"'Autism Speaks' - but Should We Listen?"
conundrum
Veteran
Joined: 25 May 2010
Age: 44
Gender: Female
Posts: 2,922
Location: third rock from one of many suns
http://news.yahoo.com/autism-speaks-lis ... itics.html
_________________
The existence of the leader who is wise
is barely known to those he leads.
He acts without unnecessary speech,
so that the people say,
'It happened of its own accord.' -Tao Te Ching, Verse 17
autism maybe the snake oil or leatrile of the 21st century but however i have in recent articles read,have seen improvements.they have made many mistakes in the past but i believe they are improving.
also what is the ASAN doing that is so great
_________________
Forever gone
Sorry I ever joined
KingdomOfRats
Veteran
Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK
interesting article,good to see ari and ASAN getting a shout out on it.
am just fed up at the number of parents who paint those of us on the severe or profound spectrum-with intelectual disability as being in need of a cure and HFAs considered cured-
its an insult to us,and an insult to HFAs, as its denying the autism on one side and making a tragedy out of another.
people shoud come to us before they speak for us,many of us with LFA are able to speak in alternative communication such as this forum/text but unable to speak the same capacity verbaly,if only parents had more experience of autism outside of childhood and outside of their own childs experience.
am fed up at being portrayed as a tragedy,am completely the opposite and love life but that is because have got significant specialist support ,multi disciplinary input from an intelectual disability team and equipment to deal with impairments as they come.
_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!
Last edited by KingdomOfRats on 15 Jun 2014, 8:06 am, edited 1 time in total.
I'm a supporter of ASAN, because they promote positive awareness of AS and autism and they don't use the scare tactics that Auti$m $peak$ does. ASAN also believes that people on the spectrum should be born into this world and that there shouldn't be genetic testing for ASDs. I don't feel that Spectrumites or any disabled population of humans should be weeded out for that matter. In my mind and in my heart, there is something wrong with aborting babies who have any genetic defects. I also don't believe in the perfect race, either.
ASAN does the opposite of what Auti$m $peak$ does, and that's why I support them. Autism Speaks will never speak for me.
_________________
Who wants to adopt a Sweet Pea?
KingdomOfRats
Veteran
Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK
totaly agreed cockneyrebel!
and thats exactly why AS hates ASAN and everything it stands for,ASAN give us a voice and a better portrayal in society whereas AS want to portray us as either tragedies [or the opposite for HFA -non existant].
we are the ones living our lives-its not up to them to force their own perception of our lives on us.
_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!
am just fed up at the number of parents who paint those of us on the severe or profound spectrum-with intelectual disability as being in need of a cure and HFAs considered cured-
its an insult to us,and an insult to HFAs, as its denying the autism on one side and making a tragedy out of another.
people shoud come to us before they speak for us,many of us with LFA are able to speak in alternative communication such as this forum/text but unable to speak the same capacity verbaly,if only parents had more experience of autism outside of childhood and outside of their own childs experience.
am fed up at being portrayed as a tragedy,am completely the opposite and love life but that is because have got significant specialist support ,multi disciplinary input from an intelectual disability team and equipment to deal with impairments as they come.
great post.sublime
_________________
Forever gone
Sorry I ever joined
Autism Speaks is an advocacy group for parents with kids on the spectrum - it's main goal is to provide a platform for parents to whine about how we ruined their lives, not to help us.
I volunteered for Autism Ontario which is a similar organization. They looked at me like I was an untouchable ... and then continued discussing how burdened they are by their children. My presence seemed to make them feel awkward and uncomfortable.
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 66
Gender: Male
Posts: 34,406
Location: Long Island, New York
am just fed up at the number of parents who paint those of us on the severe or profound spectrum-with intelectual disability as being in need of a cure and HFAs considered cured-
its an insult to us,and an insult to HFAs, as its denying the autism on one side and making a tragedy out of another.
people shoud come to us before they speak for us,many of us with LFA are able to speak in alternative communication such as this forum/text but unable to speak the same capacity verbaly,if only parents had more experience of autism outside of childhood and outside of their own childs experience.
am fed up at being portrayed as a tragedy,am completely the opposite and love life but that is because have got significant specialist support ,multi disciplinary input from an intelectual disability team and equipment to deal with impairments as they come.
^^
THIS
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
It is Autism Acceptance Month
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
Similar Topics | |
---|---|
School permission slip to listen to black authors |
17 Feb 2024, 10:07 pm |
Autism |
13 Mar 2024, 7:44 am |
Autism |
31 Jan 2024, 12:58 am |
Grief and Autism |
13 Feb 2024, 1:53 pm |