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sitko
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05 Mar 2021, 4:16 pm

I'm pretty new to Autism and C-PTSD, both of which I have. I'm still learning, but am curious, if you've ever suffered and recovered (even slightly) from trauma, please share what worked best for you. I'm trying to find a good psychologist, that may be able to assist with that. My current therapist doesn't do trauma.

And if you can get specific, with which therapies worked well for you, which ones didn't.

Thanks.



ImeldaJace
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10 Mar 2021, 6:15 pm

I have autism and C-PTSD too. I'm definitely not recovered from my trauma and I don't know if I ever will fully because of how much it has affected how I interact with the world and myself. Some of my traumas occurred so young that I literally can't imagine my life without c-ptsd. I have improved, though improvement is not a straight forward thing and there are times when things get bad again usually when I have a big stressor in my life.

What's helped me the most is working with a trauma specialist. He diagnosed me the very first appointment and helped me realize just how early my trauma began. Even just having a name for what was going on helped me because I could identify things for what they really were, like emotional flashbacks not just being meltdowns. But the biggest difference has been with doing EMDR. It's exhausting and I joke that it's like having surgery on my memories, but it's really powerful and helpful. Though the bulk of what I've done with my trauma therapist has been talk therapy, that can be really helpful too.

I think it's really really important to work with a trauma specialist. Other therapists have tried to work on my trauma with me and sometimes they've accidentally just made things worse. There are so many nuances to trauma, especially complex trauma, that most therapists just don't know about or know how to pick up on. Other therapists have misidentified the root of symptoms or thought patterns and/or have just tried to work on the surface of things which doesn't really help especially with long-term improvement. I have done some Cognitive Behavioral Therapy but I've mostly found that helpful with some day to day anxieties, but it doesn't help with more deep seated trauma issues.


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11 Mar 2021, 8:21 pm

I am also OSDD, but not the system kind though i was a system at one point but that was only for a short period the brain is to solid to have that develop aftera certain age. The amount of peopel with ptsd and cptsd is quite high int he autism community for wahtever eason. [/color]


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IsabellaLinton
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25 Mar 2021, 10:49 pm

I just saw your post. I am diagnosed C-PTSD and Autism Level 2. I suffer from emotional flashbacks and I also have what I call temporal flashbacks. Certain days of the calendar, entire months or seasons, and even types of weather or temperatures can trigger me. Days of the week and times on the clock can do it too. April is the worst for me in terms of temporal memories.

I was inpatient following my trauma. That's where I met my saviour who was my trauma psychologist from 2009-2019, but he developed dementia and I've been adjusting to a new therapist since last summer. It was very difficult for me to transition and to trust someone new but I think I've been fairly successful.

EMDR was a disaster for me, leading to a stroke. I couldn't handle whatever my brain was processing. I think it was too much, too fast, or else the practitioner wasn't an expert. I will never try it again though. CBT doesn't help me at all. In fact it makes me feel like a failure, because I can't outsmart my thinking patterns or temper my thoughts and emotions at will.

I work with a PTSD Occupational Therapist and a Trauma Psychologist as well as my Neuropsych for ADHD. Together we seem to be forging ahead but I agree that C-PTSD cannot be cured. It's important to celebrate the good days, and be kind to yourself as much as possible in this journey through hell.

Thanks for sharing and reaching out.



kitesandtrainsandcats
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25 Mar 2021, 10:56 pm

sitko wrote:
And if you can get specific, with which therapies worked well for you, which ones didn't.

Thanks to ME/CFS today is not a day for getting specific with original content from my own brain but I can say that yes I was diagnosed with cPTSD, about 20 years ago.


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sitko
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31 Mar 2021, 3:21 pm

I've been struggling to find a psycologist who has experience with Autistic sufferers of C-PTSD, I've been looking for 4 months now, and haven't found one, anywhere, but especially in my area (Tennessee, USA).

If anyone knows a good psychologist who specializes in Autism and C-PTSD recover, and who would be comfortable dong all the sessions by tele-medicine, could you recommend names/numbers/contact info?

Even better if they are also in the "Zelis: First Health" network, as that's the network my insurance covers.

Thanks,
Sitko42.