“for me, being autistic is brilliant, not a burden”

Page 1 of 3 [ 35 posts ]  Go to page 1, 2, 3  Next

ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,416
Location: Long Island, New York

06 Feb 2023, 11:14 am

I’ve stopped saying I ‘have autism
Nick Ransom is a journalist and founder of the Neurodiverse Media Community

Quote:
I don’t see being autistic as “having” a disorder. Instead, I look at it as a very positive thing. From a young age, it has helped me direct a laser-like focus on achieving my goals. My obsessive mindset and lack of real motivation to socialise accelerated my career in a way that would not have been possible if I had other interests. Achieving my ambitions would have been so much harder if I had not been autistic.

But there is an increasing tendency to use language that demonises this neurological difference. Phrases such as “Nick has autism” or “Nick’s autism” make me cringe as they suggest an ailment that controls and burdens, which feeds into a narrative of struggle, disability and a lack of agency.

Others may feel differently. We are not a homogeneous group, and I recognise a lot of autistic people, particularly the non-verbal community, may have a different lived experience. Learning difficulties and other comorbidities can add an extra complication. But for me there are plenty of positives associated with being autistic, which is why language is so important.

Detail is at the heart of my autistic experience. Pinpointing, examining and finessing brings me the most extraordinary satisfaction, and these traits are, of course, highly useful in the workplace. Unlike many neurotypical people, I feel the most stress when not working. Work offers me structure, routine, order and motivation that helps me thrive and channels my busy mind, which also happens to make me a highly productive member of society.

That’s not to say it is always easy being autistic. At home, I can struggle to contain my emotions, and my partner has to deal with the worst of me. I experience meltdowns when there are communication challenges, unexpected noises or day-to-day tasks that I just can’t complete. I find household chores such as washing and cleaning more overwhelming than the average person. Getting stuck in traffic or just knocking my knee on the side of the bed can be the start of a downward spiral.

Being autistic can be disabling, but changing the way we talk about neurodivergence can inspire confidence. “Being autistic” rather than “having autism” promotes the idea of difference, rather than disability. You can be diagnosed “as autistic” without needing to use the word autism at all, in my view.

Neurodivergent people are more likely to be unemployed than the neurotypical – and autistic people have one of the lowest rates of employment.

As Britain focuses on growing its economy, I see a huge section of the workforce being underutilised and undervalued. With the right support, far more neurodivergent people could enter employment and help this country thrive. It feels more urgent than ever to start highlighting the strengths of neurodiversity, rather than always focusing on people’s difficulties.

The challenge is not insurmountable. It relies on us as a country learning to treat neurodiversity with more positivity – that means being intentional with our language, and how we present autism and other neurodivergent conditions in the media.

I have noticed the opposite of Nick. When I started here a decade ago the only people who used identity first language were people on the spectrum. Style guidelines almost universally required “with autism”. Now usage is interchangeable.

What has not changed is that the vast majority of people on the spectrum prefer “autistic” even people who think of autism as a curse.

As far as Nick’s main point I agree that in general more positive language and expectations is helpful. Saying “he will never be able to” often becomes a self fulfilling prophecy. Some autistics always need 24/7 monitoring. But we should not give up on people at age three or even when they are in 20s and the overuse of positive language can lead to people feeling entitled and using autism as an excuse.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Readydaer
Veteran
Veteran

User avatar

Joined: 19 Dec 2022
Gender: Female
Posts: 864
Location: Gensokyo

06 Feb 2023, 12:20 pm

As someone who views it as a curse about 60% of the time but understands it's who I am, personally the difference is hard to see but I understand why autistic is better than having autism.


_________________
My god. jelly donuts are so scary.


rse92
Veteran
Veteran

Joined: 14 Oct 2021
Age: 64
Gender: Male
Posts: 1,086
Location: Buffalo, NY

06 Feb 2023, 1:34 pm

From my perspective, to call an autistic person autistic is to identify a trait differentiating [us] from equals. I am a (graying) blond person. I am a blue-eyed person. I am an autistic person.

Person first language to me is what you would use to describe an affliction. Person with autism. Person with CP. Person who has cancer. You wouldn't call a person with cancer a "cancerous person".



carlos55
Veteran
Veteran

Joined: 5 Mar 2018
Gender: Male
Posts: 1,793

06 Feb 2023, 2:57 pm

Putting the condition before the person is de-humanising.

An autistic person, implying different to a regular person or human so to be possibly treated differently, maybe a lesser person.

Its a slippery slope to a genetic underclass


_________________
"The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore all progress depends upon the unreasonable man."

- George Bernie Shaw


Edna3362
Veteran
Veteran

User avatar

Joined: 29 Oct 2011
Gender: Female
Posts: 11,482
Location: ᜆᜄᜎᜓᜄ᜔

06 Feb 2023, 7:33 pm

To me, being autistic is just one of the many things I have to manage as a human.

No different from the developed personalities I inherited, no different from programs of upbringing and habit, no different from any talents I acquire or do not acquire, no different from how much my hair frizzes a lot, no different how dark my skin can be instead of having sunburns, no different from the fact that I have to budget as twice my peers who earns at least trice, no different with how people would treat me based on my gender...

No different from figuring my weight, height and movement VS this world's physics and objects.

Some can be overcome, some can change, some are permanent.
The more permanent bits of me are not necessarily the real me, nor are necessarily autism.

Some overshadows, some are more subtle.
The more highlighted parts of me are not necessarily the best or the worst of me.
Autism doesn't overshadow me, not really.

To me, autism is just another 'rule' of mine as a human.
No different than learning my personal source code and trying to unlearn bad habits and reactions due to it.


:shrug:


I do not tell others how they should call themselves.
I do not tell others to stop harming themselves. I do not tell others to save themselves.

All I can provide is context for them.

:twisted: And people who tells a lot of declaratives without owing it as an opinion, usually denies that they're being influenced and claims it is how things should be.


_________________
Gained Number Post Count (1).
Lose Time (n).

Lose more time here - Updates at least once a week.


autisticelders
Veteran
Veteran

User avatar

Joined: 23 Feb 2020
Gender: Female
Posts: 1,995
Location: Alpena MI

07 Feb 2023, 5:20 am

I use the terms interchangeably depending on the situation and the person I am talking to about it. I hate that people are becoming militant and trying to force others to use one or the other. Is that an example of autistic rigid thinking? (rhetorical question) Thanks for this post and for your valuable comments.


_________________
https://oldladywithautism.blog/

"Curiosity is one of the permanent and certain characteristics of a vigorous intellect.” Samuel Johnson


kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

07 Feb 2023, 8:09 am

Semantically, a “cancerous person” bears a worse connotation than “a person with cancer.”

I am under the impression that a “autistic person” and “a person with autism”carry the same connotation to most people.



ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,416
Location: Long Island, New York

07 Feb 2023, 10:01 am

carlos55 wrote:
Putting the condition before the person is de-humanising.

An autistic person, implying different to a regular person or human so to be possibly treated differently, maybe a lesser person.

Its a slippery slope to a genetic underclass

It might be different in the UK but in the U.S. if multiple identities are listed the last identity is considered the primary identity. When speaking of “African-Americans” it is commonly understood that Americans are being talked about not Africans ie “Americans of African Heritage”

If a person says “I’m Italian”, unless the person says they are an Italian citizen it is assumed the person is describing their ethnic background, not saying the are not American, If they say they are gay it is understood that they believe they are a person.

autisticelders wrote:
I use the terms interchangeably depending on the situation and the person I am talking to about it. I hate that people are becoming militant and trying to force others to use one or the other. Is that an example of autistic rigid thinking? (rhetorical question) Thanks for this post and for your valuable comments.

You are welcome.

Person first language was part of the larger movement that became known as political correctness. But “political correctness” and the “wokeness” that followed it did become militant and that turned me and many others off. Seven or eights years ago one could not look at a comment section of a video or article about autism without one or several people demanding we stop using “autistic” and use “person with autism” because “autistic” is offensive. What I found offensive was people with six decades less experience then me at being autistic telling me what I should find offensive.

kraftiekortie wrote:
Semantically, a “cancerous person” bears a worse connotation than “a person with cancer.”

I am under the impression that a “autistic person” and “a person with autism”carry the same connotation to most people.

My perspective on this matter is informed by being both autistic and a cancer survivor. Cancer is something that occurred in my late 50s. I viewed it as a unwanted invader. I wanted it gone. So to me I was a “person with cancer” or “had cancer”. The idea of identifying as cancer is ludicrous to me. Autism is probably genetically wired in me so I view it as completely different from cancer.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Last edited by ASPartOfMe on 07 Feb 2023, 11:25 am, edited 4 times in total.

Jakki
Veteran
Veteran

User avatar

Joined: 21 Sep 2019
Gender: Female
Posts: 10,193
Location: Outter Quadrant

07 Feb 2023, 10:31 am

yes , i do like the brilliant aspects of Autism . And oddly as much as it has had its problems , It has provided me many unexpected benefits , and has helped with survival. But other traits no so much...


_________________
Diagnosed hfa
Loves velcro,
Quote:
where ever you go ,there you are


MagicMeerkat
Veteran
Veteran

User avatar

Joined: 11 Jun 2011
Age: 37
Gender: Female
Posts: 2,831
Location: Mel's Hole

09 Feb 2023, 6:53 pm

I don't suffer from autism, I suffer from the arrogance and apathy of other people. Things that bother me don't bother other people, things that do bother me don't bother other people. I feel like functioning labels for autistic people depend on how much of a "burden" other people find that person to be.


_________________
Spell meerkat with a C, and I will bite you.


Joe90
Veteran
Veteran

User avatar

Joined: 23 Feb 2010
Gender: Female
Posts: 26,492
Location: UK

09 Feb 2023, 9:25 pm

"Autistic" and "with autism" are the same meaning to me.

I don't relate to this guy though. Although I'm high-functioning I've never been able to achieve ambitions by hyperfocusing and lack of interest in socialising.

I don't know what he means by "unlike neurotypical people I feel the most stress when not working", as I thought work was more stressful for Aspies. In my experience most neurotypicals seem able to put their emotions aside and carry on going to work every day without feeling panicky by pressure or the monotony of routine, while even though I enjoy my job I still mostly would rather be at home where I can do what I like when I like. I do like the social part of work though.

I seem to be one of those "neurotypical Aspies" where my ASD symptoms aren't typical of an ASD person and just make me quirky and nervous.


_________________
Female


Texasmoneyman300
Veteran
Veteran

Joined: 25 Feb 2021
Age: 33
Gender: Male
Posts: 2,296
Location: Texas

10 Feb 2023, 3:01 am

Being autistic is mostly a curse to me and its one of the worst things that has happened to me.It has ruined my life.Its been far from a blessing to me.Obviously, I have a very different experience as aspie than the journalist does with his autism.



klanka
Veteran
Veteran

Joined: 31 Mar 2022
Age: 46
Gender: Male
Posts: 1,888
Location: Cardiff, Wales

10 Feb 2023, 7:04 am

Texasmoneyman300 wrote:
Being autistic is mostly a curse to me and its one of the worst things that has happened to me.It has ruined my life.Its been far from a blessing to me.Obviously, I have a very different experience as aspie than the journalist does with his autism.

I think aspies who have found success and a place in this world write these articles and write the famous books.
It doesn't represent the experience of the majority.
I can't imagine a newspaper or website wanting to go with an headline that says 'autism f*****g sucks'



carlos55
Veteran
Veteran

Joined: 5 Mar 2018
Gender: Male
Posts: 1,793

10 Feb 2023, 7:35 am

Just a form of inspiration porn and ableism

Ableism because these articles are not balanced and more disabled autistic people are uninteresting

Where’s the articles from the 40% ID autistic people what about from the 30% who have epilepsy sometimes having seizures every day

They prefer such people hidden away out of sight.

Don’t want any of those spoiling the beautiful picture


_________________
"The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore all progress depends upon the unreasonable man."

- George Bernie Shaw


Joe90
Veteran
Veteran

User avatar

Joined: 23 Feb 2010
Gender: Female
Posts: 26,492
Location: UK

10 Feb 2023, 9:32 am

klanka wrote:
Texasmoneyman300 wrote:
Being autistic is mostly a curse to me and its one of the worst things that has happened to me.It has ruined my life.Its been far from a blessing to me.Obviously, I have a very different experience as aspie than the journalist does with his autism.

I think aspies who have found success and a place in this world write these articles and write the famous books.
It doesn't represent the experience of the majority.
I can't imagine a newspaper or website wanting to go with an headline that says 'autism f*****g sucks'


Most of these articles seem to be subtly telling us that if we're not low-functioning we can accomplish anything because we have such excellent hyperfocus tendencies that can go a long way in life. It's really annoying.
It's like they're saying "you're autistic, therefore you have an intelligent special interest that you can hyperfocus on and build your dreams!"
Um, no, that only works for the Aspies with high IQs. I don't have a high IQ. My IQ is of the average neurotypical, maybe even slightly below in some areas. That is why I feel like a neurotypical a lot of the time.


_________________
Female


Readydaer
Veteran
Veteran

User avatar

Joined: 19 Dec 2022
Gender: Female
Posts: 864
Location: Gensokyo

10 Feb 2023, 10:11 am

Joe90 wrote:
klanka wrote:
Texasmoneyman300 wrote:
Being autistic is mostly a curse to me and its one of the worst things that has happened to me.It has ruined my life.Its been far from a blessing to me.Obviously, I have a very different experience as aspie than the journalist does with his autism.

I think aspies who have found success and a place in this world write these articles and write the famous books.
It doesn't represent the experience of the majority.
I can't imagine a newspaper or website wanting to go with an headline that says 'autism f*****g sucks'


Most of these articles seem to be subtly telling us that if we're not low-functioning we can accomplish anything because we have such excellent hyperfocus tendencies that can go a long way in life. It's really annoying.
It's like they're saying "you're autistic, therefore you have an intelligent special interest that you can hyperfocus on and build your dreams!"
Um, no, that only works for the Aspies with high IQs. I don't have a high IQ. My IQ is of the average neurotypical, maybe even slightly below in some areas. That is why I feel like a neurotypical a lot of the time.


i kind of feel the same way but instead of the IQ thing I just feel like my biggest special interest (videogames) is utterly useless in life so I feel sad when I see those types of articles.


_________________
My god. jelly donuts are so scary.