Page 1 of 4 [ 49 posts ]  Go to page 1, 2, 3, 4  Next

screen_name
Veteran
Veteran

User avatar

Joined: 1 Oct 2013
Age: 38
Gender: Female
Posts: 1,315

04 Aug 2016, 2:10 pm

Gastro issues are a known common problem among those on the spectrum.

I'm curious if there is anyone here who can relate to what I've got going on:

•Eosinophilic Esophagitis (allergic to almost all food)
•Gastritis
•Colitis


My duodenum is good! Yay duodenum!


_________________
So you know who just said that:
I am female, I am married
I have two children (one AS and one NT)
I have been diagnosed with Aspergers and MERLD
I have significant chronic medical conditions as well


ZenDen
Veteran
Veteran

User avatar

Joined: 10 Jul 2013
Age: 78
Gender: Male
Posts: 1,730
Location: On top of the world

04 Aug 2016, 2:24 pm

Ulcerative colitis, often very acute, in remission now for quite a while.

I'm fairly careful in what I eat, once I was able to wean myself away from all of the "heavy duty" medications...especially the anti-rejection drugs.

The plan I used was in a book called: "Breaking the Vicious Cycle" (Intestinal Health Through Diet) by Elaine Gottschall B.A., M.Sc.

This stopped the colitis well enough and long enough that I was able to make dietary and pharmaceutical adjustments and break free of that awful awful ailment.



ConceptuallyCurious
Velociraptor
Velociraptor

User avatar

Joined: 19 Aug 2014
Age: 25
Gender: Female
Posts: 494

04 Aug 2016, 3:34 pm

I get quite constipated quite a bit but I think that's the medication I take (it's a listed side effect). So, not for me.


_________________
Diagnosed with:
Moderate Hearing Loss in 2002.
Autism Spectrum Disorder in August 2015.
ADHD diagnosed in July 2016

Also "probable" dyspraxia/DCD and dyslexia.

Plus a smattering of mental health problems that have now been mostly resolved.


screen_name
Veteran
Veteran

User avatar

Joined: 1 Oct 2013
Age: 38
Gender: Female
Posts: 1,315

04 Aug 2016, 4:10 pm

ZenDen wrote:
Ulcerative colitis, often very acute, in remission now for quite a while.

I'm fairly careful in what I eat, once I was able to wean myself away from all of the "heavy duty" medications...especially the anti-rejection drugs.

The plan I used was in a book called: "Breaking the Vicious Cycle" (Intestinal Health Through Diet) by Elaine Gottschall B.A., M.Sc.

This stopped the colitis well enough and long enough that I was able to make dietary and pharmaceutical adjustments and break free of that awful awful ailment.


I'll be looking into this book some time.

I can't tell what's what, since every part is acting up. But, right now, I'm concentrating on getting something to stay in me and on not come straight back out. :(


_________________
So you know who just said that:
I am female, I am married
I have two children (one AS and one NT)
I have been diagnosed with Aspergers and MERLD
I have significant chronic medical conditions as well


kraftiekortie
Veteran
Veteran

User avatar

Joined: 4 Feb 2014
Gender: Male
Posts: 74,570
Location: Queens, NYC

04 Aug 2016, 5:21 pm

I've always had minor digestive issues throughout my life.

My mother has Crohn's Colitis.

She's in semi-remission now.



Joe90
Veteran
Veteran

User avatar

Joined: 23 Feb 2010
Gender: Female
Posts: 19,614
Location: South-East England

04 Aug 2016, 5:32 pm

I have stomach issues when hungry. If I let myself get too hungry, I develop a painful acidic stomach, uncomfortable hollowness, a dry mouth, and bad nausea. It sometimes feels like my stomach is touching and rubbing against itself. Ouch!

But I am not intolerant to any food. I only seem to be intolerant against hunger. So if I had to fast one day, um....


_________________
Female
Aged 30
On antidepressants
Diagnosed with AS, ADHD and anxiety disorder
Empathy score: 61 out of a possible 80. (High)


EScissorhands
Butterfly
Butterfly

Joined: 2 Aug 2016
Age: 30
Gender: Male
Posts: 9

04 Aug 2016, 7:02 pm

Same here, mother has it a little better than me. I also have speech problems. My body is funny though, I can't retain ANY fat. My body will reject any sort of fat or anything I try to gain weight with.



ZenDen
Veteran
Veteran

User avatar

Joined: 10 Jul 2013
Age: 78
Gender: Male
Posts: 1,730
Location: On top of the world

04 Aug 2016, 8:00 pm

kraftiekortie wrote:
I've always had minor digestive issues throughout my life.

My mother has Crohn's Colitis.

She's in semi-remission now.


Glad your Mom is in, at least, semi-remission. So sad.......Crohn's is serious; it can kill you.

I hope she can get to full remission soon; hang in there.

Have you had a check-up lately?



kraftiekortie
Veteran
Veteran

User avatar

Joined: 4 Feb 2014
Gender: Male
Posts: 74,570
Location: Queens, NYC

04 Aug 2016, 8:18 pm

I get a check-up at least once a year.

I hurt my knee running one day; so I'll have to go to a doctor soon.



dianthus
Veteran
Veteran

Joined: 25 Nov 2011
Gender: Female
Posts: 4,138

04 Aug 2016, 8:43 pm

I get very painfully bloated sometimes and food rolls back up my throat. And often just feel swollen and bloated all over. I think it's a food allergy - and/or casein intolerance or maybe histamine intolerance - but I still haven't narrowed down exactly what it is. My cravings for certain foods are so strong it's hard to stop eating them, even when I know I might be allergic.



metaldanielle
Veteran
Veteran

User avatar

Joined: 1 Mar 2012
Age: 30
Gender: Female
Posts: 4,048

04 Aug 2016, 9:09 pm

Don't feel bad, Dianthus. My trigger foods are my cravings too, and I haven't been able to stop even though I've been trying since I was little. All I can do is save my willpower for my bad days and try to indulge sparingly on good days to avoid binging later.

I have Ulcerative Colitis ft dysplasia that no one recognizes. It was the first thing I got diagnosed with. My guts run at warp speed (even for someone with UC) and I have metabolism issues that I'm not 100% certain the cause of.

Oh and somehow I'm NOT lactose or gluten intolerant. It can never be something normal with me. :roll:


_________________
"Be kind to one another" -Ellen Degeneres


ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 63
Gender: Male
Posts: 24,594
Location: Long Island, New York

05 Aug 2016, 1:28 am

I lost 30 pounds in few months due to colitus in the early '90's. Any type of trip even to work was scary,sometimes extremely uncomfortable, and subject to interruption. It was really bad for about 3 years of so. It very gradually went away over the next decade or two.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity.

It is Autism Acceptance Month.


GreenAsparagus
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 2 Feb 2016
Age: 36
Gender: Male
Posts: 68

05 Aug 2016, 7:11 am

I used to have some, but they were psychosomatic and caused by stress from work.

With that stressful job gone, so are the symptoms.

I didn't realise this at first and heavily experimented with my diet, trying to see if eliminating certain foods had any effect. Coffee, dairy, bread, apples, nothing mattered, of course.


_________________
From the Netherlands, diagnosed about a year ago.


Trekkie83
Blue Jay
Blue Jay

Joined: 3 Jul 2016
Age: 38
Gender: Male
Posts: 98

05 Aug 2016, 7:29 am

I've had digestive issues all my life. Over the last few years I've had even more crop up. I don't really know what's wrong and the local gastroenterology practice has been no help. The first specialist I saw didn't even pay attention to me and just threw their fancy new pills at me, which did very little.

I switched to a different doctor in the same practice and he was only slightly better. He at least listened but he was convinced it was "all in my head" even before examining me. He even told me that I was too young and they never find anything wrong in people my age (~30). I did get an upper endoscopy done, which didn't find anything. After hear the results and his "told you so" attitude, I just kind of gave up and didn't bother with the other tests. I admit, I was also kind of scared of having some of them done.

I do have a new primary care doctor now so we're starting to explore this stuff again. I'd love to know what's going on because it's quite annoying. If I eat too much, I'm miserable. If I eat too little, I'm miserable. If I eat just the right amount, there still a chance I'll be miserable. It stinks! I've lost a lot of weight. People tell me that I look good and I'm tempted to respond that I felt a LOT better back when I weighed more.



BeaArthur
Veteran
Veteran

Joined: 11 Aug 2015
Posts: 5,201

05 Aug 2016, 9:04 am

Diverticulitis, gastritis, IBS, gallstones. No known food intolerances. Both of my children have had peptic ulcers.


_________________
Back.


randomeu
Veteran
Veteran

User avatar

Joined: 30 May 2016
Age: 23
Gender: Male
Posts: 628
Location: In the wonderful world of i dont know

05 Aug 2016, 10:41 am

I have Gastro parisis, and have a stomach pacemaker for it.

i was also born with a unique eating problem, seriously, there was an entire medical discussion between loads of doctors and surgeons about me.


basically, theres a valve on your stomach, it lets food out or in (one at the top lets them in, bottom one lets them out) mine had a second one growing into it, which means i couldn't actually process food, they did every test they could think of, they couldn't figure it out, until they operated on me to do a stomach bypass and discovered the whole valve thing, they instead removed the valve and i was okay for a year, but then the whole gastro parisis thing started after that year, and the hospital stuff began again. basically had the whole stomach valve thing from when i was about 8, till i was 10, then it was a year, i went to high school, got the gastro parisis thing, till i was 14 then got the pacemaker. means i still can't eat some foods, i don't do things like wheat very well, and sometimes i just can't tolerate random things haha.

im kind of glad they discovered it in that first one as i was kind of....dying....slowly. my body just couldn't take in food, so i was getting thinner and thinner and thinner, wasting away, i don't know how my parents managed to keep calm and normal around me, but they did (but not when i wasn't present)


_________________
AQ score: 45

Your neurodiverse (Aspie) score: 174 of 200
Your neurotypical (non-autistic) score: 30 of 200
You are very likely neurodiverse (Aspie)


Officially diagnosed 30th june 2017