What would you like to see in a Asperger Syndrome Book?

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TheOddOne93
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12 Feb 2013, 11:27 am

I have been contemplating writing an Asperger Syndrome informational book from the eyes of an Aspie (that being myself), however I feel it best to ask you all to submit lists of questions that you would ideally like answered in a single book because I don't know about you but I've never been able to find all of my main questions answered in less than 3 separate books.

Please note if you are a Parent, and / or your status of diagnosis please.

Much appreciated! :D



rapidroy
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12 Feb 2013, 1:06 pm

As a child/young adult the biggest things are or have been
-how to read whether someone is hostile or friendly toward you
-How to reconize quickly being bullyed with our impaired aspie brain, more important how to stop it.
-How to use our special intrests and natural independance to make friends and infiltrate the "group" as apposed to isolating us.
-How to hide or mitigate our social, phyical weakness from becomeing a liabillity in the above issues.

Does this help?
I'm diagnosed with Aspergers Syndrome.



Cacao
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12 Feb 2013, 2:08 pm

If it is for Neuro Typical people try to describ the way you see the world and experience it. As it is. So they can see that AS is not just being socially akward, but also affects perception.



LookingLost
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12 Feb 2013, 2:16 pm

Um...input on the 'usual' topics, from the view-point of someone with AS (you), would be good.
I'd personally be interested in:

*Bullying
*Understanding social situations
*Interventions for adults on the spectrum
*Jobs and working
*Mental health issues
*Self-harm (including non-stereotypical 'autistic' self-harm, stereotypical being hitting/biting, non-stereotypical being cutting/burning etc.)
*Meltdowns
*Sensory overload
*'Stimming'/stereotypies
*Sexual orientation/gender identity
*Naivety/being taken advantage of

Hope that helps, best of luck with your book. :)

Note: I am diagnosed with AS. (Forgot to mention that and had to edit, oops.) >.<



whirlingmind
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12 Feb 2013, 2:51 pm

Are you writing it for parents in relation to their children?

I think it's really important to cover:

the different sub-types of Asperger's;
the female presentation of Asperger's;
rights in the workplace/higher education/school;
possible signs in children that clinicians fail to recognise;
what to do if the doctor's refuse to refer you or don't believe you;
how to complain about misdiagnosis/failed diagnosis;
how to ensure the clinician you see is trained in diagnosing ASCs;
why many children with ASCs behave differently at home than at school;

If I think of others I will add them. Please let me know if you want me to enlarge upon any from the list.


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redrobin62
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12 Feb 2013, 2:56 pm

In a few months the Asperger's Syndrome moniker will disappear from DSM-V so perhaps you can talk about what it's like to have one's diagnosis "disappear" only to resurface somewhere else. In this case, absorbed into the general Autism banner.

Also, I've been thinking about this lately: can another diagnosis, or combination of diagnoses, mimic enough symptoms of Asperger's to be classified as Asperger's? Can other factors such as being a foreigner in a new zone or coming from an area of isolation mimic enough symptoms to be classified as Asperger's?



Jaden
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12 Feb 2013, 4:44 pm

I think any book right now that is about AS, needs to have as many facts as possible, as well as studies to show said facts, as well as disproving rumors that are untrue about the condition (since the whole sandy hook/Lanza incident has thrown everything into chaos), and giving facts as to why they're untrue.
I think that should be the primary goal right now because the things that have happened to those on the spectrum following the events of sandy hook should never have happened to begin with, and it's unacceptable. So we have to show people facts regarding the condition and why they're wrong about it.

Anyway, that's just what I think, ultimately we can only open so many eyes to the truth, there will always be people who remain in ignorance out of fear and hatred.


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TheOddOne93
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12 Feb 2013, 6:29 pm

Thank you so much for such speedy repsonses!

I appologise for responding so late but granted I do also suffer from severe Insomnia and nearing constant sleep deprivation (since monday i have had only 2-4 hours sleep and its day 3 of the week.)

I appologise I cannot seem to see how to use indenting in these replies but here is (for future posters) a list of what has been covered.

Compiled List:


How To Avoid Being Paranoid.
How to use our special interests and natural Independence to make friends and “infiltrate” the "group" as apposed to isolating ourselves.
How to hide or mitigate our social, physical weakness from becoming a liability in socialising, recognising friends vs foes, general paranoia, and our independence.
If it is for Neuro Typical people try to describe the way you see the world and experience it. As it is. So they can see that Asperger Syndrome is not just being socially awkward, but also affects perception.
View aspects of:
Bullying
How to recognise quickly being bullied with our impaired Aspie brain, more important how to stop it.
Understanding social situations
how to read whether someone is hostile or friendly toward you
Why many children with ASC behave differently at home to school
Interventions for adults on the spectrum
Jobs and working
Rights in the workplace/higher education/school
Mental health issues
The different sub-types of Asperger Syndrome
What common disorders/illnesses/syndromes/conditions accompany Asperger Syndrome?
If there are, what possible signs in children that clinicians fail to recognise?
What to do if your doctor refuses to refer you or doesn’t believe you have Asperger Syndrome
How to complain/correct a misdiagnosis/fail diagnosis
How to ensure the clinician you see is trained in diagnosing illnesses/syndromes/disorders on the Autistic Spectrum
Can another diagnosis, or combination of diagnoses, mimic enough symptoms of Asperger Syndrome to be eith classified or misclassified as Asperger Syndrome?
Can other factors such as being foreign to a new zone/location/cultural country or simply migrating from a area of isolation mimic enough symptoms to be classified as Asperger Syndrome?
Self-harm (including non-stereotypical 'autistic' self-harm, stereotypical being hitting/biting, non-stereotypical being cutting/burning etc.)
Meltdowns
Sensory overload
'Stimming'/stereotypies
Sexual orientation/gender identity
Naivety/being taken advantage of
Are you writing it for parents in relation to their children?
the female presentation of Asperger's;
Set the record straight with the whole “Sandy Hook/Lanza” incident because all of the information they are giving is wrong and even if the selected individual has impulses/urges they do not commit such offences.
Set the chaos with rumours and expectations in order
In a few months the Asperger's Syndrome moniker will disappear from DSM-V so perhaps you can talk about:
what it's like to have one's diagnosis "disappear" only to resurface somewhere else.
In this case, absorbed into the general Autism banner.



nessa238
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12 Feb 2013, 6:41 pm

Some sarcastic humour about NTs



TheOddOne93
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12 Feb 2013, 7:05 pm

nessa238 wrote:
Some sarcastic humour about NTs


good idea!

:D



TheOddOne93
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12 Feb 2013, 7:06 pm

LookingLost wrote:
Hope that helps, best of luck with your book. :)


Thank you very much!



TheOddOne93
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12 Feb 2013, 7:12 pm

whirlingmind wrote:
Are you writing it for parents in relation to their children?


Well my original intention was to write directed in a way that people who didn't have any sort of forced reason to know the information. As in someone who doesn't have any AS, NT, ADD, ADHD, BP, or PDD to be able to see what it is like, while informing the correct information instead of media rumours. While doing this I wanted to lend out as much information and comfort to people mainly with AS because I never found many writings through the eyes of another in comparison to the ones written by parents and "docs" who really can't explain the experience itself but rather the characteristics.

here is my original blurb idea, more written to spur ideas when I get stretched for research needed or inspiration:

Even though this is a survival story, it is not one which involves mythical dragons and princesses. Nor does it incorporate a moral message towards world recognised events such as war, famine or religion. It is a series of stories about the survival of the first eighteen years of my life. There are no dramatic cancer battles I have fought and neither has there been am revolutionary change enforced by myself. This is simply a journey on the struggles of everyday life through my eyes.