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ASPartOfMe
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20 Dec 2019, 4:14 am

Early intervention for autism is important. My son is proof of that.
Jackie Spinner was a staff writer for The Washington Post for 14 years. She is now an associate professor of journalism at Columbia College Chicago and executive producer of “Don’t Forget Me,” a documentary on autism in Morocco, where her sons were born.

Quote:
For the first time in 12 years, the American Academy of Pediatrics updated its guidelines this week for diagnosing children with autism, focusing on the importance of intervention and therapy, even in infants.

If there were a poster child who further underscored that, my 5-year-old son would be him.

When my son was diagnosed with autism at about 2 years old, he started therapy immediately. By the time he began kindergarten this year, all of his behavior seemed age-appropriate. He was social and talkative, a ringleader among his peers. In comparison, his 7-year-old brother, also diagnosed with autism as a toddler, still struggles with social interactions, with changes in his routine and with rigid, repetitive behavior — classic signs of autism.

I wasn’t all that surprised when the developmental pediatrician officially confirmed last week, after additional testing and evaluation, that my youngest son no longer meets the criteria for autism.

I’ve started to tell people slowly because I’ve been hesitant to perpetuate the idea that he was “cured.” That suggests there is something inherently wrong with being autistic or something to celebrate now that he isn’t. When my youngest son learned he wasn’t autistic anymore, he solemnly brought the news home to his brother. “You’re autistic, and that’s okay,” he told his brother. “But I’m not. We’re different.” He grieved this loss, of what he perceived to be a shared exceptionalism, for days.

Peter J. Smith, an associate professor of pediatrics and neurological disorder expert at the University of Chicago medical center, said he also doesn’t use the word “cured” for children who no longer meet the criteria for autism because it emphasizes the medical nature of how autism is fundamentally viewed and treated.

As the behavior changes, the diagnosis can change, Smith said.
“I think this is probably going to happen more as time goes on for a bunch of reasons,” he said. “We keep changing the criteria. We’re getting therapy involved earlier, and children are changing.”
Smith said an autism diagnosis is not “all bad.”
“That’s really true,” he said. “It’s not just my embracing the disability rights movement, which I do. Human variation isn’t single-directional.”

For my children, their autism diagnosis has been a key to resources, ensuring they had access to accommodations and, most important for my oldest son, that insurance paid for his behavior therapy. The autism diagnosis gave me leverage that I lost when the doctor at Lurie Children’s Hospital of Chicago made my youngest son’s autism diagnosis “inactive” and replaced it with ADHD. It will be harder to press for the support he needs, particularly at school, even though many of the behaviors associated with ADHD can be addressed through some of the same behavioral interventions as autism.

The new guidelines are based on a clinical report published in the January 2020 issue of Pediatrics. That report noted that 9 percent of the children diagnosed with autism at an early age may not meet diagnostic criteria for autism by young adulthood. That’s how important early intervention and therapy may be for helping autistic children acquire necessary social and communication skills.

“The first really important part is early identification and referral for treatment,” said Susan E. Levy, a co-author of the report. “The second is that autism is not just autism alone. There are many children affected by other behavior and medical issues. Behavior interventions, plural, are important.”

The report also emphasizes the importance of other therapeutic models beyond applied behavioral analysis, or ABA, which is the most common behavioral therapy used for autistic children and the one that insurance companies prefer. Many autistic adults have pushed back against ABA in recent years, criticizing it for trying to force autistic children to behave in a way that is counter to how their brains work. (My own sons did ABA, and there are elements of it that seemed to benefit them, but we now do other therapy.)

The clinical report specifically calls attention to “DIR Floortime,” a relationship-based therapy, and TEACCH, which emphasizes structure in a classroom setting, including predictable organization of activities and use of visual schedules. By doing so, it may make it easier for parents to lobby for insurance coverage.
“There’s more data available and emerging evidence of other types of behavior intervention, particularly those that involve parent teaching,” Levy said.

The new guidelines reflect significant changes in the medical field’s understanding of autism since 2007, including when symptoms overlap with other issues such as intellectual disability, language disorders, attention-deficit/hyperactivity disorder, anxiety, seizures and sleep, feeding and gastrointestinal problems.
That’s important because even when a child loses an autism diagnosis, they still may have other disorders or lingering issues (like my son’s ADHD).

In a study published earlier this year in the Journal of Child Neurology, researchers at the Albert Einstein College of Medicine and Montefiore Health System found the vast majority of children who lose their autism diagnosis still have difficulties that require therapeutic and educational support.

In the study, the researchers reviewed clinical records of 569 patients who were diagnosed with autism between 2003 and 2013 in the Bronx. The majority had received early intervention services, a mix of speech and occupational therapies, special instruction and ABA.

At follow-up, 7 percent of the original patients no longer met the diagnostic criteria for autism spectrum disorder. But the majority had other issues, including language or learning disabilities, ADHD, oppositional defiant disorder, mood or anxiety disorders. Only 8 percent had no other problems and were considered to have “recovered” from autism.
“I think there are kids for whom the early ASD diagnosis is a sign that something is awry that will need to declare itself over time,” said lead author Lisa Shulman, a physician and interim director of the Rose F. Kennedy Children's Evaluation and Rehabilitation Center at Montefiore. “I also think there are some kids who really respond to intervention but have some leftover stuff. I think some kids are a combination of those two groups. And I think some kids are given the diagnosis early who don't warrant it by error or design.”

It’s hard to say for certain which of these was the case for my youngest son. Frankly, I’m not sure it matters.

I asked Smith, of the University of Chicago, about this. “Would he have evolved this way without intervention? I’m convinced by the data that you did change his course,” Smith said. “I’m not so hung up on the diagnosis.”
That’s good enough for me.


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carlos55
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20 Dec 2019, 6:43 am

More contradictory and hypocritical language from the mildly impaired elite of the autism tree.

Quote:
When my son was diagnosed with autism at about 2 years old, he started therapy immediately. By the time he began kindergarten this year, all of his behavior seemed age-appropriate. He was social and talkative, a ringleader among his peers.


Wow "a ringleader among his peers" what a clever boy, I think your suggesting that being neurotypical is a good thing here?

Compared to:

Quote:
In comparison, his 7-year-old brother, also diagnosed with autism as a toddler, still struggles with social interactions, with changes in his routine and with rigid, repetitive behavior — classic signs of autism.


Then the classic hypocritical line from their position of privilege (i.e now cured unlike others):

Quote:
I’ve been hesitant to perpetuate the idea that he was “cured.” That suggests there is something inherently wrong with being autistic or something to celebrate now that he isn’t.


So why bother with the therapy then Jackie if autistic behaviours are not a negative and curing a negative is not something to celebrate? Why don’t people just tell the truth why all the BS?



ASPartOfMe
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20 Dec 2019, 11:31 am

There are four main possibilities only two of them mentioned in the article.

1. The people who lose their diagnosis are “losing” a misdiagnosis, they were never autistic in the first place.

2. The losing diagnosis is false, what is being observed is a temporary easing of ”symptoms”, sometime in the future with increased expectations and responsibilities the observable traits/symptoms will come roaring back.

3. The amelioration of traits/symptoms was not caused by interventions but by the maturation process.

4. The intervention(s) caused the amelioration of traits/symptoms which is a cure albeit a partial one because in most of these cases the person is left with lingering issues.

This article in a mainstream publication is a commercial for early interventions and ABA couched in neurodiversity movement language. These type of articles are better then those peddled by snake oil salesmen only by degree. This particular commercial is better then most in acknowledging possibility 1. What is rarely if ever mentioned in these type articles is possibilities 2 and 3. There seems to be no concept that autistic people mature and learn coping mechanisms.


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carlos55
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20 Dec 2019, 1:20 pm

The seems to be a hardcore percentage of autistic kids who loose the diagnosis, usually replaced by other psychiatric disorders latter on, they all tend to have a high IQ and good gross motor skills upon first presentation, so there`s probably a link there.

https://www.unz.com/isteve/the-kids-who-beat-autism/



Mona Pereth
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24 Dec 2019, 2:53 am

carlos55 wrote:
The seems to be a hardcore percentage of autistic kids who loose the diagnosis, usually replaced by other psychiatric disorders latter on, they all tend to have a high IQ and good gross motor skills upon first presentation, so there`s probably a link there.

My guess is that these kids have the ability to mask well enough to stop fitting behavior-based diagnostic criteria for "autism," and that the subsequent psychiatric disorders are caused by the stress of masking in ways that are still very unnatural for these people, even if doable.

Anyhow, is there any particular reason why you're citing an article by a controversial figure like Steve Sailor in the Unz Review, rather than a more mainstream source? You do know who Steve Sailor is, right?


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carlos55
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24 Dec 2019, 4:52 pm

mona wrote:
Anyhow, is there any particular reason why you're citing an article by a controversial figure like Steve Sailor in the Unz Review, rather than a more mainstream source? You do know who Steve Sailor is, right?


No I didn't know who he was im from the UK & don't agree with his controversial views unrelated to autism, the same article title was hidden behind pay walls elsewhere.

https://www.thetimes.co.uk/article/the- ... prjbp6zvgc

https://www.nytimes.com/2014/08/03/maga ... utism.html