Yay! I'm not going to ever live in a nursing home

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GoatOnFire
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19 Jun 2009, 1:42 am

Because I'm not going to live long enough...

http://www.dailymail.co.uk/health/artic ... onger.html

But for all you lifeaholics who wouldn't mind living into their 70s and 80s even if it means bedpans and applesauce, this is bad news for you if your AS makes it hard to make friends.

I guess the question is whether this is depressing news or good news.


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Woodpecker
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19 Jun 2009, 2:06 am

I do not want to end my days in a old folks home packed with NTs rotting away, I think that a old folks home for HFA and AS might be a better place. I do not know if such a place will ever exist.


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SteveeVader
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19 Jun 2009, 2:44 am

i WANT TO DIE gloriously like ronald reagan into a glorious descent of dymensia, sorry I had to quote American dad but yay we don't have to die in puddles of our urine anymore



ToughDiamond
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19 Jun 2009, 5:46 am

Hmmm....they don't say how much longer you get if you have lots of friends. And they don't examine the quality of health during the final years of life - that's crucial: if you go from good health to death fairly quickly, then you'll probably keep out of the old people's home, but if your health fails and you hang on for years, you'll most likely get incarcerated, unless you can persuade your friends to look after you at home, which suggests that NTs have the advantage. Then there's the AS problem about looking after ourselves.

I agree though, they're horrible places......seems very undignified to be expected to give up so many areas of independence. Then there's all those reports of the staff bullying and neglecting the clients. Dad used to say there was only one way he'd leave his home - in a box. He got that one right - died unexpectedly of heart failure.

Aren't I the one to bring the sun out today? :roll:

There is hope though - the care homes have probably cleaned up their act after numerous prosecutions, and I think the authorities often prefer to let people stay at home where it's reasonably safe to do that. I think it takes a lot for them to actually force somebody out against their will.
Best get practising those self-help skills and clean living before it's too late.



zer0netgain
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19 Jun 2009, 7:40 am

I wanted to live a very long life. In some ways, I still do.

However, once I realized that there was a different between surviving and living, I decided that when the time comes that daily life is nothing but pain and suffering, I'd just as soon be dead.



sinsboldly
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19 Jun 2009, 8:05 am

I work with health insurance for the elderly and I am often nonplussed at the whole life time comprised of going to one doctor and another and the hospital and the skilled nursing facility and the hospice. Twenty, thirty years of it. Each one of these people could tell you why, of course, but I still can't fathom it.

"Hope I die before I get old" (My Generation The Who)



Izzy_Dolphin
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19 Jun 2009, 8:16 am

"Life is not measured by the breaths you take but by the moments that take your breath away."
--Anonymous
(according to my source, and since I can't remember where I found it/heard it first, I'll guess its that. If someone can find who said it and correct me, that would be great.)

So have fun with your life... that's more important anyway. And I don't want to live past when I can not take care of myself. I don't want to have to depend on other people in order to function. At that point I'd rather not continue to live.


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ToughDiamond
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19 Jun 2009, 9:12 am

Izzy_Dolphin wrote:
"Life is not measured by the breaths you take but by the moments that take your breath away."
--Anonymous
(according to my source, and since I can't remember where I found it/heard it first, I'll guess its that. If someone can find who said it and correct me, that would be great.)

George Carlin.
And you quoted it correctly.
8)



Psygirl6
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19 Jun 2009, 9:39 am

I hate nursing homes. it does not matter if they have nursing homes for people with As/autism nor nursing homes for NT's. Actually the nursing home for As/autism would be a lot worse, since because of the disability nature, it would be just as bad or even worse than the mental institutions, where they would treat people like ingrates and restrain people. i live in a residence for disabled people and it is pretty bad. They treat me like garbage. A nursing home would be a lot worse. the sad thing is I would feel unsafe because, since I live where i live, i get physically attacked by the autistic housemates now. In a nursing home, the people would be older, groggier and some would probably have Alzheimer's and/or dementia, where their aggressive behaviors because unmanageable, they may be more violent now, than they ever were. In my state, the state mental institution has a over 65 state nursing, specifically for developmentally disabled people and it is pretty bad. Most of the people are developmentally disabled, autistic, and/or mentally retarded that either came from group homes, or were in the regular state institution all of their adult lives.
I am scared about what i would be like when i get older and I do not know the incidence of Alzheimer's and/or dementia in As/autistic people, yet, since there has not been a study about those things yet. hopefully, by the time I am old, they would have a cure for Alzheimer's. my grandmother died from it, and my dad has it, now.



KingdomOfRats
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19 Jun 2009, 9:54 am

GoatOnFire wrote:
Because I'm not going to live long enough...

http://www.dailymail.co.uk/health/artic ... onger.html

But for all you lifeaholics who wouldn't mind living into their 70s and 80s even if it means bedpans and applesauce, this is bad news for you if your AS makes it hard to make friends.

I guess the question is whether this is depressing news or good news.

am thought that humans were going to die before they get to old age now anyway [being the greedy fat lazy species that daily mail and so on like to complain about using up NHS funds],am do not have the wish nor the interaction and communication ability for friends and neither would want to live to a very old age,and have less quality of life than do have already,people who get to very old age and not get one of the big life wasting diseases are very lucky.

Quote:
I do not want to end my days in a old folks home packed with NTs rotting away, I think that a old folks home for HFA and AS might be a better place. I do not know if such a place will ever exist.

old HFAuties and Aspies whom have full time care needs carry on living in regular LD/DD/specialist residential care,only moving to nursing homes if the service and home they are in cannot cope with the nursing needs they have.


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LostInSpace
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19 Jun 2009, 11:48 am

Even young people can end up in nursing homes though, like if they have a stroke or a head injury or some other serious accident which means they can no longer be cared for at home (a nursing home is cheaper than 24 hour nursing care in the home). I work at a rehab hospital, and we have plenty of younger people who go to nursing homes after they leave us.


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Age1600
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19 Jun 2009, 12:01 pm

I have no friends haha, whatsoever, nor i do have the erge to want friends either, so guess im dying young as well haha...


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mechanicalgirl39
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19 Jun 2009, 1:12 pm

I don't ever want to get so old that I can't look after myself.

If I ever start getting to that stage, I think I will be going a little too fast over a drop that's a little too high while mountain biking. (If you get what I mean there....)


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19 Jun 2009, 1:30 pm

Who knows if we'll be so indifferent to dying before old and sick age when the time comes. I can't be sure I won't change my mind till then.


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Hovis
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19 Jun 2009, 4:32 pm

ToughDiamond wrote:
There is hope though - the care homes have probably cleaned up their act after numerous prosecutions, and I think the authorities often prefer to let people stay at home where it's reasonably safe to do that. I think it takes a lot for them to actually force somebody out against their will.


I work in adult social care, and I can confirm that - even if it's sometimes suspected to be purely because it's cheaper - the authority will try and keep the person in their own home (perhaps with a home care service visiting to assist them) for as long as they can before placing them in full-time residential care. There have even been incidents where the person wished to go into a residential home, but the authority insisted on assessing them as being capable of looking after themselves. So although this latter is not a good thing, it is quite safe to say that you are more at risk of not being able to secure a care home place when you do want one, than being forced into one that you do not.

I believe that they are actually legally unable to place someone in residential care against their will. Unless a doctor declares them to be psychologically unable to make rational decisions and they are sectioned.