why are doctors so reluctant to diagnose people with ASD

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jenisautistic
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14 Jan 2014, 9:24 pm

Oh please I had a developmental pediatrician tell my grandmother that he didn't like labeling children than what I might ask is what is his job then?


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jenisautistic
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14 Jan 2014, 9:32 pm

Willard wrote:
Only Mental Health Professionals who have worked extensively with ADULTS with autism have any clue what AS and HFA really look like. Most of the rest glanced at a symptom list during a Psyche course in college and draw their own conclusions from whatever they remember about that, with no firsthand knowledge of the facts and realities.

From the things I've seen people report here on WP, it seems like a LOT of therapists and psychologists have gained their "expertise" on High Functioning Autism from watching Rainman. :roll:


Having Asperger Syndrome and not knowing you were different would require that you also be severely intellectually impaired, and if that were the case, you wouldn't be HIGH FUNCTIONING, therefore, you couldn't have Asperger Syndrome. DuUuUUuUuuhH. :doh:


Actually there are many people who have a lower functioning form of autism and do have an intellectual impairment who are aware of their behaviors ( Kingdom of rats is a good example of this). As well as the possibility that there could be high functioning people who are not aware of their behavior although this one is the subjective and I'm not sure whether or not it's true.

I do know what you are talking about though as well as there are people who diagnosed people who had or have a speech delay as having aspergers and other delays for that matter when it clearly states that there must not be any delays in order to be diagnosed with a as.


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Dillogic
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14 Jan 2014, 11:47 pm

I haven't seen it.



EzraS
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14 Jan 2014, 11:53 pm

bumble wrote:
EzraS wrote:
ZombieBrideXD wrote:
i already have a diagnoses from a Psychologist that specializes with High Functioning Autism and Aspergers


Thats all you need to go by right there. The others were not specialists. it pays to see a specialist.
but you know while there was never any doubt that i am autistic, they have gone back and forth regarding its severity and also all my other tag along co-dx mostly ending in 'xia

bumble wrote:
There are no medications for Aspergers, but there are for ADHD and OCD.

Money!


oh god


OH god? :lol:

Heard that theory before huh?


Kinda - but the penny dropped really hard on that.
its like so much for that sacred oath thingy



GregCav
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15 Jan 2014, 12:23 am

jenisautistic wrote:
Actually there are many people who have a lower functioning form of autism and do have an intellectual impairment who are aware of their behaviors ( Kingdom of rats is a good example of this). As well as the possibility that there could be high functioning people who are not aware of their behavior although this one is the subjective and I'm not sure whether or not it's true.


There are a lot, pronounced "many", Aspergers and Autists that are yet undiagnosed. Principly, becuase these are only recently becomming known widespread. There are a lot of adults on this forum who have been diagnosed late in life. Myself included.

It's a safe bet many of us didn't know we had a nuralogical condition. The only Autism I knew of, was the severe kind as seen on TV. I was diagnosed last year with Aspergers (high functioning). A month before the diagnosis, I didn't have a clue that I was in any way different. Other's may have guessed or suspected, but nobody ever mentioned it to me. I was blind to my differences.



Adamantium
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15 Jan 2014, 8:27 am

ASPartOfMe wrote:
jcq126 wrote:
... a large majority of "Aspies" are just loners who people don't like, rather than people with a actual neurological disorder,...


...most people claiming to be Aspies diagnosed or not did not really have it is a large factor.


I have seen no evidence of this. I don't believe that you have either.

If this is not the case, please provide some sources.

Otherwise, this belief is unfounded in evidence, unsupported by fact, and one can only suspect that those who proclaim it are driven by irrational emotional needs to do with identity and exclusivity.

I suspect that most people making this claim are driven by insecurity and a sense of threat from others now included in their group.

I might further speculate about what exactly feels threatening to these people, but I doubt that would be productive.



Tawaki
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15 Jan 2014, 8:35 am

aspiemike wrote:
bumble wrote:
There are no medications for Aspergers, but there are for ADHD and OCD.

Money!


How very true. The only money seemingly spent on Aspergers from what I hear is a "Cure".


If you are a child, they will do everything not to diagnosis you with Autism. Autism is a developmental disability, and you are entitled to services (in the US) through the Federal government.

OCD and ADHD get dumped into Otherwise Health Impaired and into whatever Behavioral/Mental health impairment category the school district has. Services are not guaranteed.

Autism is considered the money pit of diagnoses. That is what is the attitude in my area.



Dan0192837465
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15 Jan 2014, 6:45 pm

Basically it boils down to one thing; money, money and yes more money. I can't believe the amount of times I've been told by doctors, psychiatrists, psychotherapists, psychologists, psychoanalysts, counsellers and all matter of mental health experts and professionals that we'd like to help you but we simply don't have the funding or resourses to aide you in your time of need. I've even been told (I'm sure this isn't only exclusive to just me) "Because of budget cuts you've been placed in our care but your needs are based outside our remit of expertise. Autism isn't our cornerstone of knowledge, sorry" I've sat in many-a-meeting telling the doctors more about autism than they've ever known about the subject. It's quite embarressing being the intelligent person in a room with a professional that's suppose to be there for my benefit.



jcq126
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15 Jan 2014, 6:57 pm

Adamantium wrote:
ASPartOfMe wrote:
jcq126 wrote:
... a large majority of "Aspies" are just loners who people don't like, rather than people with a actual neurological disorder,...


...most people claiming to be Aspies diagnosed or not did not really have it is a large factor.


I have seen no evidence of this. I don't believe that you have either.

If this is not the case, please provide some sources.

Otherwise, this belief is unfounded in evidence, unsupported by fact, and one can only suspect that those who proclaim it are driven by irrational emotional needs to do with identity and exclusivity.

I would also claim that those "who are driven by irrational emotional needs to do with identity" would belong in the Fake Aspie subgroup, not the skeptical group.

I suspect that most people making this claim are driven by insecurity and a sense of threat from others now included in their group.

There is nothing threatening about more people joining "our" group. If you want to label yourself whatever a quiz on Google told you that you are, have a field day with it. However, my gripe being that those posers are the ones who bring people who actually suffer from real ASD down because when we try to get the support and accommodation we need, we are denied and ridiculed as fakers due to the influx or people who want to have a developmental/neurological disorder (for whatever absolutely absurd reason of a need for social belonging).

I might further speculate about what exactly feels threatening to these people, but I doubt that would be productive.


No one claimed that it was documented supported scientific research, it's from personal experience with a bunch of fake "Aspies". I'm glad that the DSM V have made revisions to change the name to Autism Spectrum Disorder, maybe the posers will drop the label now since saying you have Autism doesn't sound as cool and "edgy" as Aspergers/Aspie.

Also, there is nothing threatening about more people joining "our" group. If you want to label yourself whatever a quiz on Google told you that you are, have a field day with it. However, my gripe being that those posers are the ones who bring people who actually suffer from real ASD down because when we try to get the support and accommodation we need, we are denied and ridiculed as fakers due to the influx or people who want to have a developmental/neurological disorder (for whatever absolutely absurd reason of a need for social belonging).



ASPartOfMe
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15 Jan 2014, 8:54 pm

Adamantium wrote:
ASPartOfMe wrote:
jcq126 wrote:
... a large majority of "Aspies" are just loners who people don't like, rather than people with a actual neurological disorder,...


...most people claiming to be Aspies diagnosed or not did not really have it is a large factor.


I have seen no evidence of this. I don't believe that you have either.

If this is not the case, please provide some sources.

Otherwise, this belief is unfounded in evidence, unsupported by fact, and one can only suspect that those who proclaim it are driven by irrational emotional needs to do with identity and exclusivity.

I suspect that most people making this claim are driven by insecurity and a sense of threat from others now included in their group.

I might further speculate about what exactly feels threatening to these people, but I doubt that would be productive.


I stated in the sentence in the sentence before it is the "widespread consensus" that most people that are diagnosed with Aspergers do not have it . Probably better wording would have been "Widespread perception" . This does not mean I agree with this idea. Quite the contrary in an recent thread I mentioned that I thought that the idea that there were these hordes of socially awkward nerdy (mostly teenage) NT's taking on the Aspie identity to be cool or to excuse bad behavior was an urban legend http://www.merriam-webster.com/dictiona ... n%20legend . Their were a number of posters that told me I was wrong, that "Aspie wannabees" was a big thing these days. I see this belief stated nearly everyday here and elsewhere. http://www.smh.com.au/lifestyle/syndrom ... 2goq3.html http://www.nytimes.com/2012/02/01/opini ... inion&_r=0 http://nymag.com/news/features/autism-s ... ments.html More importantly one of the reasons Aspergers was eliminated from the DSM was that it was believed Aspergers was overdiagnosed. http://www.psychologytoday.com/blog/asp ... free-stuff
Yes this belief is based on no evidence. http://www.psychologytoday.com/blog/asp ... rdiagnosed


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16 Jan 2014, 1:37 am

That doctor sounds like a quack. Plenty of autistic people want friends, they just don't know how to get them. We are not all social recluses who want to live out our lives as isolated hermits. As for "everyone having sensory sensitivities" that is utter nonsense. If it were true, aspies wouldn't suffer in public spaces so often, they wouldn't have meltdowns as a result of noise levels, lighting and clothing textures that were designed to meet the needs of NTs, almost all of whom, incidentally, do NOT have sensory sensitivities! People who overgeneralize and say, "Everyone has that", or "Everybody has trouble doing this," frustrate me to no end; those sorts of people obviously have very little idea of what it actually means to be on the autism spectrum. You should have told her about some of your sensory sensitivities and asked, "Is that how you feel when you run up against that sort of stimulus?" and when she said no, she would have all the proof she needed that she was in fact wrong. If everyone had sensory sensitivities, I wouldn't be the only one covering my ears when my mother ran the vacuum. I wouldn't be the only one shutting down in a restaurant with a football game on TV that everyone is screaming at, I wouldn't be the only one unable to focus on my class lectures because the fluorescent lighting is making me nauseous. Frankly ZombieBride, I would stick with your original diagnostician, this new doctor sounds absurd.


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16 Jan 2014, 4:22 am

GregCav wrote:
jenisautistic wrote:
Actually there are many people who have a lower functioning form of autism and do have an intellectual impairment who are aware of their behaviors ( Kingdom of rats is a good example of this). As well as the possibility that there could be high functioning people who are not aware of their behavior although this one is the subjective and I'm not sure whether or not it's true.


There are a lot, pronounced "many", Aspergers and Autists that are yet undiagnosed. Principly, becuase these are only recently becomming known widespread. There are a lot of adults on this forum who have been diagnosed late in life. Myself included.

It's a safe bet many of us didn't know we had a nuralogical condition. The only Autism I knew of, was the severe kind as seen on TV. I was diagnosed last year with Aspergers (high functioning). A month before the diagnosis, I didn't have a clue that I was in any way different. Other's may have guessed or suspected, but nobody ever mentioned it to me. I was blind to my differences.


"Blind to your differences" ? You lived your whole life without seeing any difference between you and NT people 8O ?? You didn't experience sensory torture as a kid?

Something must of been wrong for you to get diagnosed ? You can reflect on your life and see the differences now though, right ?