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Feralucce
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17 Mar 2014, 3:53 pm

lostonearth35 wrote:
Most adult aspies just want to be who we are and don't want a "cure", but many parents with autistic or aspergic kids want their kids to stop having meltdowns, be able to socialize, and just generally be "normal". Autism Speaks is brainwashing the parents into believing that their children need a "cure" no matter how dangerous it could be, and it doesn't want children to be vaccinated despite no true evidence that vaccines cause autism. They want parents to believe their kids will become serial killers from their lack of empathy although most autistic and aspie people become victims instead of victimizers. The want to keep success stories about real people, famous people who are geniuses, inventors, artists, actors and musicians, away from the public and sensationalize the negativity.

Back in medieval times people with epilepsy were burned at the stake, and they thought Jewish people were evil witches and warlocks because they actually bathed. It wasn't that long ago homosexuality was believed to be a mental illness and that all gay men were pedophiles. Children who were left-handed were called stupid and eternally dammed and forced to use their right hand with their left one tied behind their backs. Nothing has changed. Nothing. :x


Thing is... curing adults wouldn't do much for us. I discuss that HERE


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mike_br
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16 Apr 2014, 9:32 am

lostonearth35 wrote:
Most adult aspies just want to be who we are and don't want a "cure", but many parents with autistic or aspergic kids want their kids to stop having meltdowns, be able to socialize, and just generally be "normal".


I don't know where this "most" comes from.
Myself, I'd take a cure any day of the week. Moreover, if I had children (I don't and I won't), I'd hate for them to have the same life that I've had.

So, I suppose I should speak from another point of view.

Btw, I also hate this AS vs NT thing. Calling NTs as an entity is about as stupid as calling all women fragile and such... no respect for individuality.

Last, I'd rather be among "NTs" than among a bunch of self pompous "proud pseudo-autistic" group.

That's it, I guess. Just took the quote as an example, it's not directed to any specific individual, but it is my honest opinion.

In conclusion, my only problem with this enterprise (Autism Speaks) is the Money grabing aspects. I'm ok with all the rest, until the day they start kicking at your doors and forcing you to do anything... but that won't happen.



Bodyles
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17 Apr 2014, 2:57 am

mike_br wrote:
lostonearth35 wrote:
Most adult aspies just want to be who we are and don't want a "cure", but many parents with autistic or aspergic kids want their kids to stop having meltdowns, be able to socialize, and just generally be "normal".


I don't know where this "most" comes from.
Myself, I'd take a cure any day of the week. Moreover, if I had children (I don't and I won't), I'd hate for them to have the same life that I've had.

So, I suppose I should speak from another point of view.

Btw, I also hate this AS vs NT thing. Calling NTs as an entity is about as stupid as calling all women fragile and such... no respect for individuality.

Last, I'd rather be among "NTs" than among a bunch of self pompous "proud pseudo-autistic" group.

That's it, I guess. Just took the quote as an example, it's not directed to any specific individual, but it is my honest opinion.

In conclusion, my only problem with this enterprise (Autism Speaks) is the Money grabing aspects. I'm ok with all the rest, until the day they start kicking at your doors and forcing you to do anything... but that won't happen.


That's why I much perfer the term 'allistic' as it's more descriptive, more inclusive, and best of all based on being the ooposite of the word autistic.

I don't even understand what this notion is that having an overabundance of neurological connction constitutes something that can or should be cured.
It'd be like having part of what makes me myself ripped out.

Yeah, it's loud in my head, my senses cause trouble, and there are a whole host of ways I'm less than fully functional, but that's all part of who I AM.
How can you call wiping out a huge portion of a person's identity a cure for anything?
Why would you want that for yourself?
Do you really hate who you are so much that'd you'd give it up just to be more like the majority?
That's both scary & sad, if you ask me.



aghogday
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17 Apr 2014, 12:02 pm

Well the issue is..

Autism is much more complex than what we see of it expressed on this site..

Some of the underlying causal factors that lead to the current loose description
of difficulties in reciprocal social communication..DEFINED AS AUTISM..in the DSMIV and NOW 5...
are definitely life threatening..and must be cured..if at all possible..for anyone who
has even a nuance of COGNITIVE empathy iN their being..TO UNDERSTAND THE REAL NEEDS OF OTHER
FOLKS UNLIKE THEM!

But sadly often..there is NONE OF THAT HERE..PER AND FOR those folks like my child
who died with a genetic condition associated as causal factor for this reciprocal
social communication disorder after a life of TOTAL AND UNRELENTING SUFFERING
AND MISERY..WITH PLENTY OF DOCUMENTED SCIENTIFIC EVIDENCE TO BACK THAT
UP..2!

AUTISM SPEAKS IS NOT CONCERNED TOO MUCH WITH THE TYPE OF AUTISM THAT
IS NON-LIFE THREATENING FOR HUMAN SUFFERING..IN REAL LIFE MEDICALLY DOCUMENTED
HEALTH RELATED CAUSAL DISORDERS..LIKE FRAGILE X SYNDROME..AND IN THE CASE OF MY
CHILD 22Q11 CHROMOSOMAL DELETION SYNDROME....

AND by the way..FRAGILE X SYNDROME is 5% of all Autism Spectrum cases..two and a half times as many as reported for females with the Asperger's flavor of Autism in the US..at around 2%..and males at around 7%..closing in on tie in that MALE gender demographic of Asperger's syndrome flavored Autism....

AND THERE IS ALSO A FORM OF PKU DISORDER..THAT IS LIFE THREATENING THAT IS A SOLE CAUSE OF AUTISM AS WELL..REFERENCED HERE..IN PEER REVIEWED STUDY...

http://www.ncbi.nlm.nih.gov/pubmed/12757360

These folks are TOTALLY DISMISSED AS NON-EXISTENT IN THESE DISCUSSIONS..
ABOUT 99% OF THE TIME UNLESS I BRING IT UP..WITH NEVER A RESPONSE..OF YAH..OR
NAH...

BUT YES !THEY EXIST IN SAME NUMBERS..AND THEIR BALANCE IN ENJOYING LIFE IS AS
IMPORTANT AS ANY ONE'S LIFE IN THIS WORLD..REGARDLESS IF THEY AREN'T SMARTY
PANTS LIKE some of the folks 'THINK' they are here...

But rather than going into TOO MUCH detail here..

Here is that at the link here..

http://katiemiaaghogday.blogspot.com/20 ... ho-is.html

Expressed as such as scientist..with that hat on..

instead of poet..that goes so much farther

than MOST scientistS ever could imagine..

Except enlightened ones..!

Like Einstein..Steve Jobs..and folks like them...
and me..
2...;)
FORTUNATE AND BLESSED..HUMBLY
SO
AM
i...
2

who have autistic qualities..simply as with WHOLE in brain..SUPER FUNCTION...

rather
than
half....

BUT YES..OF COURSE...Words of wisdom easier to experience..

than
gain..by
a
way....
ALONE
WITHOUT
OPEN MIND
TO ENTER INTO
MORE!
OF
WHOLE BRAIN FOR SUPER FUNCTIONAL
WAY
OF
LIFE!
INCLUDING body movement..all of heart..
soul..spirit..and beyond for what is possible
for
TOTAL HUMAN POTENTIAL
ALLONE
WITH TOTAL
POWER AND BEING
THAT
CAN
BE
HUMAN

AS
such
unfortunately
it seems
for
some...:(WITHOUT THIS FULL EXPERIENCE OF BRAIN ..HEART..AND LIFE..OVERALL..

i want more..FOR OTHERS..and i try to help

but it takes a sparKE!

not knowledge..
to GAIN...

True knowing is instinctual

not learned NOW..so much....
as is in our culture..
NOW..
overall..

the answers are only hidden..
for those who do not
seek
and
remember!
in emotion and movement and energy experienced moreover

than
verbal or other symbolic thought....

But FOR those who repress OR ARE OPPRESSED FOR this part of human existence..for all practical intents
and purposes it does not exist...
and who knows..perhaps there are biological reasons where SOME cannot
and never will...

but GOD never said GOD is FAIR..

as far as i KnowNOW!
:)

But i have hope..

that makes the ALL THE DIFFERENCE
FOR ME..AND WILL THAT NEVER EVER NEVER
CEASES..FOR SURVIVAL..THE BEST GIFT FROM
'GOD' OF
ALL..
THE ONE THAT IS ALL...
ITIS...

http://katiemiaaghogday.blogspot.com/20 ... ho-is.html

BY A WAY..

have a NICE DAY!

SINCERELY..:)


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