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Jetgirl
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22 Jan 2006, 8:47 am

Hi everyone,

I am so grateful for WP. I've only been here a couple of days, mostly reading, the information is so reassuring. I have a diagnosed child with AS. I know AS is believed to be genetic, I know other family members are affected, what scares me now is. ... Should I get diagnosed? (I know I have it) Is it important? I worry I'm not teaching my kids everything they need to know, and I don't even know it!

Anyone in these shoes?

Thanks

Jetgirl



MsTriste
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22 Jan 2006, 4:19 pm

Welcome Jetgirl. Your question does not have an easy answer. There are many people here who have diagnosed themselves with AS (I'm one of them). There are a lot of these self-diagnosed people who have said they will not get an official diagnosis, for a variety of reasons. I am going for a formal diagnosis this week, in part because I want to know definitely (needing to know the answer to something is one of my aspie traits) and partly because I'm having issues with my employer around discrimination.

Getting a diagnosis won't necessarily help your child, although, depending on where you live, it could help you access services such as seeing a psychiatrist.



Jetgirl
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22 Jan 2006, 6:00 pm

Hey Aylissa,

Thanks for the feed back. My son R is diagnosed, you're right, I needed that to get him the help he needs in school. During the diagnosis I heard terms like neurological damage, he is compensating with other areas of his brain. R is gifted and shows some extraordinary gifts. It just hit me hard that since Asperger's is the story of my life, perhaps I should be worried about co-morbid conditions. I'm self employed and a stay at home Mom, I could go merrily along with anything official but..

Am I brain damaged? You know the saying "if you think you're crazy, you're probably not" because you've had these thoughts. I don't have those thoughts but maybe it's because I am. The private diagnosis we got for my son was expensive. I'd hate to go through that to find I have AS. I guess these are questions for a psychologist. I do feel overwhelmed sometimes, but doesn't everyone? What is normal? I think I'll ponder that for awhile.

Thanks for sharing your reason.

Jetgirl



ster
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23 Jan 2006, 7:27 am

relax there, jetgirl :wink: things will be ok...everything seems overwhelming at times.....there are plenty of aspergers tests online that can at least get you started.......although i can't seem to find the link to the one both hubby and son took



JsMom
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24 Jan 2006, 8:30 am

Jetgirl,

You are NOT brain damaged! IMO Aspies are just wired differently, certainly not brain damaged.

As for getting an official "label," if you don't really need one, why get it. I can see why Aylissa might need one, but if there is no benefit why lay out the money? I might be NT or I might be AS, but I find as adults, we've all got our hang ups. Best to just go on our merry way and live life as happily as we can.


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A foolish consistency is the hobgoblin of small minds. ~ Ralph Waldo Emerson


Bland
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25 Jan 2006, 1:51 am

I found that because of my own quirks, I understood my son better. Many times I instinctively know how to deal with him. This is a big bonus. I will probably never seek a Dx because I can't really see a good reason to do so. For the most part, I function pretty well, now. It's just hard being misunderstood all of the time.


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ster
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26 Jan 2006, 6:38 am

diagnoses can be costly too....spent about $1500 on son's



momofanspie
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26 Jan 2006, 7:15 am

Hi jetgirl,

I know I ended up dx when I was with my son's doctor. When they did the family history, he suspected I was and asked if I would take the same evaluation as my son and I did. He ended up not charging me since I was in with the visits with ds. I was lucky. I actually got a 2 for 1 price :D
It only helped me to understand why I am the way I am and it made my son feel he wasnt alone so to me it was helpful for him mostly.