Recommended Reading on AS/Parenting

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SuperTrouper
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27 Nov 2011, 12:09 pm

Just a poem from my head not long ago...

If I had a way to tell you
With my words then I would say
First and foremost that I love you
I’d tell you every single day.

I’d tell you how much it pains me
To whine and scream and fight,
But that I can’t seem to help myself,
In this world so loud and bright.

I’d tell you that inside my head,
There’s so much that I know,
Math and words and music,
But I just don’t know how to show.

I’d tell you how very much
A part of your world I wish to be.
But that there’s just too much going on
To join in your games, for me.

I’d tell you that I’m in here!
This, I want to scream and shout.
I’d tell you that I’m a person, too,
Of this I have no doubt.

And I’d tell you, don’t give up on me!
I have such a future bright.
But only if you believe in me,
And keep it in your sight.

I’d tell you how much more to me
Than autism wants to come through.
I have interests and desires,
I’m just waiting to show to you.

I’d tell you that I know things,
That you would never guess.
Not by voice, but hands and body,
This is how I express.

I may never speak your language,
But if you can learn mine,
I will tell you, tell you, tell you…
I tell you all the time.



Buckeyemom2
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28 Nov 2011, 8:38 pm

This recommendation will appear in probably many of my posts, but here it is:

For Parents trying to deal with the IEP Process!! !! !
The name of the book: HOW WELL DOES YOUR IEP MEASURE UP?

by: Diane Twachtman-Cullen, Jennifer Twachtman-Reilly

THIS IS A FABULOUS BOOK! It teaches parents and educators exactly how an IEP should be worded and planned for any child on the Autism Spectrum. I can't tell you how empowered it has made me feel and it is a quick, easy to understand resource!

Best wished to all of you!



d057
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21 Dec 2011, 11:49 am

I posted a blog about it. You can view it here:

http://dwarren57.wordpress.com/2011/12/ ... -that-kid/


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MamaRainbow
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14 Apr 2012, 9:04 pm

"All Cats Have Aspergers Syndrome" so puts everything in perspective. I cried when I read it. As a Mom and trying to help others understand my son. this book is awesome!



StarTrekker
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07 May 2012, 12:22 am

AspergerFiction wrote:
Asperger Diaries: Jamie's New School

Ebook available FREE in most popular ereader formats from Smashwords:
http://www.smashwords.com/books/view/106984

Fictional diary of Jamie (and his mother and sister) as he is about to start at senior school. No one realises that Jamie has Asperger's Syndrome - that is all about to change.


I read this book, it's really good. Not really a how-to guide, just a fictional story, but the plot is interesting, the characters are well-written and believable (except maybe Jamie's mom; she seems way too calm in some fairly stressful situations at times). The author did a great job of portraying Jamie's AS believably and in a neutral way (not condescending his problems or excessively praising his talent), I got it a week ago and have already read it twice. I'm really hoping for a sequel, but it was written last year (2011) so one might not be immediately forthcoming. At any rate, I highly recommend it.


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goofywhitewolf
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25 May 2012, 10:04 pm

Hi, were you just refering to parents? I was just kinda browsing and I found this blog. I have pdd-nos and I think that ,"Thinking in Pictures: My life with Autism" By Temple Grandin.

I find that this book since its from a persceptive of a successful person with autism and I can relate with some of her issues, that the book is encouraging. Also hopefully maybe parents or just anyone can try to understand what it's like.

Ex- When I was younger, I did the hearing test. Honestely it was just weird with the random beeps and lights. Anyway my results were completely normal but even when I pay attention to people some words just change into the most random and unrelated topics.



Dmarcotte
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26 May 2012, 6:50 pm

Wow - there are a lot of really good books listed here. I didn't see a consolidated list though so I am posting the list here in alphabetical order. If someone wants to take this list and make it pretty, feel free.

1. A mind at a Time by Mel Levine
2. All Cats have Asperger Syndrome
by Kathy Hoopmann
3. Anything But Typical
4. Asperger Syndrome And Difficult Moments: Practical Solutions For Tantrums, Rage And Meltdowns by Brenda Smith Myles; Jack Southwick
5. Asperger Syndrome, the Universe and Everything
by Kenneth Hall (10 years old)
6. Asperger's Answer Book: The Top 275 Questions Parents Ask
by Susan Ashley PhD
7. Asperger's Syndrome and the Elementary School Experience, by Susan Thompson Moore
For helpful tips on classroom behavior and more
8. Asperger's Syndrome Guide for TEENS & YOUNG ADULTS Thriving (not Just Surviving)" by Craig Kendall?
9. Asperger's: What Does It Mean to Me?
by Catherine Faherty
This is a workbook that parents do WITH their Asperger's child.
10. Aspergirls: Empowering Females with Asperger Syndrome by Rudy Simone
11. Baby Talk by Dr Sally Ward
12. BORN ON A BLUE DAY by Daniel Tammet's
13. Building Bridges through sensory integration by Paula Aquilla, Shirley Sutton, & Ellen Yac
14. Can I Tell You About Asperger Syndrome?: A Guide for Friends and Family
by Jude Welton
15. Children the Challenge by Rudolf Dreikurs, M.D.
16. Complete Guide to Aspergers Syndrome Tony Attwood's
17. Hitchhiking Through Asperger's Syndrome, by Lisa Pyles
For a mother's point of view
18. Horse Boy by Rupert Isaacson
19. How to Be a Friend: A Guide to Making Friends and Keeping Them by Laura Krasny Brown and Marc Brown (of the Arthur books)
20. HOW WELL DOES YOUR IEP MEASURE UP? by: Diane Twachtman-Cullen, Jennifer Twachtman-Reilly
21. Just Give Him the Whale" by Kluth
22. Like Color to the Blind by Donna Williams
23. Look Me in the Eye" by John Elder Robison
24. Lost at School by Ross Greene Positive, pro-kid plans for kids struggling at school. I wish every teacher and principal could read this.
25. --Marcelo In The Real World – novel from the point of view of someone who has aspergers
26. My Brother Charlie* by Holly Robinson Peete and Ryan Elizabeth Peete
27. nobody, nowhere" by Donna Williams
28. Parallel Play: Growing Up With Undiagnosed Aspergers, by Tim Page
29. Parent Effectiveness Training by Dr. Thomas Gordon
30. Parenting a Child With Asperger Syndrome: 200 Tips and Strategies" by Brenda Boyd
31. Parenting your Asperger Child: Individualized Solutions for Teaching Your Child Practical Skills" by Alan Sohn, Ed.D., and Cathy Grayson, M.A.
32. Pretending to Be Normal: Living With Asperger's Syndrome
by Liane Holliday Willey
33. Quirky Kids: Understanding and Helping Your Child Who Doesn't Fit In. When To Worry and When Not to Worry" by Dr. Perri Klass
34. Quirky, Yes---Hopeless, No: Practical Tips to Help Your Child with Asperger's Syndrome Be More Socially Accepted by Cynthia La Brie Norall
35. Send in the Idiots by Kamran Nazeer
36. Smart but Scattered is a good one on executive skills. Peg Dawson & Richard Guare
37. Socially Curious and Curiously Social: A Social Thinking Guidebook for Teens & Young Adults with Asperger’s, ADHD, PDD-NOS, NVLD, or other Murky Undiagnosed Social Learning Issues" written by Michelle Garcia Winner and Pamela Crooke
38. Speak Up and Get Along, by Scott Cooper
39. Ten Things Every Child with Autism Wishes You Knew by Ellen Notbohm
40. The Complete Guide to Asperger's Syndrome by Tony Attwood
41. The Curious Incident Of The Dog In The Nighttime – novel from the point of view of someone who has aspergers
42. The Explosive Child by Ross W. Greene, Ph.D
43. The Trouble With Boys by Peg Tyre
44. The Way I See It: A Personal Look At Autism And Aspergers
45. Women From Another Planet?: Our Lives in the Universe of Autism by Jean Kearns Miller
46. You are a Social Detective by Michelle Garcia Winner and Pamela Crooke


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allie1976
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02 Jun 2012, 9:04 pm

Years ago when my son was first diagnosed I really found Autism: Explaining the Enigma by Uta Frith very helpful. I desired some scientific research on the subject as I was looking for answers and this book provided it.

I also enjoyed There's a Boy in Here: Emerging from the Bonds of Autism by Judy and Sean Barron. This is a dual autobiography written in point-counterpoint style by Judy Barron and her son, Sean Barron. Together, they chronicle Sean’s young life and the effects of autism on him and his family.



Bombaloo
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02 Jun 2012, 10:31 pm

Dmarcotte - thank you for consolidating that list! Awesome!



McAnulty
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30 Jun 2012, 9:00 pm

More than Words : Helping Parents Promote Communication and Social Skills in Children with Autism Spectrum Disorders This is a fantastic book. It has made a huge difference in our lives. It is aimed at younger children, probably under 6. It is useful for young children of all skill levels, with clear guidelines of what type of communication you can expect from the level your child is at. The levels range from crying as the main form of communication all the way to children who are speaking more but perhaps still struggling with certain aspects of interactions or speech. It was amazing watching my son picking up all the skills I was reading about which a year ago I thought were so unlikely. I think there is now a second edition which is still More than Words but the second part of the title is different.



niksloter
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09 Jul 2012, 5:30 pm

Thanks Dmarcotte



nthabiseng
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20 Jul 2012, 6:02 pm

Hi - I'm a newbie - went through the first 5 pages (right up until I found DMARCOTTE'S beautiful alphabetical list) - here is a slighted edited version with some of the comments. I picked what seemed to be the most popular. Apologies - nothing on girls because I was making the list for me so I can learn more about how to engage with my new partner's 13 yo son - still thought it might be useful. Categories might be off - I haven't read anything yet!

GENERAL

• The Complete Guide to Asperger's Syndrome , by Tony Attwood I'm reading it at the moment and he says we don't lack empathy in the sense that we don't care about others, but we do have problems seeing things from other points of view. I think lol I'm enjoying it. Something I noticed is he says hand flapping typically disappears around 9 years of age in aspies, but that puzzles me because I still do it in private.

• Autism Physicians Handbook. best I have read in a while

GENERAL PARENTING

• I am finding "Parenting a Child With Asperger Syndrome: 200 Tips and Strategies" by Brenda Boyd to be the most helpful out of anything that I have read so far. She does not try to paint AS with rosey tones, she is honest while staying positive. Her attitude makes me feel less "bad" and more "normal" for being so frustrated at times.

• My favorite nonfiction book is A Parents Guide to Asperger Syndrome and High Functioning Autism This was the first book that talked about life as I knew it. I recommended it to everyone I knew who might want to understand my son better and my mother actually apologized to me after reading it, for not having "gotten it" before.

• "Quirky Kids: Understanding and Helping Your Child Who Doesn't Fit In. When To Worry and When Not to Worry" by Dr. Perri Klass. She's a pediatrician. As you can tell from its title, it has a pro-neurodiversity slant with an emphasis on helping rather than curing.

• Can I Tell You About Asperger Syndrome?: A Guide for Friends and Family, Jude Welton Very general and straight-forward. A quick, easy read. My son is reading this to his class.

• Asperger's Answer Book: The Top 275 Questions Parents Ask, Susan Ashley PhD
I really like this book for general, straight-forward info!!

• Asperger's: What Does It Mean to Me?, by Catherine Faherty This is a workbook that parents do WITH their Asperger's child. I am learning so much more about his quirks.

• Parent Effectiveness Training by Thomas Gordon. Both really helpful on a day-to-day

ANXIETY/INFLEXIBILITY/TANTRUS

• "Freeing Your Child from Anxiety." My kiddo has always been anxious, but the anxiety has gotten worse. This book really taught me WHY kids feel anxious and how adults can give them the tools to stop the anxious thought and replace it with more logical thoughts. It has worked really well so far. I feel like I understand him a lot better too! I'd recommend this book to anyone who has children with anxiety issues.

• What to do when your brain gets stuck, is geared for kids with OCD/anxiety by Dawn Huebner this has helped me know how to talk to my son about his OCD behaviors.

• Anything and everything by Temple Grandin, The Way I See It: A Personal Look At Autism And Aspergers

• Understanding and Helping Easily Frustrated, "Chronically Inflexible" Children. Brilliant book. Practical, positive parenting methods.

• Asperger Syndrome And Difficult Moments: Practical Solutions For Tantrums, Rage And Meltdowns, Brenda Smith Myles; Jack Southwick

• The Explosive Child, by Ross W. Greene, Ph.D.

SOCIALISATION

• Socially Curious and Curiously Social: A Social Thinking Guidebook for Teens & Young Adults with Asperger’s, ADHD, PDD-NOS, NVLD, or other Murky Undiagnosed Social Learning Issues" written by Michelle Garcia Winner and Pamela Crooke We have this one in our resource room for students, and it is dogeared from my Autism and Asperger's students borrowing it. It is funny and down to earth, written in Anime style.

• Speak Up and Get Along, by Scott Cooper. A great social skills book - my 11 year old loves it

• Quirky, Yes---Hopeless, No: Practical Tips to Help Your Child with Asperger's Syndrome Be More Socially Accepted by Cynthia La Brie Norall

• You are a Social Detective by Michelle Garcia Winner and Pamela Crooke has been a great help to me in coming up with ways to communicate with my first-grader daughter about what sorts of behaviors are "expected" and which are not.

• "The unwritten rules of friendship: simple strategies to help your child make friends"

• Incredible 5-Point Scale: Assisting Students with Autism Spectrum Disorders in Understanding Social Interactions and Controlling Their Emotional Responses by Kari Dunn Buron This is good for school and home. You will learn a lot about your child's own emotional regulation and what triggers it.


AUTOBIOGRAPHIC

• Anything But Typical, another fiction book from the perspective of someone autistic this book is incredible. My son's teacher gave it to us as a gift. I feel like I read so much non fiction about AS, sometimes it doesn't sink in after a while....but I love the fiction AS. I seem to take it in better and I am really getting inside the head of someone on the spectrum. It helps me understand my son better, and empathize/ Oh, I loved this book so much! It was the first time a fictional portrayal of someone with Autism really hit home for me. His relationship with his mom is very like mine with my son

• Freaks Geeks and Aspergers by Luke Jackson , This is a great book, written by a 13 year old boy with Aspergers. It gives a good insite to at least one boy's experience. One thing that I have learned is that all Aspergers kids are different and like and do different things. It was good to understand more of what my son might think about the world.

• Asperger Syndrome, the Universe and Everything, by Kenneth Hall (10 years old) My son loved this book!

• Ten Things Every Child with Autism Wishes You Knew by Ellen Notbohm A slim, quick read. Another really, really positive perspective on AS. I may just buy this for Christmas for our extended family members.

• Pretending to Be Normal: Living With Asperger's Syndrome, by Liane Holliday Willey, Tony Attwood (Foreword).

• Lost at School by Ross Greene Positive, pro-kid plans for kids struggling at school. I wish every teacher and principal could read this


Alpha order full list appended below - thanks to DMARCOTTE


1. A mind at a Time by Mel Levine
2. All Cats have Asperger Syndrome
by Kathy Hoopmann
3. Anything But Typical
4. Asperger Syndrome And Difficult Moments: Practical Solutions For Tantrums, Rage And Meltdowns by Brenda Smith Myles; Jack Southwick
5. Asperger Syndrome, the Universe and Everything
by Kenneth Hall (10 years old)
6. Asperger's Answer Book: The Top 275 Questions Parents Ask
by Susan Ashley PhD
7. Asperger's Syndrome and the Elementary School Experience, by Susan Thompson Moore
For helpful tips on classroom behavior and more
8. Asperger's Syndrome Guide for TEENS & YOUNG ADULTS Thriving (not Just Surviving)" by Craig Kendall?
9. Asperger's: What Does It Mean to Me?
by Catherine Faherty
This is a workbook that parents do WITH their Asperger's child.
10. Aspergirls: Empowering Females with Asperger Syndrome by Rudy Simone
11. Baby Talk by Dr Sally Ward
12. BORN ON A BLUE DAY by Daniel Tammet's
13. Building Bridges through sensory integration by Paula Aquilla, Shirley Sutton, & Ellen Yac
14. Can I Tell You About Asperger Syndrome?: A Guide for Friends and Family
by Jude Welton
15. Children the Challenge by Rudolf Dreikurs, M.D.
16. Complete Guide to Aspergers Syndrome Tony Attwood's
17. Hitchhiking Through Asperger's Syndrome, by Lisa Pyles
For a mother's point of view
18. Horse Boy by Rupert Isaacson
19. How to Be a Friend: A Guide to Making Friends and Keeping Them by Laura Krasny Brown and Marc Brown (of the Arthur books)
20. HOW WELL DOES YOUR IEP MEASURE UP? by: Diane Twachtman-Cullen, Jennifer Twachtman-Reilly
21. Just Give Him the Whale" by Kluth
22. Like Color to the Blind by Donna Williams
23. Look Me in the Eye" by John Elder Robison
24. Lost at School by Ross Greene Positive, pro-kid plans for kids struggling at school. I wish every teacher and principal could read this.
25. --Marcelo In The Real World – novel from the point of view of someone who has aspergers
26. My Brother Charlie* by Holly Robinson Peete and Ryan Elizabeth Peete
27. nobody, nowhere" by Donna Williams
28. Parallel Play: Growing Up With Undiagnosed Aspergers, by Tim Page
29. Parent Effectiveness Training by Dr. Thomas Gordon
30. Parenting a Child With Asperger Syndrome: 200 Tips and Strategies" by Brenda Boyd
31. Parenting your Asperger Child: Individualized Solutions for Teaching Your Child Practical Skills" by Alan Sohn, Ed.D., and Cathy Grayson, M.A.
32. Pretending to Be Normal: Living With Asperger's Syndrome
by Liane Holliday Willey
33. Quirky Kids: Understanding and Helping Your Child Who Doesn't Fit In. When To Worry and When Not to Worry" by Dr. Perri Klass
34. Quirky, Yes---Hopeless, No: Practical Tips to Help Your Child with Asperger's Syndrome Be More Socially Accepted by Cynthia La Brie Norall
35. Send in the Idiots by Kamran Nazeer
36. Smart but Scattered is a good one on executive skills. Peg Dawson & Richard Guare
37. Socially Curious and Curiously Social: A Social Thinking Guidebook for Teens & Young Adults with Asperger’s, ADHD, PDD-NOS, NVLD, or other Murky Undiagnosed Social Learning Issues" written by Michelle Garcia Winner and Pamela Crooke
38. Speak Up and Get Along, by Scott Cooper
39. Ten Things Every Child with Autism Wishes You Knew by Ellen Notbohm
40. The Complete Guide to Asperger's Syndrome by Tony Attwood
41. The Curious Incident Of The Dog In The Nighttime – novel from the point of view of someone who has aspergers
42. The Explosive Child by Ross W. Greene, Ph.D
43. The Trouble With Boys by Peg Tyre
44. The Way I See It: A Personal Look At Autism And Aspergers
45. Women From Another Planet?: Our Lives in the Universe of Autism by Jean Kearns Miller
46. You are a Social Detective by Michelle Garcia Winner and Pamela Crooke

[b]



AaronWeintraub
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11 Aug 2012, 9:01 pm

What a fantastic List of resources, thanks! I would add my own book, The Spectrum Manifesto to the list :-)



DW_a_mom
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12 Aug 2012, 11:31 pm

The lists are missing the excellent book written by one of our members (tracker), "Congratulations! Your Child is Strange" available for download at ASDStuff.com


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dynamic1
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19 Aug 2012, 6:56 am

Thank you posters for such a comprehensive source of resources!



Momshecrazy
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08 Nov 2012, 12:51 pm

I just finished "Riding the Short Bus" by Laurel Duncan. It was very funny but also addressed the sadness that comes with the territory of autism. If you ever read the "Girlfriend's Guide" books when you were pregnant or your kids were little, you get the idea. It was such a relief to read that there are other parents who feel lonely and sad and overwhelmed -- but also laugh at the absurdity that is having a kid on the "A Team."