28 Sep 2008, 12:11 pm
29 Sep 2008, 1:41 am
Triangular_Trees wrote:
Temporal lobe epilepsy is often misdiagnosed as depression.
And even if you aren't depressed, going through that and not getting treated probably gives you a significant chance of becoming depressed.
Just keep in mind that you can be having 50 seizures a day and still get a normal EEG, so don't accept the doctors word that a normal EEG means no seizures - I did and that was one of the biggest mistakes i n my life. My seizures are complex partial in the left frontal temporal lobe (also the right, but this current diagnoses only caught ones in the left). The second neurologist said my type of seizures almost never showed up an EEG and that they are the hardest kind to treat
One other thing to watch for is how long they ask you to breathe deeply - the first technician said 10 times, the second said 10 minutes. The second neurologist said my seizures started pretty much immediately after I began the deep breathing The first technician hadn't allowed any time for the deep breathing to truly affect me
And even if you aren't depressed, going through that and not getting treated probably gives you a significant chance of becoming depressed.
Just keep in mind that you can be having 50 seizures a day and still get a normal EEG, so don't accept the doctors word that a normal EEG means no seizures - I did and that was one of the biggest mistakes i n my life. My seizures are complex partial in the left frontal temporal lobe (also the right, but this current diagnoses only caught ones in the left). The second neurologist said my type of seizures almost never showed up an EEG and that they are the hardest kind to treat
One other thing to watch for is how long they ask you to breathe deeply - the first technician said 10 times, the second said 10 minutes. The second neurologist said my seizures started pretty much immediately after I began the deep breathing The first technician hadn't allowed any time for the deep breathing to truly affect me
Thanx for this information! I had a talk with my psychologist last week and she says I have a very positive state of mind and she proposed to get off the anti depressants, but my GP just thinks it is way too early, because you have to stay on it for a minimum of time (generally a year....).
I also had a talk with a mate of mine who is a nurse. She as epilepsy, had an EEG that didn't show anything, she had a long way of doctors, psychiatrists before getting the right diagnose. She told me the same thing about EEG.
And the breathing deeply, that was about 10 times...
The neurologist I see is for a damage claim after an accident, so I think and hope he will be a bit more thourough than doctors in a different position... Clinical examinations shows I have temporal lobe epilepsie. He also was quite annoyed that my GP only put me on anti depressives and didn't refer me to a psychiatrist.
I will go back to see my GP again I think.
29 Sep 2008, 5:05 am
I have to have an EEG now because I have since had about 7 more seizures... sigh... I don't think that it is a 100% accurate way of finding seizures because only people with more severe epilepsy will have seizures every day, what if on the day of the EEG you have none? I'm not too stressed about it, but the staff here are having an apoplexy, say they can't cope etc... Mum doesn't want me home either... 
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29 Sep 2008, 11:08 am
29 Sep 2008, 12:11 pm
29 Sep 2008, 1:17 pm
Triangular_Trees wrote:
MissConstrue wrote:
Yes, I have a seizure disorder that're mal-petite. So they aren't as big as epilepsy.
That doesn't make senseEpilepsy isn't a kind of seizure, it is a condition of recurring epileptical seizures. If you have recurring seizures, that aren't NES, you have epilepsy, regardless of the type. If you had more than 2 E seizures, you have epilepsy. If your seizure disorder isn't as big as epilepsy, there is no reason at all to be on medicine. No one needs to be put on medicine because they've had one seizure.
There are people with epilepsy who don't need meds and can live fairly normal lives, and their are people with epilepsy who even with meds and brain surgery can't do much. Epilepsy consisting of absensce seizures as just as much epilepsy as epilepsy consisting of atonic and tonic-clonic seizures
Also, absence seizures are called petite-mal, not mal petite
In addition to getting the names of your seizures wrong, not knowing what E is, identifying a type of seizure that doesn't match your description of the type you experience, and remembering a type of seizure (petit-mal) that is a lapse of concious activity, it is also rather odd that you would be put on a medicine that is never to be used for those with a history of depression unless all alternatives have been ruled out, and one in which extra care needs to be taken when administered to those with a drinking problem, as you've previously stated you experienced severe depression and alcohol addiction
Not to mention its a drug that is only used for short term AED therapyI'm guessing she has a seizure problem but it's not been diagnosed - so she wouldn't know the terminology, just gets the sense that something is up.
As for me...I have no idea whether or not I have seizures. My mother has epilepsy, so it's possible. I have very intense migraines, with powerful aura that include hallucinatory smells, vivid images and holes in my visual field, but supposedly they're not seizure-related.
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