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Who_Am_I
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03 Dec 2012, 5:40 pm

kirayng wrote:
Who_Am_I wrote:
kirayng wrote:
To me, I don't see how people can be convinced they have a developmental disorder if they are functioning fine in society.... I would challenge anyone who is self-diagnosed to actually have a problem in one of life's major areas that isn't somehow due to something else like a personality disorder or substance abuse, etc.


Do you honestly think that people start thinking "what's wrong with me?" when their life is and always has been going just swimmingly?


What? Of course not. There are plenty of happy autistic people. So not sure what you're on about there.


See the bolded parts.
Why assume that they aren't?


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03 Dec 2012, 5:44 pm

babybuggy32 wrote:
exactly! what annoys me the most though is they will say they have aspergers in such a "matter of fact" manner as if it is definitely true. how arrogant that seems.

then they will say "i have aspergers, but i couldn't be diagnosed because it was not severe enough" - doesn't that mean that you don't have it

i stand by my theory that most (not all) of these people just wan't a label because for whatever reason they feel as if they don't fitin.

i have a serious question for you self diagnosed.. explain how you are affected and disabled in detail. learning issues, sensory, social understanding, communication, obsessions and such.
how did you find out about aspergers? do you have a job? relationship? friends?


I haven't seen very many people claim they have aspergers but can't be diagnosed because its not severe enough. Though I know with the money issue the symptoms getting in the way of working can interfere with having funds to get a diagnoses. Also, its not like there is a huge abundance of autism specialists in every location so even finding someone to diagnose it can be difficult.

I don't have a job or relationship and I have one friend......I found out about it when my sister mentioned it to me thinking it was a possibility and it made a lot of sense considering my lack of social skills, trouble with sensory issues and not really being able to make friends or initiate interaction with people I don't know. But thats about all the detail I am comfortable going into in this thread as I am in no mood to try proving myself to someone who's already made up their mind that the self diagnosed are just whiny attention seekers that have no real problems.


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kirayng
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03 Dec 2012, 5:45 pm

Who_Am_I wrote:
kirayng wrote:
Who_Am_I wrote:
kirayng wrote:
To me, I don't see how people can be convinced they have a developmental disorder if they are functioning fine in society.... I would challenge anyone who is self-diagnosed to actually have a problem in one of life's major areas that isn't somehow due to something else like a personality disorder or substance abuse, etc.


Do you honestly think that people start thinking "what's wrong with me?" when their life is and always has been going just swimmingly?


What? Of course not. There are plenty of happy autistic people. So not sure what you're on about there.


See the bolded parts.
Why assume that they aren't?


Because I'm not assuming they aren't. Even re-reading what I wrote doesn't elucidate any iota of assumption, sorry.



circular
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03 Dec 2012, 5:45 pm

To challenge someone to have a problem seems a negative perspective to me. To challenge someone to describe a problem is more possible to realize, and can include the wish not to have a problem.

What's important is understanding and finding solutions.



Last edited by circular on 03 Dec 2012, 5:46 pm, edited 1 time in total.

neecerie
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03 Dec 2012, 5:46 pm

circular wrote:
There may be something like "I want to be part of that group" that can motivate toward a site like WrongPlanet, but we all share that, it is a positive force. Of course, it is good to be aware of it, so as to be sincere about ourselves. Finally, if you discover you do not have autism, but something similar, slightly different, you will have made a journey along other people. It can be positive, and it is really not a reason for hatred or exclusion, but rather for empathy and support.


Exactly.

And a Completely NT person, is not really going to be all that motivated to come here and be part of the group unless they have a relative or partner in the spectrum.

Seriously, your random 'decently adjusted, no real issues' sort...even of the geeky variety is not going to find much of true interest in threads about sensory issues etc.


And I would also wager that a high number of the self-diagnosed folks, don't actually go around shouting from the rooftops...I started participating here because its a place to learn more, and find things in common and so forth.

Telling EVERYONE I meet that I (might) have AS, really isn't on my agenda....participating in thoughtful discussions and learning about myself and others, is.

I suspect most of us self-diagnosed folks are similarly motivated.

But we can all get off of your green lawn if thats what you want. ;)



Sweetleaf
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03 Dec 2012, 5:48 pm

kirayng wrote:
Who_Am_I wrote:
kirayng wrote:
Who_Am_I wrote:
kirayng wrote:
To me, I don't see how people can be convinced they have a developmental disorder if they are functioning fine in society.... I would challenge anyone who is self-diagnosed to actually have a problem in one of life's major areas that isn't somehow due to something else like a personality disorder or substance abuse, etc.


Do you honestly think that people start thinking "what's wrong with me?" when their life is and always has been going just swimmingly?


What? Of course not. There are plenty of happy autistic people. So not sure what you're on about there.


See the bolded parts.
Why assume that they aren't?


Because I'm not assuming they aren't. Even re-reading what I wrote doesn't elucidate any iota of assumption, sorry.


It does appear you are trying to say most self diagnosed don't have problems in life's major areas...since you are challenging 'anyone' who is self diagnosed to have those issues. Maybe it wasn't your intention but it does sort of come off that way.


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babybuggy32
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03 Dec 2012, 5:50 pm

an autism diagnosisis is certainly not hard to get nowadays :o many personality disorder share traits with aspergers too. also learning disabilities. what makes you guys so sure it is autism?
no one has yet explained why they came to this conclusion


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kirayng
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03 Dec 2012, 5:54 pm

Sweetleaf wrote:
kirayng wrote:
Who_Am_I wrote:
kirayng wrote:
Who_Am_I wrote:
kirayng wrote:
To me, I don't see how people can be convinced they have a developmental disorder if they are functioning fine in society.... I would challenge anyone who is self-diagnosed to actually have a problem in one of life's major areas that isn't somehow due to something else like a personality disorder or substance abuse, etc.


Do you honestly think that people start thinking "what's wrong with me?" when their life is and always has been going just swimmingly?


What? Of course not. There are plenty of happy autistic people. So not sure what you're on about there.


See the bolded parts.
Why assume that they aren't?


Because I'm not assuming they aren't. Even re-reading what I wrote doesn't elucidate any iota of assumption, sorry.


It does appear you are trying to say most self diagnosed don't have problems in life's major areas...since you are challenging 'anyone' who is self diagnosed to have those issues. Maybe it wasn't your intention but it does sort of come off that way.


My poor choice of words, but I was using passive voice, I "would" --not I challenge. but oh well. Thanks for clarifying where people would not get what I was saying. :)



Last edited by kirayng on 03 Dec 2012, 5:54 pm, edited 1 time in total.

circular
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03 Dec 2012, 5:54 pm

@babybuggy:
There are surely plenty of questions that can be asked and thought about, but it is painful to do it in an inquisitive way. It is not very surprising that you do not start a dialog with someone else if you start by saying they are not allowed on some territory.



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03 Dec 2012, 5:55 pm

babybuggy32 wrote:
an autism diagnosisis is certainly not hard to get nowadays :o many personality disorder share traits with aspergers too. also learning disabilities. what makes you guys so sure it is autism?
no one has yet explained why they came to this conclusion


If you have money. My diagnosis cost $1600. I couldn't have done that on my own.



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03 Dec 2012, 5:58 pm

babybuggy32 wrote:
i have a serious question for you self diagnosed.. explain how you are affected and disabled in detail. learning issues, sensory, social understanding, communication, obsessions and such.
how did you find out about aspergers? do you have a job? relationship? friends?


Why should self-diagnosed people have to justify themselves to you? Do you run this website? Are you being harmed by the presence of the self-diagnosed in any way? Do you feel you have the right to deny them a place to communicate with people on the spectrum, learn more, maybe find a friend or two?

The fact that there is an option for 'Have Asperger's - Self Diagnosed' on user profiles means that Alex intended non professionally diagnosed people to find a home here too, I don't see why you feel you have the right to overrule him.

In many countries it is hard to get a professional diagnosis, many people in my country can't get it because GPs refuse to do this for adults, and services are still in their infancy. When I was at school noone had heard of Asperger's. I have many difficulties, and value WP, and you are just causing hurt with this sort of post.



Sweetleaf
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03 Dec 2012, 5:58 pm

babybuggy32 wrote:
an autism diagnosisis is certainly not hard to get nowadays :o many personality disorder share traits with aspergers too. also learning disabilities. what makes you guys so sure it is autism?
no one has yet explained why they came to this conclusion


Really? Maybe its different where you live......because there sure as hell aren't a lot of resources for getting an autism diagnoses as an adult around here especially if you don't have income. In my case I am sure its not a learning disability since the only academic subject I struggle with is math and sucking at math does not cause sensory issues or trouble socializing. As for a personality disorder being to blame, people aren't generally born with personality disorders so that would not account for the issues I've had since childhood.

Though I think its possible for people with autism to develop personality disorders but its more complex to diagnose since autism already causes abnormal behavior. So that is how I came about the conclusion its most likely autism that's caused the sensory issues, trouble socializing and differences of how i process information or whatever.


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neecerie
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03 Dec 2012, 5:58 pm

babybuggy32 wrote:
an autism diagnosisis is certainly not hard to get nowadays :o many personality disorder share traits with aspergers too. also learning disabilities. what makes you guys so sure it is autism?
no one has yet explained why they came to this conclusion


Actually....Most of us have....in other threads.

And if you want to get right down to the truth of the matter, there is an issue of trust regardless. Someone can SAY they have a diagnosis....but unless I see the paperwork, I don't have any independent confirmation that they are not lying. Its the internet...people do such things.

So if someone says they ARE NOT diagnosed, they are being upfront about it. How many folks are just not mentioning they dont have a real diagnosis...no way to tell.


and even if its NOT autism....

'Wrong Planet is the web community designed for individuals (and parents / professionals of those) with Autism, Asperger's Syndrome, ADHD, PDDs, and other neurological differences.'


So other then us claiming to have an official diagnosis when we don't (which I haven't seen happening much), partipating in threads where we have a symptom or share a particular feeling, is allowed.



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03 Dec 2012, 6:01 pm

babybuggy32 wrote:
an autism diagnosisis is certainly not hard to get nowadays :o many personality disorder share traits with aspergers too. also learning disabilities. what makes you guys so sure it is autism?
no one has yet explained why they came to this conclusion
Uh, yes it is. There are places where the professionals who do this are far and between - and expensive to get to or see. Even health insurance doesn't cover all costs. In my case both parents are deceased, so the childhood information isn't there, except what I recall. And at this point in my life - already retired - I really don't see the point.

I find your OP insulting, frankly, and a bit arrogant. You assume a lot about people who are self-diagnosed, and I think you exhibit some ignorance about the spectrum itself. Asperger's, for instance, has only been diagnosed in anyone in recent decades. It's usually diagnosed in children, less often in adults. In my case, I didn't know what it was until I was past 50. But I always knew there was something odd about me - well lots of oddities in fact. Someone who has a diagnosed child first steered me toward the idea, and I completely dismissed it. But when I was going through a particularly stressful time and had a major meltdown, and started to wonder why that happens to me under stress and not to everyone else around me, I started researching. I actually did see a therapist around that time, but it turned out she knew less about AS than I did. (Although I didn't get a discount for her ignorance.)

But really if all the diagnosed people don't want us here, maybe they should just let us know. I don't stay where I'm not welcome.



kirayng
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03 Dec 2012, 6:01 pm

This seems to be becoming about who belongs on WrongPlanet! As neecerie pointed out, this site is for 'Wrong Planet is the web community designed for individuals (and parents / professionals of those) with Autism, Asperger's Syndrome, ADHD, PDDs, and other neurological differences.' ; self-diagnosed or not you are still welcome here.



Trencher93
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03 Dec 2012, 6:19 pm

Opinions are like noses!

What benefits are there to a formal diagnosis? Job placement services? Support with work?