Very new and very upset with my doctor :x *Long post, sorry*

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ChickenNoodle
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11 Oct 2012, 1:18 pm

Okay hello, so this is my (very long) first post here on the wrongplanet forum and I've suspected that I have Asperger's syndrome for a short time now. So, I thought it would be a good idea to go to my doctor about this and be referred to someone who could diagnose me, however things are not this simple.

So as a bit of background, I currently live in Essex in the United Kingdom and in a small town with a few mediocre doctors surgeries, they are extremely slapdash and inefficient, not at all like my old doctors surgery in south Hertfordshire. Alas with my innocent optimism, I was sure that any well trained GP could still help me officially be diagnosed with whatever issues I may have.

I dutifully crafted a list of symptoms for the doctor to read while I awaited in the extremely busy waiting room and i'l type that now:

Quote:
Things to tell the doctor:

I suspect I have asperger's syndrome and several members on my dad's side of the family have it.
I always misunderstand what people say, for example, in college a few days ago, the class was discussing a group assessment we must undertake in groups of about 3 or 4, however, you must decide what topic you write about and it must also be with other people taking similar specialist subjects as yourself. So someone from behind me asks the extremely vague question of "What are you doing"?

Oh god what on earth do they mean? Do they mean what am I doing now, or what am I doing later? or what am I doing for my project?
In the end I just chose the final question and said "oh I don't know at the moment"
After about 5 minutes of a confusing and embarrassing conversation, it eventually emerged he meant, "what subjects do you take"?
The thing is I'm in ALL of his classes so why on earth did he ask me this. :/

I had been diagnosed with OCD and Social anxiety but my OCD symptoms can sometimes seem to come and go with the exception of anything related to the consumption of food. Importantly, since I have started college, my general apprehension and fear of other people has dwindled, only to be replaced with a general confusion and disdain for nearly everyone around me. I find everyone devious, superficial and malicious.

I suffer with the little recognised Misophonia. This causes me to experience extreme levels of anger, hate and visual violence upon hearing certain sounds, including but not limited to: tapping, eating, chewing, sniffing, sneezing, coughing, and anything to do with the movement of lips.

I make lists excessively and unless I am very busy or stressed, plan every day ahead in writing and in lists. When I cross things off the list and complete entire lists, I experience lingering feelings of peacefulness, success and safety. When these lists are not completed within a certain time limit, I become extremely distressed. I begin to feel dirty and polluted and worthless.
If my plans is disrupted by an unexpected visitor, letter or email, I become extremely upset and descend into a short depression, until the next morning.

I have a strict sense of what is socially acceptable, the correct standard of hygiene and how things should be done in general, if these rules are breached, I feel positively repulsed by the offender and tend to hold vendettas against said person.

I seem to hold the idea that people only exist when I can see them. I struggle to believe that anyone I have spoken to this morning or seen on my bus to college actually exists apart from when they were in that bus with me. It literally boggles my mind to think that they are in the same plane of existence as me this very second. I can't imagine it at all.

(My writing began to devolve into a rant against people in general as I was being wound up by the people around me)

I hate these ignorant people around me, perpetual stupidity. Why are they complaining in the waiting room, they should be waiting. Stupid ignorant people can't realise that the time of their doctors appointment is a rough guide of the time and not a promise, it's only an extra 10 minutes, what is so important. Stop huffing and puffing, why are you rushing.



Eventually I was called in, nearly 25 minutes late. I sat down with the doctor, he seemed to very eager to quickly deal with me and rush me out of the door. He quickly scanned my notes I had written and seemed to miss many of them. Extremely unhelpful, this is a rough idea of what he said:

Quote:
Hmm, I don't think your symptoms really fit into asperger's syndrome. It sound like you may have an anxiety personality. I can tell you are someone who likes to research (is this a compliment?) I'l give you some sheets to research and then you may understand what you've got.
"Your're like a square in a box of circles and you need to find other squares"

"Blah blah blah, here are 10 pages of worthless information on panic attacks which you have already told me you do not have and maybe come back in two weeks"


More proof that he is a terrible doctor, I told him that I had a cold and have been really coughing badly for the last 4 days, here's what he said:

Quote:
"Oh if its a cold then you should just have some honey and lemon because it is far better than anything doctors can prescribe."


What on earth! I left feeling disgusted and conned and now I don't know what to do next. What do you guys think about the situation, does it sound like I could have asperger's syndrome at all?

I do have limited interests, I tend to change between about 4 every couple of weeks and it can be extremely frustrating when even my identical twin brother (who also has the same symptoms but different special interests) doesn't share these interests and we end up boring each other. We do have some of the same ones but its rare that we are interested in the same one, both at the same time....

You are the experts, I look forward to hearing from you all, thanks.

-------Chicken Noodle.



Janissy
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11 Oct 2012, 1:55 pm

I don't think a GP can do an Aspergers assessment. But he's right about the cough.



ChickenNoodle
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11 Oct 2012, 2:03 pm

Oh naturally I did not expect him to tell me I had aspergers syndrome but I at least thought he would refer me to the correct people.

And i'l take your word about the cough thing, you'd think modern medicine would be able to create something better than honey and lemon though....


Thanks for the reply.



theWanderer
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11 Oct 2012, 2:19 pm

Janissy wrote:
I don't think a GP can do an Aspergers assessment. But he's right about the cough.


+1 I'd say he's very far out of his depth when it comes to psychological issues, but he's actually right about the cold. It's a virus, so unless it were something serious enough to prescribe an anti-viral (and the potential side effects alone aren't worth such overkill for a cold) there is nothing they can to do really treat it. All they can do is give you something for the symptoms, and lemon and honey are as good or better than anything else you might get.

It does sound as though you could have Aspergers, but none of us can really know. I'm self diagnosed, and what I did was, first, a lot of research, then I really considered how well I did or did not fit the diagnostic criteria. Then, I spent a lot of time on here, which allowed me to discover just how many ways I'm actually like other people on here. My oddest quirks, the ones I thought made me a unique mutation, have all cropped up on here. So I'm pretty sure. Plus - after I reached my self-diagnosis, a doctor finally diagnosed the eye condition I was born with fifty some years ago, and I have a medical reason to be light-sensitive. The fact I was light sensitive didn't come as any surprise to me, but the fact I had an excuse for that particular thing, when it falls very far down the list of sensory issues that annoy me, tended to confirm for me that my sensory issues were "real". And a bit later than that, I found old notes from my teachers that my father had saved... and although they didn't come right out and say "hey, this kid has an autism spectrum disorder" (which they couldn't have, since this was the 1960s, when everyone diagnosed as autistic sat silently in corners, rocking) they sure would be more than enough to get any kid evaluated today. Over and over, they said I disrupted the class (well, I was also bored to death), and that I had no idea at all how to get along with other kids. So I got some outside confirmation, even if it isn't an official diagnosis. But the point is, you have to figure out yourself if you fit; no one else can see inside your head.

And you will find people on here who don't seem much like you at first - although, if you take the time, you might find they make more sense to you than most people do - because we are all individuals. We are not just a list of symptoms. So it takes time to look around and think about it, and even then, it might take you a while.

(Example: one thing that seemed to disagree with my self-diagnosis is the fact that I would usually leap into conflict. I can yell and scream with the best of them. I grew up in a family that was like that, and, to survive, I had to learn to hold my own. It was only after I thought about it for months that I figured out - hey, this is why I'm always so tense and upset and drained after a fight - I'll usually take days to recover - even one that doesn't get me anywhere near a meltdown. Because even though I'd had to learn to ignore that tension and fight back, I'm not really naturally comfortable with fights like that. It was something I learned, in spite of my own preferences. That's why these things can be confusing.)


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SickInDaHead
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11 Oct 2012, 2:41 pm

Yeah this is a big problem having to get "past" the GP to someone who has more skills to address the issue.

The only thing wrong the GP is doing is attempting to even touch the entire mental state issue. He has enough skill to say the OP does not have AS, but not enough skill to say it's anything else, and if he was more on the ball in this aspect, he would do a referral.

I don't think GPs lose anything from referrals, so the why this GP is handling things this way is a mystery.

Is it possible to ask for a referral outright?



ChickenNoodle
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11 Oct 2012, 2:49 pm

Quote:
Yeah this is a big problem having to get "past" the GP to someone who has more skills to address the issue.

The only thing wrong the GP is doing is attempting to even touch the entire mental state issue. He has enough skill to say the OP does not have AS, but not enough skill to say it's anything else, and if he was more on the ball in this aspect, he would do a referral.

I don't think GPs lose anything from referrals, so the why this GP is handling things this way is a mystery.

Is it possible to ask for a referral outright?



I should try really, it's hard not to feel inferior to these doctor types, especially when they say such things so "matter of factly"
I would feel very embarrassed about it, I've arranged an appointment for a fortnights time and maybe i'l bring someone with me to help me explain what I want to say and that I would like to be referred. Okay thanks guys, you've all helped me out!



thewhitrbbit
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11 Oct 2012, 3:25 pm

Quote:
And i'l take your word about the cough thing, you'd think modern medicine would be able to create something better than honey and lemon though....


The cold is caused by a virus. We have precious few medicines that can attack viruses. In the old days, people got antibiotics when they had a cold, even though the antibiotic has no effect on the virus. This abuse in turn has lead us to the point that there is now a strain of staph infection that NO ANTIBIOTIC KNOWN TO MAN can kill.

Your GP did the absolute right thing in prescribing treatment for your cold. Tea is full of good chemicals that help the body. He should have suggested chicken soup and warm salt water for the cough.

Your white blood cells will destroy the virus.

As for the AS, you need to see a mental health specialist, not a general doctor.



outofplace
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11 Oct 2012, 3:34 pm

The problem with GP's is that they are human beings, not encyclopedias. They may well have studied mental health issues in medical school, but it was many years ago and not something they deal with in their day to day practice. They may be able to do something for common issues like depression and anxiety, and they may be able to spot obvious things like schizophrenia, but something as rare and nuanced as a mild autistic disorder is easy for them to miss. Also, they might get penalized by the insurance companies if they refer too many people for specialist services, so it might be in their best interest to limit the number of referrals they give out.


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11 Oct 2012, 4:14 pm

You need to remember that a standard GP appt in the UK is 10 minutes. This is not time enough to discuss the possibility of an ASD in detail, and certainly not enough time for a GP to read an essay about symptoms, absorb it, think it through and discuss properly. It is sufficient time to bring up the possibility of an ASD and ask for a referral for assessment. This is what you wanted from the appt but you did not ask for it. You need to ask for it, not hope that the GP will figure it out - as others have sais, they only have limited experience of this stuff. If you can't do it verbally, write it down and hand over the request. That's what I did. Good luck!


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