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TwilightPrincess
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28 May 2019, 8:32 am

kraftiekortie wrote:
If he doesn't respond, we are sort of "beating a dead horse" here. Sort of wasting our time.

But I guess discussing pertinent laws is sort of useful.


Discussing nudity from a sociological perspective is interesting.

We can learn from the current discussion that being naked in front of guests might make them uncomfortable. Very useful information!


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magz
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28 May 2019, 10:08 am

I don't care for the OP, I'm just enjoying our chat :D

One of my close (male) friends once left the shower completely naked because he forgot I was at his place :lol: He was waaaay more embarassed than I was :lol:
Underwear only is okay among the family and the closest friends.
I also let my daughters see me bathing naked. I learned a lot of girls get too self-concious because the only female bodies they see are in porn and they don't look like the heavily siliconed and photoshopped models. I never felt like this - I was used to the sight of my mother bathing and this modelled my idea of an adult female. I think it's healthy.


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Arganger
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28 May 2019, 10:10 am

blazingstar wrote:
Thanks Ferris. The initial post does have some strangeness about it, but many of the families I know in similar situations have gotten pretty weird. I would not know a troll if it bit me. It sounds like a much younger son/brother.

That said, I have seen many strange adaptations to autism. One mother could not wear shoes in the house or her son would have a melt down, and many, many more strange things.


I'd agree if it was just a few of those, but some of the list contradicts itself. Not sure I'd say troll for sure, but contradictions don't look good.


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28 May 2019, 6:50 pm

I'm sorry for the late replyl. I was at wark
Than i had to pick up the king from his Aut. Babysitters house. Than he had a meltdown in Walmart. So we had to leave Walmart early.

And for the people saying that im a troll. I'm not. 1. you don't know anything about me or my family.

2. In my first post about the list. I specifically said WE MAKE HIM BEHAVE IN PUBLIC. But at home its if he's not hurting anyone or himself we let him do it. And i know it may look like we let him run whild we don't there is structsr. And he is learning though play. For example last night when he was just making a HUGE mess in the bathroom i sprayed whipped cream on the wall and i said "hay buddy how big can you say numbers"? And he counted to 10. That's only one example. Another is being naked he sometimest goes to the toilet by himself know. (Of course one of us me or my mom are always there).

But yeah. You have to remember he has SEV. Autism. And had 6 brain surgeries. So are parenting/careing stiye for him is SO SO SO much different from that of a NT. or of a (and please don'take this in a mean way "regular" autistic.)

Sorry for my spelling i have dislexcea.



kraftiekortie
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28 May 2019, 7:14 pm

Thank you for responding.

I know you're not a troll.

Many times, people put Original Posts down, some of which might be for "shock value." Then never respond again.

You did. So you're okay.

It sounds like your brother can speak---which is pretty good.



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28 May 2019, 8:33 pm

Thank you so much.



losingit1973
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28 May 2019, 10:44 pm

Special needs families adapt to their unique situations. They find what works and go with it. From an outsiders point of view it may look like chaos, but the childrens needs are met and the caretakers sanity remains intact. In our house sensory needs are satisfied. We have trampolines, crash mats, cubbies, balance beams, chewies, and alot of soft materials to cuddle with. Nothing but shorts (my current state) is common. It is a little crowded, but there is far less destruction than before we got all this stuff.


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EzraS
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29 May 2019, 12:00 am

Autism brother. wrote:
I'm sorry for the late replyl. I was at wark
Than i had to pick up the king from his Aut. Babysitters house. Than he had a meltdown in Walmart. So we had to leave Walmart early.

And for the people saying that im a troll. I'm not. 1. you don't know anything about me or my family.


No but we have a pretty detailed account of how your brother is cared for. Which as someone raised with severe autism and knowing many others as well, I found your 1 - 22 list was rather unusual in several ways.

Quote:
2. In my first post about the list. I specifically said WE MAKE HIM BEHAVE IN PUBLIC.


No you didn't.

And one does not MAKE a severely autistic person behave in public. One creates conditions to facilitate good behavior.


Quote:
But at home its if he's not hurting anyone or himself we let him do it. And i know it may look like we let him run whild we don't there is structsr. And he is learning though play. For example last night when he was just making a HUGE mess in the bathroom i sprayed whipped cream on the wall and i said "hay buddy how big can you say numbers"? And he counted to 10. That's only one example. Another is being naked he sometimest goes to the toilet by himself know. (Of course one of us me or my mom are always there).

But yeah. You have to remember he has SEV. Autism. And had 6 brain surgeries. So are parenting/careing stiye for him is SO SO SO much different from that of a NT. or of a (and please don'take this in a mean way "regular" autistic.)

Sorry for my spelling i have dislexcea.


The six brain surgeries sets the whole thing apart. Autism alone doesn't evolve brain surgery no matter how severe it is. So what did he need 6 brain surgeries for?



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29 May 2019, 12:24 am

He self harms that y all the brain surgeries. And read it again.



EzraS
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29 May 2019, 2:01 am

Autism brother. wrote:
He self harms that y all the brain surgeries. And read it again.


I did read it again carefully a few times but i did not see anywhere were you "specifically said WE MAKE HIM BEHAVE IN PUBLIC".

Autism brother. wrote:

I have a SEV. autistic 26 yr old brother that had 6 brain surgeries as such our caring for him is deffrant here's my list of things me and our mother let him do.

1.run around butt naked. (Even infront of company)
it's his house too and id if he wants to be naked it's his right. (and where still potty training him).

2.eat with his hands.
if it helps him with eating I'll do it.

3.make a HUGE mess with arts and crafts. (again he's naked so it's easier to clean up).

4.splash in the bath. so what if water, bubble bath, enable paint, and toys get EVERYWHERE thats what towels are ment for.

5.play in mud. i here people telling there kids to not splash in mud were as I'm teaching my bro to do so.

6.jump on the beds. (again clothed or naked) and we have a private fence for him to bounce naked on his trampoline to.

7.take walks (or runs) with him whenever he wants. (his school is AWESOME for that).

8.teach him how to cook. last night we made a roast it was GOOD.

9. read him story's WHENEVER AND WHEREVER he wants. so what if I have a backpack full of kids story's and hes jumping up and down while I read sesame Street he loves it.

10. paint ANYTHING in the house. (we cover everything in butcher paper so it doesn't get too messy.

11. Baby-talk to him WERE EVERYWHERE we are if he understands it better we will do it.

12. We do not make him stop stimming EVER (its there way of releasing bent up energy)

13. Pee basically anywhere he wants (we have potties in every room for him.)

14. Play music anytime he wants as loud as he wants.

15. Bang on pots and pans (if he signs were all good)

16. Sleep with me or our mother (he hardly sleeps alone and this way he can sleep peacefully and we know where he is and that has not hurting himself so more power to him.)

17. Scream and shout (again indoors).

18. Draw on the walls (with erasable marker again we cover the house in butcher paper).

19. Were onesies EVERYWHERE. (He's got like 100000)

And

20. Love him unconditionally. ☺❤

I got 2 more.

21. Baths we bath him about 8-14 times A DAY. Depending on if its a good day for him.

22. massages WHENEVER he wants one. We do it.

That's our list id love to here yours.



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29 May 2019, 6:58 am

losingit1973 wrote:
Special needs families adapt to their unique situations. They find what works and go with it. From an outsiders point of view it may look like chaos, but the childrens needs are met and the caretakers sanity remains intact. In our house sensory needs are satisfied. We have trampolines, crash mats, cubbies, balance beams, chewies, and alot of soft materials to cuddle with. Nothing but shorts (my current state) is common. It is a little crowded, but there is far less destruction than before we got all this stuff.


Exactly.

Also, many persons coping with an autistic family member do get a "little" crazy. Sometimes a lot crazy. I'm not surprised that someone could not express themselves well.

People on this website, at least the ones who post, seem to be unaware of the intractable problems that arise from people with profound autism. I am not surprised that a person can injure themselves to the point that they need brain surgery. I hesitate to post this, because few will believe it, but I know a child who hit himself in the head, hard, over 40 times per minute, unless restrained or redirected in some manner. There are other behavior problems as well. But it is important to remember that many cases are WAY worse than what we experience.


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auntblabby
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29 May 2019, 7:39 am

as a child i had to be restrained from banging my head against the wall. no wonder i'm warped now.



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29 May 2019, 8:43 am

blazingstar wrote:
losingit1973 wrote:
Special needs families adapt to their unique situations. They find what works and go with it. From an outsiders point of view it may look like chaos, but the childrens needs are met and the caretakers sanity remains intact. In our house sensory needs are satisfied. We have trampolines, crash mats, cubbies, balance beams, chewies, and alot of soft materials to cuddle with. Nothing but shorts (my current state) is common. It is a little crowded, but there is far less destruction than before we got all this stuff.


Exactly.

Also, many persons coping with an autistic family member do get a "little" crazy. Sometimes a lot crazy. I'm not surprised that someone could not express themselves well.

People on this website, at least the ones who post, seem to be unaware of the intractable problems that arise from people with profound autism. I am not surprised that a person can injure themselves to the point that they need brain surgery. I hesitate to post this, because few will believe it, but I know a child who hit himself in the head, hard, over 40 times per minute, unless restrained or redirected in some manner. There are other behavior problems as well. But it is important to remember that many cases are WAY worse than what we experience.


Thank you.



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29 May 2019, 8:46 am

And yes I know it's there im sorry. But we do make him behave in public.



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29 May 2019, 9:34 am

auntblabby wrote:
as a child i had to be restrained from banging my head against the wall. no wonder i'm warped now.


Luckily for us, it is a wonderful warp.


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29 May 2019, 9:37 am

It's much less likely you are a troll now that you have actually responded, but what were the brain surgeries for?
And I would take what Ezra says seriously.


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