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rabo
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25 Apr 2021, 2:35 pm

Hi, community,
Does anybody here know well-done blogs on neurodiverse topics? There are a couple of blog lists out there if you ask a search engine. But many of them were just started, have two or three posts and were abandoned after some time.

If you could post here your favourite blogs, that would be great!
Thanks
rabo



Jiheisho
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25 Apr 2021, 2:38 pm

https://musingsofanaspie.com/ (although it has no new posts, the posts it does have are very valuable)

http://www.thinkingautismguide.com/

https://www.spectrumnews.org/



rabo
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25 Apr 2021, 3:54 pm

Thanks a lot. I will have a closer look soon.



rabo
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26 Apr 2021, 5:25 pm

Thanks, I had a look, those are very interesting sites!

Maybe someone knows additionally websites of persons that write about their personal experiences. (Like the first one, https://musingsofanaspie.com/) Websites of organisations are also interesting, but personal sites are harder to find. Unfortunately, most of them give up after publishing two or three articles.
Thanks
Raphael



Dvdz
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26 Apr 2021, 7:22 pm

http://www.thinkingautismguide.com/ is one of the worst sites out there.

Their mission is to be a "a one-stop source for carefully curated, evidence-based, neurodiversity-steeped information from autistic people, parents, and autism professionals" but they actually care more about ideology than facts.

For example:
They tweeted out a link to an article on Spectrum (https://twitter.com/thinkingautism/status/1106571342386618368) with the claim that autistic women are 3X as likely as autistic men to try to end their lives. But when I pointed out that there was no basis to that claim they just blocked me instead.



Mona Pereth
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30 Apr 2021, 11:37 am

Dvdz wrote:
For example:
They tweeted out a link to an article on Spectrum (https://twitter.com/thinkingautism/status/1106571342386618368) with the claim that autistic women are 3X as likely as autistic men to try to end their lives. But when I pointed out that there was no basis to that claim they just blocked me instead.

What was the exact wording of your tweet?

It might have been best to say something like "Typo here? The linked article says autistic women are 3X as likely as non-autistic women (NOT autistic men) to try to end their lives."

If, instead, you said, "There is no basis for this claim," then the person you were replying to might have jumped to the conclusion that you were simply ignoring the fact that she was citing a well-respected scientific news source, which in turn cited an academic paper.


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Dvdz
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30 Apr 2021, 5:32 pm

The article used to say: "Autistic women like me are five times as likely as non-autistic women—and 3X as likely as #autistic men—to try to end their lives."

After I told Spectrum about the mistake, they edited the article.

My tweet is the only response to it: https://twitter.com/ZedDeeCee/status/11 ... 0887665665 where I said:

Quote:
The Utah study cited showed no difference in the relative risk of suicide between ASD men and women. Even the Swedish study linked showed the same: 0.32% of ASD women vs 0.30% ASD men

Where did the 3X statistic come from?

@Spectrum
, please fact-check before you publish articles


I even checked with the author of the scientific paper that was cited in the article and even she said that that claim was a mistake: https://twitter.com/avkirbyPhD/status/1 ... 8095506432

Thinking Person's Guide to Autism and Sara Luterman (author of the article) are clearly wrong here.

Anyway, there is something really wrong with a site that claims to be rational and evidence based but blocks people for fact checking them.



Mona Pereth
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30 Apr 2021, 11:41 pm

Thanks for telling me about the change to the Spectrum News article. At least they corrected the error, as any reasonable science news publication would.

Dvdz wrote:
My tweet is the only response to it: https://twitter.com/ZedDeeCee/status/11 ... 0887665665 where I said:

Quote:
The Utah study cited showed no difference in the relative risk of suicide between ASD men and women. Even the Swedish study linked showed the same: 0.32% of ASD women vs 0.30% ASD men

Where did the 3X statistic come from?

@Spectrum
, please fact-check before you publish articles

For clarity, it might have been better if you had asked your question about the 3X statistic first, rather than buried after after the details. Your wording above could have confused some people (especially people with some kinds of attention difficulties), because your main point isn't immediately obvious. But, be that as it may ....

Dvdz wrote:
Anyway, there is something really wrong with a site that claims to be rational and evidence based but blocks people for fact checking them.

You don't know why she blocked you. For all you know, she might have clicked on your name and then seen some other tweet of yours that offended her. Who knows? Also, had you ever had any other interactions with her on Twitter (or elsewhere) in the past?


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Dvdz
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01 May 2021, 4:40 am

Quote:
You don't know why she blocked you. For all you know, she might have clicked on your name and then seen some other tweet of yours that offended her. Who knows? Also, had you ever had any other interactions with her on Twitter (or elsewhere) in the past?


The rational thing to do even if some of my other tweets were offensive would be to check their claim against the evidence I presented anyway. Offensive people can be factually correct about some things too.



rabo
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02 May 2021, 4:39 pm

Jiheisho wrote:
https://musingsofanaspie.com/ (although it has no new posts, the posts it does have are very valuable)

http://www.thinkingautismguide.com/

https://www.spectrumnews.org/


Thanks! https://musingsofanaspie.com is really very interesting. Unfortunately, she stopped working on it. If anybody knows more blogs/ website on autism that would be great!



autisticelders
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07 May 2021, 5:18 am

Late diagnosed elderly adult trying to find my way from the new perspective that autism diagnosis gives me.

https://oldladywithautism.blog/author/debrabrisch3436/


learning how to be autistic and becoming old at the same time.



rabo
Tufted Titmouse
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08 May 2021, 5:39 pm

Thank you for listing your blog. I am older too (56 to be exact) and I will read it carefully.