going on, do the results were not viable. I've never had seizures since, although i get "zings" sometimes; not sure if those are related or not.


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Briarsprout
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15 Apr 2012, 1:39 pm

I did as a young child.



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15 Apr 2012, 2:00 pm

My father told me that I had them when a small child, but I have absolutely zero memory of ever having any seizures.


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btbnnyr
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15 Apr 2012, 2:11 pm

I don't know about childhood, but I had seizures in my late teens and early twenties, full-body violent ones in my sleep, and they stopped by themselves, and I didn't take any medications for them. I have heard that 30% of autistic people have a lifetime history of significant seizures, which does not mean that 30% of autistic people are diagnosed with epilepsy. That figure is lower, but higher than in the general population, but I am not sure what it is eggsacly.



E27
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15 Apr 2012, 6:19 pm

I had a couple of seizures when I was 4 are 5 not big ones my eyes would just jerk back and forth for a bit. Now I have weird jerk things that I am not sure if they are seizures like myoclonic seizures are something or just ticks. Does anyone have myoclonic seizures? If so what do they feel like?



Eloa
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15 Apr 2012, 6:40 pm

I am having a sort of seizures coming from my brain going through the whole body from time to time, but they are quite short.
Then I hear a "strange noise" in my head, a sort of "low running tone" and it affects my arms or legs for a short moment, like "uncontrolled "sharp" short movements".
Sometimes it happens twice a day, sometimes not at all for a couple weeks.


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hanyo
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15 Apr 2012, 7:01 pm

Aharon wrote:
They tried to run a brain wave scan on me but I wouldn't go to sleep, too curious what was going on, do the results were not viable.


I don't remember it but my mother said they did one of those scans on me when I was little and didn't find anything. She thinks they did it because I would hold my breath.



Barefoot_Boy
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15 Apr 2012, 7:53 pm

I wouldn't call them seizures I don't think, but when I was getting into puberty I would sometimes go through this phase of trembling like vibrations going through me for like a minute or so. They almost felt like when you over exert a muscle and it begins spasms. I'd do this all over for no reason I knew of.


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15 Apr 2012, 8:04 pm

I've had seizures since late 2010, so I was about 24.

Epilepsy is common in autism. People who are hyperactive or have sensory sensitivities are likely to have seizures.


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Shellfish
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15 Apr 2012, 8:26 pm

My cousin's son who is on the spectrum, had seizures when he was young. I am not sure whether he still has them but I know he was on epilepsy medication


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brickmack
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15 Apr 2012, 8:42 pm

Barefoot_Boy wrote:
I wouldn't call them seizures I don't think, but when I was getting into puberty I would sometimes go through this phase of trembling like vibrations going through me for like a minute or so. They almost felt like when you over exert a muscle and it begins spasms. I'd do this all over for no reason I knew of.

I have this a lot. Sometimes I also have my (usually right) arm just moves up for some reason. My dad had seizures when he was a kid but not anymore, and I've never had any seizures I know of.



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15 Apr 2012, 9:08 pm

I never had seizures...none that I know of anyway


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15 Apr 2012, 10:15 pm

Staring seizures, but I was adamant that I did not have them, and I am still not sure I did except that my mom says I would just start staring in the middle of reading a sentence and stop on an easy word like "the" for like half a minute or so. The trouble with staring seizures is you can't remember them happening. They hooked up all these cold, gooey things to my head and recorded my brain waves or something, and then they put me on some kind of drug.

Later, they diagnosed me with ADD, which I was sure I did not have--I was just bored with class and pretending a little six-inch-tall teenage boy was climbing on my desk. I had the sketches to prove it, too. It was attention deficit, but the disorder was the teachers! They kept trying to interrupt my daydreams.