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BuyerBeware
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16 Jul 2013, 12:51 am

No SSI for me, but I am going to have to do something about finding a job soonish.

I have 4 years until the baby goes to school, then I have to be doing something or risk madness.

I am very, very, very afraid of looking for a job. I'm reasonably high-functioning. I need to be told what to do for longer than most new hires before I catch on. I stress out a little too easily. Mostly I don't make small talk, and there's something "off" that no one can put their finger on.

That was enough to make me the target of harassment in my last job (waitressing, 12 years ago now).

I'm terrified that I won't be able to get, much less keep, a job...

...but I will think of something. Somehow. I want nothing to do with SSI unless my choices are to get it or watch my kids starve.

Even then, I think there's a good chance that I'd find an alternative, or kiss the kids goodbye, put them in foster care, and go live in a hollow tree somewhere.

I want absolutely nothing to do with their goddamn system. I have already been labeled, belittled, and beaten down enough, thank you.


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chris5000
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16 Jul 2013, 12:58 am

Sweetleaf wrote:
nick007 wrote:
If you could get on SSI you'd automatically get Medicaid too least that's how it is in Louisiana when I got SSI. None of the docs in my area would accept Medicaid so it was usueless for me except for perscriptions but that's another topic. But yeah the system sux. You need medical evidence that you need finachial or medical help due to a medical/mental thing but you cant afford to see docs & get the medical documentation unless you already have medical insrance or finachial assistance. Another catch22.

Like others in this thead on SSI my parents didn't want me to get on it either because they wanted me to be get a job & be self-suffiant instead of depending on a system they felt I didn't need to be on. After trying to get a job for a couple years with no luck & getting no suuport from Voc rehab excpet for getting toldI need to keep trying & asserting myself; my parents approved of me getting on it because they didn't want to have to keep paying for all my expenses. I got on SSDI after I lost my 3rd jjob which was my last. My parents wished I would of been working ever sense I got on it but I moved accorss the country to be with my girlfriend so it doesn't matter how my parents feel about me being on SSDI instead of working. I do plan to look for a job here after after afew more things get taken care of. It's kind of boring staying home alot, working would help me grow more & I know I am worth more than the $837 a month I get; I just need a chance to prove it but I always had a hard time getting that.



Yeah I think SSI would qualify me for medicaid, but apparently I might be getting on Medicaid before I get that as I am on a waiting list for it. I have quite a lot of documentation now, I went from just having some records from therapy about my condition to being in the hosptial twice and seeing a neuropsychologist since I've applied...I have also tried more medications and such so I have quite a lot of evidence in my favor. The way its going I'll end up in the psych ward again before I get SSI due to all the unrelenting stress, anxiety and depression not to mention the financial stress of hospital/ER bills I can't pay until I get on medicaid.

Luckily neither of my parents are pushing getting a job or any of the things I can't do because of my condition and aren't oppose to me applying. It will be a long time before I am even going to consider looking for work...first I need some kind of improvement which medicaid and SSI would help greatly with. I would be grateful for $500 a month or less because at least it would be something.


have you tried talking to the billing to get your bills reduced? hospitals tend to be very flexible



WestBender84
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16 Jul 2013, 11:12 pm

nick007 wrote:
Sweetleaf wrote:
My parents wished I would of been working ever sense I got on it but I moved accorss the country to be with my girlfriend so it doesn't matter how my parents feel about me being on SSDI instead of working. I do plan to look for a job here after after afew more things get taken care of. It's kind of boring staying home alot, working would help me grow more & I know I am worth more than the $837 a month I get; I just need a chance to prove it but I always had a hard time getting that.


I emphasized the "$837 a month" because that is only $100 less than I make each month working nearly full-time (39 hours weekly) at Pizza Hut. So if I need to reduce the hours I work to earn full SSI payments, then presuming half-time work with the $837, I'd make almost $1,400 monthly or $16,800 yearly before taxes. Some of that could go into stocks, but I have to make sure I low-ball the amount I tell my parents what I'm making or they might want most of the difference.


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nick007
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17 Jul 2013, 12:12 am

WestBender84 wrote:
nick007 wrote:
Sweetleaf wrote:
My parents wished I would of been working ever sense I got on it but I moved accorss the country to be with my girlfriend so it doesn't matter how my parents feel about me being on SSDI instead of working. I do plan to look for a job here after after afew more things get taken care of. It's kind of boring staying home alot, working would help me grow more & I know I am worth more than the $837 a month I get; I just need a chance to prove it but I always had a hard time getting that.


I emphasized the "$837 a month" because that is only $100 less than I make each month working nearly full-time (39 hours weekly) at Pizza Hut. So if I need to reduce the hours I work to earn full SSI payments, then presuming half-time work with the $837, I'd make almost $1,400 monthly or $16,800 yearly before taxes. Some of that could go into stocks, but I have to make sure I low-ball the amount I tell my parents what I'm making or they might want most of the difference.
When I had my 1st job I wa only making just alittle over minimum wage & was working alittle less than that on adverage. I didn't come out ahead by working because $1 of my SSI got reduced for every $2 I made before taxes. I gave my parents more money because they were brining me to & from work because I cant drive & there wasn't any public trasportation. I worked becauseI wanted to better myself. only came out ahead by working at my 2nd job when they let me work over-time. Least what working allowed me to be on SSDI now & that program is alittle better.

I think one of the reasons why some of us get on SSI is because we're ,ore apt to have probelms in school or our childhood because of our AS or our comorbids. Getting bullied alot, getting in trouble for things like misunderstanding or being uninteninally rude, problems with leanring due to things like dyslexia, ADHD orsensory overloads can really discurage us from going to college(it did for me) & some don't graduate high-school. Limited education limits employment options.


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17 Jul 2013, 3:03 am

ToughDiamond wrote:
Not yet but I'm working on it.......I would appear to pass what they call the "cooking test" for Disability Living Allowance but so far all they'll say is "you do not need help to cook a main meal" :? Fact is, I couldn't cook a main meal to save my life. Curiously, on their reply it clearly says that if I want a full explanation of why they have come to this conclusion, all I have to do is request one. But when I did request one, they replied (eventually) to say that there was no information about that and that the next step would have to be an appeal.......but how can I knock holes in their case when they won't tell me why they made that decision? All they seem able to say is that I can't have any money, with no detail at all. :evil: Everything they say would seem designed to demoralise and discourage the applicant.

They've also insisted on repeatedly trying to contact me by phone in spite of my express instructions that my preferred mode of communication is in writing. :lol: If these people understand Aspergers' Syndrome, I'll eat my shorts. I'd write again telling them what I think of their performance, but I don't want to go and blurt anything out that could affect my case adversely, and the Citizen's Advice Bureau is virtually impossible to contact these days. The system isn't working. :evil:


That's why you need an attorney versed in Social Security and developmental disability law. Check your local bar association for attorneys that will do this pro-bono, or on a no-pay basis if you lose, provided you have any funds.


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nick007
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17 Jul 2013, 11:05 am

Meistersinger wrote:
ToughDiamond wrote:
Not yet but I'm working on it.......I would appear to pass what they call the "cooking test" for Disability Living Allowance but so far all they'll say is "you do not need help to cook a main meal" :? Fact is, I couldn't cook a main meal to save my life. Curiously, on their reply it clearly says that if I want a full explanation of why they have come to this conclusion, all I have to do is request one. But when I did request one, they replied (eventually) to say that there was no information about that and that the next step would have to be an appeal.......but how can I knock holes in their case when they won't tell me why they made that decision? All they seem able to say is that I can't have any money, with no detail at all. :evil: Everything they say would seem designed to demoralise and discourage the applicant.

They've also insisted on repeatedly trying to contact me by phone in spite of my express instructions that my preferred mode of communication is in writing. :lol: If these people understand Aspergers' Syndrome, I'll eat my shorts. I'd write again telling them what I think of their performance, but I don't want to go and blurt anything out that could affect my case adversely, and the Citizen's Advice Bureau is virtually impossible to contact these days. The system isn't working. :evil:


That's why you need an attorney versed in Social Security and developmental disability law. Check your local bar association for attorneys that will do this pro-bono, or on a no-pay basis if you lose, provided you have any funds.
I head they only get paid if they/you win & their fee is a certain percent of the backpay; I'm not sure if its 10 or 20%. The fee is the same set rate for them all regardless of weather they take up the case at the very end of the processs or from the begining so you may as well hire them sooner than latter if you think it will come to that.


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Oh, you can't help that, said the Cat: we're all mad here. I'm mad. You're mad.
How do you know I'm mad? said Alice.
You must be, said the Cat, or you wouldn't have come here.


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17 Jul 2013, 11:18 am

chris5000 wrote:
have you tried talking to the billing to get your bills reduced? hospitals tend to be very flexible


Not yet, but I am planning on it....making phone calls makes me really nervous though so I tend to procrastinate on it. When I am able to though I will and I will just explain I am waiting on medicaid maybe they can put a hold on the payments or whatever until I get it.


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nick007
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17 Jul 2013, 12:03 pm

Sweetleaf wrote:
chris5000 wrote:
have you tried talking to the billing to get your bills reduced? hospitals tend to be very flexible


Not yet, but I am planning on it....making phone calls makes me really nervous though so I tend to procrastinate on it. When I am able to though I will and I will just explain I am waiting on medicaid maybe they can put a hold on the payments or whatever until I get it.
I hate making calls too. Maybe it would help if you had someone else call for you. My dad briefly worked in a hosptital along time go doing something like records or data entry & he told me 1ce how someone from billing told him how the hospital would agree to very low long term payments(longer than people would likely live for) because the hospital didn't have much of a way of collecting especially when the paitents had little or no income. He said how one of the reasons they charge alot is because the lots who do pay or have insrance pay are also paying the cost for those who don't pay.. Medical bankrupsey is alot more common nowadays but I don't know anything about it but it's one more option to consider. I didn't know Medicaid was retoactive; I thouth they would only cover bills you get while on it & usually for anything special they have to be preapproved in order to get covered but the state I lived in till recently had know mst about had a much sh!ttier health care system than where I'm at now so your state probably works better than Louisiana


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But I don't want to go among mad people, Alice remarked.
Oh, you can't help that, said the Cat: we're all mad here. I'm mad. You're mad.
How do you know I'm mad? said Alice.
You must be, said the Cat, or you wouldn't have come here.


ravenloft68
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17 Jul 2013, 12:22 pm

I wonder if you get denied more if they see "Asperger" vs Autism. As if its considered not as "Bad" as autism. I consider myself to have mild autism, since the Asperger term is become obsolete. Also from what I understand, You get $1,060 a month for SSI. You can work part-time and earn up to $1,010 a month maximum.


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17 Jul 2013, 12:43 pm

ravenloft68 wrote:
I wonder if you get denied more if they see "Asperger" vs Autism....


Except that since the DSM-5 was published in May....there is no more Aspergers...it's "just" on the autism spectum.....(although my own psychiatrist believes this was a change made SOLELY for the advantage of the health insurance companies...as far as he's concerned-I have Aspergers.)



nick007
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17 Jul 2013, 12:44 pm

ravenloft68 wrote:
I wonder if you get denied more if they see "Asperger" vs Autism. As if its considered not as "Bad" as autism. I consider myself to have mild autism, since the Asperger term is become obsolete. Also from what I understand, You get $1,060 a month for SSI. You can work part-time and earn up to $1,010 a month maximum.
Maybe
You might be thinking of SSDI. The federal SSI rate is $710 a month & for every $2 you make from working before taxes $1 of your SSI gets reduced. If you make enough not to collect any SSI you stay in the system if you still have your disabilities & can get money if your income goes down or you lose the job.


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But I don't want to go among mad people, Alice remarked.
Oh, you can't help that, said the Cat: we're all mad here. I'm mad. You're mad.
How do you know I'm mad? said Alice.
You must be, said the Cat, or you wouldn't have come here.


chris5000
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17 Jul 2013, 5:51 pm

Sweetleaf wrote:
chris5000 wrote:
have you tried talking to the billing to get your bills reduced? hospitals tend to be very flexible


Not yet, but I am planning on it....making phone calls makes me really nervous though so I tend to procrastinate on it. When I am able to though I will and I will just explain I am waiting on medicaid maybe they can put a hold on the payments or whatever until I get it.

im in the same phone situation I have like 500$ in bills that need to be paid, my mom tried calling for me but they want to talk to me. I have been putting it off ever since



nick007
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17 Jul 2013, 8:21 pm

chris5000 wrote:
Sweetleaf wrote:
chris5000 wrote:
have you tried talking to the billing to get your bills reduced? hospitals tend to be very flexible


Not yet, but I am planning on it....making phone calls makes me really nervous though so I tend to procrastinate on it. When I am able to though I will and I will just explain I am waiting on medicaid maybe they can put a hold on the payments or whatever until I get it.

im in the same phone situation I have like 500$ in bills that need to be paid, my mom tried calling for me but they want to talk to me. I have been putting it off ever since
Maybe you could get your dad, male relative or male friend to pretend to be you or your mom could call again & say she has your permission & then maybe hand you the phone so you can verify; my mom has done that when calling on behalf of my grandpa for things.


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But I don't want to go among mad people, Alice remarked.
Oh, you can't help that, said the Cat: we're all mad here. I'm mad. You're mad.
How do you know I'm mad? said Alice.
You must be, said the Cat, or you wouldn't have come here.


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17 Jul 2013, 9:51 pm

This March I was approved under SSI's Autism listing in almost two months after my application. With the right amount of documentation, I did not need an appeal this second time. I was on SSI as a child too.


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Last edited by Lumi on 18 Jul 2013, 8:02 am, edited 1 time in total.

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18 Jul 2013, 3:16 am

nick007 wrote:
Meistersinger wrote:
ToughDiamond wrote:
Not yet but I'm working on it.......I would appear to pass what they call the "cooking test" for Disability Living Allowance but so far all they'll say is "you do not need help to cook a main meal" :? Fact is, I couldn't cook a main meal to save my life. Curiously, on their reply it clearly says that if I want a full explanation of why they have come to this conclusion, all I have to do is request one. But when I did request one, they replied (eventually) to say that there was no information about that and that the next step would have to be an appeal.......but how can I knock holes in their case when they won't tell me why they made that decision? All they seem able to say is that I can't have any money, with no detail at all. :evil: Everything they say would seem designed to demoralise and discourage the applicant.

They've also insisted on repeatedly trying to contact me by phone in spite of my express instructions that my preferred mode of communication is in writing. :lol: If these people understand Aspergers' Syndrome, I'll eat my shorts. I'd write again telling them what I think of their performance, but I don't want to go and blurt anything out that could affect my case adversely, and the Citizen's Advice Bureau is virtually impossible to contact these days. The system isn't working. :evil:


That's why you need an attorney versed in Social Security and developmental disability law. Check your local bar association for attorneys that will do this pro-bono, or on a no-pay basis if you lose, provided you have any funds.
I head they only get paid if they/you win & their fee is a certain percent of the backpay; I'm not sure if its 10 or 20%. The fee is the same set rate for them all regardless of weather they take up the case at the very end of the processs or from the begining so you may as well hire them sooner than latter if you think it will come to that.


The way my SSDI attorney explained it to me was they get 25% of your back pay up to a maximum of $6000.00. If 25% of your back pay is more than $6000.00 your attorney can only collect $6000.00 by law. He may collect for records fee, up to a maximum of $25.00 per record, also limited by law. It is up to the attorney to decide whether he will pass those counts back to you.

In addition, if you register for Ticket To Work, you can bypass the every 3 year physical and competency exams. The SSA STRONGLY encourages you to apply for that program, which is run in conjunction with your State's Office of Vocational Rehabilitation. The maximum you can earn right now, without jeapordizing you SSDI payments is $1014.00.

My attorney did mention that you can make an unlimited amount of money "under the table". You have to be careful, though, especially if you have private disability insurance, which have different rules, on what funds you can make while disabled. Check with your insurance carrier and your attorney regarding these points.


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