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EEngineer75
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31 Oct 2020, 12:36 am

It's not a drug, but has anyone heard of any studies on playing or listening to music and ASD or ADHD?


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EEngineer75
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06 Nov 2020, 9:17 pm

Anyone have experience w/ music therapy--for themselves or their child?


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"Engineer type" w/ ADHD (AQ:35-40, SQ:80, EQ:11-18, FQ:24, Aspie Quiz: ND 103/200, NT 100/200)
-Fan of Dr. Russel Barkley lectures and also of "How to ADHD" toolbox tips on You Tube. (I would welcome similar resources on understanding & managing HF-ASD/Aspergers' issues--especially regarding social, relationship, & empathy.)


auntblabby
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07 Nov 2020, 2:11 am

playing music makes me less addled, i have found. it has a similar though time-limited effect, as strattera.



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09 Nov 2020, 12:05 am

I've had some success treating some of my autism comorbids. Buspar/Buspirone helps my anxiety a lot. The only side-effect I've noticed is that I bruise easily. I'm on the standard max dose which is 30mg 2wice a day. Buspar does not help my OCD thou. I still had intrusive thoughts, obsessions & compulsions. Buspar just helped me have less anxiety about them. Not very long after getting on Buspar I started taking Neurontin/Gabapentin for my OCD. Neurontin helps reduce my intrusive thoughts, obsessions, & compulsions. However I would still feel anxious about various stuff so Neurontin & Buspar kind of work hand in hand together for me. I have not noticed any side-effects on Neurontin except maybe when I 1st started it. My dose of Neurontin is 400mg 3x a day. I've been on on Buspar & Neurontin for about 9 years now. My girlfriend also takes Neurontin for her OCD & she's on the same exact dose I am. Before getting on Neurontin, she took a supplement called N-acetyl Cysteine aka NAC which had the same effect on her OCD. She switched to Neurontin because it slightly helps her pain issues & it's covered by Medicaid so it's a lot cheaper. I think her dose of NAC was one thousand mg 2wice a day.
I started taking Seroquel/Quetiapine like half a year ago to help reduce my meltdowns. I take 100mg 1ce a day. It made me very tired when I 1st started taking it & I slept aLOT. I think it may be making my dry mouth worse as well. Various meds I'm on can cause dry mouth as well as my allergies & sinus problems. I've had bad dry mouth at times before starting Seroquel & my allergies & sinus problems have been worse lately so I'm not sure how much Seroquel is making my dry mouth worse. I want to stay on Seroquel cuz it is helping me not get upset quite as easily. I'm not having meltdowns or snapping at my girlfriend nearly as much as I was before. I'm able to bite my tongue a lot better. I do NOT want to try increasing my dose thou.

While I did find some success treating some of my comorbids with meds, it was NOT an easy process. I'd bet I tried over 20 psych meds in my life. I found I had much better success after I started taking a more proactive role in my treatment. Just complaining to my doc & psychiatrist & letting them put me on whatever only helped a little. I posted about things online a lot, I've done lots of research on various mental & psych stuff, & I tried to analyze myself & my issues a lot. I've also done a bit of research on lots of psych meds & I've kind of used my previous med experiences as a rough guide/jumping off point. I've specially asked to try some meds like Buspar & Neurontin. I've also tried to work on myself in other ways as well like joining an offline support group, trying counseling, trying to get a job & working a lot when I was employed, doing things with people outside of work, trying to get a girlfriend & then moving in with her after a bit.


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Romofan
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09 Nov 2020, 6:21 am

Thank you, Nick.


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Steve1963
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09 Nov 2020, 6:22 am

Off Topic
good to see you, romofan



auntblabby
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09 Nov 2020, 6:23 am

be aware that in many men* neurontin/gabapentin has one particularly undesirable* side effect.



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09 Nov 2020, 6:45 am

Earlier this year I was on an antidepressant called Mirtazapine (Remeron).
It worked well enough, though one tends to gain weight.

Anyway, I'm not depressed any more but I still have a few of the pills left, and I found in really low dose, 7.5mg, it has a sedating effect.
So any evening I'm a bit wired or jumpy or my mind is going round in circles and I think I'm not going to sleep I take a 7.5mg dose. It works a treat to make me drop off and get a good night's sleep.

The only drawback is sometimes I'm a bit dopey the next day, but usually it's not too bad, I'm just nicely chilled out. No anxiety or anything. It's cool.

Though I've heard it doesn't affect everyone the same way, some people get too powerful sedative effect and can't stay awake the next day.
And one does tend to get the munchies and crave buttered toast and doughnuts.



nick007
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13 Nov 2020, 7:45 pm

Romofan wrote:
Thank you all for your replies!

I am currently fiddling with my head by taking hydroxyzine (for anxiety), atomoxetine (for adhd), an aristada injection (antipsychotic!) and trazodone (ye olde anti depressant).

The result so far? Massive weight gain and zzzzzzzzzzzzz

I was just fishing around for ideas
My girlfriend's psychiatrist prescribes her Hydroxyzine to help her sleep. It helps her sleep a little but she does not notice it helping her anxiety. She only takes it at bedtime thou & some people take it 3x a day. It helps her allergies some & helps her sleep a little thou she still sleeps very poorly sometimes. I was on Trazodone for a while a few years ago cuz I was not sleeping well due to a minor depression. I switched it after a while cuz I was tired during the day. Looking back I don't know if Trazodone had anything to do with me being tired. I was on a lower dose of 100mg at bedtime.


MrsPeel wrote:
Earlier this year I was on an antidepressant called Mirtazapine (Remeron).
It worked well enough, though one tends to gain weight.

Anyway, I'm not depressed any more but I still have a few of the pills left, and I found in really low dose, 7.5mg, it has a sedating effect.
So any evening I'm a bit wired or jumpy or my mind is going round in circles and I think I'm not going to sleep I take a 7.5mg dose. It works a treat to make me drop off and get a good night's sleep.

The only drawback is sometimes I'm a bit dopey the next day, but usually it's not too bad, I'm just nicely chilled out. No anxiety or anything. It's cool.

Though I've heard it doesn't affect everyone the same way, some people get too powerful sedative effect and can't stay awake the next day.
And one does tend to get the munchies and crave buttered toast and doughnuts.
I tried Remeron very briefly a long time ago. A neurologist actually had me try it for Essential Tremors. All I did was sleep & eat when I was on it. I'd wake up & eat & be back in bed within a couple hours. Then I'd sleep for a few hours & then wake up & the cycle would repeat. When I went back to the neurologist & told him about that, his idea was to put me on Topamax to counteract me being hungry but that could of made me even more tired. I quit taking Remeron & never went back to him. I was seeing a psychiatrist at the time & she had me on an antidepressant & antipsychotic so there's a chance that Remeron was so bad on me due to interactions(I did make the neurologist aware that I was seeing a psych & what meds I was on). I've done some research since then & Remeron is not recommended for Essential Tremors due to side-effects & lack of evidence that it helps those tremors.


auntblabby wrote:
be aware that in many men* neurontin/gabapentin has one particularly undesirable* side effect.
I didn't notice that but it is possible it can. Lots of meds used for psych things can potentially cause that as well. I would actually like that side-effect thou.


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nick007
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13 Nov 2020, 8:14 pm

Romofan wrote:
Thank you, Nick.
Your Welcome :wink:

DISCLAIMER TIME :arrow:
There are NO meds that can cure autism. Some psych meds are approved to treat certain autism symptoms but they will mostly only help with a few of the symptoms. They will NOT suddenly make an autistic NT. Different people can potentially respond to psych meds & other meds in general very differently like different side-effects & different degrees of them. What majorly helps one person may majorly hurt another. I highly encourage people to take a more proactive role with their treatment. Do some research & try to discuss serious concerns with your psych/doc if you can. It's also good to start off on the lowest dose if you can. Let your body get used to it some before increasing. Sometimes initial side-effects get better & go away but other times side-effects develop after a bit. Check to see if it's OK to cut your pills in half & also check to see if you should take your meds when you eat or on an empty stomach. If it doesn't matter if you take it with food or not, I would take it with food while I'm getting used to it. It's also good to check for interactions between meds when your on multiple meds even if the meds are for very different things.

I just don't want anyone to think I'm pushing something. I can only vouch for my experiences. I'm talking about them to help give others ideas to consider.


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funeralxempire
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14 Nov 2020, 1:07 am

Wolfram87 wrote:
I recall a thread from way back when. A member had discovered the cure to ASD at some party he went to. It was called Ecstacy. Having never tried E, I can neither confirm or deny, but I remain somewhat sceptical


MDMA certainly improved some of my social deficiencies when I was younger, but it (obviously) didn't last permanently.



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14 Nov 2020, 1:09 am

I do not want to be cured of Aspergers. If you want to cure something, cure cancer or Covid 19.



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14 Nov 2020, 1:11 am

lostonearth35 wrote:
I do not want to be cured of Aspergers. If you want to cure something, cure cancer or Covid 19.


Improving the symptoms and issues associated with isn't the same as a 'cure' and no one will force you to take anything that might improve ASD for you if you're not interested. :?



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14 Nov 2020, 2:03 am

Sorry to but in again.

Just to reiterate. Medications are prescribed to address any symptoms that are associated with mental health disorders that are caused by Autism Spectrum Disorder and not to actually cure Autism Spectrum Disorder.

If you look at the logic of this, this makes sense.

If you have Autism Spectrum Disorder, your neurological networks have been developed in a way that they are different to how "normal" people's neurological networks have developed.

Various abnormalities in neurological networks can cause the related mental health disorders.

This means that the cause of the symptoms that are present is different to the cause of "normal" peoples mental health disorders, which are thought to be more a chemical imbalance than a neurological abnormality (or as people like to say now, diversity).

Because some of our symptoms are caused by permanent neurological presentation, some of our symptoms can be hard if not impossible to "cure" altogether (for example, sensory hypersensitivity can not be cured with a med).

The mental health problems that the abnormal neurology causes can be treated to some extent.

I have read that some of the older tricyclic antidepressants are effective for some.
Tricyclic antidepressants such as clomipramine are slightly sedating but not as sedating as anti psychotics / major tranquilizers. Clomipramine is prescribed mainly for depression and OCD style symptoms but can also be prescribed for anxiety.

Valium at low doses, and used when needed but sparingly can be effective for reducing the distress encountered during a autism spectrum disorder meltdown, can reduce the recovery time from a meltdown too, and help you sleep on the same day as the meltdown.



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14 Nov 2020, 5:07 am

Take it from me, PCP does not help with your ASD.



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14 Nov 2020, 6:07 am

jimmy m wrote:
I avoid all mind altering drugs like the plague. Never used them. IMHO, the structure of an Aspie brain is different than that of an NT. We have more interconnecting wiring in our brain. Drugs have a much more profound affect on our brains. Even after major surgery this week, I refused all pain meds.


I agree with the general premise that drugs affect our brains and bodies differently than they affect NTs, HOWEVER -- I wonder if some drugs that NTs use to get high/abuse would actually work differently and positively for us. Purportedly, this may be true of Ecstasy. I've never tried it, and wouldn't want to try something unregulated off the street.

As the story goes: for NTs, Ecstacy makes them super touch/feely, wherein the thrill from getting high and feeling good comes from. For us (supposedly) it makes us more conscientious of non-verbal cues from the NT majority and makes social interaction easier, reduces anxiety, makes simple in-passing interaction with NTs go more smoothly.

If the NT majority didn't abuse it as a party drug, medical science may take it more seriously as a crutch for Autism. (Like how people who didn't need Oxycontin would abuse it for the feeling of euphoria. People who actually needed the drug for pain relief didn't get high off of it, and benefited from its numbing effects. . . Or how teenagers who don't need Viagra would take it to get SUPER erections, when the impotent old men who used it just wanted to maintain a basic hard-on, sorry to sound crude).