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ASPartOfMe
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11 Jan 2019, 4:41 am

graceksjp wrote:
Um I kinda got lost in the amount of words in that post sorry.

Can someone tell me what Autism Speaks is? I've never heard of it.

https://en.m.wikipedia.org/wiki/Autism_Speaks


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Cavycat
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12 Jan 2019, 8:56 pm

I found out about Autism Speaks when I was eleven or twelve because they supported my institution's 5k race. I did research later on about them, and yes they are horrid. I feel like their fear mongering and support of harmful activities is unspeakable. As a survivor of Lovaas ABA, I feel angry at them for that support. I saw many horrid to violations at the institution, and Austism Speaks supports that.
I tried to do red instead on the school day after the blue lighting last year. Every year, the institution would light the fire light at the residences and the lobby at the main building blue for the entirety of April. It made me dislike the atmosphere of April. I usually like April because spring came during it, my favourite holiday occurs most years in it, and many of my relatives have birthdays then.

The problem is that they didn't change their tactics and doesn't actually help people. That is why the community seems to dislike them. The tactics, which my institution used, just makes people hate themselves for their Autism.



ASPartOfMe
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13 Jan 2019, 12:38 am

Cavycat wrote:
I found out about Autism Speaks when I was eleven or twelve because they supported my institution's 5k race. I did research later on about them, and yes they are horrid. I feel like their fear mongering and support of harmful activities is unspeakable. As a survivor of Lovaas ABA, I feel angry at them for that support. I saw many horrid to violations at the institution, and Austism Speaks supports that.
I tried to do red instead on the school day after the blue lighting last year. Every year, the institution would light the fire light at the residences and the lobby at the main building blue for the entirety of April. It made me dislike the atmosphere of April. I usually like April because spring came during it, my favourite holiday occurs most years in it, and many of my relatives have birthdays then.

The problem is that they didn't change their tactics and doesn't actually help people. That is why the community seems to dislike them. The tactics, which my institution used, just makes people hate themselves for their Autism.


I am glad you survived ABA. That is a credit to you.

I understand your feelings about April, blue is my favorite color.

Maybe this will make you feel better about April
Autism Acceptance Month
Quote:
April is Autism Acceptance Month. During Autism Acceptance Month, we focus on sharing positive, respectful, and accurate information about autism and autistic people.

Autism Acceptance Month promotes acceptance and celebration of autistic people as family members, friends, classmates, co-workers, and community members making valuable contributions to our world. Autism is a natural variation of the human experience, and we can all create a world which values, includes, and celebrates all kinds of minds.

In a nutshell, Autism Acceptance Month is about treating autistic people with respect, listening to what we have to say about ourselves, and making us welcome in the world.

Autism Acceptance Month takes place every year during April. The first Autism Acceptance Month celebrations were organized in 2011, as a response to traditional “Autism Awareness” campaigns which the Autistic community found harmful and insufficient. “Autism Acceptance” as a concept has a history as long as the Autistic community itself, dating back to Jim Sinclair’s seminal classic “Don’t Mourn For Us” .


What is the name of your former abusive institution? I ask because if anybody asks me about it I can try to steer them away from there.

If you can somehow contact other former unfortunate "graduates", maybe you can together contact Newsday or News 12.


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warrier120
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13 Jan 2019, 5:18 pm

Like Cavycat described, I was also fortunate to have survived ABA, both physically and psychologically. The therapists knew I hated being ignored during meltdowns, so they used ignoring me as an "aversive". It was a poor one, though, as I usually wanted help and not necessarily being ignored. So it was really a just a modified form of Lovaas-style ABA.

Now that I think about it, I don't think Autism Speaks can be forgiven. They have not fully learned from their mistakes and the things like the MSSNG project are no exception. In the past when I knew no better about AS, I attended AS fundraisers, oblivious that they were intending to cure off all of the autistic people. (I use "cure off" because it sounds a lot like "kill off".) Now I'm never going back to AS.


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Dvdz
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13 Jan 2019, 7:52 pm

So sorry to both warrier120 and Cavycat that you both had to endure that.

It really sounds like Lovaas method ABA is something to avoid.



warrier120
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14 Jan 2019, 12:17 am

Dvdz wrote:
So sorry to both warrier120 and Cavycat that you both had to endure that.

It really sounds like Lovaas method ABA is something to avoid.

I assume you can make the connection between Autism Speaks and Lovaas method ABA now?


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AQ Score: 20

Your neurodiverse (Aspie) score: 93 of 200
Your neurotypical (non-autistic) score: 125 of 200
You seem to have both neurodiverse and neurotypical traits

Life isn't what you'd think it be


ASPartOfMe
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14 Jan 2019, 2:17 am

Dvdz wrote:
It really sounds like Lovaas method ABA is something to avoid.

Avoiding something is a choice. When you are a kid other people decide what your life is going to be like.


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VitaLily
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13 Mar 2019, 3:36 am

They don't spend any of their money on helping autistic people and their families, it all goes towards 'cures' and they haven't had one actually autistic person working for them like ever.



Dvdz
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15 Mar 2019, 6:35 am

What exactly do you mean by 'cures'?

What makes you say they haven't had one actually autistic person working for them like ever?



ASPartOfMe
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15 Mar 2019, 10:01 am

VitaLily wrote:
They don't spend any of their money on helping autistic people and their families, it all goes towards 'cures' and they haven't had one actually autistic person working for them like ever.

This is not correct and dated. Three of there thirty member board of directors are autistic. They have a few other autistic people working for them. Cure-was taken out of thier mission statement a few years ago.

Autism Speaks Drops Cure/Prevention From Mission Statement

Autism Speaks Finally Has Autistic Board Member

Third Autistic Person On Autism Speaks Board - Robyn Silber

Autism Speaks Employment Tool Kit


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EpixAndoid
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18 Mar 2019, 4:41 pm

On their homepage, the organization uses “person-first” language to refer to an autistic person. It’s about 2-3rds down the page.



Dvdz
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18 Mar 2019, 8:41 pm

EpixAndoid wrote:
On their homepage, the organization uses “person-first” language to refer to an autistic person. It’s about 2-3rds down the page.


What, do you think, is the difference between "person with autism" and "autistic person"?



ASPartOfMe
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19 Mar 2019, 1:38 am

Dvdz wrote:
EpixAndoid wrote:
On their homepage, the organization uses “person-first” language to refer to an autistic person. It’s about 2-3rds down the page.


What, do you think, is the difference between "person with autism" and "autistic person"?

Person with autism implies that Autism is not part of the person or defines a person. Autistic person implies that autism is part of who that person is or part of their identity


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