Yay! I'm not going to ever live in a nursing home
GoatOnFire
Veteran
Joined: 22 Feb 2007
Age: 37
Gender: Male
Posts: 4,986
Location: Den of the ecdysiasts
Because I'm not going to live long enough...
http://www.dailymail.co.uk/health/artic ... onger.html
But for all you lifeaholics who wouldn't mind living into their 70s and 80s even if it means bedpans and applesauce, this is bad news for you if your AS makes it hard to make friends.
I guess the question is whether this is depressing news or good news.
_________________
I will befriend the friendless, help the helpless, and defeat... the feetless?
I do not want to end my days in a old folks home packed with NTs rotting away, I think that a old folks home for HFA and AS might be a better place. I do not know if such a place will ever exist.
_________________
Health is a state of physical, mental and social wellbeing and not merely the absence of disease or infirmity I am not a jigsaw, I am a free man !
Diagnosed under the DSM5 rules with autism spectrum disorder, under DSM4 psychologist said would have been AS (299.80) but I suspect that I am somewhere between 299.80 and 299.00 (Autism) under DSM4.
Hmmm....they don't say how much longer you get if you have lots of friends. And they don't examine the quality of health during the final years of life - that's crucial: if you go from good health to death fairly quickly, then you'll probably keep out of the old people's home, but if your health fails and you hang on for years, you'll most likely get incarcerated, unless you can persuade your friends to look after you at home, which suggests that NTs have the advantage. Then there's the AS problem about looking after ourselves.
I agree though, they're horrible places......seems very undignified to be expected to give up so many areas of independence. Then there's all those reports of the staff bullying and neglecting the clients. Dad used to say there was only one way he'd leave his home - in a box. He got that one right - died unexpectedly of heart failure.
Aren't I the one to bring the sun out today?
There is hope though - the care homes have probably cleaned up their act after numerous prosecutions, and I think the authorities often prefer to let people stay at home where it's reasonably safe to do that. I think it takes a lot for them to actually force somebody out against their will.
Best get practising those self-help skills and clean living before it's too late.
sinsboldly
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Joined: 21 Nov 2006
Gender: Female
Posts: 13,488
Location: Bandon-by-the-Sea, Oregon
I work with health insurance for the elderly and I am often nonplussed at the whole life time comprised of going to one doctor and another and the hospital and the skilled nursing facility and the hospice. Twenty, thirty years of it. Each one of these people could tell you why, of course, but I still can't fathom it.
"Hope I die before I get old" (My Generation The Who)
"Life is not measured by the breaths you take but by the moments that take your breath away."
--Anonymous
(according to my source, and since I can't remember where I found it/heard it first, I'll guess its that. If someone can find who said it and correct me, that would be great.)
So have fun with your life... that's more important anyway. And I don't want to live past when I can not take care of myself. I don't want to have to depend on other people in order to function. At that point I'd rather not continue to live.
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~Izzy
--Anonymous
(according to my source, and since I can't remember where I found it/heard it first, I'll guess its that. If someone can find who said it and correct me, that would be great.)
George Carlin.
And you quoted it correctly.
I hate nursing homes. it does not matter if they have nursing homes for people with As/autism nor nursing homes for NT's. Actually the nursing home for As/autism would be a lot worse, since because of the disability nature, it would be just as bad or even worse than the mental institutions, where they would treat people like ingrates and restrain people. i live in a residence for disabled people and it is pretty bad. They treat me like garbage. A nursing home would be a lot worse. the sad thing is I would feel unsafe because, since I live where i live, i get physically attacked by the autistic housemates now. In a nursing home, the people would be older, groggier and some would probably have Alzheimer's and/or dementia, where their aggressive behaviors because unmanageable, they may be more violent now, than they ever were. In my state, the state mental institution has a over 65 state nursing, specifically for developmentally disabled people and it is pretty bad. Most of the people are developmentally disabled, autistic, and/or mentally ret*d that either came from group homes, or were in the regular state institution all of their adult lives.
I am scared about what i would be like when i get older and I do not know the incidence of Alzheimer's and/or dementia in As/autistic people, yet, since there has not been a study about those things yet. hopefully, by the time I am old, they would have a cure for Alzheimer's. my grandmother died from it, and my dad has it, now.
KingdomOfRats
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Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK
http://www.dailymail.co.uk/health/artic ... onger.html
But for all you lifeaholics who wouldn't mind living into their 70s and 80s even if it means bedpans and applesauce, this is bad news for you if your AS makes it hard to make friends.
I guess the question is whether this is depressing news or good news.
am thought that humans were going to die before they get to old age now anyway [being the greedy fat lazy species that daily mail and so on like to complain about using up NHS funds],am do not have the wish nor the interaction and communication ability for friends and neither would want to live to a very old age,and have less quality of life than do have already,people who get to very old age and not get one of the big life wasting diseases are very lucky.
old HFAuties and Aspies whom have full time care needs carry on living in regular LD/DD/specialist residential care,only moving to nursing homes if the service and home they are in cannot cope with the nursing needs they have.
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>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!
Even young people can end up in nursing homes though, like if they have a stroke or a head injury or some other serious accident which means they can no longer be cared for at home (a nursing home is cheaper than 24 hour nursing care in the home). I work at a rehab hospital, and we have plenty of younger people who go to nursing homes after they leave us.
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Not all those who wander are lost... but I generally am.
I don't ever want to get so old that I can't look after myself.
If I ever start getting to that stage, I think I will be going a little too fast over a drop that's a little too high while mountain biking. (If you get what I mean there....)
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'You're so cold, but you feel alive
Lay your hands on me, one last time' (Breaking Benjamin)
Who knows if we'll be so indifferent to dying before old and sick age when the time comes. I can't be sure I won't change my mind till then.
_________________
So-called white lies are like fake jewelry. Adorn yourself with them if you must, but expect to look cheap to a connoisseur.
I work in adult social care, and I can confirm that - even if it's sometimes suspected to be purely because it's cheaper - the authority will try and keep the person in their own home (perhaps with a home care service visiting to assist them) for as long as they can before placing them in full-time residential care. There have even been incidents where the person wished to go into a residential home, but the authority insisted on assessing them as being capable of looking after themselves. So although this latter is not a good thing, it is quite safe to say that you are more at risk of not being able to secure a care home place when you do want one, than being forced into one that you do not.
I believe that they are actually legally unable to place someone in residential care against their will. Unless a doctor declares them to be psychologically unable to make rational decisions and they are sectioned.
Best be careful with those meltdowns, then, folks. Thanks, Hovis - it's reassuring to know we're relatively safe. It must be horrible for an Aspie to lose their autonomy so profoundly.
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